Going to the doctor's: The findings from a focus group with people with learning disabilities

Journal of Learning Disabilities

Volumn 7, Issue 2, 2003, Pages 156-164

  Bollard, Martin ^a  

^a DE MONTFORT UNIVERSITY   (United Kingdom)

Author keywords

Disability research; Focus group; Informed consent; Power

Indexed keywords

ARTICLE; EXPERIENCE; HEALTH CARE UTILIZATION; HUMAN; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; LEARNING DISORDER; MEDICAL RESEARCH; METHODOLOGY; PHYSICIAN; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; SKILL;

EID: 0038281503     PISSN: 14690047     EISSN: None     Source Type: Journal    
DOI: 10.1177/1469004703007002005     Document Type: Article

References (27)

1. ARSCOTT, K., DAGNAN, D. & KROESE, B. S. (1998) 'Consent to Psychological Research by People with an Intellectual Disability', Journal of Applied Research in Intellectual Disabilities 11 (2): 77-83.
2. BOLLARD, M. (2000) 'Going to the Doctor's: The Expectations of People with Down's Syndrome, Their Carers and General Practitioners', unpublished MA dissertation, University of Warwick.
3. BOOTH, T. & Booth, W. (1994) Parenting under Pressure: Mothers and Fathers with Learning Difficulties. Buckingham: Open University.
4. BOOTH, T. & Booth, W. (1996) 'The Use of Depth Interviewing with Vulnerable Subjects: Lessons from a Research Study of Parents with Learning Difficulties', Social Science and Medicine 39 (3): 415-24.
5. CAMBRIDGE, P. & MCCARTHY, M. (2001) 'User Focus Groups and Best Value in Services for People with Learning Disabilities', Health and Social Care in the Community 9 (6): 476-89.
6. CLEMENTS, J., RAPLEY, M. & CUMMINS, M. (1999) 'On, To, For, With: Vulnerable People and the Research Practices of the Research Community', Behavioural and Cognitive Psychotherapy 27: 103-15.
7. DETR (1998) Successful Best Value Pilot Authorities Announced. London: Department of the Environment, Transport and the Regions.
8. DOH ( 1999) A First Class Service: Quality in the NHS. London: Department of Health.
9. FRASER, M. & FRASER, A. (2001) 'Are People with Learning Disabilities Able to Contribute to Focus Groups on Health Promotion?', Journal of Advanced Nursing 33 (2): 225-33.
10. GOODMAN, K. (1998) 'Service User Involvement', in M. BURTON & J. KELLAWAY (eds) Developing and Managing High Quality Services for People with Learning Disabilities, Chapter 16, pp. 257-69. Aldershot: Ashgate.
11. JOHNSON, A. (1996) '"It's Good To Talk": The Focus Group and the Sociological Imagination', The Sociological Review 4: 517-38.
12. KIERNAN, C. (1999) 'Participation in Research by People with Learning Disabilities: Origins and Issues', British Journal of Learning Disabilities 27: 43-7.
13. KITZENGER, J. (1994) 'The Methodology of Focus Groups: The Importance of Interaction between Research Participants', Sociology of Health & Illness 16 (1): 103-21.
14. KOCH, T., MARKS, J. & TOOKE, E. (2001) 'Evaluating a Community Nursing Service: Listening to Voices of Clients with an Intellectual Disability and or Their Proxies', Journal of Clinical Nursing 10 (3): 352-63.
15. KRUGAR, R. ( 1994) Focus Groups: A Practical Guide for Applied Research. London: Sage.
16. LANGAN, J., WHITEFIELD, M. & RUSSELL, O. (1994) 'Paid and Unpaid Carets: Their Role in and Satisfaction with Primary Care for People with Learning Disabilities', Health and Social Care 2 (6): 357-65.
17. LENNOX, N. G., DIGGENS, J. N. & UGONI, A. M. ( 1997) 'Barriers and Solutions to General Practice Care for People with Learning Disabilities', Journal of Intellectual Disability Research 41 (5): 380-90.
18. LLOYD, M., PRESTON-SHOOT, M., TEMPLE, P., BOGUSIA, W. & WUU, R. (1996) 'Whose Project Is It Anyway? Sharing and Shaping the Research and Development Agenda', Disability & Society 11 (3): 301-15.
19. MARTIN, D. M., ROY, A., WELLS, M. B. & LEWIS, J. (1997) 'Health Gain through Screening: Users' and Carers' Perspectives of Health Care: Developing Primary Health Care Services for People with an Intellectual Disability', Journal of Intellectual & Developmental Disability 22 (4): 241-9.
20. NORTHWAY, R. (2000) 'Disability, Nursing Research and the Importance of Reflexivity', Journal of Advanced Nursing 32 (2): 391-7.
21. OLIVER, M. (1992) 'Changing the Social Relations of Research Production?', Disability, Handicap and Society 7 (2): 101-14.
22. ONG, L. M., DE HAES, C. J. M. & HOOES, A. M. (1995) 'Doctor-Patient Communication: A Review of the Literature', Social Science and Medicine 7 (40): 903-18.
23. STALKER, K. ( 1998) 'Some Ethical and Methodological Issues in Research with People with Learning Difficulties', Disability and Society 13 (1): 5-19.
24. STEIN, K. (2000) 'Caring for People with Learning Disability: A Survey of General Practitioners' Attitudes in Southampton and South West Hampshire', British Journal of Learning Disabilities 28 (1): 9-15.
25. STONE, E. & PRIESTLEY, M. (1996) 'Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers', British Journal of Sociology 47 (4): 699-715.
26. WARD, L. & SIMONS, K. (1998) 'Practising Partnership: Involving People with Learning Difficulties in Research', British Journal of Learning Disabilities 26 (4): 128-31.
27. ZARB, G. ( 1997) 'Researching Disabling Barriers', in C. BARNES & C. MERCER (eds) Doing Disability Research, Chapter 4, pp. 37-48. Leeds: Disability Press.