A comparative analysis of health-related quality of life and family impact between children with adhd treated in a general pediatric clinic and a psychiatric clinic utilizing the pedsQL

Journal of Attention Disorders

Volumn 15, Issue 5, 2011, Pages 392-402

  Limbers, Christine A ^a   Ripperger Suhler, Jane ^b   Boutton, Kelly ^c   Ransom, Daniel ^d   Varni, James W ^a  

^a TEXAS A AND M UNIVERSITY   (United States)

^b UNIVERSITY OF TEXAS   (United States)

^c NORTHWESTERN UNIVERSITY   (United States)

^d TEXAS A AND M HEALTH SCIENCE CENTER   (United States)

Author keywords

ADHD; children; family impact; health related quality of life; PedsQL

Indexed keywords

EID: 79951769209     PISSN: 10870547     EISSN: 15571246     Source Type: Journal    
DOI: 10.1177/1087054709356191     Document Type: Article

References (51)

1. Acquadro, C., Berzon, R., Dubois, D., Leidy, N.K., Marquis, P., Revicki, D.,et al.(2003). Incorporating the patient's perspective into drug development and communication: An ad hoc task force report of the patient-reported outcomes (PRO) harmonization group meeting at the Food and Drug Administration, February 16, 2001. Value in Health, 6, 522-531.
2. Anderson, C.J., Kelly, E.H., Klass, S.J., Russell, H., Daharsh, E., & Vogel, L.C. (2009). Anxiety and depression in children and adolescents with spinal cord injuries. Developmental Medicine and Child Neurology, 51, 826-832.
3. APA. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
4. Barkley, R.A. (1998). Attention-deficit hyperactivity disorder: A handbook for diagnosis and treatment (2nd ed.). New York: Guilford.
5. Bastiaansen, D., Koot, H.M., Bongers, I.L., Varni, J.W., & Verhulst, F.C. (2004). Measuring quality of life in children referred for psychiatric problems: Psychometric properties of the PedsQL 4.0 Generic Core Scales. Quality of Life Research, 13, 489-495.
6. Bastiaens, L. (2008). Both atomoxetine and stimulants improve quality of life in an ADHD population treated in a community. Psychiatry Quarterly, 79, 133-137.
7. Brown, R., & Pacinin, J. (1989). Perceived family functioning, marital status, and depression in parents of boys with attention-deficit disorder. Journal of Learning Disabilities, 22, 581-587.
8. Coghill, D., Soutullo, C., d' Aubuisson, C., Preuss, U., Lindback, T., Silverberg, M.,et al.(2008). Impact of attention-deficit/ hyperactivity disorder on the patient and family: Results from a European survey. Child and Adolescent Psychiatry and Mental Health, 2, 1-15.
9. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum.
10. Cormier, E. (2008). Attention deficit/hyperactivity disorder: A review and update. Journal of Pediatric Nursing, 23, 345-357.
11. Cotton, S., Kudel, I., Humenay Roberts, Y., Pallerla, H., Tsevat, J., Succop, P.,et al.(2009). Spiritual well-being and mental health outcomes in adolescents with or without inflammatory bowel disease. Journal of Adolescent Health, 44, 485-492.
12. Cronbach, L.J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16, 297-334.
13. Daviss, W.B. (2008). A review of co-morbid depression in pediatric ADHD: Etiologies, phenomenology, and treatment. Journal of Child and Adolescent Pharmacology, 18, 565-571.
14. Eiser, C., & Morse, R. (2001). Can parents rate their child's health-related quality of life? Results from a systematic review. Quality of Life Research, 10, 347-357.
15. Epstein, M.A., Shawitz, S.E., Shaywitz, B.A., & Woolston, J.L. (1991). The boundaries of attention deficit disorder. Journal of Learning Disabilities, 24, 78-86.
16. FDA. (2006). Guidance for Industry: Patient-reported outcome measures: Use in medical product development to support labeling claims. Rockville, MD: Center for Drug Evaluation and Research, Food and Drug Administration.
17. Froehlich, T.E., Lanphear, B.P., & Epstein, J.N. (2007). Prevalence, recognition, and treatment of attention-deficit/hyperactivity disorder in a national sample of U.S. children. Archives of Pediatrics and Adolescent Medicine, 161, 857-864.
18. Hollingshead, A.B. (1975). Four factor index of social status. New Haven, CT: Yale University.
19. Hsieh, R.L., Huang, H.Y., Lin, M.I., Wu, C.W., & Lee, W.C. (2009). Quality of life, health satisfaction and family impact on caregivers of children with developmental delays. Child: Care, Health, and Development, 35, 243-249.
20. Kaplan, B.J., Crawford, S.G., Fisher, G.C., & Dewey, D.M. (1998). Family dysfunction is more strongly associated with ADHD than with general school problems. Journal of Attention Disorders, 2, 209-216.
21. Kaplan, R.M. (2001). Quality of life in children: A health care policy perspective. In H. M. Koot & J. L. Wallander (Eds.), Quality of life in child and adolescent illness: Concepts, methods, and findings (pp. 89-120). East Sussex, Great Britain: Brunner-Routledge.
22. Klassen, A.F., Miller, A., & Fine, S. (2004). Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics, 114, e541-e547.
23. Limbers, C.A., Ripperger-Suhler, J., Heffer, R.W., & Varni, J.W. (2009). Health-related quality of life and family impact in children with ADHD and co-morbid psychiatric conditions treated in a psychiatric clinic. Unpublished manuscript.
24. Matza, L.S., Rentz, A.M., Secnik, K., Swensen, A.R., Revicki, D.A., Michelson, D.,et al.(2004). The link between health-related quality of life and clinical symptoms among children with attention-deficit hyperactivity disorder. Journal of Developmental and Behavioral Pediatrics, 25, 166-174.
25. Nichq. (2003). National initiative for children's healthcare quality practitioners' toolkit. Boston: Institute for Healthcare Improvement.
26. Nunnally, J.C., & Bernstein, I.R. (1994). Psychometric theory (3rd ed.). New York: McGraw-Hill.
27. Panepinto, J.A., Hoffmann, R.G., & Pajewski, N.M. (2009). A psychometric evaluation of the PedsQL Family Impact Module in parents of children with sickle cell disease. Health and Quality of Life Outcomes, 7, 1-11.
28. Perwien, A.R., Faries, D.E., Kratochvil, C.J., Sumner, C.R., Kelsey, D.K., & Allen, A.J. (2004). Improvement in health-related quality of life in children with ADHD: An analysis of placebo controlled studies of atomoxetine. Journal of Developmental and Behavioral Pediatrics, 25, 264-271.
29. Reinfjell, T., Hjemdal, O., Aune, T., Vikan, A., & Diseth, T.H. (2008). The Pediatric Quality of Life Inventory (PedsQL) 4.0 as an assessment measure for depressive symptoms: A correlational study with young adolescents. Nordic Journal of Psychiatry, 62, 279-286.
30. Riley, A.W., Coghill, D., Forrest, C.B., Lorenzo, M.J., Ralston, S.J., & Spiel, G. (2006). Validity of the health-related quality of life assessment in the ADORE study: Parent report form of the CHIP-Child Edition. European Child and Adolescent Psychiatry, 15, I/63-I/71.
31. Riley, A.W., Lyman, L.M., Spiel, G., Dopfner, M., Lorenzo, M.J., & Ralston, S.J. (2006). The Family Strain Index: Reliability, validity, and factor structure of a brief questionnaire for families of children with ADHD. European Child and Adolescent Psychiatry, 15, I/72-I/78.
32. Sallee, F.R., Ambrosini, P.J., Lopez, F.A., Shi, L., & Michaels, M.A. (2004). Health-related quality of life and treatment satisfaction and preference in a community assessment study of extended-release mixed amphetamine salts for children with attention-deficit/hyperactivity disorder. Journal of Outcomes Research, 8, 27-49.
33. Sawyer, M.G., Whaites, L., Rey, J.M., Hazell, P.L., Graetz, B.W., & Baghurst, P. (2002). Health-related quality of life of children and adolescents with mental disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 530-537.
34. Scarpelli, A.C., Paiva, S.M., Pordeus, I.A., Varni, J.W., Viegas, C.M., & Allison, P.J. (2008). The Pediatric Quality of Life Inventory (PedsQL) Family Impact Module: Reliability and validity of the Brazilian version. Health and Quality of Life Outcomes, 6, 1-8.
35. Spencer, T.J., Biederman, J., & Mick, E. (2007). Attention-deficit/ hyperactivity disorder: Diagnosis, lifespan, comorbidities, and neurobiology. Ambulatory Pediatrics, 7, 73-81.
36. Storch, E.A., Merlo, L.J., Lack, C., Milsom, V.A., Geffken, G.R., Goodman, W.K.,et al.(2007). Quality of life in youth with Tourette's Syndrome and chronic tic disorder. Journal of Clinical Child and Adolescent Psychology, 36, 217-227.
37. Sung, V., Hiscock, H., Sciberras, E., & Efron, D. (2008). Sleep problems in children with attention-deficit/hyperactivity disorder. Archives of Pediatrics and Adolescent Medicine, 162, 336-342.
38. Theunissen, N.C.M., Vogels, T.G.C., Koopman, H.M., Verrips, G.H.W., Zwinderman, K.A.H., Verloove-Vanhorick, S.P.,et al.(1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387-397.
39. Upton, P., Lawford, J., & Eiser, C. (2008). Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research, 17, 895-913.
40. Varni, J.W., & Burwinkle, T. (2006). The PedsQL as a patient-reported outcome in children and adolescents with attention-deficit/hyperactivity disorder: A population-based study. Health and Quality of Life Outcomes, 4, 1-10.
41. Varni, J.W., Burwinkle, T.M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329-341.
42. Varni, J.W., & Limbers, C.A. (2009). The Pediatric Quality of Life Inventory (PedsQL): Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843-863.
43. Varni, J.W., Seid, M., & Kurtin, P.S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39, 800-812.
44. Varni, J.W., Seid, M., & Rode, C.A. (1999). The PedsQL: Measurement model for the Pediatric Quality of Life Inventory. Medical Care, 37, 126-139.
45. Varni, J.W., Sherman, S.A., Burwinkle, T.M., Dickinson, P., & Dixon, P. (2004). The PedsQL Family Impact Module: Preliminary reliability and validity. Health and Quality of Life Outcomes, 2, 1-6.
46. Wasserman, R.C., Kelleher, K.J., Bocian, A., Baker, A., Childs, G.E., Indacochea, F.,et al.(1999). Identification of attentional and hyperactivity problems in primary care: A report from pediatric research in office settings and the ambulatory sentinel practice network. Pediatrics, 103, e38.
47. Weisler, R.H. (2005). Safety, efficacy and extended duration of action of mixed amphetamine salts extended-release capsules for the treatment of ADHD. Expert Review of Pharmacotherapy, 6, 1003-1017.
48. Whalen, C.K., Henker, B., Jammer, L.D., Ishikawa, S.S., Floro, J.N., Swindle, R.,et al.(2006). Toward mapping daily challenges of living with ADHD: Maternal and child perspectives using electronic diaries. Journal of Abnormal Child Psychology, 34, 115-130.
49. Wolraich, M.L., Lambert, W., & Doffing, M. (2003). Psychometric properties of the Vanderbilt ADHD Diagnostic Parent Rating Scale. Journal of Pediatric Psychology, 28, 559-567.
50. World Health Organization. (1948). Constitution of the World Health Organization: Basic document. Geneva, Switzerland: Author.
51. Yang, P., Hsu, H.Y., Chiou, S.S., & Chao, M.C. (2007). Health-related quality of life in methylphenidate-treated children with attention-deficit-hyperactivity disorder: Results from a Taiwanese sample. Australian & New Zealand Journal of Psychiatry, 41, 998-1004.