Quality of life and behavioral follow-up study of Head Start i pediatric brain tumor survivors

Journal of Neuro-Oncology

Volumn 101, Issue 2, 2011, Pages 287-295

  Sands, Stephen A ^a   Pasichow, Keith P ^b   Weiss, Rebecca ^c   Garvin, James ^a   Gardner, Sharon ^d   Dunkel, Ira J ^e   Finlay, Jonathan L ^f  

^a New York Presbyterian Columbia University Medical Center   (United States)

^b Children's Medical Center   (United States)

^c FORDHAM UNIVERSITY   (United States)

^d NEW YORK UNIVERSITY SCHOOL OF MEDICINE   (United States)

^e MEMORIAL SLOAN KETTERING CANCER CENTER   (United States)

^f UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

Behavioral; Head Start; Late effects; Pediatric brain tumor; Quality of life; Social emotional

Indexed keywords

CISPLATIN; CYCLOPHOSPHAMIDE; ETOPOSIDE; RECOMBINANT GRANULOCYTE COLONY STIMULATING FACTOR; VINCRISTINE;

ADOLESCENT; ARTICLE; AUTOLOGOUS HEMATOPOIETIC STEM CELL TRANSPLANTATION; BRAIN TUMOR; CANCER CENTER; CANCER CHEMOTHERAPY; CANCER SURGERY; CANCER SURVIVOR; CHILD; CHILD HEALTH; CLINICAL ARTICLE; CLINICAL PROTOCOL; CONTROLLED STUDY; EMOTIONALITY; FEMALE; FOLLOW UP; HUMAN; MALE; MULTIPLE CYCLE TREATMENT; MYELOABLATIVE CONDITIONING; PATIENT ASSESSMENT; PATIENT MONITORING; QUALITY OF LIFE; SCHOOL CHILD; SOCIAL BEHAVIOR; UNITED STATES;

ADOLESCENT; BRAIN NEOPLASMS; CHILD; CHILD BEHAVIOR; EMOTIONS; FEMALE; HUMANS; LONGITUDINAL STUDIES; LOST TO FOLLOW-UP; MALE; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL BEHAVIOR; STATISTICS AS TOPIC; SURVIVORS; UNITED STATES;

EID: 78651281608     PISSN: 0167594X     EISSN: 15737373     Source Type: Journal    
DOI: 10.1007/s11060-010-0260-3     Document Type: Article

References (38)

1. DF Cella AE Bonomi 1995 Measuring quality of life: 1995 update Oncology (Williston Park) 9 11 Suppl 47 60 1:STN:280:DyaK287ovVCltw%3D%3D
2. Marsland AL, Ewing LJ, Thompson A (2006) Psychological and social effects of surviving childhood cancer. In: Brown RT (ed) Comprehensive handbook of childhood cancer and sickle cell disease. Oxford University Press, Oxford, pp 237-261
3. TD Elkin S Phipps RK Mulhern D Fairclough 1997 Psychological functioning of adolescent and young adult survivors of pediatric malignancy Med Pediatr Oncol 29 582 588 1:STN:280:DyaK2svmsVGhuw%3D%3D 10.1002/(SICI)1096-911X(199712) 29:6<582::AID-MPO13>3.0.CO;2-8 9324350 (Pubitemid 27419414)
4. AF Patenaude MJ Kupst 2005 Psychosocial functioning in pediatric cancer J Pediatr Psychol 30 1 9 27 10.1093/jpepsy/jsi012 15610981 (Pubitemid 40041437)
5. RB Noll MA Gartstein K Vannatta J Correll WM Bukowski WH Davies 1999 Social, emotional, and behavioral functioning of children with cancer Pediatrics 103 1 71 78 1:STN:280:DyaK1M7hslKisg%3D%3D 10.1542/peds.103.1.71 9917442 (Pubitemid 29281931)
6. J Reiter-Purtill K Vannatta CA Gerhardt J Correll RB Noll 2003 A controlled longitudinal study of the social functioning of children who completed treatment of cancer J Pediatr Hematol/Oncol 25 6 467 473 10.1097/00043426-200306000-00008 (Pubitemid 36682752)
7. SC Carpentieri EA Meyer BL Delaney, et al. 2003 Psychosocial and behavioral functioning among pediatric brain tumor survivors J Neurooncol 63 279 287 10.1023/A:1024203323830 12892234 (Pubitemid 36874012)
8. LA Holmquist J Scott 2002 Treatment, age, and time-related predictors of behavioral outcome in pediatric brain tumor survivors J Clin Psychol Med Settings 9 4 315 321 10.1023/A:1020791018897 (Pubitemid 35378699)
9. RB Levi D Drotar 1999 Health-related quality of life in childhood cancer: discrepancy in parent-child reports Int J Cancer 22 58 64 10.1002/(SICI)1097- 0215(1999)83:12+<58::AID-IJC11>3.0.CO;2-A
10. WL Newby RT Brown TM Pawletko SH Gold K Whitt 2000 Social skills and psychological adjustment of child and adolescent cancer survivors Psycho-oncology 9 113 126 10.1002/(SICI)1099-1611(200003/04)9:2<113::AID- PON432>3.0.CO;2-F (Pubitemid 30237278)
11. TS Reimers EL Mortensen K Nysom K Schmiegelow 2009 Health-related quality of life in long-term survivors of childhood brain tumors Pediatr Blood Cancer 53 1086 1091 10.1002/pbc.22122 19499581
12. JM Fletcher DR Copeland 1988 Neurobehavioral effects of central nervous system prophylactic treatment of cancer in children J Clin Exp Neuropsychol 10 4 495 537 1:STN:280:DyaL1c3pvFWnsQ%3D%3D 10.1080/01688638808408255 3042805
13. PK Duffner ME Cohen MS Parker 1988 Prospective intellectual testing in children with brain tumors Ann Neurol 23 6 575 579 1:STN:280: DyaL1czgvVCmug%3D%3D 10.1002/ana.410230608 3408238
14. RK Mulhern J Hancock D Fairclough LE Kun 1992 Neuropsychological status of children treated for brain tumors: a critical review and integrative analysis Med Pediatr Oncol 20 3 181 191 1:STN:280:DyaK383ksVWhtA%3D%3D 10.1002/mpo.2950200302 1574027
15. JH Silber J Radcliffe V Peckham, et al. 1992 Whole-brain irradiation and decline in intelligence: the influence of dose and age on IQ score J Clin Oncol 10 9 1390 1396 1:STN:280:DyaK38zovV2mtQ%3D%3D 1517781
16. LS Constine PD Woolf D Cann, et al. 1993 Hypothalamic-pituitary dysfunction after radiation for brain tumors N Engl J Med 328 2 87 94 1:CAS:528:DyaK3sXht1Sjtrk%3D 10.1056/NEJM199301143280203 8416438
17. W Regine M Mohiuddin S Kramer 1993 Long-term results of pediatric and adult craniopharyngiomas treated with combined surgery and radiation Radiother Oncol: J Eur Soc Ther Adiol Oncol 27 1 13 21 1:STN:280:DyaK3szhsl2htg%3D%3D
18. Mulhern RK (1994) Neuropsychological late effects. In: Bearsion DJ, Mulhern RK (eds) Pediatric psychooncology: psychological perspectives on children with cancer. Oxford University Press, New York, pp 99-121
19. J Radcliffe RJ Packer TE Atkins, et al. 1992 Three- and four-year cognitive outcome in children with noncortical brain tumors treated with whole-brain radiotherapy Ann Neurol 32 4 551 554 1:STN:280: DyaK3s%2FovFyrtQ%3D%3D 10.1002/ana.410320411 1456739
20. MD Ris RB Noll 1994 Long-term neurobehavioral outcome in pediatric brain-tumor patients: review and methodological critique J Clin Exp Neuropsychol 16 1 21 42 1:STN:280:DyaK2c3gtFaqtQ%3D%3D 10.1080/01688639408402615 8150888
21. Armstrong F, Mulhern R (1999) Acute lymphoblastic leukemia and brain tumors. In: Brown R (ed) Cognitive aspects of chronic illness in children. Guildford Press, New York, pp 47-77
22. J Siffert M Greenleaf R Mannis JC Allen 1999 Pediatric brain tumors Child Adolesc Psychiatr Clin N Am 8 4 879 903 1:STN:280:DC%2BD3c%2FitVOkuw%3D%3D 10553209
23. Kun LE (1999) General principles of radiation therapy. In: Pizzo PA, Poplack DG (eds) Principles and practice of pediatric oncology. Lippincott-Raven, Philadelphia, pp 289-321
24. BF Fuemmeler TD Elkin LL Mullins 2002 Survivors of childhood brain tumors: behavioral, emotional, and social adjustment Clin Psychol Rev 22 547 585 10.1016/S0272-7358(01)00120-9 12094511 (Pubitemid 34462893)
25. K Vannatta MA Gartstein RB Noll 1998 Peer relationships of children surviving brain tumors J Pediatr Psychol 23 279 288 1:STN:280: DyaK1cvlsF2qtA%3D%3D 10.1093/jpepsy/23.5.279 9782676 (Pubitemid 28432420)
26. J Radcliffe GR Bunin LN Sutton JW Goldwein PC Phillips 1994 Cognitive deficits in long-term survivors of childhood medulloblastoma and other noncortical tumors: age-dependent effects of whole brain radiation Int J Dev Neurosci 12 4 327 334 1:STN:280:DyaK2M%2FmslSjsg%3D%3D 10.1016/0736-5748(94) 90081-7 7976487 (Pubitemid 24217842)
27. A Kingma LAJ Rammeloo A van der Does-van den Berg L Rekers-Mombarg A Postma 2000 Academic career after treatment for acute lymphoblastic leukaemia Arch Dis Child 82 5 353 357 1:STN:280:DC%2BD3c3mtFagsw%3D%3D 10.1136/adc.82.5.353 10799421 (Pubitemid 30307760)
28. J Rodgers J Horrocks PG Britton J Kernahan 1999 Attentional ability among survivors of leukaemia Arch Dis Child 80 4 318 323 1:STN:280: DyaK1Mzos1Gmuw%3D%3D 10.1136/adc.80.4.318 10086934
29. DA Glover J Byrne JL Mills, et al. 2003 Impact of CNS treatment on mood in adult survivors of childhood leukemia: a report from the children's cancer group J Clin Oncol 21 23 4395 4401 10.1200/JCO.2003.04.089 14645430 (Pubitemid 46628463)
30. WP Mason A Grovas S Halpern, et al. 1998 Intensive chemotherapy and bone marrow rescue for young children with newly diagnosed malignant brain tumors J Clin Oncol 16 1 210 221 1:CAS:528:DyaK1cXmsVCnuw%3D%3D 9440745
31. S Sands W van Gorp JL Finlay 1998 Pilot neuropsychological findings from a treatment regimen consisting of intensive chemotherapy and bone marrow rescue for young children with newly diagnosed malignant brain tumors Child Nerv Syst 14 10 587 589 1:STN:280:DyaK1M%2FlsVWiuw%3D%3D 10.1007/s003810050277 (Pubitemid 28503605)
32. Landgraf JM, Abetz L, Ware JE (1996) The Child Health Questionnaire (CHQ): a user's manual. The Health Institute, New England Medical Center, Boston
33. H Raat AM Botterweck JM Landgraf WC Hoogeveen M-L Essink-Bot 2005 Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples J Epidemiol Community Health 59 75 82 10.1136/jech.2003.012914 15598731 (Pubitemid 40037090)
34. C Eiser R Morse 2001 A review of the measures of quality of life for children with chronic illness Arch Dis Child 84 205 211 1:STN:280: DC%2BD3Mrjs1alsw%3D%3D 10.1136/adc.84.3.205 11207164 (Pubitemid 32250825)
35. Reynolds CR, Kamphaus RW (1998) Behavior assessment system for children. American Guidance System Publishing, Circle Pines
36. A Doyle R Ostrander S Skare RD Crosby GJ August 1997 Convergent and criterion-related validity of the behavior assessment system for children-parent rating scale J Clin Child Psychol 26 3 276 284 1:STN:280:DyaK2svjslymsA%3D%3D 10.1207/s15374424jccp2603-6 9292385
37. SR Bhat TL Goodwin TM Burwinkle, et al. 2005 Profile of daily life in children with brain tumors: an assessment of health-related quality of life J Clin Oncol 23 24 5493 5499 10.1200/JCO.2005.10.190 16110009
38. C Eiser MEM Jenny 1996 Measuring symptomatic benefit and quality of life in pediatric oncology Br J Cancer 73 1313 1316 1:STN:280:DyaK283kvFSnsQ%3D%3D 8645572