The complexity of the treatment: The decision-making process among women with rheumatoid arthritis

Qualitative Health Research

Volumn 21, Issue 2, 2011, Pages 214-222

  Salt, Elizabeth ^a   Peden, Ann ^b  

^a UNIVERSITY OF KENTUCKY COLLEGE OF NURSING   (United States)

^b CAPITAL UNIVERSITY   (United States)

Author keywords

adherence; arthritis; compliance; decision making; grounded theory; medication

Indexed keywords

ANTIINFLAMMATORY AGENT; ANTIRHEUMATIC AGENT;

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; DECISION MAKING; EVIDENCE BASED MEDICINE; FEMALE; HUMAN; MIDDLE AGED; PAIN; PATIENT COMPLIANCE; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RHEUMATOID ARTHRITIS; UNITED STATES; WOMEN'S HEALTH;

ADULT; AGED; AGED, 80 AND OVER; ANTI-INFLAMMATORY AGENTS; ANTIRHEUMATIC AGENTS; ARTHRITIS, RHEUMATOID; DECISION MAKING; EVIDENCE-BASED MEDICINE; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; KENTUCKY; MEDICATION ADHERENCE; MIDDLE AGED; PAIN; PATIENT PARTICIPATION; QUALITATIVE RESEARCH; WOMEN'S HEALTH;

EID: 78651257830     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732310381086     Document Type: Article

References (38)

1. American College of Rheumatology Subcommittee. (2002). Guidelines for the management of rheumatoid arthritis. Arthritis and Rheumatism, 46 (2). 328-346. doi:10.1002/art.10148
2. Arnett, F.C., Edworthy, S.M., Bloch, D.A., McShane, D.J., Fries, J.F., Cooper, N.S.,... Hunder, G.G. (1988). The American College of Rheumatology 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis and Rheumatism, 31, 315-324. doi:10.1002/art.1780310302
3. Brus, H., van de Laar, M., Taal, E., Rasker, J., & Wiegman, O. (1999). Determinants of compliance with medication in patients with rheumatoid arthritis: The importance of self efficacy expectations. Patient Education and Counseling, 36, 57-64.
4. Charmaz, K. (2006). The grounded theory method: An explication and interpretation. In R. Emerson (Ed.), Contemporary field research (pp. 109-126). Boston: Little Brown.
5. de Klerk, E., van der Heijde, D., Landewe, R., van der Tempel, H., Urquhart, J., & van der Linden, S. (2003). Patient compliance in rheumatoid arthritis, polymyalgia rheumatica and gout. Journal of Rheumatology, 30 (1). 44-54. Retrieved from http://www.jrheum.org.ezproxy.uky.edu/content/30/1/44. full.pdf+html
6. Doyle, D.V., Perrett, D., Foster, J.F., & Scott, D.L. (1993). The long-term use of D-penicillamine for treating rheumatoid arthritis: Is continuous therapy necessary? British Journal of Rheumatology, 32, 614-617. Retrieved from http://rheumatology.oxfordjournals.org/cgi/content/
7. Dunbar-Jacob, J., Holmes, J.L., Sereika, S., Kwoh, C.K., Burke, L.E., Starz, T.W.,... Foley, S.M. (2004). Factors associated with attrition of African-Americans during the recruitment phase of a clinical trial examining adherence among individuals with rheumatoid arthritis. Arthritis and Rheumatism, 51 (3). 422-428. doi:10.1002/art.20411
8. Fraenkel, L., Bogardus, S., Concato, J., & Felson, D. (2003). Risk communication in rheumatoid arthritis. Journal of Rheumatology, 30 (3). 443-448. Retrieved from http://www.jrheum.org.ezproxy.uky.edu/content/30/3/443.full. pdf+html
9. Garfield, S., Smith, F., Francis, S.A., & Chalmers, C. (2007). Can patients' preferences for involvement in decision-making regarding the use of medicines be predicted? Patient Education and Counseling, 66, 361-367. doi:10.1016/j.pec.2007.01.012
10. Glazer, B.G., & Straus, A. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine.
11. Goodacre, L.J., & Goodacre, J.A. (2004). Factors influencing the beliefs of patients with rheumatoid arthritis regarding disease modifying medication. Rheumatology, 43, 583-586. doi:10.1093/rheumatology/keh116
12. Haynes, R.A., Taylor, R.B., Snow, J.S., & Sackett, D.L. (1997). Compliance in health care. Baltimore, MD: Johns Hopkins University Press.
13. Health Resources and Services Administration. (2008). Health provider shortage areas by state and county. Retrieved from http://hpsafind.hrsa.gov/ HPSASearch.aspx
14. Helmick, C.G., Felson, D.T., Lawrence, R.C., Gabriel, S., Hirsch, R., Kwoh, K.,... Stone, J.H. (2008). Estimates of the prevalence of arthritis and other rheumatic conditions in the United States. Arthritis and Rheumatism, 58 (1). 15-25. doi:10.1002/art.23177
15. Hutchinson, S.A. (2001). Grounded theory: The method. In P. L. Munhall (Ed.), Nursing research: A qualitative perspective (pp. 209-243). Sudbury, MA: Jones & Bartlett.
16. Kumar, K., Gordon, C., Toescu, V., Buckley, C.D., Horne, R., Nightingale, P.G.,... Raza, K. (2008). Beliefs about medication in patients with rheumatoid arthritis and systemic lupus erythematosus: A comparison between patients of South Asian and White British origin. Rheumatology, 47, 690-697. doi:10.1093/rheumatology/ken050
17. Lim, A., Ellis, C., Brooksby, A., & Gaffney, K. (2007). Patient satisfaction with rheumatology practitioner clinics: Can we achieve concordance by meeting patients' information needs and encouraging participatory decision making? Annals Academy of Medicine, 36 (2). 110-114. Retrieved from http://www.annals.edu.sg/pdf/36VolNo2Feb2007/V36N2p110.pdf
18. Lincoln, Y.S., & Guba, E.G. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
19. Lorish, C.D., Richards, B., & Brown, S. (1989). Perspectives of the patient with rheumatoid arthritis on issues related to missed medication. Arthritis Care and Research, 3 (2). 78-84.
20. Maetzel, A., Pencharz, J., Tomlinson, G., & Bombardier, C. (2004). The economic burden associated with osteoarthritis, rheumatoid arthritis and hypertension: A comparative study. Annals of Rheumatic Disease, 63, 395-401. doi:10.1136/ ard.2003.006031
21. Maetzel, A., Wong, A., Strand, V., Tugwell, P., Wells, G., & Bombardier, C. (2000). Meta-analysis of treatment termination rates among rheumatoid arthritis patients receiving disease-modifying anti-rheumatic drugs. Rheumatology, 39, 975-981. doi:10.1093/rheumatology/39.9.975
22. Martin, R.W., Head, J., Rene, J., Swartz, T.J., Fiechtner, J.J., McIntosh, B.A.,... Holmes-Rovner, M. (2008). Patient decision-making related to antirheumatic drugs in rheumatoid arthritis: The importance of patient trust of physician. Journal of Rheumatology, 35 (4). 618-624. Retrieved from http://www.jrheum.org.ezproxy.uky.edu/content/35/4/618.full.pdf+html
23. McMullen, L.M., & Herman, J.C. (2009). Women's accounts of their decision to quit taking antidepressants. Qualitative Health Research, 19, 1569-1579. doi:10.1177/1049732309 349936
24. Merriam, S. (1988). Case study research in education: A qualitative approach. San Francisco: Jossey-Bass.
25. Neame, R., & Hammond, A. (2005). Beliefs about medications: Questionnaire survey of people with rheumatoid arthritis. Rheumatology, 44, 762-767. doi:10.1093/rheumatology/ keh587
26. Neame, R., Hammond, A., & Deighton, C. (2005). Need for information and for involvement in decision making among patients with rheumatoid arthritis: A questionnaire survey. Arthritis and Rheumatism, 53 (2). 249-255. doi:10.1002/ art.21071
27. Owen, S.G., Friesen, W.T., Roberts, M.S., & Flux, W. (1985). Determinants of compliance in rheumatoid arthritis patients assessed in their home environment. British Journal of Rheumatology, 24, 313-320. Retrieved from http://rheumatology.oxfordjournals.org/cgi/content/
28. Park, D.C., Hertzog, C., Leventhal, H., Morrell, R.W., Leventhal, E., Birchmore, D.,... Bennett, J. (1999). Medication adherence in rheumatoid arthritis patients: Older is wiser. Journal of the American Geriatric Society, 47 (2). 172-183. Retrieved from http://www.mdconsult.com/das/article/body/ 189239572-4/jorg=journal&source=&sp=10583154&sid=0/N/137474/1.html? issn=0002-8614
29. Popa-Lisseanu, M.G., Greisinger, A., Richardson, M., O'Malley, K., Janssen, N., Marcus, D.M.,... Suarez-Almazor, M.E. (2005). Determinants of treatment adherence in ethnically diverse economically disadvantaged patients with rheumatic disease. Journal of Rheumatology, 32 (5). 913-919. Retrieved from http://www.jrheum.org.ezproxy.uky.edu/content/32/5/913.full.pdf+html
30. Shariff, F., Carter, J., Dow, C., Polley, M., Salinas, M., & Ridge, D. (2009). Mind and body management strategies for chronic pain and rheumatoid arthritis. Qualitative Health Research, 19, 1037-1049. doi:10.1177/ 1049732309341189
31. Sheppard, J., Kumar, K., Buckley, C.D., Shaw, K.L., & Raza, K. (2008). " I just thought it was normal aches and pains": A qualitative study of decision-making processes in patients with early rheumatoid arthritis. Rheumatology, 47, 1577-1582. doi:10.1093/rheumatology/ken304
32. Stern, P.N. (1980). Grounded theory methodology: Its uses and processes. Image, 12 (7). 20-23.
33. Stevens, P.E., & Hildebrandt, E. (2009). Pill taking from the perspective of HIV-infected women who are vulnerable to antiretroviral treatment failure. Qualitative Health Research, 19, 593-604. doi:10.1177/1049732309333272
34. Straus, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
35. Treharne, G.J., Lyons, A.C., & Kitas, G.D. (2004). Medication adherence in rheumatoid arthritis: Effects of psychosocial factors. Psychology, Health & Medicine, 9 (3). 337-349. doi: 10.1080/13548500410001721909
36. Viller, F., Guillemin, F., Briancon, S., Moum, T., Suurmeijer, T., & van der Heuvel, W. (1999). Compliance to drug treatment of patients with rheumatoid arthritis: A 3-year longitudinal study. Journal of Rheumatology, 26, 2114-2122. doi:4767a10d0c32f
37. Wolfe, F., Mitchell, D.M., Sibley, J.T., Fries, J.F., Bloch, D.A., Williams, C.A.,... Cathey, M.A. (1994). The mortality of rheumatoid arthritis. Arthritis and Rheumatism, 37 (4). 481-494. doi:10.1002/art.1780370408
38. Wong, M., & Mulherin, D. (2007). The influence of medication beliefs and other psychosocial factors on early discontinuation of disease-modifying anti-rheumatic drugs. Musculoskeletal Care, 5, 148-159. doi:10.1002/msc.107