Psychosocial and psychosexual aspects of disorders of sex development

Best Practice and Research: Clinical Endocrinology and Metabolism

Volumn 24, Issue 2, 2010, Pages 325-334

  Cohen Kettenis, P T ^a  

^a VU UNIVERSITY AMSTERDAM   (Netherlands)

Author keywords

disorders of sex development; hermaphroditism; intersex; mental health; psychosexual; sexual health

Indexed keywords

DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; DISORDER OF SEX DEVELOPMENT; DYSPAREUNIA; FAMILY COUNSELING; FEMALE; GENDER DYSPHORIA; GENDER IDENTITY; GONADECTOMY; HERMAPHRODITISM; HETEROSEXUALITY; HORMONAL THERAPY; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MENTAL HEALTH CARE; PSYCHOSEXUAL DEVELOPMENT; PSYCHOSOCIAL CARE; PSYCHOSOCIAL DEVELOPMENT; PUBERTY; REVIEW; SEX DETERMINATION; SEX ROLE; SEXUAL DYSFUNCTION; SEXUAL EDUCATION; SEXUAL FUNCTION; SEXUAL HEALTH; SEXUAL ORIENTATION; SEXUALITY; SOCIAL ENVIRONMENT; SUPPORT GROUP; VAGINA RECONSTRUCTION; ADOLESCENT; ANDROGEN INSENSITIVITY SYNDROME; CHILD; CONGENITAL ADRENAL HYPERPLASIA; NEWBORN; PHYSIOLOGY; PSYCHOLOGICAL ASPECT; SEX DIFFERENTIATION DISORDER;

TESTOSTERONE;

ADOLESCENT; ADRENAL HYPERPLASIA, CONGENITAL; ANDROGEN-INSENSITIVITY SYNDROME; CHILD; FEMALE; GENDER IDENTITY; HUMANS; INFANT, NEWBORN; MALE; SEX DIFFERENTIATION DISORDERS; TESTOSTERONE;

EID: 77956633970     PISSN: 1521690X     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.beem.2009.11.005     Document Type: Review

References (44)

1. I.A. Hughes, C. Houk, and S.F. Ahmend Consensus statement on management of interest disorders Archives of Disease in Childhood 91 2006 554 563 (Pubitemid 44023350)
2. Meyer-Bahlburg HFL. Variants of gender differentiation in somatic disorders of sex development. Int J Transgenderism, in press.
3. C.L. Martin, D.N. Ruble, and J. Szkrybalo Cognitive theories of early gender development Psychological Bulletin 128 2002 903 933
4. S.K. Egan, and D.G. Perry Gender identity: a multidimensional analysis with implications for psychosocial adjustment Developmental Psychology 37 2001 451 463
5. Money J. Lovemaps: Clinical concepts of sexual/erotic health and pathology, paraphilia, and gender transposition in childhood, adolescence, and maturity. New York: Irvington, 1986.
6. th ed Social, emotional, and personality development vol. 3 2006 Wiley New York 858 932
7. N.M. Fisk Gender dysphoria syndrome: the conceptualization that liberalizes indications for total gender reorientation and implies a broadly based multi-dimensional rehabilitative program The Western Journal of Medicine 120 1974 386 391
8. W.O. Bockting Psychotherapy and the real-life experience: from gender dichotomy to gender diversity Sexologies 17 2008 211 224
9. th ed. 2000 Author Washington
10. S.A. Berenbaum Psychological outcome in children with disorders of sex development: implications for treatment and understanding typical development Annual Review of Sex Research 17 2006 1 38
11. P.T. Cohen-Kettenis Psychological long-term outcome in intersex conditions Hormone Research 64 2005 27 30
12. A.B. Dessens, F.M.E. Slijper, and S.L.S. Drop Gender dysphoria and gender change in chromosomal females with congenital adrenal hyperplasia Archives of Sexual Behavior 34 2005 389 397
13. A.L.C. de Vries, T.H.A.H. Doreleijers, and P.T. Cohen-Kettenis Disorders of sex development and gender identity outcome in adolescence and adulthood: understanding gender identity development and its clinical implications Pediatric Endocrinology Reviews 4 2007 343 351
14. H.F.L. Meyer-Bahlburg, C. Dolezal, and S.W. Baker Gender development in women with congenital adrenal hyperplasia as a function of disorder severity Archives of Sexual Behavior 35 2006 667 684
15. J. Imperato-McGinley, T. Peterson Gautier, and E. Sturla Androgens and the evolution of male-gender identity among male pseudohermaphrodites with 5-alpha-reductase deficiency The New England Journal of Medicine 300 1979 1233 1237
16. H. Richter-Appelt, C. Discher, and B. Gedrose Gender identity and recalled gender related childhood play-behaviour in adult individuals with different forms of intersexuality Anthropologischer Anzeiger 63 2005 241 256
17. M. Hines, S.F. Ahmed, and I.A. Hughes Psychological outcomes and gender-related development in complete androgen insensitivity syndrome Archives of Sexual Behavior 32 2003 93 101
18. T. Mazur Gender dysphoria and gender change in androgen insensitivity or micropenis Archives of Sexual Behavior 34 2005 411 421
19. H.F.L. Meyer-Bahlburg Gender identity outcome in female-raised 46, XY persons with penile agenesis, cloacal exstrophy of the bladder, or penile ablation Archives of Sexual Behavior 34 2005 423 438
20. H.F.L. Meyer-Bahlbug Treatment guidelines for children with disorders of sex development Neuropsychiatrie de l' Enfance et de l' Adolescence 56 2008 345 349
21. U. Thyen, and S. Krege Netzwerk DSD/Intersexualität Der Urologe. Ausg. A 46 2007 1304 1306
22. A.E. Kazak, M.C. Cant, and M.M. Jensen Identifying psychosocial risk indicative of subsequent resource use in families of newly diagnosed pediatric oncology patients Journal of Clinical Oncology 21 2003 3220 3322
23. C. Lang, and U. Kuhnle Intersexuality and alternative gender categories in Non-Western cultures Hormone Research 69 2008 240 250
24. L. Wiener, C.A. Mellins, and S. Marchefka Disclosure of a HIV diagnosis to children: history, current research, and future directions Journal of Developmental and Behavioral Pediatrics 28 2007 155 166
25. C. Harbeck-Weber, J.L. Fisher, and C.A. Dittner Promoting coping and enhancing adaptation to illness M.C. Roberts, Handbook of pediatric psychology 3rd ed 2003 The Guilford Press New York, London 99 118
26. I. Ismail, and S. Creighton Surgery for intersex Reviews in Gynaecological Practice 5 2005 57 64
27. Schönbucher V, Schweize K, Rustige L, Schützmann.K, Brunner F, Richter-Appelt H. Sexual Quality of life of individuals with 46, XY disorders of sex development. The Journal of Sexual Medicine, in press.
28. U. Kuhnle, M. Bullinger, and H.P. Schwarz The quality of life in adult female patients with congenital adrenal hyperplasia: A comprehensive study of the impact of genital malformations and chronic disease on female patients' life European Journal of Pediatrics 154 1995 708 716
29. F.M.E. Slijper, H.J. van der Kamp, and H. Brandenbrug Evaluation of psychosexual development of young women with congenital adrenal hyperplasia: A pilot study Journal of Sex Education & Therapy 18 1992 200 207
30. K.J. Zucker, S.J. Bradley, and G. Oliver Psychosexual development of woman with congenital adrenal hyperplasia Hormones and Behavior 30 1996 300 318
31. M. Hines, C. Brook, and G.S. Conway Androgen and psychosexual development: core gender identity, sexual orientation, and recalled gender role behaviour in women and men with congenital adrenal hyperplasia (CAH) Journal of Sex Research 41 2004 75 81
32. B.B. Mendonca, M. Inacio, and E.M. Costa Male pseudohermaphroditism due to steroid 5-alpha-reductase 2 deficiency: diagnosis, psychological evaluation, and management Medicine (Baltimore) 7 1996 64 76 1996
33. V.G. Lewis, and J. Money Gender identity/role: G-I/R Part A: XY androgen-insensitivity syndrome and XX Rokitansky syndrome of vaginal atresia compared L. Dennerstein, G. Burrows, Handbook of psychosomatic obstetrics and gynaecology 1983 Elsevier Biomedical Press Amsterdam 51 60
34. D.N. Masica, A.A. Ehrhardt, and J. Money Fetal feminization and female gender identity in the testicular feminizing syndrome of androgen insensitivity Archives of Sexual Behavior 1 1971 131 142
35. J. Money, A.A. Ehrhardt, and D.N. Masica Fetal feminization by androgen insensitivity in the testicular feminizing syndrome. Effect on marriage and maternalism The Johns Hopkins Medical Journal 123 1968 105 114
36. W.J. Meyer, W.O. Bockting, and P.T. Cohen-Kettenis The Harry Benjamin international gender dysphoria association's standards of care for gender identity disorders, sixth version Journal of Psychology & Human Sexuality 13 2001 1 30
37. K.J. Zucker, and A.A. Lawrence Epidemiology of gender identity disorder International Journal of Transgenderism 11 2009 8 18
38. K.J. Zucker Measurement of psychosexual differentiation Archives of Sexual Behavior 34 2005 375 388
39. R. Pleak Ethical issues in diagnosing and treating gender-dysphoric children and adolescents M. Rottnek, Sissies & tomboys: gender nonconformity & homosexual childhood 1999 New York University Press New York 34 51
40. E.J. Menvielle, and C. Tuerk A support group for parents of gender non-conforming boys Journal of the American Academy of Child and Adolescent Psychiatry 41 2002 1010 1013
41. K.J. Zucker, and P.T. Cohen-Kettenis Gender identity disorder in children and adolescents D.L. Rowland, L. Incrocci, Handbook of sexual and gender identity disorders 2008 Wiley & Sons New York 376 422
42. D. Di Ceglie Management and therapeutic aims with children and adolescents with gender identity disorders and their families D. DiCeglie, D. Freedman, A stranger in my own body: atypical gender identity 1998 Development and Mental Health London: Karnac
43. W.C. Hembree, P.T. Cohen-Kettenis, and H.A. Delemarre-van de Waal Endocrine treatment of transsexual persons: an endocrine society clinical practice guideline The Journal of Clinical Endocrinology and Metabolism 94 2009 3132 3154
44. C. Bowman, and J.M. Goldberg Care of the patient undergoing sex reassignment surgery (SRS) Vancouver, BC, Canada: vancouver Coastal Health Authority http://www.vch.ca/transhealth/resources/library/tcpdocs/guidelines- surgery.pdf 2005