Parents' recollection of the initial communication of the diagnosis of cystic fibrosis

Pediatrics

Volumn 97, Issue 2, 1996, Pages 204-209

  Jedlicka Köhler, Ilse ^a   Götz, Manfred ^a   Eichler, Irmgard ^a  

^a ST ANNA CHILDREN S HOSPITAL   (Austria)

Author keywords

behavior; cystic fibrosis; diagnostic counseling; psychology

Indexed keywords

ADULT; ARTICLE; CHILDHOOD DISEASE; CHRONIC DISEASE; CLINICAL ARTICLE; COGNITION; COPING BEHAVIOR; CYSTIC FIBROSIS; DISEASE SEVERITY; DOCTOR PATIENT RELATION; EMOTION; FEMALE; HUMAN; MALE; PARENT COUNSELING; PARENTAL BEHAVIOR; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STRESS;

ADULT; COMMUNICATION; CYSTIC FIBROSIS; FEMALE; HUMANS; INFANT; MALE; MENTAL RECALL; MIDDLE AGED; PARENTS; STRESS, PSYCHOLOGICAL;

EID: 0030069143     PISSN: 00314005     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (34)

1. Kulczycki LL, Regal D, Tantisunthorn C The impact of cystic fibrosis on the parents and patients. In: Patterson PR, Denning CR, Kutscher AH, eds. Psychosocial Aspects of Cystic Fibrosis. New York: Columbia University Press, 1973:119-133
2. Sibinga MS, Friedman CJ, Huang NN. The family of the cystic fibrosis patient. In: Patterson PR, Denning CR, Kutscher AH, eds. Psychosocial Aspects of Cystic Fibrosis. New York: Columbia University Press; 1973: 13-18
3. Allan JL, Townley PRW, Phelan PD. Family response to cystic fibrosis. Aust Paediatr J. 1974,10:136-146
4. Falkman C. Cystic fibrosis - a psychological study of 52 children and their families. Acta Paediatr Scand. 1977;269(suppl):20-22
5. McCollum AT, Gibson LE. Family adaptation to the child with cystic fibrosis. J Pediatr. 1970;77-571-578
6. Jedlicka-Köhler I, Götz M, Eichler I. Family dynamics - dynamic families. Pediatr Pulmonol. 1990;5(suppl):173-175
7. Steinhauer PD, Mushin DN, Rae-Grant Q. Psychological aspects of chronic illness. Pediatr Clin North Am. 1974;21:825-840
8. Heisler AB, Friedman SB. Social and psychological considerations in chronic disease: with particular reference to the management of seizure disorders. J Pediatr Psychol. 1981;6:239-250
9. Lascari AD, Stehbens JA. The reactions of families to childhood leukemia: an evaluation of a program of emotional management. Clin Pediatr (Phila). 1973;12:210-214
10. Woolley H, Stein A, Forrest GC, Baum JD. Imparting the diagnosis of life threatening illness in children. Br Med J 1989;298:1623-1626
11. Ley P. Satisfaction, compliance and communication Br J Clin Psychol. 1982;21:241-254
12. Nolan T, Desmond K, Herlich R, Hardy S. Knowledge of cystic fibrosis in patients and their parents. Pediatrics. 1986;77:229-235
13. Henley LD, Hill ID. Errors, gaps and misconceptions in the disease-related knowledge of cystic fibrosis patients and their families. Pediatrics. 1990;85:1008-1014
14. Henley LD, Hill ID. Global and specific disease-related information needs of cystic fibrosis patients and their families. Pediatrics. 1990;85: 1015-1021
15. Cunningham CC, Sloper T. Parents of Down's syndrome babies: their early needs. Child Care Health Dev. 1977;3:325-347
16. Svarstad BL, Lipton HL. Informing parents about mental retardation: a study of professional communication and parent acceptance. Soc Sci Med 1977;11:641-645
17. Sharp MC, Strauss RP, Lorch SC. Communicating medical bad news: parents' experiences and preferences. J Pediatr. 1992;121:539-546
18. Perlman NB, Freedman JL, Abramovitch R, Whyte H, Kirpalani H, Perlman M. Information needs of parents of sick neonates. Pediatrics. 1991;88:512-518
19. Quine L, Pahl J First diagnosis of severe mental handicap: characteristics of unsatisfactory encounters between doctors and parents. Soc Sci Med. 1986;22:53-62
20. Lynch EC, Staloch NH. Parental perceptions of physicians' communication in the informing process. Ment Retard. 1988;26:77-81
21. Drotar D, Baskiewicz A, Irvin N, Kennell J, Klaus M. The adaptation of parents to the birth of an infant with a congenital malformation: a hypothetical model. Pediatrics. 1975;56:710-717
22. Paivio A, Csapo K. Picture superiority in free recall: imagery or dual coding? Cogn Psychol. 1973;5.176-206
23. Myers BA. The informing interview. Am J Dis Child. 1983;137:572-577
24. Buckman R. How to Break Bad News. London: Papermac Macmillan; 1992
25. SAS Institute Inc. SAS User's Guide: Basics. Version 5. Cary, NC: SAS Institute Inc; 1985
26. Baddely AD, Longman DJA The influence of length and frequency on training sessions on the rate of learning to type. Ergonomics. 1978;21: 627-635
27. Hughes HG. The emotional impact of chronic disease. Am J Dis Child. 1976;130:1199-1203
28. Denning CR, Gluckson MM. Psychological aspects of cystic fibrosis. In: Taussig LM, ed. Cystic Fibrosis. New York: Thieme-Stratton Inc, 1984 461-492
29. Hogbin B, Fallowfield L. Getting it taped: the "bad news" consultation with cancer patients. Br J Hosp Med. 1989;41:330-333
30. Paivio A, Csapo K Concrete-image and verbal memory codes. J Exp Psychol. 1969;80:279-285
31. Loftus EF, Burns TE. Mental shock can produce retrograde amnesia. Mem Cogn. 1982;10:318-323
32. Ottaviani R, Beck AT Cognitive theory of depression In: Fiedler K, Forgas J, eds. Affect, Cognition and Social Behavior. Toronto: C. J. Hogrefe, 1988:209-218
33. Bock M. The influence of emotional meaning on the recall of words processed for form or for self-reference. Psychol Res. 1986;48 107-112
34. Miall DS. Emotion and the self, the context of remembering. Br J Psychol. 1986;77:389-397