Are people with learning disabilities able to contribute to focus groups on health promotion?

Journal of Advanced Nursing

Volumn 33, Issue 2, 2001, Pages 225-233

  Fraser, Mary ^a   Fraser, Anne ^b  

^a Research and Project Consultancy   (United Kingdom)

^b NHS FORTH VALLEY   (United Kingdom)

Author keywords

Focus groups; Health promotion; Learning disabilities; Speech and language difficulties

Indexed keywords

ADULT; ARTICLE; EVALUATION; FEMALE; GROUP PROCESS; HEALTH CARE QUALITY; HEALTH PROMOTION; HUMAN; INFORMATION PROCESSING; MALE; MENTAL DEFICIENCY; METHODOLOGY; MIDDLE AGED; NEEDS ASSESSMENT; ORGANIZATION AND MANAGEMENT; PSYCHOLOGICAL ASPECT; SOCIAL DISTANCE;

ADULT; FEMALE; FOCUS GROUPS; GROUP PROCESSES; HEALTH PROMOTION; HUMANS; MALE; MENTAL RETARDATION; MIDDLE AGED; NEEDS ASSESSMENT; PROGRAM EVALUATION; SOCIAL DISTANCE;

EID: 0035234254     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.2001.01657.x     Document Type: Article

References (42)

1. AbuRasain M.H.M. & Williams D.I. (1999) Peer counseling in Saudi Arabia. Journal of Adolescence 22, 493-502.
2. Anderson R. (1983) Health Promotion: An Overview. Technical paper prepared for WHO. WHO Regional Office for Europe, Copenhagen.
3. Ashworth P. (1986) Qualitative Research in Psychology. Duquesne University Press, Pittsburgh, PA.
4. Baker R. & Hinton R. (1999) Do focus groups facilitate meaningful participation in social research? In Developing Focus Group Research (Barbour R.S. & Kitzinger J. eds) Sage, London, pp. 79-98.
5. Balch G.I. & Mertens D.M. (1999) Focus groups design and group dynamics: lessons from deaf and hard of hearing participants. Amercian Journal of Evaluation 20, 265-277.
6. Bertera E.M. (1999) Assessing perceived health promotion needs and interests of low-income older women. Journal of Women's Health and Gender-Based Medicine 8, 1323-1336.
7. Bogdan R. & Taylor S. (1984) Introduction to Qualitative Research Methods 2nd edn. Wiley, New York.
8. Cabinet Office London (1999) Social Exclusion Unit: What's it all about? http:www.cabinet-office.gov.uk/seu/index/faqs.html.
9. Chiu L.-F. & Knight D. (1999) How useful are focus groups for obtaining the views of minority groups? In Developing focus Group Research (Barbour R.S. & Kitzinger J. eds) Sage, London, pp. 99-112.
10. Eggleston E., Jackson J. & Hardee K. (1999) Sexual attitudes and behaviour among adolescents in Jamaica. International Family Planning Perspectives 25, 78-85.
11. Espie C.A. & Brown M. (1998) Health needs and learning disabilities: an overview. Health Bulletin 56, 603-611.
12. Field P.A. & Morse J.M. (1985) Nursing Research: the Application of Qualitative Approaches. Chapman & Hall, London.
13. Goodman K. (1998) Service user involvement. In Developing and Managing High Quality Services for People with Learning Disabilities (Burton M. & Kellaway M. eds), Ashgate, Aldershot, Chapter 16, pp. 257-269.
14. Grundy E. & Bowling A. (1999) Enhancing the quality of extended life years. Identification of the oldest old with a very good and very poor quality of life. Aging and Mental Health 3, 199-212.
15. Haase J.E., Heiney S.P., Ruccione K.S. & Stutzer C. (1999) Research triangulation to derive meaning-based quality-of-life theory: adolescent Resilience Model and instrumental development. International Journal of Cancer S12, 125-131.
16. Hanson E. (1994) Issues concerning the familiarity of researchers with the research setting. Journal of Advanced Nursing 20, 940-942.
17. Heffernan C., Herbert C, Grams G.D., Grybowski S., Wilson M.A., Calam B. & Brown D. (1999) The Haida Gwaii Diabetes Project: planned response activity outcomes. Health and Social Care in the Community 7, 379-386.
18. Ingersoll Dayton B. & Saengtienchai C. (1999) Respect for the elderly in Asia: stability and change. International Journal of Aging and Human Development 48, 113-130.
19. Kitzinger J. (1994) The methodology of focus groups: the importance of interaction between research participants. Sociology of Health & Illness 16, 103-121.
20. Krueger R.A. (1998a) Developing Questions for Focus Groups: Focus Group Kit 3. Sage, London.
21. Krueger R.A. (1998b) Moderating Focus Groups: Focus Group Kit 4. Sage, London.
22. Lai A.C. & Salili F. (1999) Parental attitudes towards their parenting styles and children's competence in families whose children are Hepatitis B Virus (HBV) carriers in Guangzhou China. Journal of Comparative Family Studies 30, 281-296.
23. Larkey L.K., Alatorre C., Buller D.B., Morrill C., Buller M.K., Taren D. & ScottMiller L. (1999) Communication strategies for dietary change in a worksite peer educator intervention. Health Education Research 14, 777-790.
24. Leviton L.C., Finnegan J.R., Zapka J.G., Meischke H., Estabrook B., Gilliland J., Linares A., Weitzman E.R., Raczynski J. & Stoen E. (1999) Formative research methods to understand patient and provider responses to heart attack symptoms. Evaluation and Programme Planning 22, 385-397.
25. Long N.H., Johansson E., Diwan V.K. & Winkvist A. (1999) Different tuberculosis in men and women: Beliefs from focus groups in Vietnam. Social Science and Medicine 49, 815-822.
26. Macario E., Emmons K. & Sorenson G. (1998) Factors influencing nutrition education for patients with low literacy skills. Journal of the American Dietetic Association 98, 559-564.
27. Martin D.M., Roy A., Wells M.B. & Lewis J. (1997) Health gain through screening - users' and carers' perspectives of health care: developing primary health care services for people with an intellectual disability. Journal of Intellectual & Development Disability 22, 241-249.
28. Maxwell K., Streetly A. & Bevan D. (1999) Experiences of hospital care and treatment-seeking behaviour for sickle cell patients. Western Journal of Medicine 171, 306-313.
29. McNally N.J., Phillips D.R. & Williams H.C. (1998) Focus groups in dermatology. Clinical and Experimental Dermatology 23, 195-200.
30. Morgan D.L. (1998) The Focus Group Guidebook. Focus Group Kit 1. Sage, London.
31. Morgan D.L. & Schannell A.U. (1998) Planning Focus Groups. Focus Group Kit 2. Sage, London.
32. Oliva G., Rienks J. & McDermid M. (1999) What high-risk women are telling us about access to primary and reproductive health care and HIV prevention sources. AIDS Education and Prevention 11, 513-524.
33. Rhodes F., Deren S., Wood M.M., Shedlin M.G., Carlson R.G., Lambert E.Y., Kochems L.M., Stark M.J., Falck R.S., WrightDe-Aguero L., Weir B., Cottler L., Rourke K.M. & Trotter R.T. (1999) Understanding HIV risks of chronic drug-using men who have sex with men. AIDS Care-Psychological and Socio-Medical Aspects of AIDS/HIV 11, 629-648.
34. Robinson S.B. (1999) Transitions in the lives of elderly women who have sustained hip fractures. Journal of Advanced Nursing 30, 1341-1348.
35. Sadana R. & Snow R. (1999) Balancing effectiveness, side effects and work: Women's perceptions and experiences with modern contraceptive technology in Cambodia. Social Science and Medicine 49, 343-358.
36. Steele J.R. (1999) Teenage sexuality and media practice: Factoring in the influences of family, friends and school. Journal of Sex Research 36, 331-341.
37. Stewart D.W. & Shamdasani P.M. (1990) Focus Groups: theory and practice. Sage, Newbury park, CA.
38. Strickland C.J. (1999) Conducting focus groups cross-culturally: experiences with Pacific Northwest Indian people. Public Health Nursing 16, 190-197.
39. Summers J.A., Raikes H., Butler J., Spicer P., Pan B., Shaw S., Langager M., McAllister C. & Johnson M.K. (1999) Low-income fathers' and mothers' perceptions of the father role: a qualitative study in four head start communities. Infant Mental Health Journal 20, 291-304.
40. Thomas L., MacMillan J., McColl E., Hale C. & Bond S. (1995) Comparison of focus group and individual interview methodology in examining patient satisfaction with nursing care. Social Sciences in Health 1, 206-219.
41. TudorLocke C., Myers A.M., Jocob C.S., Jones G., Lazowski D.A. & Ecclestone N.A. (2000) Development of formative evaluation of the Centre for Activity in Ageing's Home Support Exercise programme for frail older adults. Journal of Ageing and Physical Activity 8, 59-75.
42. Ward L. & Simons K. (1998) Practising partnership: Involving people with learning difficulties in research. British Journal of Learning Disabilities 26, 128-131.