Working with families in palliative care: One size does not fit all

Journal of Palliative Medicine

Volumn 9, Issue 3, 2006, Pages 704-715

  King, Deborah A ^a,b   Quill, Timothy ^a  

^a UNIVERSITY OF ROCHESTER SCHOOL OF MEDICINE AND DENTISTRY   (United States)

^b UNIVERSITY OF ROCHESTER MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; CLINICAL ARTICLE; FAMILY RELATION; FAMILY SYSTEMS THEORY; FEMALE; HEALTH PRACTITIONER; HOSPICE CARE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MEDICAL EDUCATION; PALLIATIVE THERAPY; PROBLEM SOLVING; REVIEW; TERMINAL CARE;

AGED; AGED, 80 AND OVER; COMMUNICATION; DECISION MAKING; FAMILY RELATIONS; FEMALE; HEALTH SERVICES RESEARCH; HUMANS; MALE; OBJECT ATTACHMENT; PALLIATIVE CARE; PROBLEM SOLVING; PROFESSIONAL-FAMILY RELATIONS;

EID: 33745314442     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2006.9.704     Document Type: Review

References (56)

1. Rolland JS: Mastering family challenges in illness and disability. In: Walsh F (ed): Normal Family Processes, 3rd ed. New York: Guilford, 2003, pp. 460-489.
2. Rosen EJ: Families Facing Death: A Guide for Healthcare Professionals and Volunteers. San Francisco: Jossey-Bass, Inc., 1998.
3. Hanson LC, Danis M, Garrett J: What is wrong with end-of-life care? Opinions bereaved family members. J Am Geriatr Soc 1997;45:1339-1344.
4. Singer PA, Martin DK, Kelner M: Quality end-of-life care: Patients' perspectives. JAMA 1999;281:163-168.
5. Levine C, Zuckerman C: The trouble with families: Toward an ethic of accommodation. Ann Intern Med 1999;130:148-152.
6. Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfield GD: The family conference as a focus to improve communication in the intensive care unit: Opportunities for improvement. Crit Care Med 2001;29:N26-N33.
7. Lilly CM, De Meo DL, Sonna LA, Haley KJ, Massaro AF, Wallace RF, Cody S.: An intensive communication intervention for the critically ill. Am J Med 2000;109:469-475.
8. McDaniel SH, Campbell TL, Hepworth J, Lorenz A: Family interviewing skills in primary care: From routine contact to comprehensive family conference. In: McDaniel SH, Campbell TL, Hepworth J, Lorenz A: Family-Oriented Primary Care, 2nd ed. New York: Springer, 2005, pp. 90-104.
9. Rabow MW, Hauser JM, Adams J: Supporting family caregivers at the end of life: "They don't know what they don't know." JAMA 2004;291:483-491.
10. Wynne LC: The epigenesis of relational systems: A model for understanding family development. Fam Process 1984;23:297-318.
11. Kuczewski MG: Reconceiving the family: The process of consent in medical decisionmaking. Hastings Cent Rep 1996;26:30-37.
12. Carter B, McGoldrick M: Overview: The expanded family lifecycle. In: Carter B, McGoldrick M, (eds): The Expanded Family Lifecycle: Individual, Family, and Social Perspectives, 3rd ed. Boston: Allyn G. Bacon, 1999, pp. 1-26.
13. King DA, Kim S, Conwell Y: Family matters: A social Systems perspective on physician-assisted suicide and the older adult. Psychol Public Policy Law 2000;6:434-451.
14. McDaniel SH, Campell TL, Hepworth J, Lorenz A: Involving the family in daily practice. In: McDaniel SH, Campbell TL, Hepworth J, Lorenz A: Family-Oriented Primary Care, 2nd ed. New York: Springer-Verlag, 2005, pp. 54-71.
15. Seaburn DB, McDaniel SH, Kim S, Bassen D: The role of the family in resolving bioethical dilemmas: Clinical insights from a family systems perspective. J Clin Ethics 2004;15:123-134.
16. McDaniel SH, Lusterman DD, Philpot CL: Introduction to integrative ecosystemic family therapy. In: McDaniel SH, Lusterman DD, Philpot CL (eds): Casebook for Integrating Family Therapy. Washington, D.C.: American Psychological Association, 2001, pp. 3-17.
17. Rothchild E: Family dynamics in decisions to withhold or withdraw treatment. In: Steinberg MD, Youngren SJ (eds): End-of-Life Decisions: A Psychosocial Perspective. Washington, D.C.: American Psychiatric Press, 1998, pp. 77-107.
18. Rolland JS: Families, Illness, and Disability: An Integrative Treatment Model. New York: Basic, 1994.
19. Rolland JS: Helping families with anticipatory loss and terminal illness. In: Walsh F, McGoldrick M (eds): Living Beyond Loss: Death in the Family, 2nd ed. New York: WW Norton, 2004, pp. 213-236.
20. Haley WE, LaMonde LA, Hahn B, Burton AM, Schonwetter R: Predictors of depression and life satisfaction among spousal caregivers in hospice: Application of a stress process model. J Palliat Med 2003;6:215-224.
21. Keital MS, Zevon MA, Rounds JB Petrelli NJ, Karakousis C: Spouse adjustment to cancer surgery: Distress and coping responses. J Surg Oncol 1990;43:148-153.
22. Combrinck-Graham L: A developmental model for family systems. Fam Process 1985;24:139-150.
23. Jordan JR, Kraus DR, Ware ES: Observations on loss and family development. Fam Process 1993;32:425-440.
24. Ferrell BR: The family. In: Doyle D, Hands GWC, McDonald N (eds): Oxford Textbook of Palliative Medicine, 2nd ed. Oxford: Oxford University Press, 1998, pp. 909-917.
25. Hargrave TD, Anderson WT: Finishing Well: Aging and Reparation in the Inter generational Family. New York: Brunner/Mazel, 1992.
26. Knight BG, McCallum TJ: Psychotherapy with older adult families: The contextual, cohort-based maturity/specific challenge model. In: Nordhus IH, VandenBos GR, Berg S, Fromholt P (eds): Clinical Geropsyv Washington, D.C.: American Psychological Association, 1998, pp. 313-328.
27. Quails S: Therapy with aging families: Rationale, opportunities and challenges. Aging Mental Health 2000;4:191-199.
28. Shields CG, Wynne LC: The strength-vulnerability model of mental health and illness in the elderly. In: Hargrave TD, Hanna SM (ed): The Aging Family: New Visions in Theory, Practice, and Reality. Philadelphia: Brunner/Mazel, 1997, pp. 131-160.
29. Walsh F: Clinical views of family normality, health and dysfunction: From deficit to strengths perspective. In: Walsh F (ed): Normal family Processes: Growing Diversity and Complexity, 3rd ed. New York: Guilford Press, 2003, 27-57.
30. Walsh F, McGoldrick M (eds): Living Beyond Loss: Death in the Family, 2nd ed. New York: WW Norton, 2004.
31. King DA, Shields CG, Wynne LC: Family intervention and therapy with older adults. In: Sadock BJ, Sadock VA (eds): Comprehensive Textbook of Psychiatry, 8th ed. Philadelphia: Lippincott, Williams & Wilkins, 2005. pp. 3763-3769.
32. Kissane DW, Bloch S: Family Focused Grief Therapy: A Model of Family-Centered Care During Palliative Care and Bereavement (Facing Death). Philadelphia: Open University Press, 2002.
33. Weihs K, Reiss D: Family reorganization in response to cancer: A developmental perspective. In: Baider L, Cooper CL (eds): Cancer and The Family. Oxford, England: J Wiley & Sons, 1996, pp. 3-29.
34. Kissane DW: Psychosocial morbidity associated with patterns of family functioning in palliative care: Baseline data from the Family Focused Grief Therapy controlled trial. Palliat Med 2003;17:527-537.
35. Kissane DW, Bloch S, Onghena P, McKenzie DP, Snyder RD, Dowe DL: The Melbourne family grief study, II: Psychosocial morbidity and grief in bereaved families. Am J Psychiatry 1996;153:659-666.
36. Moos RH, Moos BS: Family Environment Scale Manual. Palo Alto, CA: Consulting Psychologists Press, 1981.
37. Olson DH, Portner J, Lave Y: FACES III Manual. St. Paul, MN: Family Social Science, 1985.
38. Shields CB, King DA, Wynne LC: Interventions with later-life families. In: Mikesell RH, Lusterman D-D, McDaniel SH (eds): Integrating Family Therapy: Handbook of Family Psychology and Systems Theory. Washington, D.C.: American Psychological Association, 1995, pp. 141-158.
39. King DA, Wynne LC: The emergence of "family integrity" in later life. Fam Process 2004;43:7-21.
40. David L: The use of terminal candor. In: Titelbaum P (ed): The Therapist's Own Family: Toward the Differentiation of Self. Northvale, NJ: Jason Aronson, 1987, pp. 279-299.
41. Nadeau JW: Meaning making in family bereavement: A family systems approach. In: Stroebe MS, Hansson RO, Stroebe W, Schut H (eds): Handbook of Bereavement Research: Consequences, Coping and Care. Washington, D.C.: American Psychological Association, 2001, pp. 329-347.
42. Neimeyer RA: Searching for the meaning of meaning: Grief therapy and the process of reconstruction. Death Stud 2000;24:541-558.
43. Hinton J: Sharing or withholding awareness of dying between husband and wife. J Psychosom Res 1981;25:337-343.
44. Lewis FM: The impact of cancer on the family: A critical analysis of the research literature. Patient Educ Couns 1986;269-289.
45. Shapiro ER: Grief as a Family Process: A Developmental Approach to Clinical Practice. New York: Guilford Press, 1994.
46. Back AL, Arnold RM, Quill TE: Hope for the best, and prepare for the worst. Ann Intern Med 2003;138:439-443.
47. McGoldrick M, Giordano J, Pearce JK: Ethnicity and family Therapy, 2nd ed. New York: Guilford Press, 1996.
48. McGoldrick M, Schlesinger JM, Lee E, Hines PM, Chan J, Almeida R, et al: Mourning in different cultures. In: Walsh F, McGoldrick M (eds): Living Beyond Loss: Death in the Family, 2nd ed. New York: WW Norton, 2004, pp. 119-160.
49. Blenkner M: Social work and family in later life, with some thoughts on filial mortality. In: Shanas E, Streib G (eds): Social Structure and the Family: Generational Relations. Englewood Cliffs, NJ: Prentice-Hall, 1965, pp. 46-59.
50. Williamson DS: Personal authority via termination of the intergenerational power hierarchy. J Marital Fam Ther 1981;7:441-452.
51. King DA, Bonacci DD, Wynne LC: Families of cognitively impaired elders: Helping adult children confront the filial crisis. Clin Gerontol 1990;10:3-15.
52. Qualls S: Realizing power in intergenerational family hierarchies: Family reorganization when older adults decline. In: Duffy M (ed): Handbook of Counseling and Psychotherapy with Older Adults. New York: J. Wiley & Sons, 1999, pp. 228-241.
53. Tilden VP, Tolle SW, Nelson CA, Fields J: Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nurs Res 2001;50:105-115.
54. Bloom BL, Naar S: Self-report measures of family functioning: Extensions of a factorial analysis. Fam Process 1994;33:203-216.
55. Epstein NB, Baldwin LM, Bishop DS: The McMaster Family Assessment Devise. J Marital Fam Ther 1978;9:171-180.
56. Shields CG, Franks P, Harp JJ, McDaniel SH: Development of the Family Emotional Involvement and Criticism Scale (FEICS): A self-report scale to measure expressed emotion. J Marital Fam Ther 1992;18:395-407.