A culturally sensitive transition assistance program for stroke caregivers: Examining caregiver mental health and stroke rehabilitation

Journal of Rehabilitation Research and Development

Volumn 47, Issue 7, 2010, Pages 605-615

  Perrin, Paul B ^a,b   Johnston, Andrew ^a   Vogel, Bruce ^a,c   Heesacker, Martin ^a,b   Vega Trujillo, Mercedes ^d   Anderson, Jane ^e,f,g   Rittman, Maude ^a,h  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b University of Florida   (United States)

^c UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

^d Caribbean Healthcare System   (Puerto Rico)

^e MICHAEL E DEBAKEY VETERANS AFFAIRS MEDICAL CENTER   (United States)

^f BAYLOR COLLEGE OF MEDICINE   (United States)

^g Prairie View A and M College of Nursing   (United States)

^h UNIVERSITY OF FLORIDA   (United States)

Author keywords

Burden; Caregivers; Cultural sensitivity; Depression; Functional status; Home care; Strain; Stroke; Support; Transition

Indexed keywords

BURDEN; CAREGIVERS; CULTURAL SENSITIVITY; DEPRESSION; FUNCTIONAL STATUS; HOME CARE; STROKE; TRANSITION;

DISEASES;

ADULT; AGED; ARTICLE; CAREGIVER BURDEN; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DEPRESSION; EDUCATIONAL STATUS; FEMALE; FOLLOW UP; HEALTH PROGRAM; HUMAN; INTERVENTION STUDY; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH CARE; PATIENT SATISFACTION; PRIORITY JOURNAL; PROBLEM SOLVING; RANDOMIZED CONTROLLED TRIAL; REHABILITATION CARE; SKILL; STROKE; TRANSITION ASSISTANCE PROGRAM; TREND STUDY; VETERAN;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CAREGIVERS; COUNSELING; CROSS-CULTURAL COMPARISON; DEPRESSION; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; PERSONAL SATISFACTION; PILOT PROJECTS; PROBLEM SOLVING; PUERTO RICO; QUESTIONNAIRES; SOCIOECONOMIC FACTORS; STRESS, PSYCHOLOGICAL; STROKE; TELEPHONE; TEXAS;

EID: 78149475631     PISSN: 07487711     EISSN: 07487711     Source Type: Journal    
DOI: 10.1682/JRRD.2009.10.0170     Document Type: Article

References (42)

1. American Heart Association. Heart disease and stroke sta-tistics-2005 update [Internet]. Dallas (TX): American Heart Association; 2005. Available from: http://www.amer-icanheart.org/downloadable/heart/ 1105390918119HDSStats2005Update.pdf
2. Gresham GE, Duncan PW, Stason WB, Adams HP, Adel-man AM, Alexander DN, Bishop DS, Diller L, Donaldson NE, Holland AL, Kelly-Hayes M, McDowell FH, Myers L, Phipps MA, Roth EJ, Siebens HC, Tarvin GA, Trombly CA. Post-Stroke Rehabilitation: Clinical Practice Guideline, No. 16. Rockville (MD): U.S. Department of Health and Human Services, Public Health Service, Agency for Health Care Policy and Research; 1995. AHCPR publication 95-0662.
3. Spillman BC, Long SK. Does high caregiver stress predict nursing home entry? Inquiry. 2009; 46(2):140-161. [PMID: 19694388]
4. Kwon S, Duncan PW, Reker DM, Lai SM, Studenski SA, Perera S, Alfrey C, Marquez J. Measuring health-related quality of life in veterans with stroke. Poster presented at: Department of Veterans Affairs Health Services Research and Development Service National Meeting; 2005 Feb 16-18; Baltimore (MD).
5. Veterans Health Administration. Veteran healthcare enrollment and expenditure projections. Washington (DC): Office of Policy and Planning (105); 2003.
6. Han B, Haley WE. Family caregiving for patients with stroke. Review and analysis. Stroke. 1999;30 (7):1478-1485. [PMID: 10390326]
7. Farzan DT. Reintegration for stroke survivors. Home and community considerations. Nurs Clin North Am. 1991; 26(4): 1037-1048. [PMID: 1945935]
8. Rittman M, Boylstein C, Hinojosa R Hinojosa MS, Haun J. Transition experiences of stroke survivors following discharge home. Top Stroke Rehabil. 2007;14(2):21-31. [PMID: 17517571] DOI:10.1310/tsr1402-21
9. Rittman MR. Culturally sensitive models of stroke recovery and caregiving after discharge home. Gainesville (FL): Department of Veterans Affairs Health Services Research and Development Service Study, Nursing Research Initia tive: HSR&D Stroke QUERI; 2000. NRI 98-183.
10. Grant JS, Glandon GL, Elliott TR, Giger JN, Weaver M. Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after dis charge. Int J Rehabil Res. 2004;27(2):105-111. [PMID: 15167107] DOI:10.1097/01.mrr.0000127639.47494.e3
11. Lee J, Soeken K, Picot SJ. A meta-analysis of interventions for informal stroke caregivers. West J Nurs Res. 2007; 29(3): 344-364. [PMID: 17420524] DOI:10.1177/0193945906296564
12. Grant JS, Elliott TR Giger JN, Bartolucci AA. Social problem-solving telephone partnerships with family caregivers of persons with stroke. Int J Rehabil Res. 2001;24(3): 181-189. [PMID: 11560233] DOI: 10.1097/00004356-200109000-00003
13. Rodgers H, Atkinson C, Bond S, Suddes M, Dobson R Curless R. Randomized controlled trial of a comprehensive stroke education program for patients and caregivers. Stroke. 1999;30(12):2585-2591. [PMID: 10582982]
14. Van den Heuvel ET, Witte LP, Stewart RE, Schure LM, Sanderman R, Meyboom-de Jong B. Long-term effects of a group support program and an individual support program for informal caregivers of stroke patients: Which caregivers benefit the most? Patient Educ Couns. 2002;47(4):291-299. [PMID: 12135820] DOI:10.1016/S0738-3991(01)00230-0
15. Mant J, Carter J, Wade DT, Winner S. Family support for stroke: A randomised controlled trial. Lancet; 2000;356(9232): 808-813. [PMID: 11022928] DOI:10.1016/S0140-6736(00)02655-6
16. Gallagher-Thompson D, Lovett S, Rose J, McKibbin C, Coon D, Futterman A, Thompson LW. Impact of psycho-educational interventions on distressed family caregivers. J Clin Geropsychol. 2000;6(2):91-110. DOI:10.1023/A:1009584427018
17. Grant JS, Elliott TR, Weaver M, Bartolucci AA, Giger JN. Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke. 2002;33(8):2060-2065. [PMID: 12154263] DOI:10.1161/01.STR0000020711.38824E3
18. Lutz BJ, Chumbler NR Lyles T, Hoffman N, Kobb R. Testing a home-telehealth programme for US veterans recovering from stroke and their family caregivers. Disabil Rehabil. 2009;31(5):402-409. [PMID: 18720112] DOI:10.1080/09638280802069558
19. Draper B, Bowring G Thompson C, Van Heyst J, Conroy P, Thompson J. Stress in caregivers of aphasic stroke patients: A randomized controlled trial. Clin Rehabil. 2007;21(2): 122-30. [PMID: 17264106] DOI:10.1177/0269215506071251
20. Brereton L, Carroll C, Barnston S. Interventions for adult family carers of people who have had a stroke: A systematic review. Clin Rehabil. 2007;21(10):867-84. [PMID: 17981846] DOI:10.1177/0269215507078313
21. Smith J, Forster A, Young J; Cochrane Group for information provision after stroke. Cochrane review: Information provision for stroke patients and their caregivers. Clin Rehabil. 2009;23(3): 195-206. [PMID: 19218295] DOI:10.1177/0269215508092820
22. Eldred C, Sykes C. Psychosocial interventions for carers of survivors of stroke: A systematic review of interventions based on psychological principles and theoretical frameworks. Br J Health Psychol. 2008;13(Pt 3):563-81.[PMID: 17708832] DOI:10.1348/135910707X236899
23. Perrin PB, Heesacker M, Stidham BS, Rittman MR, Gonzalez-Rothi LJ. Structural equation modeling of the relationship between caregiver psychosocial variables and functioning of individuals with stroke. Rehabil Psychol. 2008;53(1):54-62. DOI:10.1037/0090-5550.53.1.54
24. Perrin PB, Heesacker M, Hinojosa MS, Uthe CE, Rittman MR. Identifying at-risk, ethnically diverse stroke caregivers for counseling: A longitudinal study of mental health. Rehabil Psychol. 2009;54(2):138-49. [PMID: 19469603] DOI:10.1037/a0015964
25. Robinson BC. Validation of a Caregiver Strain Index. J Gerontol. 1983;38(3):344-48. [PMID: 6841931]
26. Sullivan MT. The Modified Caregiver Strain Index (CSI). Try This: General Assessment Series. Best Practices in Nursing Care to Older Adults. New York (NY): The Hartford Institute for Geriatric Nursing, New York University, College of Nursing; 2002; Available from: http://consult-gerirn.org/uploads/File/trythis/try this 14.pdf
27. Andresen EM, Malmgren JA, Carte - WB, Patrick DL. Screening for depression in well older adults: Evaluation of a short form of the CES-D (Center for Epidemiologic Studies Depression Scale). Am J Prev Med. 1994;10(2):77-84. [PMID: 8037935]
28. Kilbourne AM, Justice AC, Rollman BL, McGinnis KA, Rabeneck L, Weissman S, Smola S, Schultz R, Whittle J, Rodriguez-Barradas M. Clinical importance of HIV and depressive symptoms among veterans with HIV infection. J Gen Intern Med. 2002;17(7):512-20. [PMID: 12133141] DOI:10.1046/j.1525-1497.2002.10803.x
29. Granger CV, Cotter AC, Hamilton BB, Fiedler RC, Hens MM. Functional assessment scales: A study of persons with multiple sclerosis. Arch Phys Med Rehabil. 1990; 71(11):870-75. [PMID: 2222154]
30. Hamilton BB, Laughlin JA, Fiedler RC, Granger CV. Inter-rater reliability of the 7-level Functional Independence Measure (FIM). Scand J Rehabil Med. 1994;26(3):115-19. [PMID: 7801060]
31. Hamilton BB, Laughlin JA, Granger CV, Kayton RM. Interrater agreement of the seven-level Functional Independence Measure (FIM) [abstract]. Arch Phys Med Rehabil. 1991;72:790.
32. Ottenbacher KJ, Hsu Y, Granger CV, Fiedler RC. The reliability of the Functional Independence Measure: A quantitative review. Arch Phys Med Rehabil. 1996;77(12):1226-32. [PMID: 8976303] DOI:10.1016/S0003-9993(96)90184-7
33. Dodds TA, Martin DP, Stolov WC, Deyo RA. A validation of the functional independence measurement and its performance among rehabilitation inpatients. Arch Phys Med Rehabil. 1993;74(5):531-36. [PMID: 8489365] DOI:10.1016/0003-9993(93)90119-U
34. Granger CV, Cotter AC, Hamilton BB, Fiedler RC. Functional assessment scales: A study of persons after stroke. Arch Phys Med Rehabil. 1993;74(2): 133-38. [PMID: 8431095]
35. Heinemann AW, Crown D, McMahon R. Utility of the functional assessment inventory in a post-stroke sample. Rehabil Couns Bull. 2000;43(3):165-77. DOI:10.1177/003435520004300307
36. Heinemann AW, Linacre JM, Wright BD, Hamilton BB, Granger C Prediction of rehabilitation outcomes with disability measures. Arch Phys Med Rehabil. 1994;75(2): 133-43. [PMID: 8311668]
37. Heinemann AW, Kirk P, Hastie BA, Semik P, Hamilton BB, Linacre JM, Wright BD, Granger C Relationships between disability measures and nursing effort during medical rehabilitation for patients with traumatic brain and spinal cord injury. Arch Phys Med Rehabil. 1997;78(2):143-49. [PMID: 9041894] DOI:10.1016/S0003-9993(97)90255-0
38. Pollak N, Rheault W, Stoecker JL. Reliability and validity of the FIM for persons aged 80 years and above from a multilevel continuing care retirement community. Arch Phys Med Rehabil. 1996;77(10):1056-61. [PMID: 8857886] DOI:10.1016/S0003-9993(96)90068-4
39. Stineman MG Shea JA, Jette A, Tassoni CJ, Ottenbacher KJ, Fiedler R, Granger CV The Functional Independence Measure: Tests of scaling assumptions, structure, and reliability across 20 diverse impairment categories. Arch Phys Med Rehabil. 1996;77(11):1101-8. [PMID: 8931518] DOI:10.1016/S0003-9993(96)90130-6
40. Corrigan JD, Smith-Knapp K, Granger CV Validity of the functional independence measure for persons with traumatic brain injury. Arch Phys Med Rehabil. 1997;78(8): 828-34. [PMID: 9344301] DOI:10.1016/S0003-9993(97)90195-7
41. Heinemann AW, Roth EJ, Cichowski K, Betts HB. Multivariate analysis of improvement and outcome following stroke rehabilitation. Arch Neurol. 1987;44(11):1167-72. [PMID: 3675249]
42. Petrella RJ, Overend T, Chesworth B. FIM after hip fracture: Is telephone administration valid and sensitive to change? Am J Phys Med Rehabil. 2002;81(9):639-44. [PMID: 12172514] DOI:10.1097/00002060-200209000-00001