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Volumn 257, Issue 1, 2010, Pages 15-23

Socioeconomic burden of amyotrophic lateral sclerosis, myasthenia gravis and facioscapulohumeral muscular dystrophy

Author keywords

"Bottom up" approach; Costs; Neuromuscular disorders

Indexed keywords

CREATINE; IMMUNOMODULATING AGENT; PYRIDOSTIGMINE; RILUZOLE;

EID: 74849094944     PISSN: 03405354     EISSN: 14321459     Source Type: Journal    
DOI: 10.1007/s00415-009-5256-6     Document Type: Article
Times cited : (70)

References (42)
  • 1
    • 0034672282 scopus 로고    scopus 로고
    • Analysis of cost data in randomized trials: An application of the non-parametric bootstrap
    • 10.1002/1097-0258(20001215)19:23<3219::AID-SIM623>3.0.CO;2-P 1:STN:280:DC%2BD3M3kt12kuw%3D%3D 11113956
    • JA Barber SG Thompson 2000 Analysis of cost data in randomized trials: an application of the non-parametric bootstrap Stat Med 19 3219 3236 10.1002/1097-0258(20001215)19:23<3219::AID-SIM623>3.0.CO;2-P 1:STN:280:DC%2BD3M3kt12kuw%3D%3D 11113956
    • (2000) Stat Med , vol.19 , pp. 3219-3236
    • Barber, J.A.1    Thompson, S.G.2
  • 3
    • 0034657861 scopus 로고    scopus 로고
    • Bootstrap confidence intervals: When, which, what? A practical guide for medical statisticians
    • DOI 10.1002/(SICI)1097-0258(20000515)19:9<1141::AID-SIM479>3.0. CO;2-F
    • J Carpenter J Bithell 2000 Bootstrap confidence intervals: when, which, what? A practical guide for medical statisticians Stat Med 19 1141 1164 10.1002/(SICI)1097-0258(20000515)19:9<1141::AID-SIM479>3.0.CO;2-F 1:STN:280:DC%2BD3c3lvFOiug%3D%3D 10797513 (Pubitemid 30265928)
    • (2000) Statistics in Medicine , vol.19 , Issue.9 , pp. 1141-1164
    • Carpenter, J.1    Bithell, J.2
  • 6
    • 0028012789 scopus 로고
    • The economics of dying: The illusion of cost savings at the end of life
    • DOI 10.1056/NEJM199402243300806
    • EJ Emanuel LL Emanuel 1994 The economics of dying. The illusion of cost savings at the end of life N Engl J Med 330 540 544 10.1056/NEJM199402243300806 1:STN:280:DyaK2c7jsVWitQ%3D%3D 8302321 (Pubitemid 24058958)
    • (1994) New England Journal of Medicine , vol.330 , Issue.8 , pp. 540
    • Emanuel, E.J.1    Emanuel, L.L.2
  • 7
    • 74849123120 scopus 로고    scopus 로고
    • Federal Statistical Office of Germany
    • Federal Statistical Office of Germany. http://www.destatis.de. (accessed 15 December 2008)
  • 8
    • 74849118760 scopus 로고    scopus 로고
    • Federal Statistical Office of Germany
    • Federal Statistical Office of Germany http://www.destatis.de (accessed 20 May 2009)
  • 9
    • 0016823810 scopus 로고
    • "Mini-mental state": A practical method for grading the cognitive state of patients for the clinician
    • 10.1016/0022-3956(75)90026-6 1:STN:280:DyaE28%2FntFKjtw%3D%3D 1202204
    • MF Folstein SE Folstein PR McHugh 1975 "Mini-mental state": a practical method for grading the cognitive state of patients for the clinician J Psychiatr Res 12 3 189 198 10.1016/0022-3956(75)90026-6 1:STN:280: DyaE28%2FntFKjtw%3D%3D 1202204
    • (1975) J Psychiatr Res , vol.12 , Issue.3 , pp. 189-198
    • Folstein, M.F.1    Folstein, S.E.2    McHugh, P.R.3
  • 10
    • 74849088469 scopus 로고    scopus 로고
    • German Diagnosis Related Groups (G-DRG) http://www.g-drg.de (accessed 15 December 2008)
  • 12
    • 0031784927 scopus 로고    scopus 로고
    • ALS/MND and the perspective of health economics
    • DOI 10.1016/S0022-510X(98)00192-0, PII S0022510X98001920
    • AM Gray 1998 ALS/MND and the perspective of health economics J Neurol Sci 160 2 5 10.1016/S0022-510X(98)00192-0 (Pubitemid 28522511)
    • (1998) Journal of the Neurological Sciences , vol.160 , Issue.SUPPL. 1
    • Gray, A.M.1
  • 13
    • 33845633371 scopus 로고    scopus 로고
    • Direct and indirect costs of refractory epilepsy in a tertiary epilepsy center in Germany
    • DOI 10.1111/j.1528-1167.2006.00889.x
    • HM Hamer A Spottke C Aletsee S Knake J Reis A Strzelczyk WH Oertel F Rosenow R Dodel 2006 Direct and indirect costs of refractory epilepsy in a tertiary epilepsy center in Germany Epilepsia 47 2165 2172 10.1111/j.1528-1167. 2006.00889.x 17201718 (Pubitemid 44952272)
    • (2006) Epilepsia , vol.47 , Issue.12 , pp. 2165-2172
    • Hamer, H.M.1    Spottke, A.2    Aletsee, C.3    Knake, S.4    Reis, J.5    Strzelczyk, A.6    Oertel, W.H.7    Rosenow, F.8    Dodel, R.9
  • 16
    • 0034641222 scopus 로고    scopus 로고
    • Myasthenia gravis: Recommendations for clinical research standards. Task Force of the Medical Scientific Advisory Board of the Myasthenia Gravis Foundation of America
    • 10891897
    • A Jaretzki RJ Barohn RM Ernstoff HJ Kaminski JC Keesey AS Penn DB Sanders 2000 Myasthenia gravis: recommendations for clinical research standards. Task Force of the Medical Scientific Advisory Board of the Myasthenia Gravis Foundation of America Neurology 55 16 23 10891897
    • (2000) Neurology , vol.55 , pp. 16-23
    • Jaretzki, A.1    Barohn, R.J.2    Ernstoff, R.M.3    Kaminski, H.J.4    Keesey, J.C.5    Penn, A.S.6    Sanders, D.B.7
  • 17
    • 0029847120 scopus 로고    scopus 로고
    • The economic impact of ALS
    • LM Klein DA Forshew 1996 The economic impact of ALS Neurology 47 126 129
    • (1996) Neurology , vol.47 , pp. 126-129
    • Klein, L.M.1    Forshew, D.A.2
  • 19
    • 33745675511 scopus 로고    scopus 로고
    • Costs and quality of life in multiple sclerosis: A cross-sectional study in the United States
    • DOI 10.1212/01.wnl.0000218309.01322.5c, PII 0000611420060613000019
    • G Kobelt J Berg D Atherly O Hadjimichael 2006 Costs and quality of life in multiple sclerosis: a cross-sectional study in the United States Neurology 66 1696 1702 10.1212/01.wnl.0000218309.01322.5c 16769943 (Pubitemid 43964625)
    • (2006) Neurology , vol.66 , Issue.11 , pp. 1696-1702
    • Kobelt, G.1    Berg, J.2    Atherly, D.3    Hadjimichael, O.4
  • 21
    • 27744475482 scopus 로고    scopus 로고
    • Empirische bewertungssätze in der gesundheitsökonomischen evaluation - Ein vorschlag der AG methoden der gesundheitsökonomischen evaluation (AG MEG)
    • DOI 10.1055/s-2005-858698
    • C Krauth F Hessel T Hansmeier J Wasem R Seitz B Schweikert 2005 Empirical standard costs for health economic evaluation in Germany-a proposal by the working group methods in health economic evaluation Gesundheitswesen 67 736 746 10.1055/s-2005-858698 1:STN:280:DC%2BD2Mrls1Gruw%3D%3D 16235143 (Pubitemid 41604934)
    • (2005) Gesundheitswesen , vol.67 , Issue.10 , pp. 736-746
    • Krauth, C.1    Hessel, F.2    Hansmeier, T.3    Wasem, J.4    Seitz, R.5    Schweikert, B.6
  • 22
    • 0020388782 scopus 로고
    • Epidemiology of amyotrophic lateral sclerosis
    • 1:STN:280:DyaL3s%2Fps12jsQ%3D%3D 6983824
    • JF Kurtzke 1982 Epidemiology of amyotrophic lateral sclerosis Adv Neurol 36 281 302 1:STN:280:DyaL3s%2Fps12jsQ%3D%3D 6983824
    • (1982) Adv Neurol , vol.36 , pp. 281-302
    • Kurtzke, J.F.1
  • 24
    • 33845962189 scopus 로고    scopus 로고
    • Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain
    • DOI 10.1212/01.wnl.0000249311.80411.93, PII 0000611420061226000024
    • J Lopez-Bastida P Serrano-Aguilar L Perestelo-Perez J Oliva-Moreno 2006 Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain Neurology 67 2186 2191 10.1212/01.wnl.0000249311.80411.93 17190942 (Pubitemid 46035475)
    • (2006) Neurology , vol.67 , Issue.12 , pp. 2186-2191
    • Lopez-Bastida, J.1    Serrano-Aguilar, P.2    Perestelo-Perez, L.3    Oliva-Moreno, J.4
  • 25
    • 0025836092 scopus 로고
    • Genetic counselling in facioscapulohumeral muscular dystrophy
    • 10.1136/jmg.28.10.655 1:STN:280:DyaK38%2FksF2hsg%3D%3D 1941962
    • PW Lunt PS Harper 1991 Genetic counselling in facioscapulohumeral muscular dystrophy J Med Genet 28 655 664 10.1136/jmg.28.10.655 1:STN:280:DyaK38%2FksF2hsg%3D%3D 1941962
    • (1991) J Med Genet , vol.28 , pp. 655-664
    • Lunt, P.W.1    Harper, P.S.2
  • 26
    • 0032876728 scopus 로고    scopus 로고
    • Inconsistencies in the 'societal perspective' on costs of the panel on cost-effectiveness in health and medicine
    • DOI 10.1177/0272989X9901900401
    • D Meltzer M Johannesson 1999 Inconsistencies in the "societal perspective" on costs of the panel on cost-effectiveness in health and medicine Med Decis Making 19 371 377 10.1177/0272989X9901900401 1:STN:280:DyaK1MvkvV2rsA%3D%3D 10520672 (Pubitemid 29474759)
    • (1999) Medical Decision Making , vol.19 , Issue.4 , pp. 371-377
    • Meltzer, D.1    Johannesson, M.2
  • 27
    • 0029893212 scopus 로고    scopus 로고
    • Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation. Advance care planning and outcomes
    • 10.1378/chest.110.1.249 1:STN:280:DyaK283osFamuw%3D%3D 8681635
    • AH Moss EA Oppenheimer P Casey PA Cazzolli RP Roos CB Stocking M Siegler 1996 Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation. Advance care planning and outcomes Chest 110 249 255 10.1378/chest.110.1.249 1:STN:280:DyaK283osFamuw%3D%3D 8681635
    • (1996) Chest , vol.110 , pp. 249-255
    • Moss, A.H.1    Oppenheimer, E.A.2    Casey, P.3    Cazzolli, P.A.4    Roos, R.P.5    Stocking, C.B.6    Siegler, M.7
  • 28
    • 5444240303 scopus 로고    scopus 로고
    • The cost of a hospital ward in Europe: Is there a methodology available to accurately measure the costs?
    • 10.1108/14777260410548437 1:STN:280:DC%2BD2cvlslyrug%3D%3D
    • D Negrini A Kettle L Sheppard GH Mills DL Edbrooke 2004 The cost of a hospital ward in Europe: is there a methodology available to accurately measure the costs? J Health Org Manag 18 195 206 10.1108/14777260410548437 1:STN:280:DC%2BD2cvlslyrug%3D%3D
    • (2004) J Health Org Manag , vol.18 , pp. 195-206
    • Negrini, D.1    Kettle, A.2    Sheppard, L.3    Mills, G.H.4    Edbrooke, D.L.5
  • 29
    • 74849086519 scopus 로고    scopus 로고
    • OECD Purchasing Power Parities (PPPs) for OECD Countries 1980-2007: OECD
    • OECD Purchasing Power Parities (PPPs) for OECD Countries 1980-2007: OECD. 2008. http://www.oecd.org/dataoecd/61/56/39653523.xls (accessed 15 Mai 2008)
    • (2008)
  • 31
    • 0032976224 scopus 로고    scopus 로고
    • Definitive molecular diagnosis of facioscapulohumeral dystrophy
    • 1:CAS:528:DyaK1MXktVeju7Y%3D 10371529
    • RW Orrell R Tawil J Forrester JT Kissel JR Mendell DA Figlewicz 1999 Definitive molecular diagnosis of facioscapulohumeral dystrophy Neurology 52 1822 1826 1:CAS:528:DyaK1MXktVeju7Y%3D 10371529
    • (1999) Neurology , vol.52 , pp. 1822-1826
    • Orrell, R.W.1    Tawil, R.2    Forrester, J.3    Kissel, J.T.4    Mendell, J.R.5    Figlewicz, D.A.6
  • 33
    • 0031017983 scopus 로고    scopus 로고
    • Guidelines for pharmacoeconomic studies. Recommendations from the panel on cost effectiveness in health and medicine. Panel on cost Effectiveness in Health and Medicine
    • 10.2165/00019053-199711020-00005 1:STN:280:DyaK2s3ktVWkuw%3D%3D 10172935
    • JE Siegel GW Torrance LB Russell BR Luce MC Weinstein MR Gold 1997 Guidelines for pharmacoeconomic studies. Recommendations from the panel on cost effectiveness in health and medicine. Panel on cost Effectiveness in Health and Medicine Pharmacoeconomics 11 159 168 10.2165/00019053-199711020-00005 1:STN:280:DyaK2s3ktVWkuw%3D%3D 10172935
    • (1997) Pharmacoeconomics , vol.11 , pp. 159-168
    • Siegel, J.E.1    Torrance, G.W.2    Russell, L.B.3    Luce, B.R.4    Weinstein, M.C.5    Gold, M.R.6
  • 35
    • 0001515797 scopus 로고
    • Gradients of functional ability of importance in rehabilitation of patients with progressive muscular and neuromuscular diseases
    • 1:STN:280:DyaG1c%2Fgt1ahtQ%3D%3D 13459572
    • CA Swinyard GC Deaver L Greenspan 1957 Gradients of functional ability of importance in rehabilitation of patients with progressive muscular and neuromuscular diseases Arch Phys Med Rehabil 38 574 579 1:STN:280: DyaG1c%2Fgt1ahtQ%3D%3D 13459572
    • (1957) Arch Phys Med Rehabil , vol.38 , pp. 574-579
    • Swinyard, C.A.1    Deaver, G.C.2    Greenspan, L.3
  • 36
    • 33646108839 scopus 로고    scopus 로고
    • Cost-of-illness analysis. What room in health economics?
    • 10.1016/j.healthpol.2005.07.016 16139925
    • R Tarricone 2006 Cost-of-illness analysis. What room in health economics? Health Policy 77 51 63 10.1016/j.healthpol.2005.07.016 16139925
    • (2006) Health Policy , vol.77 , pp. 51-63
    • Tarricone, R.1
  • 37
    • 0035886399 scopus 로고    scopus 로고
    • The cost utility analysis of riluzole for the treatment of amyotrophic lateral sclerosis in the UK
    • DOI 10.1016/S0022-510X(01)00618-9, PII S0022510X01006189
    • M Tavakoli M Malek 2001 The cost utility analysis of riluzole for the treatment of amyotrophic lateral sclerosis in the UK J Neurol Sci 191 95 102 10.1016/S0022-510X(01)00618-9 1:STN:280:DC%2BD3Mnkt1OjtQ%3D%3D 11676998 (Pubitemid 33036874)
    • (2001) Journal of the Neurological Sciences , vol.191 , Issue.1-2 , pp. 95-102
    • Tavakoli, M.1    Malek, M.2
  • 38
    • 74849106024 scopus 로고    scopus 로고
    • The Federal Ministry for Health and Social Secure
    • The Federal Ministry for Health and Social Secure http://www.bmg.bund.de
  • 39
    • 74849094589 scopus 로고    scopus 로고
    • The Federation of German Pharmaceutical Industry. Rote Liste Verlag Weinheim
    • The Federation of German Pharmaceutical Industry (2006) Rote Liste. Rote Liste Verlag, Weinheim
    • (2006) Rote Liste
  • 40
    • 74849125238 scopus 로고    scopus 로고
    • The German Federal Ministry of Justice
    • The German Federal Ministry of Justice http://www.bmj.bund.de (assessed 20 February 2009)
  • 42
    • 49249120062 scopus 로고    scopus 로고
    • Long-term disease-related costs 4 years after stroke or TIA in Germany
    • 10.1007/s00115-008-2505-3 1:STN:280:DC%2BD1cvpvVygsg%3D%3D 18528673
    • Y Winter C Wolfram O Schöffski RC Dodel T Back 2008 Long-term disease-related costs 4 years after stroke or TIA in Germany Nervenarzt 79 918 926 10.1007/s00115-008-2505-3 1:STN:280:DC%2BD1cvpvVygsg%3D%3D 18528673
    • (2008) Nervenarzt , vol.79 , pp. 918-926
    • Winter, Y.1    Wolfram, C.2    Schöffski, O.3    Dodel, R.C.4    Back, T.5


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