메뉴 건너뛰기




Volumn 66, Issue 4, 2008, Pages 982-993

Planning for end of life care within lay-led chronic illness self-management training: The significance of 'death awareness' and biographical context in participant accounts

Author keywords

Advance care planning; Biographical disruption; Chronic illness; Death and dying; Expert patients; HIV; Self management training; UK

Indexed keywords

BIOGRAPHY; HEALTH CARE; HEALTH EDUCATION; HEALTH POLICY; HEALTH SURVEY; HUMAN IMMUNODEFICIENCY VIRUS; QUESTIONNAIRE SURVEY; TRAINING;

EID: 38749084221     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2007.11.003     Document Type: Article
Times cited : (32)

References (63)
  • 1
    • 0042940074 scopus 로고
    • Chronic illness and the dynamics of hoping
    • Toombs S.K., Barnard D., and Carson R.A. (Eds), Indiana University Press, Bloomington, Indianapolis
    • Barnard D. Chronic illness and the dynamics of hoping. In: Toombs S.K., Barnard D., and Carson R.A. (Eds). Chronic illness: From experience to policy (1995), Indiana University Press, Bloomington, Indianapolis 38-57
    • (1995) Chronic illness: From experience to policy , pp. 38-57
    • Barnard, D.1
  • 4
    • 0142150046 scopus 로고    scopus 로고
    • Historical perspectives. The history of advance directives: a literature review
    • Brown B.A. Historical perspectives. The history of advance directives: a literature review. Journal of Gerontological Nursing 29 9 (2003) 4-14
    • (2003) Journal of Gerontological Nursing , vol.29 , Issue.9 , pp. 4-14
    • Brown, B.A.1
  • 5
    • 0020321030 scopus 로고
    • Chronic illness as biographical disruption
    • Bury M. Chronic illness as biographical disruption. Sociology of Health and Illness 4 2 (1982) 165-182
    • (1982) Sociology of Health and Illness , vol.4 , Issue.2 , pp. 165-182
    • Bury, M.1
  • 6
    • 0035324776 scopus 로고    scopus 로고
    • Illness narratives: fact or fiction?
    • Bury M. Illness narratives: fact or fiction?. Sociology of Health and Illness 23 3 (2001) 263-285
    • (2001) Sociology of Health and Illness , vol.23 , Issue.3 , pp. 263-285
    • Bury, M.1
  • 8
    • 0037143050 scopus 로고    scopus 로고
    • Planning for death but not serious future illness: qualitative study of housebound elderly patients
    • Carrese J.A., Mullaney J.L., Faden R.R., and Finucane T.E. Planning for death but not serious future illness: qualitative study of housebound elderly patients. BMJ 325 125 (2002) 127
    • (2002) BMJ , vol.325 , Issue.125 , pp. 127
    • Carrese, J.A.1    Mullaney, J.L.2    Faden, R.R.3    Finucane, T.E.4
  • 9
    • 85024816419 scopus 로고
    • From biographical disruption to biographical reinforcement: the case of HIV-positive men
    • Carricaburu D., and Pierret J. From biographical disruption to biographical reinforcement: the case of HIV-positive men. Sociology of Health and Illness 17 1 (1995) 65-88
    • (1995) Sociology of Health and Illness , vol.17 , Issue.1 , pp. 65-88
    • Carricaburu, D.1    Pierret, J.2
  • 13
    • 0001894038 scopus 로고
    • Managing chronic illness at home: three lines of work
    • Corbin J., and Strauss A.L. Managing chronic illness at home: three lines of work. Qualitative Sociology 8 (1985) 224-247
    • (1985) Qualitative Sociology , vol.8 , pp. 224-247
    • Corbin, J.1    Strauss, A.L.2
  • 14
    • 84928831793 scopus 로고
    • Comeback: the process of overcoming disability
    • Albrecht G.L., and Levy J.A. (Eds), JAI PRESS, Greenwich, Connecticut
    • Corbin J., and Strauss A.L. Comeback: the process of overcoming disability. In: Albrecht G.L., and Levy J.A. (Eds). Advances in medical sociology (1991), JAI PRESS, Greenwich, Connecticut 137-159
    • (1991) Advances in medical sociology , pp. 137-159
    • Corbin, J.1    Strauss, A.L.2
  • 17
    • 0043023857 scopus 로고    scopus 로고
    • Using the family covenant in planning end-of-life care: obligations and promises of patients, families, and physicians
    • Doukas D.J., and Hardwig J. Using the family covenant in planning end-of-life care: obligations and promises of patients, families, and physicians. Journal of the American Geriatrics Society 51 8 (2003) 1155-1158
    • (2003) Journal of the American Geriatrics Society , vol.51 , Issue.8 , pp. 1155-1158
    • Doukas, D.J.1    Hardwig, J.2
  • 19
    • 0033990769 scopus 로고    scopus 로고
    • Illness narratives: time, hope and HIV
    • Ezzy D. Illness narratives: time, hope and HIV. Social Science & Medicine 50 (2000) 605-617
    • (2000) Social Science & Medicine , vol.50 , pp. 605-617
    • Ezzy, D.1
  • 22
    • 84937274189 scopus 로고    scopus 로고
    • Awareness and modern dying
    • Field D. Awareness and modern dying. Mortality 1 3 (1996) 255-265
    • (1996) Mortality , vol.1 , Issue.3 , pp. 255-265
    • Field, D.1
  • 23
    • 38749108820 scopus 로고    scopus 로고
    • This is not euthanasia by the back door
    • Finlay I. This is not euthanasia by the back door. The Guardian (July 29, 2005)
    • (2005) The Guardian
    • Finlay, I.1
  • 26
    • 34547188732 scopus 로고    scopus 로고
    • Re-thinking the relationship between long-term condition self-management education and the utilisation of health services
    • Gately C., Rogers A., and Sanders C. Re-thinking the relationship between long-term condition self-management education and the utilisation of health services. Social Science & Medicine 65 (2007) 934-945
    • (2007) Social Science & Medicine , vol.65 , pp. 934-945
    • Gately, C.1    Rogers, A.2    Sanders, C.3
  • 27
    • 0017614986 scopus 로고
    • The role of age in death attitudes
    • Kalish R.A., and Reynolds D.K. The role of age in death attitudes. Death Education 1 (1977) 205-230
    • (1977) Death Education , vol.1 , pp. 205-230
    • Kalish, R.A.1    Reynolds, D.K.2
  • 29
    • 0003232615 scopus 로고
    • Self-help groups and their relationship to medicine
    • Gabe J., Kelleher D., and Williams G. (Eds), Routledge, London
    • Kelleher D. Self-help groups and their relationship to medicine. In: Gabe J., Kelleher D., and Williams G. (Eds). Challenging medicine (1994), Routledge, London
    • (1994) Challenging medicine
    • Kelleher, D.1
  • 30
    • 0041824607 scopus 로고    scopus 로고
    • The narrative self in autobiographical accounts of illness
    • Kelly M.P., and Dickinson H. The narrative self in autobiographical accounts of illness. The Sociological Review 42 2 (1997) 254-278
    • (1997) The Sociological Review , vol.42 , Issue.2 , pp. 254-278
    • Kelly, M.P.1    Dickinson, H.2
  • 34
    • 34147198203 scopus 로고    scopus 로고
    • The effectiveness and cost effectiveness of a national lay led self care support programme for patients with long-term conditions: a pragmatic randomised controlled trial
    • Kennedy A., Reeves D., Bower P., et al. The effectiveness and cost effectiveness of a national lay led self care support programme for patients with long-term conditions: a pragmatic randomised controlled trial. Journal of Epidemiology and Community Health 61 (2007) 254-261
    • (2007) Journal of Epidemiology and Community Health , vol.61 , pp. 254-261
    • Kennedy, A.1    Reeves, D.2    Bower, P.3
  • 35
    • 34250711323 scopus 로고    scopus 로고
    • Participation, roles, and the dynamics of change in a group-delivered self-management course for people living with HIV
    • Kennedy A., Rogers A., and Crossley M. Participation, roles, and the dynamics of change in a group-delivered self-management course for people living with HIV. Qualiative Health Research 17 6 (2007) 744-758
    • (2007) Qualiative Health Research , vol.17 , Issue.6 , pp. 744-758
    • Kennedy, A.1    Rogers, A.2    Crossley, M.3
  • 36
    • 0036878973 scopus 로고    scopus 로고
    • Colonising the future: temporal perceptions and health-relevant behaviours across the adult lifecourse
    • Lawton J. Colonising the future: temporal perceptions and health-relevant behaviours across the adult lifecourse. Sociology of Health and Illness 24 6 (2002) 714-733
    • (2002) Sociology of Health and Illness , vol.24 , Issue.6 , pp. 714-733
    • Lawton, J.1
  • 37
    • 21144461641 scopus 로고
    • Modernity, self-identity and the sequestration of death
    • Mellor P.A., and Shilling C. Modernity, self-identity and the sequestration of death. Sociology 27 3 (1993) 411-431
    • (1993) Sociology , vol.27 , Issue.3 , pp. 411-431
    • Mellor, P.A.1    Shilling, C.2
  • 39
    • 8744226101 scopus 로고    scopus 로고
    • Enigmatic illness: narrative of patients who live with medically unexplained symptoms
    • Nettleton S., O'Malley L., Watt I., and Duffey P. Enigmatic illness: narrative of patients who live with medically unexplained symptoms. Social Theory & Health 2 (2004) 47-66
    • (2004) Social Theory & Health , vol.2 , pp. 47-66
    • Nettleton, S.1    O'Malley, L.2    Watt, I.3    Duffey, P.4
  • 43
    • 0025362082 scopus 로고
    • Personal narratives, social careers and medical courses: analysing life trajectories in autobiographies of people with multiple sclerosis
    • Robinson I. Personal narratives, social careers and medical courses: analysing life trajectories in autobiographies of people with multiple sclerosis. Social Science & Medicine 30 11 (1990) 1173-1186
    • (1990) Social Science & Medicine , vol.30 , Issue.11 , pp. 1173-1186
    • Robinson, I.1
  • 44
    • 33746438999 scopus 로고    scopus 로고
    • Development of a peer education programme for advance end-of-life care planning: an action research project with older adults
    • Sanders C., Seymour J., Clarke A., Gott M., and Welton M. Development of a peer education programme for advance end-of-life care planning: an action research project with older adults. International Journal of Palliative Nursing 12 5 (2006) 214-223
    • (2006) International Journal of Palliative Nursing , vol.12 , Issue.5 , pp. 214-223
    • Sanders, C.1    Seymour, J.2    Clarke, A.3    Gott, M.4    Welton, M.5
  • 45
    • 0034679232 scopus 로고    scopus 로고
    • Views of elderly people on living wills: interview study
    • Schiff R., Rajkumar C., and Bulpitt C. Views of elderly people on living wills: interview study. BMJ 320 7250 (2000) 1640-1641
    • (2000) BMJ , vol.320 , Issue.7250 , pp. 1640-1641
    • Schiff, R.1    Rajkumar, C.2    Bulpitt, C.3
  • 47
    • 0033012040 scopus 로고    scopus 로고
    • Revisiting medicalisation and 'natural' death
    • Seymour J.E. Revisiting medicalisation and 'natural' death. Social Science & Medicine 49 (1999) 691-704
    • (1999) Social Science & Medicine , vol.49 , pp. 691-704
    • Seymour, J.E.1
  • 48
    • 1842861892 scopus 로고    scopus 로고
    • Planning for the end of life: the views of older people about advance care statements
    • Seymour J.E., Gott M., Bellamy G., Ahmedzai S.H., and Clark D. Planning for the end of life: the views of older people about advance care statements. Social Science & Medicine 59 (2004) 57-68
    • (2004) Social Science & Medicine , vol.59 , pp. 57-68
    • Seymour, J.E.1    Gott, M.2    Bellamy, G.3    Ahmedzai, S.H.4    Clark, D.5
  • 49
    • 35748941228 scopus 로고    scopus 로고
    • Hospice or home? Expectations of end of life care among white and Chinese people living in the UK
    • Seymour J.E., Payne S., Chapman S., and Holloway M. Hospice or home? Expectations of end of life care among white and Chinese people living in the UK. Sociology of Health and Illness 29 6 (2007) 872-890
    • (2007) Sociology of Health and Illness , vol.29 , Issue.6 , pp. 872-890
    • Seymour, J.E.1    Payne, S.2    Chapman, S.3    Holloway, M.4
  • 54
    • 17044433163 scopus 로고    scopus 로고
    • Chronic disease self-management program: from development to dissemination
    • Sobel D.R., Lorig K.R., and Hobbs M. Chronic disease self-management program: from development to dissemination. The Permanente Journal 6 2 (2002) 15-22
    • (2002) The Permanente Journal , vol.6 , Issue.2 , pp. 15-22
    • Sobel, D.R.1    Lorig, K.R.2    Hobbs, M.3
  • 56
    • 29144464933 scopus 로고    scopus 로고
    • Death brokering: constructing culturally appropriate deaths
    • Timmermans S. Death brokering: constructing culturally appropriate deaths. Sociology of Health and Illness (2005) 993-1013
    • (2005) Sociology of Health and Illness , pp. 993-1013
    • Timmermans, S.1
  • 57
    • 38749119371 scopus 로고    scopus 로고
    • Dorset and somerset strategic health authority: NHS Availabe from
    • Tomkins S., and Collins A. Promoting optimal self care (2005), Dorset and somerset strategic health authority: NHS. http://www.dorsetsomerset.nhs.uk/documents/promotingOptimalSelfCare.pdf Availabe from
    • (2005) Promoting optimal self care
    • Tomkins, S.1    Collins, A.2
  • 58
    • 0033977313 scopus 로고    scopus 로고
    • Thinking differently about thinking positive: a discursive approach to cancer patients' talk
    • Wilkinson S., and Kitzinger C. Thinking differently about thinking positive: a discursive approach to cancer patients' talk. Social Science & Medicine 50 (2000) 797-811
    • (2000) Social Science & Medicine , vol.50 , pp. 797-811
    • Wilkinson, S.1    Kitzinger, C.2
  • 59
    • 0021453787 scopus 로고
    • The genesis of chronic illness: narrative re-construction
    • Williams G. The genesis of chronic illness: narrative re-construction. Sociology of Health and Illness 6 2 (1984) 175-200
    • (1984) Sociology of Health and Illness , vol.6 , Issue.2 , pp. 175-200
    • Williams, G.1
  • 61
    • 0033622261 scopus 로고    scopus 로고
    • Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept
    • Williams S.J. Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health and Illness 22 1 (2000) 40-67
    • (2000) Sociology of Health and Illness , vol.22 , Issue.1 , pp. 40-67
    • Williams, S.J.1
  • 62
    • 0034311359 scopus 로고    scopus 로고
    • Death. So what? Sociology, sequestration and emancipation
    • Wilmott H. Death. So what? Sociology, sequestration and emancipation. The Sociological Review (2000) 649-665
    • (2000) The Sociological Review , pp. 649-665
    • Wilmott, H.1
  • 63
    • 33947601737 scopus 로고    scopus 로고
    • Death denial: obstacle or instrument for palliative care? An analysis of clinical literature
    • Zimmerman C. Death denial: obstacle or instrument for palliative care? An analysis of clinical literature. Sociology of Health and Illness 29 2 (2007) 297-314
    • (2007) Sociology of Health and Illness , vol.29 , Issue.2 , pp. 297-314
    • Zimmerman, C.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.