Identifying At-Risk, Ethnically Diverse Stroke Caregivers for Counseling: A Longitudinal Study of Mental Health

Rehabilitation Psychology

Volumn 54, Issue 2, 2009, Pages 138-149

  Perrin, Paul B ^a   Heesacker, Martin ^a   Hinojosa, Melanie Sberna ^b   Uthe, Catherine E ^a   Rittman, Maude R ^a  

^a UNIVERSITY OF FLORIDA   (United States)

^b MEDICAL COLLEGE OF WISCONSIN   (United States)

Author keywords

ethnic diversity; mental health; stroke caregivers

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER BURDEN; CAUSAL ATTRIBUTION; CONTROLLED STUDY; COUNSELING; DEPRESSION; FEMALE; HIGH RISK POPULATION; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; PREDICTION; REHABILITATION CARE; STROKE;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; AGED; CAREGIVERS; COGNITIVE THERAPY; COST OF ILLNESS; COUNSELING; DEPRESSION; ETHNIC GROUPS; FEMALE; HUMANS; INTERNAL-EXTERNAL CONTROL; LONGITUDINAL STUDIES; MALE; MENTAL HEALTH; MIDDLE AGED; PERSONALITY INVENTORY; PSYCHOMETRICS; QUESTIONNAIRES; SICK ROLE; STROKE;

EID: 67549117490     PISSN: 00905550     EISSN: None     Source Type: Journal    
DOI: 10.1037/a0015964     Document Type: Article

References (66)

1. American Heart Association. Heart disease and stroke statistics-2007 update: A report from the American Heart Association Statistics Committee and Stroke Statistics Subcommittee. Circulation 115 (2007) e69-e171
2. Anderson C.S., Linto J., and Stewart-Wynne E.G. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 26 (1995) 843-849
3. Aneshensel C.S., Pearlin L.I., Mullan J.T., Zarit S.H., and Whitlatch C.J. Profiles in caregiving: The unexpected career (1995), Academic Press, San Diego
4. Antonovsky A. Unraveling the mystery of health. How people manage stress and stay well (1987), Jossey Bass, San Francisco
5. Arno P.S., Levine C., and Memmott M.M. The economic value of informal caregiving. Health Affairs 18 (1999) 182-188
6. Baumgarten M., Battista R.N., Infante-Rivard C., Hanley J.A., Becker R., and Gauthier S. The psychological and physical health of family members caring for an elderly person with dementia. Journal of Clinical Epidemiology 45 (1992) 61-70
7. Bergner M., Bobbitt R.A., Carter W.B., and Gilson B.S. The Sickness Impact Profile: Development and final revision of a health status measure. Medical Care 19 (1981) 787-805
8. Blonder L.X., Langer S.L., Pettigrew L.C., and Garrity T.F. The effects of stroke disability on spousal caregivers. NeuroRehabilitation 22 (2007) 85-92
9. Borhani N.O. Changes and geographic distribution of mortality from cerebrovascular disease. American Journal of Public Health 55 (1965) 673-681
10. Buck D., Gregson B.A., Bamford C.H., McNamee P., Farrow G.N., Bond J., and Wright K. Psychological distress among informal supporters of frail older people at home and in institutions. The Resource Implications Study Group of the MRC Cognitive Function and Ageing Study. International Journal of Geriatric Psychiatry 12 (1997) 737-744
11. Bugge C., Alexander H., and Hagen S. Stroke patients' informal caregivers. Patient, caregiver, and service factors that affect caregiver strain. Stroke 30 (1999) 1517-1523
12. Carnwath T.C., and Johnson D.A. Psychiatric morbidity among spouses of patients with stroke. British Medical Journal (Clinical Research Ed.) 294 (1987) 409-411
13. Chumbler N.R., Rittman M., Van Puymbroeck M., Vogel W.B., and Qin H. The sense of coherence, burden, and depressive symptoms in informal caregivers during the first month after stroke. International Journal of Geriatric Psychiatry 19 (2004) 944-953
14. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. (1988), Erlbaum, Hillsdale, NJ
15. Corrigan J.D., Smith-Knapp K., and Granger C. Validity of the Functional Independence Measure for persons with traumatic brain injury. Archives of Physical Medicine and Rehabilitation 78 (1997) 828-834
16. Dennis M., O'Rourke S., Lewis S., Sharpe M., and Warlow C.A. Quantitative study of the emotional outcome of people caring for stroke survivors. Stroke 29 (1998) 1867-1872
17. Dodds T.A., Martin D.P., Stolov W.C., and Deyo R.A. A validation of the Functional Indpendence Measure and its performance among rehabilitation inpatients. Archives of Physical Medicine and Rehabilitation 74 (1993) 531-536
18. Dorsey M.K., and Vaca K.J. The stroke patient and assessment of caregiver needs. Journal of Vascular Nursing 16 (1998) 62
19. Doty P. Family care of the elderly: The role of public policy. The Milbank Quarterly 64 (1986) 34-75
20. Evans R.L., Bishop D.S., and Haselkorn J.K. Factors predicting satisfactory home care after stroke. Archives of Physical Medicine and Rehabilitation 72 (1991) 144-147
21. Evans R.L., Hendricks R.D., Haselkorn J.K., Bishop D.S., and Baldwin D. The family's role in stroke rehabilitation: A review of the literature. American Journal of Physical Medicine and Rehabilitation 71 (1992) 135-139
22. Folstein M.F., Folstein S.E., and McHugh P.R. Mini-Mental State. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research 12 (1975) 189-198
23. Frankenhoff C. Antonovsky's Sense of Coherence: An instrument for primary prevention in social work services. International Social Work 41 (1998) 511-522
24. Granger C.V., and Hamilton B.B. UDS Report: The uniform data system for medical rehabilitation report on first admissions for 1990. American Journal of Physical Medicine and Rehabilitation 71 (1990) 108-113
25. Grant J.S., Elliott T.R., Weaver M., Bartolucci A.A., and Newman Giger J. Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke 33 (2002) 2060-2065
26. Grant J.S., Glandon G.L., Elliott T., Giger J.N., and Weaver M. Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month post-discharge. International Journal of Rehabilitation Research 27 (2004) 105-111
27. Grant J.S., Weaver M., Elliott T.R., Bartolucci A.R., and Giger J.N. Sociodemographic, physical, and psychosocial factors associated with depressive behavior in family caregivers of stroke survivors in the acute care phase. Brain Injury 18 (2004) 797-809
28. Hamilton B.B., Laughlin J.A., Fiedler R.C., and Granger C.V. Interrater reliability of the 7-Level Functional Independence Measure (FIM). Scandinavian Journal of Rehabilitation Medicine 26 (1994) 115-119
29. Hanger H.C., Walker G., Paterson L.A., McBride S., and Sainsbury R. What do patients and their carers want to know about stroke? A two year follow-up study. Clinical Rehabilitation 12 (1998) 42-54
30. Hartke R.J., and King R.B. Telephone group intervention for older stroke caregivers. Topics in Stroke Rehabilitation 9 (2003) 65-81
31. Hinojosa M.S., and Rittman M.R. Informational needs of caregivers of veterans poststroke: A comparison of mainland and Puerto Rican caregivers. Journal of Rehabilitation Research and Development 44 (2007) 649-658
32. Hinojosa, M. S., Zsembik, B., & Rittman, M. R. (in press). Patterns of informal care among Puerto Rican, African American, and white stroke survivors. Ethnicity and Health
33. Hirst M. Trends in informal care in Great Britain during the 1990s. Health and Social Care in the Community 9 (2001) 348-357
34. Holbrook M.S., and Skilbeck C.E. An activities index for use with stroke patients. Age and Ageing 12 (1983) 166-170
35. Howard G., Labarthe D.R., Hu J., Yoon S., and Howard V.J. Regional differences in African Americans' high risk for stroke: The remarkable burden of stroke for southern African Americans. Annals of Epidemiology 17 (2007) 689-696
36. Kinney J.M., Stephens P., Ann M., Franks M.M., and Norris V.K. Stresses and satisfactions of family caregivers to older stroke patients. Journal of Applied Gerontology 14 (1995) 3-20
37. Kotila M., Numminen H., Waltimo O., and Kaste M. Depression after stroke: Results of the FINNSTROKE study. Stroke 29 (1998) 368-372
38. Mahoney F.I., and Barthel D.W. Functional evaluation: The Barthel Index: A simple index of independence useful in scoring improvement in the rehabilitation of the chronically ill. Rehabilitation 4 (1965) 61-65
39. National Alliance for Caregiving/American Association of Retired Persons. Family caregiving in the U. S.: Findings from a national survey (1997), Author, Washington, DC
40. National Heart, Lung, and Blood Institute. Report of the Working Group on Research in Coronary Heart Disease in Blacks (2004), Author, Bethesda, MD
41. National Institutes of Health. Community-based health care nursing strategies: A report of the NINR Priority Expert Panel (1995), National Institute of Nursing Research, Bethesda, MD
42. O'Connell B., and Baker L. Managing as carers of stroke survivors: Strategies from the field. International Journal of Nursing Practice 10 (2004) 121-126
43. Ottenbacher K.J., Hsu Y., Grander C.V., and Fiedler R.C. The reliability of the Functional Independence Measure: A quantitative review. Archives of Physical Medicine and Rehabilitation 77 (1996) 1226-1232
44. Periard M.E., and Ames B.D. Lifestyle changes and coping patterns among caregivers of stroke survivors. Public Health Nursing 10 (1993) 252-256
45. Perrin P.B., Heesacker M., Stidham B.S., Rittman M.R., and Gonzalez-Rothi L.J. Structural equation modeling of the relationship between caregiver psychosocial variables and functioning of individuals with stroke. Rehabilitation Psychology 53 (2008) 54-62
46. Rodgers H., Bond S., and Curless R. Inadequacies in the provision of information to stroke patients and their families. Age and Ageing 30 (2001) 129-133
47. Rombough R.E., Howse E.L., Bagg S.D., and Bartfay W.J. A comparison of studies on the quality of life of primary caregivers of stroke survivors: A systematic review of the literature. Topics in Stroke Rehabilitation 14 (2007) 69-79
48. Schnyder U., Buchi S., Sensky T., and Klaghofer R. Antonovsky's Sense of Coherence: Trait or state?. Psychotherapy and Psychosomatics 69 (2000) 296-302
49. Scholte op Reimer W.J., de Haan R.J., Pijnenborg J.M., Limburg M., and van den Bos G.A. Assessment of burden in partners of stroke patients with the Sense of Competence questionnaire. Stroke 29 (1998) 373-379
50. Schuling J., de Haan R., Limburg M., and Groenier K.H. The Frenchay Activities Index. Assessment of functional status in stroke patients. Stroke 24 (1993) 1173-1177
51. Schulz R., O'Brien A.T., Bookwala J., and Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist 35 (1995) 771-791
52. Silliman R.A., Fletcher R.H., Earp J.L., and Wagner E.H. Families of elderly stroke patients. Effects of home care. Journal of the American Geriatric Society 34 (1986) 643-648
53. Smith L.N., Kerr S.M., Langhorne P., and Lees K.R. Informal carers' experience of caring for stroke survivors. Journal of Advanced Nursing 46 (2004) 235-344
54. Stein P.N., Gordon W.A., Hibbard M.R., and Sliwinski M.J. An examination of depression in the spouses of stroke patients. Rehabilitation Psychology 37 (1992) 121-130
55. Stineman M.G., Shea J.A., Jett A., Tassoni C.J., Ottenbacher K.J., Fiedler R., et al. The Functional Independence Measure: Tests of scaling assumptions, structure, and reliability across 20 diverse impairment categories. Archives of Physical Medicine and Rehabilitation 77 (1996) 1101-1108
56. Suh M., Kim K., Kim I., Cho N., Choi H., and Noh S. Caregiver's burden, depression and support as predictors of post-stroke depression: A cross-sectional survey. International Journal of Nursing Studies 42 (2005) 611-618
57. Thommessen B., Aarsland D., Braekhus A., Oksengaard A.R., Engedal K., and Laake K. The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease. International Journal of Geriatric Psychiatry 17 (2002) 78-84
58. Tiegs T.J., Heesacker M., Ketterson T.U., Pekich D.G., Rittman M.R., Rosenbek J.C., et al. Coping by stroke caregivers: Sex similarities and differences. Topics in Stroke Rehabilitation 13 (2006) 52-62
59. Tooth L., McKenna K., Barnett A., Prescott C., and Murphy S. Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Injury 19 (2005) 963-974
60. Van Puymbroeck M., and Rittman M.R. Quality-of-life predictors for caregivers at 1 and 6 months poststroke: Results of path analyses. Journal of Rehabilitation Research & Development 42 (2005) 747-760
61. Vernooij-Dassen M.J.F.J., Persoon J.M.G., and Felling A.J.A. Predictors of sense of competence in caregivers of demented persons. Social Science and Medicine 43 (1996) 41-49
62. Visser-Meily A., van Heugten C., Post M., Schepers V., and Lindeman E. Intervention studies for caregivers of stroke survivors: A critical review. Patient Education and Counseling 56 (2005) 257-267
63. Weston R., Gore P.A., Chan F., and Catalano D. An introduction to using structural equation models in rehabilitation psychology. Rehabilitation Psychology 53 (2008) 340-356
64. White C.L., Mayo N., Hanley J.A., and Wood-Dauphinee S. Evolution of the caregiving experience in the initial 2 years following stroke. Research in Nursing and Health 26 (2003) 177-189
65. Wiles R., Pain H., Buckland S., and McLellan L. Providing appropriate information to patients and carers following a stroke. Journal of Advanced Nursing 28 (1998) 794-801
66. Yesavage J.A., and Brink T.L. Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research 17 (1983) 37-49