Maintaining hope in transition: A theoretical framework to guide interventions for people with heart failure

Journal of Cardiovascular Nursing

Volumn 22, Issue 1, 2007, Pages 58-64

  Davidson, Patricia M ^a,c   Dracup, Kathleen ^b   Phillips, Jane ^a   Padilla, Geraldine ^b   Daly, John ^a  

^a UNIVERSITY OF WESTERN SYDNEY   (Australia)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c University of California ^*  (Australia)

Author keywords

Heart failure; Hope; Theoretical framework; Transition theory

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; ATTITUDE TO HEALTH; DISEASE COURSE; FAMILY HEALTH; FORWARD HEART FAILURE; HEALTH STATUS; HUMAN; NURSING; NURSING CARE; PALLIATIVE THERAPY; PATIENT CARE PLANNING; STANDARD;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; CARDIAC OUTPUT, LOW; DISEASE PROGRESSION; FAMILY HEALTH; HEALTH STATUS; HUMANS; NURSING CARE; PALLIATIVE CARE; PATIENT CARE PLANNING;

EID: 33846292586     PISSN: 08894655     EISSN: 15505049     Source Type: Journal    
DOI: 10.1097/00005082-200701000-00009     Document Type: Review

References (63)

1. McMurray JJ, Stewart S. Epidemiology, aetiology and prognosis of heart failure. Heart. 2000;83:596-602.
2. Stull DE, Starling R, Haas G, Young JB. Becoming a patient with heart failure. Heart Lung J Acute Crit Care. 1999;28:284-292.
3. Selder F. Life transition theory: the resolution of uncertainty. Nurs Health Care. 1989;10:437-451.
4. Selder F, Breunig K. Living with multiple sclerosis: the gradual transition. Loss Grief Care. 1991;4:89-98.
5. Christman N, McCornell E, Pfeiffer C, Webster K, Schmitt M, Ries, J. Uncertainty, coping, and distress following myocardial infraction: transition from hospital to home. Res Nurs Health. 1988;2:71-78.
6. Tennant C. Life events, stress and depression: a review of recent findings. Aust N Z J Psychiatry. 2002;36:173-182.
7. Meleis A, Trangenstein P. Facilitating transitions: redefinition of the nursing mission. Nurs Outl. 1994;42:255-259.
8. Newby N. Chronic illness and the family life-cycle. J Adv Nurs. 1996;23:786-791.
9. Skarsater I, Agren H, Dencker K. Subjective lack of social support and presence of dependent stressful life events characterize patients suffering from major depression compared with healthy volunteers. J Psychiatr Ment Health Nurs. 2001;8:107-114.
10. Kralik D, Brown M, Koch T. Women's experiences of being diagnosed with a long term illness. J Adv Nurs. 2000;33:594-602.
11. Meleis A, Sawyer L, Im E, Messias D, Schumacher K. Experiencing transitions: an emerging middle-range theory. Adv Nurs Sci. 2000;23:12-28.
12. Chick N, A M. Transitions: a nursing concern. In: Chinn P, ed. Nursing Research Methodology. Aspen: Gaithersburg; 1986:237-257.
13. Shih F, Meleis A, Yu P, Hu W, Lou M, Huang G. Taiwanese patients' concerns and coping strategies: transition to cardiac surgery. Heart Lung J Acute Crit Care. 1998;27:82-98.
14. Dracup K, Walden JA, Stevenson LW, Brecht ML. Quality of life in patients with advanced heart failure. J Heart Lung Transplant. 1992;11:273-279.
15. Stewart S, MacIntyre K, Hole D, Capewell S, McMurray J. More 'malignant' than cancer? Five-year survival following a first admission for heart failure. Eur J Heart Fail. 2001;3:315-322.
16. Cowie M, Wood D, Coats A. Survival of patients with a new diagnosis of heart failure: a population based study. Heart. 2000;83:505-510.
17. Davidson PM, Cockburn J, Daly J, Sanson-Fisher R. Patient-centred needs assessment: rationale for a psychometric measure for assessing needs in heart failure. J Cardiovasc Nurs. 2004;19:162-170.
18. Jaarsma T, Abu-Saad HH, Dracup K, Halfens R. Self-care behaviour of patients with heart failure. Scand J Caring Sci. 2000;14:112-119.
19. Krum H, on behalf of National Heart Foundation of Australia, Cardiac Society of Australia and New Zealand Chronic Heart Failure Clinical Practice Guidelines Writing Panel. Guidelines for management of patients with chronic heart failure in Australia. Med J Aust. 2001;174:459-466.
20. Ghali JK. The Cohere Registry: hype of Hope. J Card Fail. 2000;6:272-275.
21. Addington-Hall JM. Heart failure now on the palliative care agenda. Palliat Care Med. 2000;14:361-362.
22. Davidson PM, Introna K, Cockburn J, et al. Synergyzing acute care and palliative care philosophies to optimise nursing care in end-stage cardiorespiratory disease. Aust Crit Care. 2002;15:64-69.
23. Davidson PM, Paull G, Introna K, et al. Integrated, collaborative palliative care in heart failure. J Cardiovasc Nurs. 2004;19:68-75.
24. Goodlin S, et al. Consensus Statement: palliative and supportive care in advanced heart failure. J Card Fail. 2004;10:200-209.
25. McAlister FA, Stewart S, Ferrua S, McMurray JJ. Multidisciplinary strategies for the management of heart failure patients at high risk for admission. J Am Coll Cardiol. 2004;44:810-819.
26. Meleis A. Theoretical Nursing: Development and Progress. Philadelphia: Lippincott; 1997.
27. Im E, Meleis A. Situation-specific theories: philosophical roots, properties, and approach. Adv Nurs Sci. 1999;22:11-24.
28. Grady K, Harrison M, Neufeld A, Kushner K. Women in transition: access and barriers to social support. J Adv Nurs. 1995;21:858-864.
29. Jarrett L. Living with chronic illness: a transitional model of coping. Br J Ther Rehabil. 2000;7:40-44.
30. Morse J, Penrod J. Linking concepts of enduring, uncertainty, suffering, and hope. I. Image J Nurs Scholarsh. 1999;31:145-150.
31. Mishel M. Uncertainty in illness. Image J Nurs Scholarsh. 1988;20:225-232.
32. White K. The transition from victim to victor: application of the theory of mastery. J Psychosoc Nurs Ment Health Serv. 1995;33:41-44.
33. Shaul M. Transition in chronic illness: rheumatoid arthritis in women. Rehabil Nurs. 1997;22:199-205.
34. Walker A. Trajectory, transition and vulnerability in adult medical-surgical patients: a framework for understanding in-hospital convalescence. Contemp Nurse. 2001;11:206-216.
35. Naylor M. A decade of transitional care research in vulnerable elders. J Cardiovasc Nurs. 2000;14:1-14.
36. Naylor MD, Brooten D, Jones R, Lavizzo-Mourey R, Mezey M, Pauly M. Comprehensive discharge planning for the hospitalised elderly. A randomised clinical trial. Ann Intern Med. 1994;120:999-1006.
37. Naylor MD, Brooten D, Campbell R, Jacobsen BS, Mezey MD, Pauly MV. Comprehensive discharge planning for the hospitalised elderly. A randomised clinical trial. JAMA. 1999;281:613-620.
38. Grady KL, Dracup K, Kennedy G, et al. Team management of patients with heart failure: AHA Scientific Statement. Circulation. 2000;102:2443-2456.
39. Bull M, LL J. Strategies used by chronically ill older women and their caregiving daughters in managing posthospital care. J Adv Nurs. 1997;25:541-547.
40. Bull M, Hansen H, Gross C. Predictors of elder and family caregiver satisfaction with discharge planning. J Cardiovasc Nurs. 2000;14:67-87.
41. Stevenson LW, Rose EA. Left ventricular assist devices: bridges to transplantation, recovery, and destination for whom. Circulation. 2003;108(25):3059-3063.
42. Thackray S, Easthaugh J, Freemantle N, Cleland J. The effectiveness and relative effectiveness of intravenous inotroptic drugs acting through the adrenergic pathway in heart failure-a meta regression analysis. Eur J Heart Fail. 2002;4:515-529.
43. Davidson PM, Introna K, Cockburn J, et al. Synergising acute care and palliative care to optimise nursing care in end-stage cardiorespiratory disease. Aust Crit Care. 2002;15(2):64-69.
44. Zambroski CH. Hospice as an alternative model of care for older patients with end-stage heart failure. J Cardiovasc Nurs. 2004;19(1):76-83.
45. Addington-Hall J. Reaching Out: Specialist Palliative Care for Adults with Non-malignant Diseases. National Council for Hospice and Specialist Palliative Care Services and Scottish Partnership Agency for Palliative and Cancer Care; 1998.
46. Leighl N, Butow P, Tattersal M. Treatment decision aids in advanced cancer: when the goal is not cure and the answer is not clear. J Clin Oncol. 2004;22:1759-1762.
47. Lynn J, Schuster J, Kabcenell A. Offering end-of-life services to patients with advanced heart failure. In improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians. New York: Oxford University Press; 2000.
48. Lynn J, Nolan K, Kabcenell A, et al. Reforming care for persons near the end of life: the promise of quality improvement. Ann Intern Med. 2002;137:117-122.
49. Vaccarino V, Kasl S, Abramson J, Krumholz H. Depressive symptoms and risk of functional decline and death in patients with heart failure. J Am Coll Cardiol. 2001;38:199-205.
50. Skarsater I, Agren H, K D. Subjective lack of social support and presence of dependent stressful life events characterize patients suffering from major depression compared with healthy volunteers. J Psychiatr Ment Health Nurs. 2001;2001:2.
51. Carlson J, Norman G, Felz D, Franklin B, Johnson J, Locke S. Self-efficacy, psychosocial factors and exercise behaviours in traditional versus modified cardiac rehabilitation. J Cardiopulm Rehabil. 2001;21:363-373.
52. Walden JA, Stevenson LW, Dracup K, Wilmarth J, Kobashigawa J, Moriguchi J. Heart transplantation may not improve quality of life for patients with stable heart failure. Heart Lung. 1989;18:497-506.
53. Rogers A, Addington-Hall J, McCoy ASM, et al. A qualitative study of chronic heart failure patients' understanding of their symptoms and drug therapy. Eur J Heart Fail. 2002;4:283-287.
54. Rogers A, Addington-Hall J, Abery A, et al. Knowledge and communication difficulties for patients with chronic heart failure: qualitative study. BMJ. 2000;321:605-607.
55. Stull D, Starling R, Haas G, Young J. Becoming a patient with heart failure. Heart Lung J Acute Crit Care. 1999;28:284-292.
56. Herth K, Cutcliffe J. Concept of hope. The concept of hope in nursing: research/education/policy/practice. Br J Nurs. 2002;11:1404-1411.
57. Davidson P, Dracup K, Phillips J, Daly J, Padilla G. Preparing for the worst while hoping for the best: the relevance of hope in the heart failure illness trajectory. J Cardiovasc Nurs. In press.
58. Kannel W, Cupples A. Epidemiology and risk profile of cardiac failure. J Cardiovasc Nurs. 1988;2(suppl 1):387-395.
59. The SUPPORT Principal Investigators. A controlled trial to provide care for seriously ill hospitalized patients. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). JAMA. 1995;274:1591-1598.
60. Scott J. Palliative care approaches for heart failure patients: an unmet need? Coron Health Care. 2001;5:115-117.
61. Addington-Hall J, McCarthy M. Regional Study of Care for the Dying: methods and sample characteristics. Palliat Med. 1995;9(1):27-35.
62. Mills M, Davies HT, Macrae WA. Care of dying patients in hospital. BMJ. 1994;309(6954):583-586.
63. Westlake C, Dracup K. Role of spirituality in adjustment of patients with advanced heart failure. Prog Cardiovasc Nurs. 2001;16:119-125.