Health status and coping strategies among older parent-carers of adults with intellectual disabilities in an Australian sample

Research in Developmental Disabilities

Volumn 31, Issue 6, 2010, Pages 1176-1186

  Llewellyn, Gwynnyth ^a   McConnell, David ^b   Gething, Lindsay ^a   Cant, Rosemary ^a   Kendig, Hal ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

^b UNIVERSITY OF ALBERTA   (Canada)

Author keywords

Caregiver health; Coping strategies; Family caregiving; Intellectual disability

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; CAREGIVER BURDEN; CARER ASSESSMENT OF DIFFICULTIES INDEX; CARER ASSESSMENT OF MANAGING INDEX; CEREBRAL PALSY; CLINICAL ASSESSMENT TOOL; CONCEPT FORMATION; CONTROLLED STUDY; COPING BEHAVIOR; DEMOGRAPHY; EPILEPSY; FEMALE; HEALTH STATUS; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; MENTAL HEALTH; PHYSICAL DISABILITY; PSYCHOSOCIAL CARE; SELF REPORT; SHORT FORM 12; SOCIAL SUPPORT; WIDOW;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; AUSTRALIA; CAREGIVERS; DISABLED PERSONS; FAMILY HEALTH; FEMALE; HEALTH STATUS; HUMANS; MALE; MENTAL RETARDATION; MIDDLE AGED; PARENTS; REGRESSION ANALYSIS; SELF EFFICACY; SEX FACTORS; SOCIAL SUPPORT;

EID: 77957168533     PISSN: 08914222     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ridd.2010.08.003     Document Type: Article

References (50)

1. American Association on Mental Retardation Mental retardation. Definition, classification, and system of supports 1992, American Association on Mental Retardation, Washington, DC. 9th ed.
2. Australian Bureau of Statistics Disability, ageing and carers, disability and long term health conditions. Cat. No. 4433.0 1998, Australian Bureau of Statistics, Canberra, ACT.
3. Australian Institute of Health and Welfare Disability and ageing. Australian population patterns and implications. Cat. No. DIS 19 2000, Australian Institute of Health and Welfare, Canberra, ACT.
4. Australian Institute of Health and Welfare Children with disabilities in Australia. Cat. No. DIS 38 2004, Australian Institute of Health and Welfare, Canberra, ACT.
5. Burholt V., Wenger G.C., Scott A., Yahya B., Roy S. Bangladeshi immigration to the United Kingdom: Older people's support networks in the sending and receiving countries. Quality in Ageing 2000, 1(2):18-30.
6. Carr J. Stability and change in cognitive ability over the life span: A comparison of populations with and without Down's syndrome. Journal of Intellectual Disability Research 2005, 49(12):915-928.
7. Chen S.C., Ryan-Henry S., Heller T., Chen E.H. Health status of mothers of adults with intellectual disability. Journal of Intellectual Disability Research 2001, 45(5):439-449.
8. Mental health, intellectual disabilities, and the ageing process 2003, Blackwell Publishing Co., Oxford, UK. P. Davidson, V.E. Prasher, M.P. Janicki (Eds.).
9. Emerson E., Robertson J., Wood J. Levels of psychological distress experienced by family carers of children and adolescents with intellectual disabilities in an urban conurbation. Journal of Applied Research in Intellectual Disabilities 2004, 17(2):77-84.
10. Essex E.L., Seltzer M.M., Krauss M.W. Differences in coping effectiveness and well-being among ageing mothers and fathers of adults with mental retardation. American Journal on Mental Retardation 1999, 104(6):545-563.
11. Grant G. Review of the book Aging with a disability: What the clinician needs to know. Ageing & Society 2005, 25(2):300-301.
12. Grant G., Nolan M. Informal carers: Sources and concomitants of satisfaction. Health and Social Care in the Community 1993, 1(3):147-159.
13. Grant G., Ramcharan P. Views and experiences of people with intellectual disabilities and their families: The family perspective. Journal of Applied Research in Intellectual Disabilities 2001, 14(4):364-380.
14. Grant G., Whittell B. Differentiated coping strategies in families with children or adults with intellectual disabilities: The relevance of gender, family composition and the life span. Journal of Applied Research in Intellectual Disabilities 2000, 13(4):256-275.
15. Grant G., Ramcharan P., McGrath M., Nolan M., Keady J. Rewards and gratifications among family caregivers: Towards a refined model of caring and coping. Journal of Intellectual Disability Research 1998, 42(1):58-71.
16. Grant G., Nolan M., Keady J. Supporting families over the life course: Mapping temporality. Journal of Intellectual Disability Support 2003, 47(4-5):342-351.
17. Hatton C., Emerson E. Families with a person with intellectual disabilities. Stress and impact. Current Opinion in Psychiatry 2003, 16(5):497-501.
18. Hayden M.F., Goldman J. Families of adults with mental retardation: Stress levels and need for services. Social Work 1996, 41(6):657-667.
19. Hayden M.F., Heller T. Support, problem-solving/coping ability, and personal burden of younger and older caregivers of adults with mental retardation. Mental Retardation 1997, 35(5):264-372.
20. Helff C.M., Glidden L.M. More positive or less negative? Trends in research on adjustment of families rearing children with developmental disabilities. Mental Retardation 1998, 36(6):457-464.
21. Heller T., Miller A.B., Factor A. Adults with mental retardation as supports to their parents: Effects on parental caregiving appraisal. Mental Retardation 1997, 35(5):338-346.
22. Hong J., Seltzer M., Krauss W. Change in social support and psychological well-being. A longitudinal study of ageing mothers of adults with mental retardation. Family Relations 2001, 50(2):154-163.
23. Howe A.L., Schofield H., Herrman H. Caregiving: A common or uncommon experience?. Social Science & Medicine 1997, 45(7):1017-1029.
24. Kim H.W., Greenberg J.S., Seltzer M.M., Krauss M.W. The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness. Journal of Intellectual Disability Research 2003, 47(4-5):313-327.
25. Kline P. The handbook of psychological testing 1999, Routledge, London. 2nd ed.
26. Llewellyn G. Family care decision-making in later life: The future is now. Partnerships in family care 2003, 145-182. Open University Press, Buckingham, UK. M. Nolan, G. Grant (Eds.).
27. Llewellyn G., Gething L., Kendig H., Cant R. Older parent caregivers' engagement with the service system. American Journal on Mental Retardation 2004, 109(5):379-396.
28. Luo X., George M.L., Kakouras I., Edwards C.L., Pietrobon R., Richardson W., et al. Reliability, validity, and responsiveness of the Short Form 12-item Survey (SF-12) in patients with back pain. Spine 2003, 28(15):1739-1745.
29. Maes B., Broekman T.G., Dosen A., Nauts J. Caregiving burden of families looking after persons with intellectual disability and behavioural or psychiatric problems. Journal of Intellectual Disability Research 2003, 47(6):447-455.
30. McKee K., Spazzafumo L., Nolan M., Wojszel B., Lamura G., Bien B. Components of the difficulties, satisfactions and management strategies of carers of older people: A principal component analysis of CADI-CASI-CAMI. Ageing & Mental Health 2009, 13(2):255-264.
31. National Family Carers Voice Interim report to the minister. Public document 2004, National Family Carers Voice, Canberra, ACT.
32. Nolan M., Grant G., Keady J. Assessing the needs of family carers: A guide for practitioners 1998, Pavilion Publishing, Brighton, UK.
33. PHIDU Population health profile of the northern Sydney division of general practice: Supplement. Population profile series: No. 7a 2007, Public Health Information Development Unit (PHIDU), Adelaide.
34. Pruchno R., Patrick J.H. Mothers and fathers of adults with disabilities. Caregiving appraisals and well-being. Research on Ageing 1999, 21(5):682-713.
35. Scharf T. Older people: Coping with the challenges of everyday life. Between hope and fear: Everyday life in East Germany 1995, 201-225. Keele University Press, Keele. E. Kolinsky (Ed.).
36. Schofield H.L., Bloch S., Nankervis J., Murphy B., Singh B.S., Herrman H.E. Health and well-being of women family carers: A comparative study with a generic focus. Australian and New Zealand Journal of Public Health 1999, 23(6):585-589.
37. Seltzer M.M., Krauss M. Aging parents with mentally retarded children: Family risk factors and sources of support. American Journal on Mental Retardation 1989, 94(3):303-312.
38. Seltzer M.M., Krauss M.W. Aging parents with resident adult children. The impact of lifelong caregiving. Life course perspectives on adulthood and old age 1994, 3-18. American Association on Mental Retardation, Washington, DC. M.M. Seltzer, M.W. Krauss, M.P. Janicki (Eds.).
39. Seltzer M.M., Greenberg J.S., Krauss M.W. A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging 1995, 10(1):64-75.
40. Seltzer M.M., Greenberg J.S., Krauss M.W., Hong J. Predictors and outcomes of the end of co-resident caregiving in ageing families of adults with mental retardation or mental illness. Family Relations 1997, 46(1):13-22.
41. Seltzer M.M., Greenberg J.S., Floyd F.J., Pettee Y., Hong J. Life course impacts of parenting a child with a disability. American Journal on Mental Retardation 2001, 106(3):265-286.
42. Todd S., Shearn J. Struggles with time: The careers of parents of adult sons and daughters with learning disabilities. Disability and Society 1996, 11(3):379-402.
43. Twigg J., Atkin K. Carers perceived. Policy and practice in informal care 1994, Open University Press, Buckingham, UK.
44. Walker A., Walker C. Uncertain future: People with learning difficulties and their ageing family carers 1998, Pavilion Publishing and Joseph Rowntree Foundation, Brighton, UK.
45. Ware J.E., Snow K.K., Kosinski M., Gandek B. The SF-36 Health Survey. Manual and Interpretation Guide 1993, The Health Institute, New England Medical Center, Boston, MA.
46. Wen X., Madden R. Trends in community living among people with a disability. Intellectual Disability Australia 1998, 19(4):10-14.
47. Wenger C. Support networks of older people: A guide for practitioners 1994, Centre for Social Policy Research and Development, Bangor, ME.
48. Wenger G.C., Liu J.M. Family support in Beijing (China) and Liverpool (UK): Differences and similarities. Hallym International Journal of Aging (Korea) 2000, 2:85-91.
49. White N., Hastings R.P. Social and professional support for parents of adolescents with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 2004, 17(3):181-190.
50. Williams V., Robinson C. 'He will finish up caring for me': People with learning disabilities and mutual care. British Journal of Learning Disabilities 2001, 29(2):56-62.