'It's only right that we get involved': Service-user perspectives on involvement in learning disability services

British Journal of Learning Disabilities

Volumn 39, Issue 1, 2011, Pages 5-10

  Hoole, Lucy ^a   Morgan, Sally ^a  

^a SPRINGFIELD UNIVERSITY HOSPITAL   (United Kingdom)

Author keywords

Advocacy; Focus group; Learning disability; Person centred planning; Service user involvement

Indexed keywords

EID: 79851477460     PISSN: 13544187     EISSN: 14683156     Source Type: Journal    
DOI: 10.1111/j.1468-3156.2009.00563.x     Document Type: Article

References (22)

1. Antaki C., Young N. & Finlay M. (2002) Shaping clients' answers: departures from neutrality in care-staff interviews with people with a learning disability. Disabil Soc, 17: 435-55.
2. Barr O., McConkey R. & McConaghie J. (2003) Views of people with learning disabilities about current and future accommodation: the use of focus groups to promote discussion. Disabil Soc, 18: 577-97.
3. Bollard M. (2003) Going to the doctors. Findings from a focus group with people with learning disabilities. J Learn Disabil, 7: 156-64.
4. Braun V. & Clarke V. (2006) Using thematic analysis in psychology. Qual Res Psychol, 3: 77-101.
5. Burton Smith R., Morgan M. & Davidson J. (2005) Does the daily choice making of adults with intellectual disability meet the normalisation principle? J Intellect Dev Disabil, 30: 226-35.
6. Cambridge P. & McCarthy M. (2001) User focus groups and best value in services for people with learning disabilities. Health Soc Care Community, 9: 476-89.
7. Dearden-Phillips C. & Fountain R. (2005) Real power? An examination of the involvement of people with learning difficulties in strategic service development in Cambridgeshire Br J Learn Disabil, 33: 200-4.
8. Department of Health (2000) The NHS plan: a plan for investment, a plan for reform. Norwich, The Stationary Office Limited.
9. Department of Health (2001) Valuing people: a new strategy for learning disability for the 21st century. A white paper. Norwich, The Stationary Office Limited.
10. Department of Health (2007) New ways of working for applied psychologists. Working psychologically in teams. Leicester, British Psychological Society.
11. Dunn A., Kroese B.S., Thomas G., McGarry A. & Drew P. (2006) 'Are you allowed to say that?' using video materials to provide accessible information about psychology services. Br J Learn Disabil, 34: 215-9.
12. Finlay W.M.L., Antaki C., Walton C. & Stribling P. (2008) The dilemma for staff in 'playing a game' with a person with profound intellectual disabilities: empowerment, inclusion and competence in interactional practice. Sociol Health Illn, 30: 531-49.
13. Fraser M. & Fraser A. (2001) Are people with learning disabilities able to contribute to focus groups on health promotion? J Adv Nurs, 33: 225-33.
14. Gates B. & Waight M. (2007) Reflections on conducting focus groups with people with learning disabilities: theoretical and practical issues. J Res Nurs, 12: 111-26.
15. Goble C. (1999) "Like the secret service isn't it" people with learning difficulties' perceptions of staff and services: mystification and disempowerment. Disabil Soc, 14: 449-61.
16. Hodge S. (2005) Participation, discourse and power: a case study in service user involvement. Crit Soc Policy, 25: 164-79.
17. Jingree T., Finlay W.M.L. & Antaki C. (2006) Empowering words, disempowering actions: an analysis of interactions between staff members and people with learning disabilities in residents' meetings. J Intellect Disabil Res, 50: 212-26.
18. Katan J. & Prager E. (1986) Consumer and worker participation in agency-level decision-making: some considerations of their linkages. Adm Soc Work, 10: 79-88.
19. Kent H. & Read J. (1998) Measuring consumer participation in mental health services: are attitudes related to professional orientation? Int J Soc Psychiatry, 44: 295-310.
20. Martin D.M., Roy A., Wells M.B. & Lewis J. (1997) Health gain through screening: users' and carers' perspectives of health care: developing primary health care services for people with an intellectual disability. J Intellect Dev Disabil, 22: 241-9.
21. Race D.G. (2007) A tale of two white papers. policy documents as indicators of trends in UK services. J Intellect Dev Disabil, 11: 83-103.
22. Young A.F. & Chesson R.A. (2006) Obtaining views on health care from people with learning disabilities and severe mental health problems. Br J Learn Disabil, 34: 11-9.