'I just thought it was normal aches and pains': A qualitative study of decision-making processes in patients with early rheumatoid arthritis

Rheumatology

Volumn 47, Issue 10, 2008, Pages 1577-1582

  Sheppard, J ^a   Kumar, K ^a   Buckley, C D ^a   Shaw, K L ^a   Raza, K ^a  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Delay; Early arthritis; Presentation; Primary care; Rheumatoid arthritis

Indexed keywords

ADULT; AGE; AGED; ARTICLE; ATTITUDE TO HEALTH; CLINICAL ARTICLE; CONTROLLED STUDY; DELAYED DIAGNOSIS; DISEASE SEVERITY; ETHNICITY; FEMALE; FUNCTIONAL STATUS; GENDER; HEALTH CARE PERSONNEL; HELP SEEKING BEHAVIOR; HUMAN; MALE; PATIENT ATTITUDE; PATIENT DECISION MAKING; PERSONAL EXPERIENCE; PRIORITY JOURNAL; PURPOSIVE SAMPLE; QUALITATIVE RESEARCH; RHEUMATOID ARTHRITIS; STRUCTURED INTERVIEW; SYMPTOM;

ADULT; AGED; ARTHRITIS, RHEUMATOID; ATTITUDE TO HEALTH; DECISION MAKING; EARLY DIAGNOSIS; ENGLAND; FAMILY PRACTICE; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; PAIN; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT SELECTION;

EID: 52949153995     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/ken304     Document Type: Article

References (28)

1. Mottonen T, Hannonen P, Korpela M et al. Delay to institution of therapy and induction of remission using single-drug or combination-disease-modifying antirheumatic drug therapy in early rheumatoid arthritis. Arthritis Rheum 2002;46:894-8.
2. Quinn MA, Conaghan PG, O'Connor PJ et al. Very early treatment with infliximab in addition to methotrexate in early, poor-prognosis rheumatoid arthritis reduces magnetic resonance imaging evidence of synovitis and damage, with sustained benefit after infliximab withdrawal: Results from a twelve-month randomized, double-blind, placebo-controlled trial. Arthritis Rheum 2005;52:27-35.
3. Raza K, Buckley CE, Salmon M, Buckley CD. Treating very early rheumatoid arthritis. Best Pract Res Clin Rheumatol 2006;20:849-63.
4. Irvine S, Munro R, Porter D. Early referral, diagnosis, and treatment of rheumatoid arthritis: Evidence for changing medical practice. Ann Rheum Dis 1999;58:510-3.
5. Kumar K, Daley E, Carruthers DM et al. Delay in presentation to primary care physicians is the main reason why patients with rheumatoid arthritis are seen late by rheumatologists. Rheumatology 2007;46:1438-40.
6. Palm O, Purinszky E. Women with early rheumatoid arthritis are referred later than men. Ann Rheum Dis 2005;64:1227-8.
7. Suter LG, Fraenkel L, Holmboe ES. What factors account for referral delays for patients with suspected rheumatoid arthritis? Arthritis Rheum 2006;55:300-5.
8. Sandhu RS, Treharne GJ, Justice EA et al. Comment on: Delay in presentation to primary care physicians is the main reason why patients with rheumatoid arthritis are seen late by rheumatologists. Rheumatology 2008;47:559-60.
9. Greenhalgh T, Taylor R. Papers that go beyond numbers (qualitative research), Br Med J 1997;315:740-3.
10. Mays N, Pope C, eds. Qualitative research in health care. London: BMJ Books, 1996.
11. Rubin H, Rubin I. Qualitative interviewing - the art of hearing data. California: Sage Publication, 2005.
12. Britten N. Qualitative interviews in health care research. In: Pope C, Mays N, eds. Qualitative research in health care. London: BMJ Books, 2000.
13. Arnett FC, Edworthy SM, Bloch DA et al. The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis Rheum 1988:31:315-24.
14. Pattenden J, Watt I, Lewin RJ, Stanford N. Decision making processes in people with symptoms of acute myocardial infarction: Qualitative study. Br Med J 2002;324: 1006-9.
15. Smith LK, Pope C, Botha JL. Patients' help-seeking experiences and delay in cancer presentation: A qualitative synthesis. Lancet 2005;366:825-31.
16. Raza K, Falciani F, Cumow SJ et al. Early rheumatoid arthritis is characterized by a distinct and transient synovial fluid cytokine profile of T cell and stromal cell origin. Arthritis Res Ther 2005;7:R784-95.
17. Raza K, Breese M, Nightingale P et al. Predictive value of antibodies to cyclic citrullinated peptide in patients with very early inflammatory arthritis. J Rheumatol 2005;32:231-8.
18. Nell VP, Machold KP, Stamm TA et al. Autoantibody profiling as early diagnostic and prognostic tool for rheumatoid arthritis. Ann Rheum Dis 2005;64:1731-6.
19. van der Helm-van Mil AH, le Cessie S, van Dongen H, Breedveld FC, Toes RE, Huizinga TW. A prediction rule for disease outcome in patients with recent-onset undifferentiated arthritis: How to guide individual treatment decisions. Arthritis Rheum. 2007;56:433-40.
20. Bury M. Chronic illness as biographical disruption. Sociol Health Illn 1982;4:167-82.
21. Sakalys JA. Illness behavior in rheumatoid arthritis. Arthritis Care Res 1997;10: 229-37.
22. Urwin M, Symmons D, Allison T et al. Estimating the burden of musculoskeletal disorders in the community: The comparative prevalence of symptoms at different anatomical sites, and the relation to social deprivation. Ann Rheum Dis 1998;57: 649-55.
23. Bot SD, van der Waal JM, Terwee CB et al. Incidence and prevalence of complaints of the neck and upper extremity in general practice. Ann Rheum Dis 2005-64:118-23.
24. Machold KP, Koller MD, Pflugbeil S et al. The public neglect of rheumatic diseases: Insights from analyses of attendees in a musculoskeletal disease awareness activity. Ann Rheum Dis 2007;66:697-9.
25. Sanders C, Donovan J, Dieppe P. The significance and consequence of having painful and disabled joints in older age: Co-existing accounts of normal and disrupted biographies. Sociol Health Illn 2002;24:227-53.
26. Williams GH, Wood PH. Common-sense beliefs about arthritis. Br J Rheumatol 1987;26:395-6.
27. Gascoigne P, Mason MD, Roberts E. Factors affecting presentation and delay in patients with testicular cancer: Results of a qualitative study. Psychooncology 1999;8:144-54.
28. Symmons DP, Barrett EM, Bankhead CR, Scott DG, Silman AJ. The incidence of rheumatoid arthritis in the United Kingdom: Results from the Norfolk Arthritis Register. Br J Rheumatol 1994;33:735-9.