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Volumn 20, Issue 2, 2011, Pages 115-128

A tailored approach to family-centered genetic counseling for cystic fibrosis newborn screening: The wisconsin model

Author keywords

CF carrier; Cystic fibrosis; Genetic counseling; Micro skill; Newborn screening; Tailored intervention

Indexed keywords

ARTICLE; CLINICAL COMPETENCE; CYSTIC FIBROSIS; GENETIC COUNSELING; HUMAN; MENTAL STRESS; NEWBORN; NEWBORN SCREENING; ORGANIZATION AND MANAGEMENT; PARENT; PSYCHOLOGICAL ASPECT; SLEEP DEPRIVATION; THEORETICAL MODEL; UNITED STATES;

EID: 79952194744     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-010-9332-y     Document Type: Article
Times cited : (23)

References (82)
  • 1
    • 70349183898 scopus 로고    scopus 로고
    • Postnatal depression: A global public health perspective
    • 19788165 10.1177/1757913909343882
    • P Almond 2009 Postnatal depression: a global public health perspective Perspectives in Public Health 129 221 227 19788165 10.1177/1757913909343882
    • (2009) Perspectives in Public Health , vol.129 , pp. 221-227
    • Almond, P.1
  • 2
    • 0004235298 scopus 로고    scopus 로고
    • American Psychiatric Association (US) (4th ed. text revision; DSM-IV-TR). Washington, DC: American Psychiatric Association
    • American Psychiatric Association (US) (2000). Diagnostic and statistical manual for mental disorders (4th ed. text revision; DSM-IV-TR). Washington, DC: American Psychiatric Association.
    • (2000) Diagnostic and Statistical Manual for Mental Disorders
  • 4
    • 71949120009 scopus 로고    scopus 로고
    • "It's something i need to consider": Decisions about carrier screening for fragile X syndrome in a population of non-pregnant women
    • 10.1002/ajmg.a.33122
    • AD Archibald AM Jaques S Wake VR Collins J Cohen SA Metcalfe 2009 "It's something I need to consider": decisions about carrier screening for fragile X syndrome in a population of non-pregnant women American Journal Medical Genetics. Part A 149A 2731 2738 10.1002/ajmg.a.33122
    • (2009) American Journal Medical Genetics. Part A , vol.149 , pp. 2731-2738
    • Archibald, A.D.1    Jaques, A.M.2    Wake, S.3    Collins, V.R.4    Cohen, J.5    Metcalfe, S.A.6
  • 5
    • 84984124398 scopus 로고
    • The effects of chronic sleep reduction on the performance of cognitive tasks sensitive to sleep deprivation
    • 10.1002/acp.2350090103
    • M Blagrove CA Alexander JA Horne 1995 The effects of chronic sleep reduction on the performance of cognitive tasks sensitive to sleep deprivation Applied Cognitive Psychology 9 21 40 10.1002/acp.2350090103
    • (1995) Applied Cognitive Psychology , vol.9 , pp. 21-40
    • Blagrove, M.1    Alexander, C.A.2    Horne, J.A.3
  • 6
    • 77449133011 scopus 로고    scopus 로고
    • Cystic Fibrosis Foundation practice guidelines for the management of infants with cystic fibrosis transmembrane conductance regulator-related metabolic syndrome during the first two years of life and beyond
    • 19914443
    • D Borowitz RB Parad JK Sharp KA Sabadosa KA Robinson MJ Rock, et al. 2009 Cystic Fibrosis Foundation practice guidelines for the management of infants with cystic fibrosis transmembrane conductance regulator-related metabolic syndrome during the first two years of life and beyond Journal of Pediatrics 155 Suppl. 4 S106 S1016 19914443
    • (2009) Journal of Pediatrics , vol.155 , Issue.SUPPL. 4
    • Borowitz, D.1    Parad, R.B.2    Sharp, J.K.3    Sabadosa, K.A.4    Robinson, K.A.5    Rock, M.J.6
  • 7
    • 77953056735 scopus 로고    scopus 로고
    • Long-term evaluation of genetic counseling following false-positive newborn screen for cystic fibrosis
    • 20131088 10.1007/s10897-009-9274-4 Epub 2010 Feb 4
    • L Cavanagh CJ Compton A Tluczek RL Brown PM Farrell 2010 Long-term evaluation of genetic counseling following false-positive newborn screen for cystic fibrosis Journal of Genetic Counseling 19 199 210 20131088 10.1007/s10897-009-9274-4 Epub 2010 Feb 4
    • (2010) Journal of Genetic Counseling , vol.19 , pp. 199-210
    • Cavanagh, L.1    Compton, C.J.2    Tluczek, A.3    Brown, R.L.4    Farrell, P.M.5
  • 8
    • 0035068566 scopus 로고    scopus 로고
    • Genetic counseling and neonatal screening for cystic fibrosis: An assessment of the communication process
    • DOI 10.1542/peds.107.4.699
    • DJ Ciske A Haavisto A Laxova L Zeng M Rock PM Farrell 2001 Genetic counseling and neonatal screening for cystic fibrosis: an assessment of the communication process Pediatrics 107 699 705 11335747 10.1542/peds.107.4.699 1:STN:280:DC%2BD3M3ptVeruw%3D%3D (Pubitemid 32268454)
    • (2001) Pediatrics , vol.107 , Issue.4 , pp. 699-705
    • Ciske, D.J.1    Haavisto, A.2    Laxova, A.3    Rock, L.Z.M.4    Farrell, P.M.5
  • 9
    • 77957137287 scopus 로고    scopus 로고
    • Cystic Fibrosis Foundation Retrieved July 22, 2010 from
    • Cystic Fibrosis Foundation (2009). About cystic fibrosis: Frequently asked questions. Retrieved July 22, 2010 from http://www.cff.org/AboutCF/.
    • (2009) About Cystic Fibrosis: Frequently Asked Questions
  • 10
    • 0003452177 scopus 로고    scopus 로고
    • Retrieved July 22, 2010, from
    • Cystic Fibrosis Mutation Database (2010). Retrieved July 22, 2010, from www.genet.sickkids.on.ca/cftr/.
    • (2010) Cystic Fibrosis Mutation Database
  • 11
    • 33847628312 scopus 로고    scopus 로고
    • The effect of disruptions during counseling on recall of genetic risk information: The case of cystic fibrosis
    • DOI 10.1007/s10897-006-9056-1
    • JP Dillard L Shen A Tluczek P Modaff P Farrell 2007 The effect of disruptions during counseling on recall of genetic risk information: the case of cystic fibrosis Journal of Genetic Counseling 16 179 190 17277994 10.1007/s10897-006-9056-1 (Pubitemid 46355036)
    • (2007) Journal of Genetic Counseling , vol.16 , Issue.2 , pp. 179-190
    • Dillard, J.P.1    Shen, L.2    Tluczek, A.3    Modaff, P.4    Farrell, P.5
  • 12
    • 45849141236 scopus 로고    scopus 로고
    • Potential threats to the effective communication of genetic risk information: The case of cystic fibrosis
    • 18569052 10.1080/10410230802055356
    • JP Dillard L Shen A Laxova P Farrell 2008 Potential threats to the effective communication of genetic risk information: the case of cystic fibrosis Health Communication 23 234 244 18569052 10.1080/10410230802055356
    • (2008) Health Communication , vol.23 , pp. 234-244
    • Dillard, J.P.1    Shen, L.2    Laxova, A.3    Farrell, P.4
  • 13
    • 1842406568 scopus 로고    scopus 로고
    • Cumulative sleepiness, mood disturbance, and psychomotor vigilance performance decrements during a week of sleep restricted to 4-5 hours per night
    • DF Dinges F Pack K Williams KA Gillen JW Powell GE Ott, et al. 1997 Cumulative sleepiness, mood disturbance and psychomotor vigilance performance decrements during a week of sleep restricted to 4-5 hours per night Sleep 20 267 277 9231952 1:STN:280:DyaK2sznsFKqsg%3D%3D (Pubitemid 27276641)
    • (1997) Sleep , vol.20 , Issue.4 , pp. 267-277
    • Dinges, D.F.1    Pack, F.2    Williams, K.3    Gillen, K.A.4    Powell, J.W.5    Ott, G.E.6    Aptowicz, C.7    Pack, A.I.8
  • 14
    • 0035073148 scopus 로고    scopus 로고
    • Sustained attention performance during sleep deprivation: Evidence of state instability
    • SM Doran HP Van Dongen DF Dinges 2001 Sustained attention performance during sleep deprivation: evidence of state instability Archives Italiennes de Biologie 139 253 267 11330205 1:STN:280:DC%2BD3MvosVSqsg%3D%3D (Pubitemid 32274940)
    • (2001) Archives Italiennes de Biologie , vol.139 , Issue.3 , pp. 253-267
    • Doran, S.M.1    Van Dongen, H.P.A.2    Dinges, D.F.3
  • 15
    • 0002259356 scopus 로고    scopus 로고
    • Systemically-based psychotherapeutic techniques in genetic counseling
    • DL Eunpu 1997 Systematically-based psychotherapeutic techniques in genetic counseling Journal of Genetics Counseling 6 1 20 10.1023/A:1025630917735 (Pubitemid 127716864)
    • (1997) Journal of Genetic Counseling , vol.6 , Issue.1 , pp. 1-20
    • Eunpu, D.L.1
  • 16
    • 79952190591 scopus 로고    scopus 로고
    • Genetic counseling strategies for working with families
    • B.S. LeRoy P. McCarthy Veach D.M. Bartels (eds). Wiley-Blackwell Hoboken
    • Eunpu, D. L. (2010). Genetic counseling strategies for working with families. In B. S. LeRoy, P. McCarthy Veach, & D. M. Bartels (Eds.), Genetic counseling practice: Advanced concepts and skills (pp. 235-251). Hoboken: Wiley-Blackwell.
    • (2010) Genetic Counseling Practice: Advanced Concepts and Skills , pp. 235-251
    • Eunpu, D.L.1
  • 18
    • 49849088488 scopus 로고    scopus 로고
    • Pediatric residents' use of jargon during counseling about newborn genetic screening results
    • 10.1542/peds.2007-2160
    • M Farrell L Deuster J Donovan S Christopher 2008a Pediatric residents' use of jargon during counseling about newborn genetic screening results Pediatrics 122 243 249 10.1542/peds.2007-2160
    • (2008) Pediatrics , vol.122 , pp. 243-249
    • Farrell, M.1    Deuster, L.2    Donovan, J.3    Christopher, S.4
  • 19
    • 33644689186 scopus 로고    scopus 로고
    • Content of communication by pediatric residents after newborn genetic screening
    • DOI 10.1542/peds.2004-2611
    • MH Farrell A La Pean L Ladouceur 2005 Content of communication by pediatric residents after newborn genetic screening Pediatrics 116 1492 1498 16322176 10.1542/peds.2004-2611 (Pubitemid 46061100)
    • (2005) Pediatrics , vol.116 , Issue.6 , pp. 1492-1498
    • Farrell, M.H.1    La Pean, A.2    Ladouceur, L.3
  • 21
    • 0026265292 scopus 로고
    • Current issues in neonatal screening for cystic fibrosis and implications of the CF gene discovery
    • 10.1002/ppul.1950110704
    • PM Farrell EH Mischler NC Fost BS Wilfond A Tluczek RG Gregg, et al. 1991 Current issues in neonatal screening for cystic fibrosis and implications of the CF gene discovery Pediatric Pulmonology 57 11 18 10.1002/ppul.1950110704
    • (1991) Pediatric Pulmonology , vol.57 , pp. 11-18
    • Farrell, P.M.1    Mischler, E.H.2    Fost, N.C.3    Wilfond, B.S.4    Tluczek, A.5    Gregg, R.G.6
  • 23
    • 0027527564 scopus 로고
    • Application of DNA analysis in a population-screening program for neonatal diagnosis of cystic fibrosis (CF): Comparison of screening protocols
    • RG Gregg BS Wilfond PM Farrell A Laxova D Hassemer EH Mischler 1993 The application of DNA analysis in a population screening program for neonatal diagnosis of cystic fibrosis: comparison of screening protocols American Journal of Human Genetics 52 616 626 7680526 1:STN:280:DyaK3s7ptV2qsQ%3D%3D (Pubitemid 23311332)
    • (1993) American Journal of Human Genetics , vol.52 , Issue.3 , pp. 616-626
    • Gregg, R.G.1    Wilfond, B.S.2    Farrell, P.M.3    Laxova, A.4    Hassemer, D.5    Mischler, E.H.6
  • 24
    • 0001166351 scopus 로고    scopus 로고
    • Emotion and emotion regulation
    • L.A. Pervin O.P. John (eds). 2 Guilford New York
    • Gross, J. J. (1999). Emotion and emotion regulation. In L. A. Pervin & O. P. John (Eds.), Handbook of personality: Theory and research (2nd ed., pp. 525-552). New York: Guilford.
    • (1999) Handbook of Personality: Theory and Research , pp. 525-552
    • Gross, J.J.1
  • 25
    • 33745297628 scopus 로고    scopus 로고
    • Expanded newborn screening for biochemical disorders: The effect of a false-positive result
    • DOI 10.1542/peds.2005-2294
    • EA Gurian DD Kinnamon JJ Henry SE Waisbren 2006 Expanded newborn screening for biochemical disorders: the effect of a false-positive result Pediatrics 117 1915 1921 16740831 10.1542/peds.2005-2294 (Pubitemid 46071234)
    • (2006) Pediatrics , vol.117 , Issue.6 , pp. 1915-1921
    • Gurian, E.A.1    Kinnamon, D.D.2    Henry, J.J.3    Waisbren, S.E.4
  • 27
    • 0030069143 scopus 로고    scopus 로고
    • Parents' recollection of the initial communication of the diagnosis of cystic fibrosis
    • I Jedlicka-Kohler M Gotz I Eichler 1996 Parents' recollection of the initial communication of the diagnosis of cystic fibrosis Pediatrics 97 204 209 8584378 1:STN:280:DyaK287mtVertw%3D%3D (Pubitemid 26049650)
    • (1996) Pediatrics , vol.97 , Issue.2 , pp. 204-209
    • Jedlicka-Kohler, I.1    Gotz, M.2    Eichler, I.3
  • 29
    • 70349096824 scopus 로고    scopus 로고
    • Emerging treatments in cystic fibrosis
    • 19747007 10.2165/11318500-000000000-00000 1:CAS:528:DC%2BD1MXhtlOrsLbO
    • AM Jones JM Helm 2009 Emerging treatments in cystic fibrosis Drugs 69 1903 1910 19747007 10.2165/11318500-000000000-00000 1:CAS:528:DC%2BD1MXhtlOrsLbO
    • (2009) Drugs , vol.69 , pp. 1903-1910
    • Jones, A.M.1    Helm, J.M.2
  • 31
    • 0035690310 scopus 로고    scopus 로고
    • Psychological aspects of genetic counseling. XIV. Nondirectiveness and counseling skills
    • DOI 10.1089/10906570152742227
    • S Kessler 2001 Psychological aspects of genetic counseling XIV: nondirectiveness and counseling skills Genetic Testing 5 187 191 11788083 10.1089/10906570152742227 1:STN:280:DC%2BD38%2Fmt1Ontg%3D%3D (Pubitemid 34066161)
    • (2001) Genetic Testing , vol.5 , Issue.3 , pp. 187-191
    • Kessler, S.1
  • 33
    • 42549109855 scopus 로고    scopus 로고
    • Clinical research in low-literacy populations: Using teach-back to assess comprehension of informed consent and privacy information
    • 18512655
    • S Kripalani R Bengtzen LE Henderson TA Jacobson 2008 Clinical research in low-literacy populations: using teach-back to assess comprehension of informed consent and privacy information IRB 30 13 19 18512655
    • (2008) IRB , vol.30 , pp. 13-19
    • Kripalani, S.1    Bengtzen, R.2    Henderson, L.E.3    Jacobson, T.A.4
  • 34
    • 33644694004 scopus 로고    scopus 로고
    • Initially misleading communication of carrier results after newborn genetic screening
    • DOI 10.1542/peds.2005-0449
    • A La Pean MH Farrell 2005 Initially misleading communication of carrier results after newborn genetic screening Pediatrics 116 1499 1505 16322177 10.1542/peds.2005-0449 (Pubitemid 46056500)
    • (2005) Pediatrics , vol.116 , Issue.6 , pp. 1499-1505
    • La Pean, A.1    Farrell, M.H.2
  • 36
  • 37
    • 79952186800 scopus 로고    scopus 로고
    • B.S. LeRoy P. McCarthy Veach D.M. Bartels (eds). Wiley-Blackwell Hoboken
    • LeRoy, B. S., McCarthy Veach, P., & Bartels, D. M. (Eds.). (2010). Genetic counseling practice: Advanced concepts and skills. Hoboken: Wiley-Blackwell.
    • (2010) Genetic Counseling Practice: Advanced Concepts and Skills
  • 38
    • 79952185278 scopus 로고    scopus 로고
    • Honoring diversity: Cultural competence in genetic counseling
    • B.S. LeRoy P. McCarthy Veach D.M. Bartels (eds). Wiley-Blackwell Hoboken
    • Lewis, L. J. (2010). Honoring diversity: Cultural competence in genetic counseling. In B. S. LeRoy, P. McCarthy Veach, & D. M. Bartels (Eds.), Genetic counseling practice: Advanced concepts and skills (pp. 201-233). Hoboken: Wiley-Blackwell.
    • (2010) Genetic Counseling Practice: Advanced Concepts and Skills , pp. 201-233
    • Lewis, L.J.1
  • 39
    • 33747403754 scopus 로고    scopus 로고
    • Parental attitudes to the identification of their infants as carriers of cystic fibrosis by newborn screening
    • DOI 10.1111/j.1440-1754.2006.00917.x
    • S Lewis L Curnow M Ross J Massie 2006 Parental attitudes to the identification of their infants as carriers of cystic fibrosis by newborn screening Journal of Paediatrics and Child Health 42 533 537 16925540 10.1111/j.1440-1754.2006.00917.x (Pubitemid 44252525)
    • (2006) Journal of Paediatrics and Child Health , vol.42 , Issue.9 , pp. 533-537
    • Lewis, S.1    Curnow, L.2    Ross, M.3    Massie, J.4
  • 40
    • 46049119813 scopus 로고    scopus 로고
    • Using principles of health literacy to enhance the informed consent process
    • 18603032 10.1016/j.aorn.2008.03.001
    • B Lorenzen CE Melby B Earles 2008 Using principles of health literacy to enhance the informed consent process AORN Journal 88 23 29 18603032 10.1016/j.aorn.2008.03.001
    • (2008) AORN Journal , vol.88 , pp. 23-29
    • Lorenzen, B.1    Melby, C.E.2    Earles, B.3
  • 41
    • 0034204462 scopus 로고    scopus 로고
    • Patient-centered care: Understanding its interpretation and implementation in health care
    • 10983489 1:STN:280:DC%2BD3cvnsVOhsw%3D%3D
    • BJ Lutz BJ Bowers 2000 Patient-centered care: understanding its interpretation and implementation in health care Scholarly Inquiry for Nursing Practice 14 165 182 10983489 1:STN:280:DC%2BD3cvnsVOhsw%3D%3D
    • (2000) Scholarly Inquiry for Nursing Practice , vol.14 , pp. 165-182
    • Lutz, B.J.1    Bowers, B.J.2
  • 42
    • 33847755579 scopus 로고    scopus 로고
    • Healthy women with a family history of breast cancer: Impact of a tailored genetic counseling intervention on risk perception, knowledge, and menopausal therapy decision making
    • DOI 10.1089/jwh.2006.15.843
    • ET Matloff A Moyer KM Shannon KB Niendorf NF Col 2006 Healthy women with a family history of breast cancer: impact of a tailored genetic counseling intervention on risk perception, knowledge, and menopausal therapy decision making Journal of Women's Health 15 843 856 16999640 10.1089/jwh.2006.15.843 (Pubitemid 46381703)
    • (2006) Journal of Women's Health , vol.15 , Issue.7 , pp. 843-856
    • Matloff, E.T.1    Moyer, A.2    Shannon, K.M.3    Niendorf, K.B.4    Col, N.F.5
  • 43
    • 34547190162 scopus 로고    scopus 로고
    • Should menopausal women at increased risk for breast cancer use tamoxifen, raloxifene, or hormone therapy?: A framework for personalized risk assessment and counseling
    • ET Matloff KM Shannon A Moyer NF Col 2007 Should menopausal women at risk for breast cancer use Tamoxifen, Raloxifene, or hormone therapy?: a framework for personalized risk assessment and counseling Journal of Cancer Education 22 10 14 17570802 10.1007/BF03174368 (Pubitemid 47110494)
    • (2007) Journal of Cancer Education , vol.22 , Issue.1 , pp. 10-14
    • Matloff, E.T.1    Shannon, K.M.2    Moyer, A.3    Col, N.F.4
  • 46
    • 33751242495 scopus 로고    scopus 로고
    • CFTR genotype as a predictor of prognosis in cystic fibrosis
    • DOI 10.1378/chest.130.5.1441
    • EF McKone CH Goss ML Aitkens 2006 CFTR genotype as a predictor of prognosis in cystic fibrosis Chest 130 1441 1447 17099022 10.1378/chest.130.5. 1441 (Pubitemid 44786738)
    • (2006) Chest , vol.130 , Issue.5 , pp. 1441-1447
    • McKone, E.F.1    Goss, C.H.2    Aitken, M.L.3
  • 47
    • 0034309873 scopus 로고    scopus 로고
    • Patient-centredness: A conceptual framework and review of the empirical literature
    • DOI 10.1016/S0277-9536(00)00098-8, PII S0277953600000988
    • N Mead P Bower 2000 Patient-centeredness: a conceptual framework and review of the empirical literature Social Science & Medicine 51 1087 1110 10.1016/S0277-9536(00)00098-8 1:STN:280:DC%2BD3cvltVCisw%3D%3D (Pubitemid 30336443)
    • (2000) Social Science and Medicine , vol.51 , Issue.7 , pp. 1087-1110
    • Mead, N.1    Bower, P.2
  • 48
    • 53949100046 scopus 로고    scopus 로고
    • Assessment of the content and process of genetic counseling: A critical review of empirical studies
    • 18791813 10.1007/s10897-008-9173-0
    • B Meiser J Irle E Lobb K Barlow-Stewart 2008 Assessment of the content and process of genetic counseling: a critical review of empirical studies Journal of Genetic Counseling 17 434 451 18791813 10.1007/s10897-008-9173-0
    • (2008) Journal of Genetic Counseling , vol.17 , pp. 434-451
    • Meiser, B.1    Irle, J.2    Lobb, E.3    Barlow-Stewart, K.4
  • 49
    • 56049107062 scopus 로고    scopus 로고
    • Diagnosis of cystic fibrosis by sweat testing: Age-specific reference intervals
    • 18589442 10.1016/j.jpeds.2008.04.067
    • A Mishra R Greaves K Smith JB Carlin A Wootton R Stirling, et al. 2008 Diagnosis of cystic fibrosis by sweat testing: age-specific reference intervals Journal of Pediatrics 153 758 763 18589442 10.1016/j.jpeds.2008.04.067
    • (2008) Journal of Pediatrics , vol.153 , pp. 758-763
    • Mishra, A.1    Greaves, R.2    Smith, K.3    Carlin, J.B.4    Wootton, A.5    Stirling, R.6
  • 51
    • 34147185148 scopus 로고    scopus 로고
    • Newborn screening for CF in a regional paediatric centre: The psychosocial effects of false-positive IRT results on parents
    • DOI 10.1016/j.jcf.2006.09.001, PII S156919930600124X
    • J Moran K Quirk AJ Duff KG Brownlee 2007 Newborn screening for CF in a regional paediatric centre: the psychosocial effects of false-positive IRT results on parents Journal of Cystic Fibrosis 6 250 254 17056302 10.1016/j.jcf.2006.09.001 (Pubitemid 46567790)
    • (2007) Journal of Cystic Fibrosis , vol.6 , Issue.3 , pp. 250-254
    • Moran, J.1    Quirk, K.2    Duff, A.J.A.3    Brownlee, K.G.4
  • 52
    • 0033647816 scopus 로고    scopus 로고
    • Responding to the cues of suffering
    • 11022445 10.1080/073993300245366 1:STN:280:DC%2BD3cvmvVKnsA%3D%3D
    • JM Morse 2000 Responding to the cues of suffering Health Care for Women International 21 1 9 11022445 10.1080/073993300245366 1:STN:280: DC%2BD3cvmvVKnsA%3D%3D
    • (2000) Health Care for Women International , vol.21 , pp. 1-9
    • Morse, J.M.1
  • 53
    • 0039105966 scopus 로고    scopus 로고
    • Toward a praxis theory of suffering
    • JM Morse 2001 Toward a praxis theory of suffering Advances in Nursing Science 24 47 59 11554533 1:STN:280:DC%2BD3Mrgs1SjtQ%3D%3D (Pubitemid 33596707)
    • (2001) Advances in Nursing Science , vol.24 , Issue.1 , pp. 47-59
    • Morse, J.M.1
  • 54
    • 58149215722 scopus 로고    scopus 로고
    • Clinical practice and genetic counseling for cystic fibrosis and CFTR-related disorders
    • 19092437 10.1097/GIM.0b013e31818e55a2
    • SM Moskowitz JF Chmiel DL Sternen E Cheng RL Gibson SG Marshall, et al. 2008 Clinical practice and genetic counseling for cystic fibrosis and CFTR-related disorders Genetics in Medicine 10 851 868 19092437 10.1097/GIM.0b013e31818e55a2
    • (2008) Genetics in Medicine , vol.10 , pp. 851-868
    • Moskowitz, S.M.1    Chmiel, J.F.2    Sternen, D.L.3    Cheng, E.4    Gibson, R.L.5    Marshall, S.G.6
  • 57
    • 0036201959 scopus 로고    scopus 로고
    • The neural network basis for abnormalities of attention and executive function in major depressive disorder: Implications for application of the medical disease model to psychiatric disorders
    • WE Ottowitz DD Dougherty CR Savage 2002 The neural network basis for abnormalities of attention and executive function in major depressive disorder: implications for application of the medical disease model to psychiatric disorders Harvard Review of Psychiatry 10 86 99 11897749 10.1080/10673220216210 (Pubitemid 34263979)
    • (2002) Harvard Review of Psychiatry , vol.10 , Issue.2 , pp. 86-99
    • Ottowitz, W.E.1    Dougherty, D.D.2    Savage, C.R.3
  • 58
    • 0345479163 scopus 로고    scopus 로고
    • Implications of carrier identification in newborn screening for cystic fibrosis. Archives of disease in childhood
    • 14602692 10.1136/fn.88.6.F467 1:STN:280:DC%2BD3srisVChtg%3D%3D
    • EP Parsons AJ Clarke DM Bradley 2003 Implications of carrier identification in newborn screening for cystic fibrosis. Archives of disease in childhood Fetal and neonatal edition 88 F467 F471 14602692 10.1136/fn.88.6.F467 1:STN:280:DC%2BD3srisVChtg%3D%3D
    • (2003) Fetal and Neonatal Edition , vol.88
    • Parsons, E.P.1    Clarke, A.J.2    Bradley, D.M.3
  • 59
    • 33847647502 scopus 로고    scopus 로고
    • Cancer genetic counseling: Communication and counselees' post-visit satisfaction, cognitions, anxiety, and needs fulfillment
    • DOI 10.1007/s10897-006-9048-1
    • AH Pieterse AM van Dulmen FA Beemer JM Bensing MGE Ausems 2007 Cancer genetic counseling: communication and counselees' post-visit satisfaction, cognitions, anxiety, and needs fulfillment Journal of Genetic Counseling 16 85 96 17295054 10.1007/s10897-006-9048-1 (Pubitemid 46355049)
    • (2007) Journal of Genetic Counseling , vol.16 , Issue.1 , pp. 85-96
    • Pieterse, A.H.1    Van Dulmen, A.M.2    Beemer, F.A.3    Bensing, J.M.4    Ausems, M.G.E.M.5
  • 60
    • 0029893473 scopus 로고    scopus 로고
    • Effects of sleep deprivation on performance: A meta-analysis
    • JJ Pilcher AI Huffcutt 1996 Effects of sleep deprivation on performance: a meta-analysis Sleep 19 318 326 8776790 1:STN:280:DyaK28zntlSmsw%3D%3D (Pubitemid 26157501)
    • (1996) Sleep , vol.19 , Issue.4 , pp. 318-326
    • Pilcher, J.J.1    Huffcutt, A.I.2
  • 61
    • 63249120334 scopus 로고    scopus 로고
    • Fertility issues in men with cystic fibrosis: Survey of knowledge and opinion of patients
    • 18851849 10.1016/j.fertnstert.2008.01.048
    • K Popli S Bourke J Stewart 2009 Fertility issues in men with cystic fibrosis: survey of knowledge and opinion of patients Fertility and Sterility 91 Suppl. 4 1297 1298 18851849 10.1016/j.fertnstert.2008.01.048
    • (2009) Fertility and Sterility , vol.91 , Issue.SUPPL. 4 , pp. 1297-1298
    • Popli, K.1    Bourke, S.2    Stewart, J.3
  • 62
    • 0034276606 scopus 로고    scopus 로고
    • Emotion regulation and memory: The cognitive costs of keeping one's cool
    • 10981843 10.1037/0022-3514.79.3.410 1:STN:280:DC%2BD3M%2Fot12htQ%3D%3D
    • JM Richards JJ Gross 2000 Emotion regulation and memory: the cognitive costs of keeping one's cool Journal of Personality and Social Psychology 79 410 424 10981843 10.1037/0022-3514.79.3.410 1:STN:280:DC%2BD3M%2Fot12htQ%3D%3D
    • (2000) Journal of Personality and Social Psychology , vol.79 , pp. 410-424
    • Richards, J.M.1    Gross, J.J.2
  • 63
    • 25844445259 scopus 로고    scopus 로고
    • Newborn screening for cystic fibrosis in Wisconsin: Nine-year experience with routine trypsinogen/DNA testing
    • 16202788
    • MJ Rock G Hoffman RH Laessig GJ Kopish TJ Litsheim PM Farrell 2005 Newborn screening for cystic fibrosis in Wisconsin: nine-year experience with routine trypsinogen/DNA testing Journal of Pediatrics 147 Suppl. 3 S73 S77 16202788
    • (2005) Journal of Pediatrics , vol.147 , Issue.SUPPL. 3
    • Rock, M.J.1    Hoffman, G.2    Laessig, R.H.3    Kopish, G.J.4    Litsheim, T.J.5    Farrell, P.M.6
  • 65
    • 0141615605 scopus 로고    scopus 로고
    • The phenotypic consequences of CFTR mutations
    • DOI 10.1046/j.1469-1809.2003.00028.x
    • RK Rowntree A Harris 2003 The phenotypic consequences of CFTR mutations Annals of Human Genetics 67 471 485 12940920 10.1046/j.1469-1809.2003.00028.x 1:CAS:528:DC%2BD3sXot1GhtrY%3D (Pubitemid 37184457)
    • (2003) Annals of Human Genetics , vol.67 , Issue.5 , pp. 471-485
    • Rowntree, R.K.1    Harris, A.2
  • 66
    • 0036371136 scopus 로고    scopus 로고
    • The efficacy of tailored interventions
    • P Ryan DR Lauver 2002 The efficacy of tailored interventions Journal of Nursing Scholarship 34 331 7 12501736 10.1111/j.1547-5069.2002.00331.x (Pubitemid 41743567)
    • (2002) Journal of Nursing Scholarship , vol.34 , Issue.4 , pp. 331-337
    • Ryan, P.1    Lauver, D.R.2
  • 67
  • 68
    • 79952191186 scopus 로고    scopus 로고
    • Patient education
    • W.R. Uhlmann J.L. Schuette B.M. Yashar (eds). 2 Wiley-Blackwell Hoboken
    • Smith, A. C. M., & Pollin, T. I. (2009). Patient education. In W. R. Uhlmann, J. L. Schuette, & B. M. Yashar (Eds.), A guide to genetic counseling (2nd ed.). Hoboken: Wiley-Blackwell.
    • (2009) A Guide to Genetic Counseling
    • Smith, A.C.M.1    Pollin, T.I.2
  • 69
    • 56049086882 scopus 로고    scopus 로고
    • Sweat chloride testing in infants identified as heterozygote carriers by newborn screening
    • 19014821 10.1016/j.jpeds.2008.07.054 1:CAS:528:DC%2BD1cXhtlyit7bI
    • ZN Soultan MM Foster NB Newman RD Anbar 2008 Sweat chloride testing in infants identified as heterozygote carriers by newborn screening Journal of Pediatrics 153 857 859 19014821 10.1016/j.jpeds.2008.07.054 1:CAS:528: DC%2BD1cXhtlyit7bI
    • (2008) Journal of Pediatrics , vol.153 , pp. 857-859
    • Soultan, Z.N.1    Foster, M.M.2    Newman, N.B.3    Anbar, R.D.4
  • 70
    • 57349174565 scopus 로고    scopus 로고
    • Parents' concern about their own and their children's genetic disease risk: Potential effects of family history vs. genetic test results
    • 10.1001/archpedi.162.11.1079
    • BA Tarini D Singer SJ Clark MD Davis 2008 Parents' concern about their own and their children's genetic disease risk: potential effects of family history vs. genetic test results Archives of Pediatrics & Adolescent Medicine 162 1079 1083 10.1001/archpedi.162.11.1079
    • (2008) Archives of Pediatrics & Adolescent Medicine , vol.162 , pp. 1079-1083
    • Tarini, B.A.1    Singer, D.2    Clark, S.J.3    Davis, M.D.4
  • 71
    • 0026870637 scopus 로고
    • Parents' knowledge of neonatal screening and response to false-positive cystic fibrosis testing
    • 1613113 10.1097/00004703-199206000-00005 1:STN:280:DyaK38zgvVeksQ%3D%3D
    • A Tluczek EH Mischler PM Farrell N Fost NM Peterson P Carey, et al. 1992 Parents' knowledge of neonatal screening and response to false-positive cystic fibrosis testing Journal of developmental and behavioral pediatrics 13 181 186 1613113 10.1097/00004703-199206000-00005 1:STN:280:DyaK38zgvVeksQ%3D%3D
    • (1992) Journal of Developmental and Behavioral Pediatrics , vol.13 , pp. 181-186
    • Tluczek, A.1    Mischler, E.H.2    Farrell, P.M.3    Fost, N.4    Peterson, N.M.5    Carey, P.6
  • 72
    • 27744538134 scopus 로고    scopus 로고
    • Psychosocial risk associated with newborn screening for cystic fibrosis: Parents' experience while awaiting the sweat-test appointment
    • DOI 10.1542/peds.2004-0275
    • A Tluczek RL Koscik PM Farrell MJ Rock 2005 Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment Pediatrics 115 1692 1703 15930234 10.1542/peds.2004-0275 (Pubitemid 43843181)
    • (2005) Pediatrics , vol.115 , Issue.6 , pp. 1692-1703
    • Tluczek, A.1    Koscik, R.L.2    Farrell, P.M.3    Rock, M.J.4
  • 75
    • 77952467736 scopus 로고    scopus 로고
    • When the cystic fibrosis label does not fit: A modified uncertainty theory
    • 10.1177/1049732309356285
    • A Tluczek AC McKechnie PA Lynam 2010a When the cystic fibrosis label does not fit: a modified uncertainty theory Qualitative Health Research 20 209 223 10.1177/1049732309356285
    • (2010) Qualitative Health Research , vol.20 , pp. 209-223
    • Tluczek, A.1    McKechnie, A.C.2    Lynam, P.A.3
  • 76
    • 79551519053 scopus 로고    scopus 로고
    • Psychosocial consequences of false-positive newborn screen for cystic fibrosis
    • Epub 2010 Sep 17
    • Tluczek, A., Orland, K. M, & Cavanagh, L. (2010b). Psychosocial consequences of false-positive newborn screen for cystic fibrosis. Qualitative Health Research. Epub 2010 Sep 17.
    • (2010) Qualitative Health Research
    • Tluczek, A.1    Orland, K.M.2    Cavanagh, L.3
  • 77
    • 59449100259 scopus 로고    scopus 로고
    • Diagnosis of cystic fibrosis
    • 10.1007/s12016-008-8078-x 1:CAS:528:DC%2BD1cXhsVGgurvM
    • KZ Voter CL Ren 2008 Diagnosis of cystic fibrosis Clinical Reviews in Allergy & Immunology 35 100 106 10.1007/s12016-008-8078-x 1:CAS:528:DC%2BD1cXhsVGgurvM
    • (2008) Clinical Reviews in Allergy & Immunology , vol.35 , pp. 100-106
    • Voter, K.Z.1    Ren, C.L.2
  • 80
    • 0033060620 scopus 로고    scopus 로고
    • Clinical outcomes of newborn screening for cystic fibrosis. Archives of disease in childhood
    • 10325803 10.1136/fn.80.1.F1 1:STN:280:DyaK1M3lslKmsQ%3D%3D
    • DL Waters B Wilcken L Irwig P Van Asperen C Mellis JM Simpson 1999 Clinical outcomes of newborn screening for cystic fibrosis. Archives of disease in childhood Fetal and Neonatal Edition 80 F1 F7 10325803 10.1136/fn.80.1.F1 1:STN:280:DyaK1M3lslKmsQ%3D%3D
    • (1999) Fetal and Neonatal Edition , vol.80
    • Waters, D.L.1    Wilcken, B.2    Irwig, L.3    Van Asperen, P.4    Mellis, C.5    Simpson, J.M.6


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