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Volumn 6, Issue 3, 2007, Pages 250-254

Newborn screening for CF in a regional paediatric centre: The psychosocial effects of false-positive IRT results on parents

Author keywords

Cystic fibrosis; False positive; Newborn screening; Psychosocial

Indexed keywords

TRYPSINOGEN;

EID: 34147185148     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2006.09.001     Document Type: Article
Times cited : (47)

References (25)
  • 1
    • 0035173368 scopus 로고    scopus 로고
    • Cystic fibrosis screening in newborns: results from existing programs
    • Young S.S., Kharrazi M., Pearl M., and Cunningham G. Cystic fibrosis screening in newborns: results from existing programs. Curr Opin Pulm Med 7 (2001) 427-433
    • (2001) Curr Opin Pulm Med , vol.7 , pp. 427-433
    • Young, S.S.1    Kharrazi, M.2    Pearl, M.3    Cunningham, G.4
  • 2
    • 0035002540 scopus 로고    scopus 로고
    • Cystic fibrosis-related deaths in infancy and the effect of newborn screening
    • Doull I.L., Ryley H.C., Weller P., and Goodchild M.C. Cystic fibrosis-related deaths in infancy and the effect of newborn screening. Pediatr Pulmonol 31 (2001) 363-366
    • (2001) Pediatr Pulmonol , vol.31 , pp. 363-366
    • Doull, I.L.1    Ryley, H.C.2    Weller, P.3    Goodchild, M.C.4
  • 4
    • 17744372496 scopus 로고    scopus 로고
    • Early diagnosis of cystic fibrosis through neonatal screening prevents severe malnutrition and improves long-term growth
    • Farrell P.M., Kosorok M.R., Rock M.J., Laxova A., Zeng L., Lai H., et al. Early diagnosis of cystic fibrosis through neonatal screening prevents severe malnutrition and improves long-term growth. Pediatr 107 (2001) 1-13
    • (2001) Pediatr , vol.107 , pp. 1-13
    • Farrell, P.M.1    Kosorok, M.R.2    Rock, M.J.3    Laxova, A.4    Zeng, L.5    Lai, H.6
  • 5
    • 3343023861 scopus 로고    scopus 로고
    • Early intervention and prevention of lung disease in cystic fibrosis: a European consensus
    • Consensus Study Group
    • Doring G., Hoiby N., and Consensus Study Group. Early intervention and prevention of lung disease in cystic fibrosis: a European consensus. J Cyst Fibros 3 (2004) 67-91
    • (2004) J Cyst Fibros , vol.3 , pp. 67-91
    • Doring, G.1    Hoiby, N.2
  • 6
    • 25844501490 scopus 로고    scopus 로고
    • Evidence on improved outcomes with early diagnosis of cystic fibrosis through neonatal screening: enough is enough!
    • Farrell P.M., Lai H.J., Li Z., Kosorok M.R., Laxova A., Green C.G., et al. Evidence on improved outcomes with early diagnosis of cystic fibrosis through neonatal screening: enough is enough!. J Pediatr 147 (2005) S30-S36
    • (2005) J Pediatr , vol.147
    • Farrell, P.M.1    Lai, H.J.2    Li, Z.3    Kosorok, M.R.4    Laxova, A.5    Green, C.G.6
  • 7
    • 25144492375 scopus 로고    scopus 로고
    • Newborn screening for cystic fibrosis is associated with reduced treatment intensity
    • Sims E.J., McCormick J., Mehta G., and Mehta A. Newborn screening for cystic fibrosis is associated with reduced treatment intensity. J Pediatr 147 (2005) 306-311
    • (2005) J Pediatr , vol.147 , pp. 306-311
    • Sims, E.J.1    McCormick, J.2    Mehta, G.3    Mehta, A.4
  • 8
    • 0345602014 scopus 로고    scopus 로고
    • Psychosocial issues in newborn screening for cystic fibrosis
    • Parsons E.P., and Bradley D.M. Psychosocial issues in newborn screening for cystic fibrosis. Paediatr Respir Rev 4 (2003) 285-292
    • (2003) Paediatr Respir Rev , vol.4 , pp. 285-292
    • Parsons, E.P.1    Bradley, D.M.2
  • 9
    • 27744538134 scopus 로고    scopus 로고
    • Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment
    • Tluczek A., Koscik R.L., Farell P.M., and Rock M.J. Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment. Pediatr 115 (2005) 1692-1703
    • (2005) Pediatr , vol.115 , pp. 1692-1703
    • Tluczek, A.1    Koscik, R.L.2    Farell, P.M.3    Rock, M.J.4
  • 10
    • 0037315258 scopus 로고    scopus 로고
    • Early versus late diagnosis: psychological impact on parents of children with cystic fibrosis
    • Merelle M., Huisman J., Alderden-van der Vecht A., Taat F., Bezemer D., Griffioen R.W., et al. Early versus late diagnosis: psychological impact on parents of children with cystic fibrosis. Pediatr 111 (2003) 346-350
    • (2003) Pediatr , vol.111 , pp. 346-350
    • Merelle, M.1    Huisman, J.2    Alderden-van der Vecht, A.3    Taat, F.4    Bezemer, D.5    Griffioen, R.W.6
  • 11
    • 25844451134 scopus 로고    scopus 로고
    • Delayed diagnosis of cystic fibrosis and the family perspective
    • Kharrazi M., and Kharrazi L.D. Delayed diagnosis of cystic fibrosis and the family perspective. J Pediatr 147 (2005) S21-S25
    • (2005) J Pediatr , vol.147
    • Kharrazi, M.1    Kharrazi, L.D.2
  • 12
    • 0034596493 scopus 로고    scopus 로고
    • Neonatal screening for cystic fibrosis in Brittany, France: assessment of 10 years' experience and impact on prenatal diagnosis
    • Scotet V., De Brackeleer M., Roussey M., Rault G., Parent P., Dagarne M., et al. Neonatal screening for cystic fibrosis in Brittany, France: assessment of 10 years' experience and impact on prenatal diagnosis. Lancet 356 (2000) 789-794
    • (2000) Lancet , vol.356 , pp. 789-794
    • Scotet, V.1    De Brackeleer, M.2    Roussey, M.3    Rault, G.4    Parent, P.5    Dagarne, M.6
  • 14
    • 0026870637 scopus 로고
    • Parents' knowledge of neonatal screening and response to false-positive cystic fibrosis testing
    • Tluczek A., Mischler E.H., Farrell P.M., Fost N., Peterson N.M., Carey P., et al. Parents' knowledge of neonatal screening and response to false-positive cystic fibrosis testing. J Dev Behav Pediatr 13 (1992) 181-186
    • (1992) J Dev Behav Pediatr , vol.13 , pp. 181-186
    • Tluczek, A.1    Mischler, E.H.2    Farrell, P.M.3    Fost, N.4    Peterson, N.M.5    Carey, P.6
  • 15
    • 0031088142 scopus 로고    scopus 로고
    • Cystic fibrosis newborn screening: impact of early screening results on parenting stress
    • Baroni M.A., Anderson Y.E., and Mischler E. Cystic fibrosis newborn screening: impact of early screening results on parenting stress. Pediatr Nursing 23 (1997) 143-151
    • (1997) Pediatr Nursing , vol.23 , pp. 143-151
    • Baroni, M.A.1    Anderson, Y.E.2    Mischler, E.3
  • 16
    • 2442511807 scopus 로고    scopus 로고
    • An analysis of communication following newborn screening for cystic fibrosis
    • Dillard J.P., Carson C.L., Bernard C.J., Laxova A., and Farrell P.M. An analysis of communication following newborn screening for cystic fibrosis. Health Commun 16 (2004) 195-205
    • (2004) Health Commun , vol.16 , pp. 195-205
    • Dillard, J.P.1    Carson, C.L.2    Bernard, C.J.3    Laxova, A.4    Farrell, P.M.5
  • 18
    • 0004430371 scopus 로고    scopus 로고
    • Questionnaire design
    • Breakwell G., Hammond S., and Fife-Schaw C. (Eds), Sage, London
    • Fife-Schaw C. Questionnaire design. In: Breakwell G., Hammond S., and Fife-Schaw C. (Eds). Research methods in psychology (1999), Sage, London 158-174
    • (1999) Research methods in psychology , pp. 158-174
    • Fife-Schaw, C.1
  • 21
    • 3442887063 scopus 로고    scopus 로고
    • What follows newborn screening? An evaluation of a residential education program for parents of infants with newly diagnosed cystic fibrosis
    • Sawyer S.M., and Glazner J.A. What follows newborn screening? An evaluation of a residential education program for parents of infants with newly diagnosed cystic fibrosis. Pediatr 114 (2004) 411-416
    • (2004) Pediatr , vol.114 , pp. 411-416
    • Sawyer, S.M.1    Glazner, J.A.2
  • 22
    • 2542422173 scopus 로고    scopus 로고
    • Newborn screening for cystic fibrosis: the practical implications
    • Southern K.W. Newborn screening for cystic fibrosis: the practical implications. J R Soc Med 97 Suppl 44 (2004) 57-59
    • (2004) J R Soc Med , vol.97 , Issue.SUPPL. 44 , pp. 57-59
    • Southern, K.W.1
  • 23
    • 33644648971 scopus 로고    scopus 로고
    • Newborn screening for cystic fibrosis: do we need a second IRT?
    • Price J.F. Newborn screening for cystic fibrosis: do we need a second IRT?. Arch Dis Child 91 (2006) 209-210
    • (2006) Arch Dis Child , vol.91 , pp. 209-210
    • Price, J.F.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.