Can we make reports of end-of-life care quality more consumer-focused? Results of a nationwide quality measurement program

Journal of Palliative Medicine

Volumn 14, Issue 3, 2011, Pages 301-307

  Smith, Dawn ^a   Caragian, Nicole ^a   Kazlo, Elena ^a   Bernstein, Jennie ^a   Richardson, Diane ^a   Casarett, David ^a,b  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONSUMER; EMERGENCY CARE; FAMILY; FAMILY ASSESSMENT OF TREATMENT AT END OF LIFE; HEALTH CARE QUALITY; HUMAN; INTERVIEW; LONG TERM CARE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PAIN; PALLIATIVE THERAPY; PATIENT CARE; TERMINAL CARE;

ADULT; AGED; AGED, 80 AND OVER; CONSUMER SATISFACTION; FAMILY; FEMALE; HOSPITALS, VETERANS; HUMANS; INTERVIEWS AS TOPIC; LOGISTIC MODELS; MALE; MEDICAL AUDIT; MIDDLE AGED; QUALITY ASSURANCE, HEALTH CARE; TERMINAL CARE; UNITED STATES;

EID: 79952285391     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2010.0321     Document Type: Article

References (29)

1. Berwick DM: A user's manual for the IOM's Quality Chasm Report. Health Affairs 2002;21:80-90.
2. Baker R, Wu AW, Teno JM, Kreling B, Damiano AM, Rubin HR, Roach MJ, Wenger NS, Phillips RS, Desbiens NA, Connors AF Jr, Knaus W, Lynn J: Family satisfaction with end-of-life care in seriously ill hospitalized adults. J Am Geriatr Soc 2000;48:S61-S69. (Pubitemid 30265997)
3. Patrick DL, Curtis JR, Engelberg, RA, Nielsen E, McCown E: Measuring and improving the quality of dying and death. Ann Intern Med 2003;139:410-415. (Pubitemid 38120868)
4. Tolle SW, Tilden VP, Rosenfield AG, Hickman SE: Family reports of barriers to optimal care of the dying. Nurs Res 2000;49:310-317.
5. Lynn J, Teno JM, Phillips RS, Wu AW, Desbiens N, Harrold J, Claessens MT, Wenger N, Kreling B, Connors AF Jr: Perceptions by family members of the dying experience of older and seriously ill patients. Ann Intern Med 1997; 126:97-106. (Pubitemid 27058583)
6. Somogyi-Zalud E, Zhong Z, Lynn J, Hamel MB: Elderly persons' last six months of life: Findings from the Hospitalized Elderly Longitudinal Project. J Am Geriatr Soc 2000; 48:S131-S139. (Pubitemid 30266005)
7. Hanson LC, Danis M, Garrett J: What is wrong with end-oflife care? Opinions of bereaved family members. J Am Geriatr Soc 1997;45:1339-1344. (Pubitemid 27497790)
8. Heyland DK, Dodek P, Rocker G, Groll D, Gafni A, Pichora D, Shortt S, Tranmer J, Lazar N, Kutsogiannis J, Lam M; Canadian Researchers End-of-Life Network(CARENET): What matters most in end of life care: perceptions of seriously ill patients and their family members. CMAJ 2006; 174:627-633. (Pubitemid 43341872)
9. Teno JM, Casey VA, Welch LC, Edgman-Levitan S: Patientfocused, family-centered end-of-life medical care: Views of guidelines and bereaved family members. J Pain Symptom Manage 2001;22:752-758.
10. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-2482.
11. Rhodes RL, Mitchell SL, Miller SC, Connor SR, Teno JM: Bereaved family members' evaluation of hospice care: What factors influence overall satisfaction with services. J Pain Symptom Manage 2008;35:365-371. (Pubitemid 351410458)
12. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG: Patients' perspectives on physician skill in end-of-life care differences between patients with COPD, cancer, and AIDS. Chest 2002;122:256-362.
13. Connor SR, Teno J, Spence C, Smith N: Family evaluation of hospice care: Results from voluntary submission of data via website. J Pain Symptom Manag 2005;30:9-17. (Pubitemid 41021674)
14. Higginson IJ, Donaldson N: Relationship between three palliative care outcome scales. Health and Quality of Life Outcomes 2004;2:1-8.
15. Mitchell SL, Teno JM, Kiely DK, Shaffer ML, Jones RN, Prigerson HG, Volicer L, Givens JL, Hamel MB: The clinical course of advanced dementia. N Engl J Med 2009;361:1529-1583.
16. Casarett D, Pickard A, Bailey FA et al.: Do palliative consultations improve patient outcomes? J Am Geriatric Soc 2008;56(4):593-599. (Pubitemid 351473505)
17. Casarett D, Pickard A, Bailey FA, Ritchie C, Furman C, Rosenfeld K, Shreve S, Shea JA: A nationwide VA palliative care quality measure: The family assessment of treatment at the end of life. J Palliat Med 2008;11:68-75.
18. Sulmasy DP, McIlvane JM: Patients' ratings of quality and satisfaction with care at the end of life. Arch Intern Med 2002;162:2098-2104. (Pubitemid 35168218)
19. Casarett DJ, Hirschman KB, Crowley R, Galbraith LD, Leo M: Caregivers' satisfaction with hospice care in the last 24 hours of life. Am J Hosp Palliat Care 2003;20: 205-210. (Pubitemid 39420597)
20. Rickerson E, Harrold J, Kapo J, Casarett D: Timing of hospice referral and families' perceptions of services: Are earlier hospice referrals better? J Am Geriar Soc 2005;53: 819-823. (Pubitemid 41656927)
21. Givens JL, Tjia J, Zhou C, Emanuel E, Ash AS: Racial and ethnic differences in hospice use among patients with heart failure. Arch Intern Med 2010;170:427-432.
22. Rosenbaum PR: Observational Studies, 2nd ed. New York: Springer, 2001.
23. Rubin DB: Estimating causal effects from large data sets using propensity scores. Ann Intern Med 1997;127: 757-763. (Pubitemid 27446562)
24. Stone M: An asymptotic equivalence of choice of model by cross-validation and Akaike's Criterion. J R Stat Soc Series B Stat Methodol 1977;39:44-47.
25. Levy PS, Lemeshow S: Sampling of Populations, Methods and Applications, 4th ed. New York: Wiley, 2008.
26. Blackhall LJ, Frank G, Murphy ST, Michel V, Palmer JM, Azen SP: Ethnicity and attitudes toward life sustaining technology. Soc Sci Med 1999;48:1779-1789. (Pubitemid 29268025)
27. Hopp FP, Duffy SA: Racial variations in end-of-life care. J Am Geriatr Soc 2000;48:658-663. (Pubitemid 30390456)
28. Johnson KS, Kuchibhatla M, Tanis D, Tulsky JA: Racial differences in hospice revocation to pursue aggressive care. Arch Intern Med 2008;168:218-224. (Pubitemid 351185890)
29. Heron MP, Hoyert DL, Xu J, Scott C, Tejada-Vera B: Deaths, preliminary data for 2006. National vital statistics reports. National Center for Health Statistics 2008;56.