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Volumn 18, Issue 6, 2010, Pages 624-632

Partnership in practice: What parents of a disabled child want from a generic health professional in Australia

Author keywords

Advocacy; Disability; Generic health professional; Partnership

Indexed keywords

ADOLESCENT; ADULT; AGE; ARTICLE; AUSTRALIA; CHILD; CHILD PARENT RELATION; CONSUMER ADVOCACY; COOPERATION; DISABLED PERSON; FEMALE; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; INFANT; INFORMATION PROCESSING; MALE; MIDDLE AGED; NEWBORN; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PRESCHOOL CHILD; PRIMARY HEALTH CARE; QUALITATIVE RESEARCH; RECORDING; TRUST;

EID: 78649453906     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/j.1365-2524.2010.00935.x     Document Type: Article
Times cited : (32)

References (36)
  • 1
    • 0006836079 scopus 로고    scopus 로고
    • Australian Social Trends: Families with a young child with a disability
    • Australian Bureau of Statistics () Australian Bureau of Statistics, Canberra.
    • Australian Bureau of Statistics (2008) Australian Social Trends: Families with a young child with a disability. Australian Bureau of Statistics, Canberra.
    • (2008)
  • 2
    • 2942524297 scopus 로고    scopus 로고
    • Dimensions of family and professional partnerships: constructive guidelines for collaboration
    • Blue-Banning M., Summers J.A., Frankland H.C., Nelson L.L. & Beegle G. (2004) Dimensions of family and professional partnerships: constructive guidelines for collaboration. Exceptional Children 70, 167-185.
    • (2004) Exceptional Children , vol.70 , pp. 167-185
    • Blue-Banning, M.1    Summers, J.A.2    Frankland, H.C.3    Nelson, L.L.4    Beegle, G.5
  • 4
    • 0033845354 scopus 로고    scopus 로고
    • Educating health professionals about disability: 'attitudes, attitudes, attitudes'
    • Byron M. & Dieppe P. (2000) Educating health professionals about disability: 'attitudes, attitudes, attitudes'. Journal of the Royal Society for Medicine 93, 397-398.
    • (2000) Journal of the Royal Society for Medicine , vol.93 , pp. 397-398
    • Byron, M.1    Dieppe, P.2
  • 5
    • 0034385958 scopus 로고    scopus 로고
    • Refocusing on the parent: what are the social issues of concern for parents of disabled children?
    • Case S. (2000) Refocusing on the parent: what are the social issues of concern for parents of disabled children? Disability & Society 15, 271-292.
    • (2000) Disability & Society , vol.15 , pp. 271-292
    • Case, S.1
  • 6
    • 0003606407 scopus 로고    scopus 로고
    • Nothing About Us Without Us: Disability Oppression and Empowerment
    • () University of California Press, California.
    • Charlton J. (2000) Nothing About Us Without Us: Disability Oppression and Empowerment. University of California Press, California.
    • (2000)
    • Charlton, J.1
  • 7
    • 0035292318 scopus 로고    scopus 로고
    • The experience of pervasive loss: children and young people living in a family where parental gambling is a problem
    • Darbyshire P., Oster C. & Carrig H. (2001) The experience of pervasive loss: children and young people living in a family where parental gambling is a problem. Journal of Gambling Studies 17, 23-45.
    • (2001) Journal of Gambling Studies , vol.17 , pp. 23-45
    • Darbyshire, P.1    Oster, C.2    Carrig, H.3
  • 8
    • 68349094167 scopus 로고    scopus 로고
    • The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities
    • Davis K. & Gavidia-Payne S. (2009) The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual & Developmental Disability 34, 153-162.
    • (2009) Journal of Intellectual & Developmental Disability , vol.34 , pp. 153-162
    • Davis, K.1    Gavidia-Payne, S.2
  • 9
    • 2342573585 scopus 로고    scopus 로고
    • Helpgiving styles and parent empowerment in families with a young child with a disability
    • Dempsey I. & Dunst C.J. (2004) Helpgiving styles and parent empowerment in families with a young child with a disability. Journal of Intellectual & Developmental Disability 29, 40-51.
    • (2004) Journal of Intellectual & Developmental Disability , vol.29 , pp. 40-51
    • Dempsey, I.1    Dunst, C.J.2
  • 10
    • 43749087346 scopus 로고    scopus 로고
    • A review of processes and outcomes in family-centered services for children with a disability
    • Dempsey I. & Keen D. (2009) A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education 28, 42-52.
    • (2009) Topics in Early Childhood Special Education , vol.28 , pp. 42-52
    • Dempsey, I.1    Keen, D.2
  • 11
    • 78649475581 scopus 로고    scopus 로고
    • Equity of Access to Health Services for People with Disabilities. Policy Statement and Strategic Directions
    • Department of Human Services () Government of South Australia, Australia.
    • Department of Human Services (2001) Equity of Access to Health Services for People with Disabilities. Policy Statement and Strategic Directions. Government of South Australia, Australia.
    • (2001)
  • 13
    • 33644840653 scopus 로고    scopus 로고
    • Use of the Measure of Process of Care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting
    • Dyke P., Buttigieg P., Blackmore A.M. & Ghose A. (2006) Use of the Measure of Process of Care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child: Care, Health & Development 32, 167-176.
    • (2006) Child: Care, Health & Development , vol.32 , pp. 167-176
    • Dyke, P.1    Buttigieg, P.2    Blackmore, A.M.3    Ghose, A.4
  • 14
    • 0842349569 scopus 로고    scopus 로고
    • Partnership with parents and disabled children. HIA of the All-Inclusive Wraparound Project for children with a disability
    • Farrell B., Elliott I. & Ison E. (2004) Partnership with parents and disabled children. HIA of the All-Inclusive Wraparound Project for children with a disability. Environmental Impact Assessment Review 24, 245-254.
    • (2004) Environmental Impact Assessment Review , vol.24 , pp. 245-254
    • Farrell, B.1    Elliott, I.2    Ison, E.3
  • 15
    • 0039488565 scopus 로고    scopus 로고
    • "We can't expect other people to understand": family perspectives on problem behavior
    • Fox L., Vaughn B., Wyatte M.L. & Dunlap G. (2002) "We can't expect other people to understand": family perspectives on problem behavior. Exceptional Children 68, 437-450.
    • (2002) Exceptional Children , vol.68 , pp. 437-450
    • Fox, L.1    Vaughn, B.2    Wyatte, M.L.3    Dunlap, G.4
  • 16
    • 34249077221 scopus 로고    scopus 로고
    • Using interactive multimedia to teach parent advocacy skills: an exploratory study
    • Glang A., McLaughlin K. & Schroeder S. (2007) Using interactive multimedia to teach parent advocacy skills: an exploratory study. Journal of Head Trauma Rehabilitation 22, 198-205.
    • (2007) Journal of Head Trauma Rehabilitation , vol.22 , pp. 198-205
    • Glang, A.1    McLaughlin, K.2    Schroeder, S.3
  • 17
    • 33645572598 scopus 로고    scopus 로고
    • Storying disability and impairment: retrospective accounts of disabled family life
    • Goodley D. & Tregaskis C. (2006) Storying disability and impairment: retrospective accounts of disabled family life. Qualitative Health Research 16, 630-646.
    • (2006) Qualitative Health Research , vol.16 , pp. 630-646
    • Goodley, D.1    Tregaskis, C.2
  • 18
    • 33751245900 scopus 로고    scopus 로고
    • "We're tired, not sad": benefits and burdens of mothering a child with a disability
    • Green S.E. (2007) "We're tired, not sad": benefits and burdens of mothering a child with a disability. Social Science & Medicine 64, 150-163.
    • (2007) Social Science & Medicine , vol.64 , pp. 150-163
    • Green, S.E.1
  • 19
    • 84908971897 scopus 로고    scopus 로고
    • Early Childhood Qualitative Research
    • Hatch J.A. (ed.) () Routledge, New York.
    • Hatch J.A. (ed.) (2007) Early Childhood Qualitative Research. Routledge, New York.
    • (2007)
  • 20
    • 33747814708 scopus 로고    scopus 로고
    • Until somebody hears me: parent voice and advocacy in special education decision making
    • Hess R.S., Molina A.M. & Kozleski E.B. (2006) Until somebody hears me: parent voice and advocacy in special education decision making. British Journal of Special Education 33, 148-157.
    • (2006) British Journal of Special Education , vol.33 , pp. 148-157
    • Hess, R.S.1    Molina, A.M.2    Kozleski, E.B.3
  • 21
    • 14644434999 scopus 로고    scopus 로고
    • Meaning of family-professional partnerships: Japanese mothers' perspectives
    • Kasahara M. & Turnbull A.P. (2005) Meaning of family-professional partnerships: Japanese mothers' perspectives. Exceptional Children 71, 249-265.
    • (2005) Exceptional Children , vol.71 , pp. 249-265
    • Kasahara, M.1    Turnbull, A.P.2
  • 24
    • 33644838085 scopus 로고    scopus 로고
    • Support for family carers of children and young people with developmental disabilities and challenging behaviour
    • McGill P., Papachristoforou E. & Cooper V. (2006) Support for family carers of children and young people with developmental disabilities and challenging behaviour. Child: Care, Health & Development 32, 159-165.
    • (2006) Child: Care, Health & Development , vol.32 , pp. 159-165
    • McGill, P.1    Papachristoforou, E.2    Cooper, V.3
  • 25
    • 65249125237 scopus 로고    scopus 로고
    • Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome
    • Minnes P. & Steiner K. (2009) Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome. Child: Care, Health & Development 35, 250-256.
    • (2009) Child: Care, Health & Development , vol.35 , pp. 250-256
    • Minnes, P.1    Steiner, K.2
  • 27
    • 0034375473 scopus 로고    scopus 로고
    • Disabled children, parents and professionals: partnership on whose terms?
    • Murray P. (2000) Disabled children, parents and professionals: partnership on whose terms? Disability & Society 15, 683-698.
    • (2000) Disability & Society , vol.15 , pp. 683-698
    • Murray, P.1
  • 28
    • 0003743782 scopus 로고    scopus 로고
    • Qualitative Research and Evaluation Methods
    • () Sage, Thousand Oaks.
    • Patton M. (2002) Qualitative Research and Evaluation Methods. Sage, Thousand Oaks.
    • (2002)
    • Patton, M.1
  • 29
    • 0003771723 scopus 로고    scopus 로고
    • Qualitative Research in Health Care
    • Pope C. &, Mays N. (eds) (), 3rd edn. Blackwell Publishing, USA.
    • Pope C. & Mays N. (eds) (2006) Qualitative Research in Health Care, 3rd edn. Blackwell Publishing, USA.
    • (2006)
  • 30
    • 34548659364 scopus 로고    scopus 로고
    • NVivo Qualitative Data Analysis Software Version 7
    • QSR International Pty Ltd ()
    • QSR International Pty Ltd (2006) NVivo Qualitative Data Analysis Software Version 7.
    • (2006)
  • 31
    • 0003771731 scopus 로고    scopus 로고
    • Qualitative Research Methods - a Health Focus
    • &, Oxford University Press, Melbourne.
    • Rice P. & Ezzy D. (1999) Qualitative Research Methods - a Health Focus. Oxford University Press, Melbourne.
    • (1999)
    • Rice, P.1    Ezzy, D.2
  • 33
    • 34548297232 scopus 로고    scopus 로고
    • Relationship of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programmes
    • Summers J.A., Marquis J., Mannan H. et al. (2007) Relationship of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programmes. International Journal of Disability, Development and Education 54, 319-338.
    • (2007) International Journal of Disability, Development and Education , vol.54 , pp. 319-338
    • Summers, J.A.1    Marquis, J.2    Mannan, H.3
  • 34
    • 70049113327 scopus 로고    scopus 로고
    • Fathers and breast feeding very-low-birthweight preterm babies
    • Sweet L. & Darbyshire P. (2009) Fathers and breast feeding very-low-birthweight preterm babies. Midwifery 25, 540-553.
    • (2009) Midwifery , vol.25 , pp. 540-553
    • Sweet, L.1    Darbyshire, P.2
  • 35
    • 33847034135 scopus 로고    scopus 로고
    • Newborns with an impairment: discourses of hospital staff
    • Vehkakoski T. (2007) Newborns with an impairment: discourses of hospital staff. Qualitative Health Research 17, 288-299.
    • (2007) Qualitative Health Research , vol.17 , pp. 288-299
    • Vehkakoski, T.1


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