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National Health Committee. Meeting the needs of people with chronic conditions. [Hapi te whanau mo ake ake tonu.] Wellington, New Zealand: National Advisory Committee on Health and Disability, 2007.
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The ten characteristics of the high-performing chronic care system
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Ham C. The ten characteristics of the high-performing chronic care system. Health Econ Policy Law 2010; 5:71-90.
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Barnes S, Gott M, Payne S, et al. Communication in heart failure: Perspectives from older people and primary care professionals. Health Soc Care Community 2006; 14:149-190.
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Gott M, Small N, Barnes S, et al. Older people's views of a good death in heart failure: Implications for palliative care provision. Soc Sci Med 2008; 67:1113-1121.
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Executive summary: HFSA 2010 comprehensive heart failure practice guideline
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Lindenfeld J, Albert NM, Boehmer JP, et al. Executive summary: HFSA 2010 Comprehensive Heart Failure Practice Guideline. J Card Fail 2010; 16:475-539.
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Heart failure and palliative care services working in partnership: Report of a new model of care
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Daley A, Matthews C, Williams A. Heart failure and palliative care services working in partnership: Report of a new model of care. Palliat Med 2006; 20:593-601.
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Achieving preferred place of death: Is it possible for patients with chronic heart failure?
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This study provides a review of cardiology-palliative care services and the impact on admissions to hospital. Illustrates how end-of-life discussions were possible with some patients
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Johnson MJ, Parsons S, Raw J, et al. Achieving preferred place of death: Is it possible for patients with chronic heart failure? Br J Cardiol 2009; 16:194-196. This study provides a review of cardiology-palliative care services and the impact on admissions to hospital. Illustrates how end-of-life discussions were possible with some patients.
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Br J Cardiol
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Jaarsma T, Beattie JM, Ryder M, et al. Palliative care in heart failure: A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail 2009; 11:433-443.
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A comparative study of the palliative care needs of heart failure and cancer patients
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This study illustrates how despite a multidisciplinary team approach, the older patient's needs were unmet
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O'Leary N, Murphy NF, O'Loughlin C, et al. A comparative study of the palliative care needs of heart failure and cancer patients. Eur J Heart Fail 2009; 11:406-412. This study illustrates how despite a multidisciplinary team approach, the older patient's needs were unmet.
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Eur J Heart Fail
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O'Leary, N.1
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Understanding their options: Determinants of hospice discussion for older persons with advanced illness
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Thomas J, O'Leary J, Fried T. Understanding their options: Determinants of hospice discussion for older persons with advanced illness. J Gen Intern Med 2009; 24:923-928.
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Caldwell P, Arthur H, Demers C. Preferences of patients with heart failure for prognostic communication. Can J Cardiol 2007; 23:791-796.
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Meeting the communication and information needs of chronic heart failure patients
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Harding R, Selman L, Beynon T, et al. Meeting the communication and information needs of chronic heart failure patients. J Pain Symptom Manage 2008; 36:149-156.
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Harding, R.1
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19
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It's not just about heart failure: Voices of older people in transition to dependence and death
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This study underscores the importance of transition as a concept that may offer health professionals a different approach for assessment and management of heart failure patients over a longer period
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Waterworth S, Jorgensen D. It's not just about heart failure: Voices of older people in transition to dependence and death. Health Soc Care Community 2010; 18:199-207. This study underscores the importance of transition as a concept that may offer health professionals a different approach for assessment and management of heart failure patients over a longer period.
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(2010)
Health Soc Care Community
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Waterworth, S.1
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Trajectories of quality of life in older persons with advanced illness
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Solomon R, Kirwin P, Van Ness PH, et al. Trajectories of quality of life in older persons with advanced illness. J Am Geriatr Soc 2010; 58:837-843.
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Solomon, R.1
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Quality of life in patients with chronic heart failure and their carers: A 3-year follow-up study assessing hospitalization and mortality
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doi: 10.1093/eurjhf/hfq114
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Iqbal J, Francis L, Reid J, et al. Quality of life in patients with chronic heart failure and their carers: A 3-year follow-up study assessing hospitalization and mortality. Eur J Heart Fail 2010; 12:1002-1008; doi: 10.1093/eurjhf/hfq114.
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Iqbal, J.1
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Reid, J.3
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77952867650
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Directly observed patient- Physician discussions in palliative and end of life care: A systematic review of the literature
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This review illustrates the importance of directly observed research in end-of-life care
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Fine E, Reid DM, Shengelia R, Adelman RD. Directly observed patient- physician discussions in palliative and end of life care: A systematic review of the literature. J Palliat Med 2010; 13:595-603. This review illustrates the importance of directly observed research in end-of-life care.
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J Palliat Med
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Fine, E.1
Reid, D.M.2
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Adler ED, Goldfinger JZ, Kalman J, et al. Palliative care in the treatment of advanced heart failure. Circulation 2009; 120:2597-2606.
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Adler, E.D.1
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Kalman, J.3
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24
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Implementing advance care planning: A qualitative study of community nurses' views and experiences
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This study underscores the need for hearing the view of all health professionals as a team in discussing advanced care planning and decision making with patients
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Seymour J, Almack K, Kennedy S. Implementing advance care planning: A qualitative study of community nurses' views and experiences. BMC Palliat Care 2010; 9:1-9. This study underscores the need for hearing the view of all health professionals as a team in discussing advanced care planning and decision making with patients.
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BMC Palliat Care
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Seymour, J.1
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The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial
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doi: 10.1136/bmj.c1345. This study illustrates some important factors in shared decision making about advanced care planning with patients and families
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Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. BMJ 2010; 340:c1345; doi: 10.1136/bmj.c1345. This study illustrates some important factors in shared decision making about advanced care planning with patients and families.
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BMJ
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Detering, K.M.1
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Making sure services deliver for people with advanced heart failure: A longitudinal qualitative study of patients, family carers, and health professionals
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This study shows how patients, families and health professionals can come together to discuss development of services for people with advanced disease
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Boyd KJ, Worth A, Kendall M, et al. Making sure services deliver for people with advanced heart failure: A longitudinal qualitative study of patients, family carers, and health professionals. Palliat Med 2009; 23:767-776. This study shows how patients, families and health professionals can come together to discuss development of services for people with advanced disease.
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Boyd, K.J.1
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Glass AP, Nahapetyan L. Discussions by elders and adult children about end of life preparation and preferences. Prev Chronic Dis 2008; 5:1-9.
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Schickedanz AD, Schillinger D, Landefeld CS, et al. A clinical framework for improving the advanced care planning process: Start with patients' self identified barriers. J Am Geriatr Soc 2009; 57:31-39.
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Barriers to advance care planning in chronic obstructive pulmonary disease
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This study challenges assumptions about advanced care planning in chronic disease
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Gott M, Gardiner C, Small N, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009; 1-7. This study challenges assumptions about advanced care planning in chronic disease.
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Sanders C, Rogers A, Gately C, Kennedy A. Planning for end of life care within lay-led chronic illness self-management training: The significance of 'death awareness' and biographical context in participant accounts. Soc Sci Med 2008; 66:982-993.
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Mind the gap: Opportunities for improving end of life care for patients with advanced heart failure
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This study illustrates the importance of developing shared decision making with patients and health professionals across the health system, in order to remove the perceived barriers of specialization
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Strachan PH, Ross H, Rocker GM, et al. Mind the gap: Opportunities for improving end of life care for patients with advanced heart failure. Can J Cardiol 2009; 25:635-640. This study illustrates the importance of developing shared decision making with patients and health professionals across the health system, in order to remove the perceived barriers of specialization.
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Can J Cardiol
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Strachan, P.H.1
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Sudmore RL, Schickedanz AD, Landefeld CS, et al. Engagement in multiple steps of the advance care planning process: A descriptive study of diverse old adults. J Am Geriatr Soc 2008; 56:1006-1013.
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Murray, S.A.1
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Selman L, Harding R, Beynon T, et al. Improving end of life care for patients with chronic heart failure: 'let's hope it'll get better, when I know in my heart of hearts it won't'. Heart 2007; 93:963-967.
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Fowler C, Fisher CL. Attitudes toward decision making and aging, and preparation for future care needs. Health Commun 2009; 24:619-630.
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Ryan M, Farrelly M. Living with an unfixable heart: A qualitative study exploring the experience of living with advanced heart failure. Euro J Cardiovasc Nurs 2009; 8:223-231.
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Parr JD, Zhang B, Nilsson ME, et al. The influence of age on the likelihood of receiving end of life care consistent with patient treatment preferences. J Palliat Med 2010; 13:719-726.
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The transition experience of rural older persons with advanced cancer and their families: A grounded theory study
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This study focuses on older people with cancer and illustrates the complexity of transition
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Duggleby WD, Penz KL, Goodridge DM, et al. The transition experience of rural older persons with advanced cancer and their families: A grounded theory study. BMC Palliat Care 2010; 9:1-5. This study focuses on older people with cancer and illustrates the complexity of transition.
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BMC Palliat Care
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Duggleby, W.D.1
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