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Volumn 14, Issue 4, 2001, Pages 364-380

Views and Experiences of People with Intellectual Disabilities and Their Families. (2) The Family Perspective

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EID: 0035622162     PISSN: 13602322     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.13602322.2001.00077.x     Document Type: Review
Times cited : (53)

References (88)
  • 1
    • 0004460314 scopus 로고    scopus 로고
    • Measuring client participation in individual programme planning meetings
    • Alexander M. & Hegarty J. (2001) Measuring client participation in individual programme planning meetings. British Journal of Learning Disabilities 29 (1), 17-21.
    • (2001) British Journal of Learning Disabilities , vol.29 , Issue.1 , pp. 17-21
    • Alexander, M.1    Hegarty, J.2
  • 8
    • 0346646738 scopus 로고    scopus 로고
    • When parents relinquish care: Informal support networks of older people with learning disability
    • Bigby C. (1997) When parents relinquish care: informal support networks of older people with learning disability. Journal of Applied Research in Intellectual Disabilities 10 (4), 333-344.
    • (1997) Journal of Applied Research in Intellectual Disabilities , vol.10 , Issue.4 , pp. 333-344
    • Bigby, C.1
  • 9
    • 0008223268 scopus 로고    scopus 로고
    • Informal support networks of older adults
    • (eds M. P. Janicki & E. F. Ansell), Paul H. Brookes, Baltimore, MD
    • Bigby C. (2000) Informal support networks of older adults. In: Community Supports for Aging Adults with Lifelong Disabilities (eds M. P. Janicki & E. F. Ansell), pp. 55-70. Paul H. Brookes, Baltimore, MD.
    • (2000) Community Supports for Aging Adults with Lifelong Disabilities , pp. 55-70
    • Bigby, C.1
  • 10
    • 0015026503 scopus 로고
    • The mentally retarded child in the home and the family life-cycle
    • Birenbaum A. (1971) The mentally retarded child in the home and the family life-cycle. Journal of Health and Social Behaviour 12, 55-65.
    • (1971) Journal of Health and Social Behaviour , vol.12 , pp. 55-65
    • Birenbaum, A.1
  • 16
    • 0347276732 scopus 로고
    • Family matters - Empowerment, effective help-giving practices and family-centred care
    • Dunst C. J. & Trivette C. M. (1986) Family matters - empowerment, effective help-giving practices and family-centred care. Paediatric Nursing 22 (4), 334-337.
    • (1986) Paediatric Nursing , vol.22 , Issue.4 , pp. 334-337
    • Dunst, C.J.1    Trivette, C.M.2
  • 17
    • 85144439764 scopus 로고
    • Toward experimental evaluation of the family, infant and pre-school program
    • (eds H. B. Weiss & F. H. Jacobs), Aldine de Gruyter, New York, NY
    • Dunst C. J. & Trivette C. M. (1988) Toward experimental evaluation of the family, infant and pre-school program. In: Evaluating Family Programs (eds H. B. Weiss & F. H. Jacobs), pp. 315-346. Aldine de Gruyter, New York, NY.
    • (1988) Evaluating Family Programs , pp. 315-346
    • Dunst, C.J.1    Trivette, C.M.2
  • 18
    • 0022658375 scopus 로고
    • Mediating influences of social support: Personal, family and child outcomes
    • Dunst C. J., Trivette C. M. & Cross A. H. (1986) Mediating influences of social support: personal, family and child outcomes. American Journal of Mental Deficiency 90 (4), 403-417.
    • (1986) American Journal of Mental Deficiency , vol.90 , Issue.4 , pp. 403-417
    • Dunst, C.J.1    Trivette, C.M.2    Cross, A.H.3
  • 22
    • 0030068132 scopus 로고    scopus 로고
    • Social networks, social support and coping with serious illness: The family connection
    • Ell K. (1996) Social networks, social support and coping with serious illness: the family connection. Social Science and Medicine 42 (2), 173-183.
    • (1996) Social Science and Medicine , vol.42 , Issue.2 , pp. 173-183
    • Ell, K.1
  • 24
    • 0031009728 scopus 로고    scopus 로고
    • Residential transitions of adults with mental retardation: Predictors of waiting list use and placement
    • Essex E. L., Seltzer M. M. & Krauss M. W. (1997) Residential transitions of adults with mental retardation: predictors of waiting list use and placement. American Journal on Mental Retardation 101 (6), 613-629.
    • (1997) American Journal on Mental Retardation , vol.101 , Issue.6 , pp. 613-629
    • Essex, E.L.1    Seltzer, M.M.2    Krauss, M.W.3
  • 27
    • 0039122844 scopus 로고    scopus 로고
    • Family interactions and family adaptation
    • (ed. N. W. Bray), Academic Press, San Diego, CA
    • Floyd F. J. & Costigan C. L. (1997) Family interactions and family adaptation. In: International Review of Research in Mental Retardation, Vol. 20 (ed. N. W. Bray), pp. 47-74. Academic Press, San Diego, CA.
    • (1997) International Review of Research in Mental Retardation , vol.20 , pp. 47-74
    • Floyd, F.J.1    Costigan, C.L.2
  • 28
    • 0030928583 scopus 로고    scopus 로고
    • Positive psychological states and coping with severe stress
    • Folkman S. (1997) Positive psychological states and coping with severe stress. Social Science and Medicine 45, 1207-1221.
    • (1997) Social Science and Medicine , vol.45 , pp. 1207-1221
    • Folkman, S.1
  • 30
  • 31
    • 84986357075 scopus 로고
    • Support networks and transitions over two years among adults with a mental handicap
    • Grant G. (1993) Support networks and transitions over two years among adults with a mental handicap. Mental Handicap Research 6 (1), 36-55.
    • (1993) Mental Handicap Research , vol.6 , Issue.1 , pp. 36-55
    • Grant, G.1
  • 32
    • 0009412259 scopus 로고    scopus 로고
    • Consulting to involve or consulting to empower?
    • (eds P. Ramcharan, G. Roberts, G. Grant & J. Borland), Jessica Kingsley, London
    • Grant G. (1997) Consulting to involve or consulting to empower? In: Empowerment in Everyday Life: Learning Disability (eds P. Ramcharan, G. Roberts, G. Grant & J. Borland), pp. 121-143. Jessica Kingsley, London.
    • (1997) Empowerment in Everyday Life: Learning Disability , pp. 121-143
    • Grant, G.1
  • 33
    • 0347906976 scopus 로고    scopus 로고
    • Older family carers: Challenges, coping strategies and support
    • (ed. M. Day), Jessica Kingsley, London
    • Grant G. (2001) Older family carers: challenges, coping strategies and support. In: Transitions and Change in the Lives of People with Intellectual Disabilities (ed. M. Day), pp. 177-193. Jessica Kingsley, London.
    • (2001) Transitions and Change in the Lives of People with Intellectual Disabilities , pp. 177-193
    • Grant, G.1
  • 35
    • 0002266996 scopus 로고
    • Community inclusion of older adults with learning disabilities
    • Grant G., McGrath M. & Ramcharan P. (1995) Community inclusion of older adults with learning disabilities. Care in Place 2 (1), 29-44.
    • (1995) Care in Place , vol.2 , Issue.1 , pp. 29-44
    • Grant, G.1    McGrath, M.2    Ramcharan, P.3
  • 36
    • 84991138884 scopus 로고
    • Informal carers: Sources and concomitants of satisfaction
    • Grant G. & Nolan M. (1993) Informal carers: sources and concomitants of satisfaction. Health and Social Care in the Community 1 (3), 147-159.
    • (1993) Health and Social Care in the Community , vol.1 , Issue.3 , pp. 147-159
    • Grant, G.1    Nolan, M.2
  • 39
    • 21144474679 scopus 로고
    • Dynamics of support networks: Differences and similarities between vulnerable groups
    • Grant G. & Wenger G. C. (1993) Dynamics of support networks: differences and similarities between vulnerable groups. Irish Journal of Psychology 14 (1), 79-98.
    • (1993) Irish Journal of Psychology , vol.14 , Issue.1 , pp. 79-98
    • Grant, G.1    Wenger, G.C.2
  • 40
    • 0034368464 scopus 로고    scopus 로고
    • Differentiated coping strategies in families with children or adults with learning disabilities: The relevance of gender, family composition and the lifespan
    • Grant G. & Whittell B. (2000) Differentiated coping strategies in families with children or adults with learning disabilities: the relevance of gender, family composition and the lifespan. Journal of Applied Research in Intellectual Disabilities. 13 (4), 256-275.
    • (2000) Journal of Applied Research in Intellectual Disabilities , vol.13 , Issue.4 , pp. 256-275
    • Grant, G.1    Whittell, B.2
  • 41
    • 0344069296 scopus 로고
    • General Household Survey 1995, Series No. 15, Supplement 16, Survey Division, OPCS, London
    • Green H. (1988) Informal Carers. General Household Survey 1995, Series No. 15, Supplement 16, Survey Division, OPCS, London.
    • (1988) Informal Carers
    • Green, H.1
  • 42
    • 0030224095 scopus 로고    scopus 로고
    • Towards a definition of family resilience: Integrating life-span and family perspectives
    • Hawley D. & DeHaan L. (1996) Towards a definition of family resilience: integrating life-span and family perspectives. Family Process 35, 283-298.
    • (1996) Family Process , vol.35 , pp. 283-298
    • Hawley, D.1    DeHaan, L.2
  • 43
    • 0030293214 scopus 로고    scopus 로고
    • Families of adults with mental retardation: Stress levels and need for services
    • Hayden M. E. & Goldman J. (1996) Families of adults with mental retardation: stress levels and need for services. Social Work 41 (6), 657-667.
    • (1996) Social Work , vol.41 , Issue.6 , pp. 657-667
    • Hayden, M.E.1    Goldman, J.2
  • 44
    • 0040448045 scopus 로고
    • Ageing caregivers of persons with developmental disabilities: Changes in burden and placement desire
    • (ed. K. Roberto), Sage, Newbury Park, CA
    • Heller T. (1993) Ageing caregivers of persons with developmental disabilities: changes in burden and placement desire. In: The Elderly Caregiver: Caring for Adults with Developmental Disabilities (ed. K. Roberto), pp. 21-38. Sage, Newbury Park, CA.
    • (1993) The Elderly Caregiver: Caring for Adults with Developmental Disabilities , pp. 21-38
    • Heller, T.1
  • 45
    • 0005780756 scopus 로고    scopus 로고
    • Older adults with mental retardation and their families
    • (ed. N. Bray), Academic Press, San Diego, CA
    • Heller T. (1997) Older adults with mental retardation and their families. In: International Review of Research in Mental Retardation (ed. N. Bray), pp. 99-136. Academic Press, San Diego, CA.
    • (1997) International Review of Research in Mental Retardation , pp. 99-136
    • Heller, T.1
  • 47
    • 0012526526 scopus 로고    scopus 로고
    • Family empowerment: A nursing intervention with suggested outcomes for families of children with a chronic health condition
    • Hulme P. A. (1999) Family empowerment: a nursing intervention with suggested outcomes for families of children with a chronic health condition. Journal of Family Nursing 5 (1), 33-50.
    • (1999) Journal of Family Nursing , vol.5 , Issue.1 , pp. 33-50
    • Hulme, P.A.1
  • 49
    • 0033125549 scopus 로고    scopus 로고
    • Family-centred care: A concept analysis
    • Hutchfield K. (1999) Family-centred care: a concept analysis. Journal of Advanced Nursing 29 (5), 1178-1187.
    • (1999) Journal of Advanced Nursing , vol.29 , Issue.5 , pp. 1178-1187
    • Hutchfield, K.1
  • 52
    • 0039185335 scopus 로고
    • Contested territory in informal care
    • (ed. M. Jefferys), Routledge, London
    • Lewis J. & Meredith B. (1989) Contested territory in informal care. In: Growing Old in the Twentieth Century (ed. M. Jefferys), pp. 186-200. Routledge, London.
    • (1989) Growing Old in the Twentieth Century , pp. 186-200
    • Lewis, J.1    Meredith, B.2
  • 56
    • 84936354135 scopus 로고
    • Authentic voices from parents of exceptional children
    • Mullins J. B. (1987) Authentic voices from parents of exceptional children. Family Relations 36, 30-33.
    • (1987) Family Relations , vol.36 , pp. 30-33
    • Mullins, J.B.1
  • 60
    • 0025961387 scopus 로고
    • Coping with stress in children who have mental retardation: An evaluation of the double ABCX model
    • Orr R. R., Cameron S. J. & Day D. M. (1991) Coping with stress in children who have mental retardation: an evaluation of the double ABCX model. American Journal on Mental Retardation 95, 444-450.
    • (1991) American Journal on Mental Retardation , vol.95 , pp. 444-450
    • Orr, R.R.1    Cameron, S.J.2    Day, D.M.3
  • 61
    • 0002942765 scopus 로고
    • Tending and social policy
    • (eds E. M. Goldberg & S. Hatch), Policy Studies Institute, London
    • Parker R. (1981) Tending and social policy. In: A New Look at the Personal Social Services (eds E. M. Goldberg & S. Hatch), pp. 17-33. Policy Studies Institute, London.
    • (1981) A New Look at the Personal Social Services , pp. 17-33
    • Parker, R.1
  • 63
    • 0032372312 scopus 로고    scopus 로고
    • Stress and job satisfaction among social workers, community nurses and community psychiatric nurses: Implications for the care management model
    • Parry-Jones B., Grant G., McGrath M., Caldock K., Ramcharan P. & Robinson C. (1998) Stress and job satisfaction among social workers, community nurses and community psychiatric nurses: implications for the care management model. Health and Social Care in the Community 6 (4), 271-285.
    • (1998) Health and Social Care in the Community , vol.6 , Issue.4 , pp. 271-285
    • Parry-Jones, B.1    Grant, G.2    McGrath, M.3    Caldock, K.4    Ramcharan, P.5    Robinson, C.6
  • 65
    • 84892554338 scopus 로고
    • Stress and coping in mothers caring for a child with severe learning difficulties: A test of Lazarus' transactional model of coping
    • Quine L. & Pahl J. (1991) Stress and coping in mothers caring for a child with severe learning difficulties: a test of Lazarus' transactional model of coping. Journal of Community and Applied Social Psychology 1, 57-70.
    • (1991) Journal of Community and Applied Social Psychology , vol.1 , pp. 57-70
    • Quine, L.1    Pahl, J.2
  • 66
    • 0035647673 scopus 로고    scopus 로고
    • Views and experiences of people with intellectual disabilities and their families. (1) The user perspective
    • Ramcharan P. & Grant G. (2001) Views and experiences of people with intellectual disabilities and their families. (1) The user perspective. Journal of Applied Research in Intellectual Disabilities 14 (4), 348-363.
    • (2001) Journal of Applied Research in Intellectual Disabilities , vol.14 , Issue.4 , pp. 348-363
    • Ramcharan, P.1    Grant, G.2
  • 70
    • 0024418363 scopus 로고
    • Ageing parents with mentally retarded children: Family risk factors and sources of support
    • Seltzer M. M. & Krauss M. W. (1989) Ageing parents with mentally retarded children: family risk factors and sources of support. American Journal on Mental Retardation 94, 303-312.
    • (1989) American Journal on Mental Retardation , vol.94 , pp. 303-312
    • Seltzer, M.M.1    Krauss, M.W.2
  • 71
    • 0346646719 scopus 로고    scopus 로고
    • Mothers want work and support too
    • Shearn J. & Todd S. (1997) Mothers want work and support too. Llais 44, 3-6.
    • (1997) Llais , vol.44 , pp. 3-6
    • Shearn, J.1    Todd, S.2
  • 72
    • 0034374155 scopus 로고    scopus 로고
    • Maternal employment and family responsibilities: The perspectives of mothers of children with learning disabilities
    • Shearn J. & Todd S. (2000) Maternal employment and family responsibilities: the perspectives of mothers of children with learning disabilities. Journal of Applied Research in Intellectual Disabilities 13 (3), 109-131.
    • (2000) Journal of Applied Research in Intellectual Disabilities , vol.13 , Issue.3 , pp. 109-131
    • Shearn, J.1    Todd, S.2
  • 73
    • 0028506757 scopus 로고
    • Relationships between stress, coping resources and satisfaction in family functioning in families of children with disabilities
    • Snowdon A. W., Cameron S. & Dunham K. (1994) Relationships between stress, coping resources and satisfaction in family functioning in families of children with disabilities. Canadian Journal of Nursing Research 26 (3), 63-76.
    • (1994) Canadian Journal of Nursing Research , vol.26 , Issue.3 , pp. 63-76
    • Snowdon, A.W.1    Cameron, S.2    Dunham, K.3
  • 74
    • 84933494953 scopus 로고
    • Managing threats to welfare: The search for a new paradigm of welfare
    • Titterton M. (1992) Managing threats to welfare: the search for a new paradigm of welfare. Journal of Social Policy 21 (1), 1-23.
    • (1992) Journal of Social Policy , vol.21 , Issue.1 , pp. 1-23
    • Titterton, M.1
  • 75
    • 0006686814 scopus 로고    scopus 로고
    • A non-normative age contrast: Elderly parents caring for offspring with mental retardation
    • (ed. V. L. Bengston), Springer-Verlag, Berlin
    • Tobin S. S. (1996) A non-normative age contrast: elderly parents caring for offspring with mental retardation. In: Adulthood and Ageing: Research on Continuities and Discontinuities (ed. V. L. Bengston), pp. 124-145. Springer-Verlag, Berlin.
    • (1996) Adulthood and Ageing: Research on Continuities and Discontinuities , pp. 124-145
    • Tobin, S.S.1
  • 76
    • 0030519258 scopus 로고    scopus 로고
    • Struggles with time: The careers of parents of adult sons and daughters with learning disabilities
    • Todd S. & Shearn J. (1996a) Struggles with time: the careers of parents of adult sons and daughters with learning disabilities. Disability and Society 11, 379-402.
    • (1996) Disability and Society , vol.11 , pp. 379-402
    • Todd, S.1    Shearn, J.2
  • 77
    • 3042988022 scopus 로고    scopus 로고
    • Time and the person: The impact of support services on the lives of parents of adults with learning disabilities
    • Todd S. & Shearn J. (1996b) Time and the person: the impact of support services on the lives of parents of adults with learning disabilities. Journal of Applied Research in Intellectual Disabilities 9, 40-60.
    • (1996) Journal of Applied Research in Intellectual Disabilities , vol.9 , pp. 40-60
    • Todd, S.1    Shearn, J.2
  • 78
    • 0347906958 scopus 로고
    • Positive contributions that persons with mental retardation make to their families
    • Denver, CO
    • Turnbull H. R., Behr S. K. & Tollefson N. (1986) Positive contributions that persons with mental retardation make to their families. Paper presented at the AAMD Conference, Denver, CO.
    • (1986) AAMD Conference
    • Turnbull, H.R.1    Behr, S.K.2    Tollefson, N.3
  • 86
    • 0006862410 scopus 로고    scopus 로고
    • Older people as carers as well as recipients of care
    • (eds V. Minichiello, N. Chappell, H. Kendig & A. Walker), International Sociological Association, Melbourne
    • Wenger G. C., Grant G. & Nolan M. (1996) Older people as carers as well as recipients of care. In: Sociology of Ageing: International Perspectives (eds V. Minichiello, N. Chappell, H. Kendig & A. Walker), pp. 189-206. International Sociological Association, Melbourne.
    • (1996) Sociology of Ageing: International Perspectives , pp. 189-206
    • Wenger, G.C.1    Grant, G.2    Nolan, M.3
  • 88
    • 0032380281 scopus 로고    scopus 로고
    • Absolute involvement: The experience of mothers of ventilator-dependent children
    • Wilson S., Morse J. & Penrod J. (1998) Absolute involvement: the experience of mothers of ventilator-dependent children. Health and Social Care in the Community 6 (4), 224-233.
    • (1998) Health and Social Care in the Community , vol.6 , Issue.4 , pp. 224-233
    • Wilson, S.1    Morse, J.2    Penrod, J.3


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