Quality of life varies with gender and age among adults treated for unilateral cleft lip and palate

Cleft Palate-Craniofacial Journal

Volumn 47, Issue 5, 2010, Pages 491-498

  Mani, Maria ^a   Carlsson, Marianne ^b   Marcusson, Agneta ^c  

^a UPPSALA UNIVERSITY HOSPITAL   (Sweden)

^b UPPSALA UNIVERSITY   (Sweden)

^c LINKÖPING UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Adults; Cleft lip and palate; Gender; Quality of life; SF 36

Indexed keywords

ADULT; AGE DISTRIBUTION; ARTICLE; CLEFT PALATE; CONTROLLED STUDY; EMOTIONALITY; FEMALE; FOLLOW UP; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; POPULATION RESEARCH; PRIORITY JOURNAL; QUALITY OF LIFE; SEX DIFFERENCE; SOCIAL STATUS; TREATMENT OUTCOME; UNILATERAL CLEFT LIP;

ACTIVITIES OF DAILY LIVING; ADULT; AGE FACTORS; CASE-CONTROL STUDIES; CLEFT LIP; CLEFT PALATE; CROSS-SECTIONAL STUDIES; EMOTIONS; FEMALE; FOLLOW-UP STUDIES; HEALTH STATUS; HUMANS; INTERPERSONAL RELATIONS; LONGITUDINAL STUDIES; MALE; MENTAL HEALTH; MIDDLE AGED; PAIN MEASUREMENT; QUALITY OF LIFE; SEX FACTORS; YOUNG ADULT;

EID: 77956604818     PISSN: 10556656     EISSN: 15451569     Source Type: Journal    
DOI: 10.1597/08-281     Document Type: Article

References (46)

1. Åbyholm FE, Bergland O, Semb G. Secondary bone grafting of alveolar clefts. A surgical/orthodontic treatment enabling a non-prosthodontic rehabilitation in cleft lip and palate patients. Scand J Plast Reconstr Surg. 1981;15:127-140. (Pubitemid 11022574)
2. Berscheid E, Gangestad S. The social psychological implications of facial physical attractiveness. Clin Plast Surg. 1982;9:289-296. (Pubitemid 12069067)
3. Brand S, Blechschmidt A, Muller A, Sader R, Schwenzer-Zimmerer K, Zeilhofer HF, Holsboer-Trachsler E. Psychosocial functioning and sleep patterns in children and adolescents with cleft lip and palate (CLP) compared with healthy controls. Cleft Palate Craniofac J. 2009;46:124-135.
4. Bressmann T, Sader R, Ravens-Sieberer U, Zeilhofer HF, Horch HH. Quality of life research in patients with cleft lip and palate: preliminary results [in German]. Mund Kiefer Gesichtschir. 1999;3:134-139.
5. Broder H, Strauss RP. Self-concept of early primary school age children with visible or invisible defects. Cleft Palate J. 1989;26:114-117. (Pubitemid 19112377)
6. Broder HL, Smith FB, Strauss RP. Effects of visible and invisible orofacial defects on self-perception and adjustment across developmental eras and gender. Cleft Palate Craniofac J. 1994;31:429-436.
7. Cheung LK, Loh JS, Ho SM. Psychological profile of Chinese with cleft lip and palate deformities. Cleft Palate Craniofac J. 2007;44:79-86.
8. Danino A, Gradell J, Malka G, Moutel G, Herve C, Rosilio C. Social adjustment in French adults from who had undergone standardised treatment of complete unilateral cleft lip and palate [in French]. Ann Chir Plastique Esthet. 2005;50:202-205. (Pubitemid 40826576)
9. Edwards TC, Patrick DL, Topolski TD, Aspinall CL, Mouradian WE, Speltz ML. Approaches to craniofacial-specific quality of life assessment in adolescents. Cleft Palate Craniofac J. 2005;42:19-24. (Pubitemid 40129732)
10. Endriga MC, Kapp-Simon KA. Psychological issues in craniofacial care: state of the art. Cleft Palate Craniofac J. 1999;36:3-11.
11. Friede H. Maxillary growth controversies after two-stage palatal repair with delayed hard palate closure in unilateral cleft lip and palate patients: perspectives from literature and personal experience. Cleft Palate Craniofac J. 2007;44:129-136.
12. Hellquist R, Svardstrom K, Ponten B. A longitudinal study of delayed periosteoplasty to the cleft alveolus. Cleft Palate J. 1983;20:277-288.
13. Hunt O, Burden D, Hepper P, Johnston C. The psychosocial effects of cleft lip and palate: a systematic review. Eur J Orthod. 2005;27:274-285.
14. Jakobsson OP, Ponten B. Closure of the cleft palate in one or two stages: the surgical methods. Scand J Plast Reconstr Surg Hand Surg. 1990;24:149-155.
15. Jokovic A, Locker D, Stephens M, Kenny D, Tompson B, Guyatt G. Validity and reliability of a questionnaire for measuring child oral-health-related quality of life. J Dent Res. 2002;81:459-463.
16. Kapp-Simon KA. Psychological issues in cleft lip and palate. Clin Plast Surg. 2004;31:347-352.
17. Landsberger P, Proff P, Dietze S, Hoffmann A, Kaduk W, Meyer FU, Mack F. Evaluation of patient satisfaction after therapy of unilateral clefts of lip, alveolus, and palate. J Craniomaxillofac Surg. 2006;34(suppl 2):31-33.
18. Marcusson A, Akerlind I, Paulin G. Quality of life in adults with repaired complete cleft lip and palate. Cleft Palate Craniofac J. 2001a;38:379-385.
19. Marcusson A, List T, Paulin G, Akerlind I. Reliability of a multidimensional questionnaire for adults with treated complete cleft lip and palate. Scand J Plast Reconstr Surg Hand Surg. 2001b;35:271-278.
20. Marcusson A, Paulin G, Ostrup L. Facial appearance in adults who had cleft lip and palate treated in childhood. Scand J Plast Reconstr Surg Hand Surg. 2002;36:16-23.
21. Marquis P, Chassany O, Abetz L. A comprehensive strategy for the interpretation of quality-of-life data based on existing methods. Value Health. 2004;7:93-104.
22. McWilliams BJ, Paradise LP. Educational, occupational, and marital status of cleft palate adults. Cleft Palate J. 1973;10:223-229.
23. Noor SN, Musa S. Assessment of patients' level of satisfaction with cleft treatment using the Cleft Evaluation Profile. Cleft Palate Craniofac J. 2007;44:292-303.
24. Oosterkamp BC, Dijkstra PU, Remmelink HJ, van Oort RP, Goorhuis- Brouwer SM, Sandham A, de Bont LG. Satisfaction with treatment outcome in bilateral cleft lip and palate patients. Int J Oral Maxillofac Surg. 2007;36:890-895.
25. Patrick DL, Topolski TD, Edwards TC, Aspinall CL, Kapp-Simon KA, Rumsey NJ, Strauss RP, Thomas CR. Measuring the quality of life of youth with facial differences. Cleft Palate Craniofac J. 2007;44:538-547.
26. Perko MA. Two-stage closure of cleft palate (progress report). J Maxillofac Surg. 1979;7:46-80.
27. Persson M, Becker M, Svensson H. Physical characteristics of young men with cleft lip, with or without cleft palate, and cleft palate only. Scand J Plast Reconstr Surg Hand Surg. 2007;41:6-9.
28. Persson M, Becker M, Svensson H. General intellectual capacity of young men with cleft lip with or without cleft palate and cleft palate alone. Scand J Plast Reconstr Surg Hand Surg. 2008;42:14-16.
29. Peter JP, Chinsky RR, Fisher MJ. Sociological aspects of cleft palate adults. III. Vocational and economic aspects. Cleft Palate J. 1975;12:193-199.
30. Ramstad T, Ottem E, Shaw WC. Psychosocial adjustment in Norwegian adults who had undergone standardised treatment of complete cleft lip and palate. II. Self-reported problems and concerns with appearance. Scand J Plast Reconstr Surg Hand Surg. 1995;29:329-336.
31. Richman LC, Eliason M. Psychological characteristics of children with cleft lip and palate: intellectual, achievement, behavioral, and personality variables. Cleft Palate J. 1982;19:249-257.
32. Sinko K, Jagsch R, Prechtl V, Watzinger F, Hollmann K, Baumann A. Evaluation of esthetic, functional, and quality-of-life outcome in adult cleft lip and palate patients. Cleft Palate Craniofac J. 2005;42:355-361.
33. Skoog T. A design for the repair of unilateral cleft lips. Am J Surg. 1958;95:223-226.
34. Skoog T. Plastic Surgery. New Methods and Refinements. Stockholm: Almqvist & Wiksell; 1974.
35. Sullivan M, Karlsson J. The Swedish SF-36 Health Survey III. Evaluation of criterion-based validity: results from normative population. J Clin Epidemiol. 1998;51:1105-1113. (Pubitemid 28527166)
36. Sullivan M, Karlsson J, Ware JE Jr. The Swedish SF-36 Health Survey - I. Evaluation of data quality, scaling assumptions, reliability and construct validity across general populations in Sweden. Soc Sci Med. 1995;41:1349-1358.
37. Sullivan Mk, Taft J, C (Ed.). Hälsoenkät: Svensk Manual och Tolkningsguide, 2: upplagan [Swedish Manual and Interpretation Guide]. 2nd ed. Gothenburg: Sahlgrenska University Hospital; 2002.
38. Thomas PT, Turner SR, Rumsey N, Dowell T, Sandy JR. Satisfaction with facial appearance among subjects affected by a cleft. Cleft Palate Craniofac J. 1997;34:226-231.
39. Thompson A, Kent G. Adjusting to disfigurement: processes involved in dealing with being visibly different. Clin Psychol Rev. 2001;21:663-682.
40. Tobiasen JM, Hiebert JM. Clefting and psychosocial adjustment. Influence of facial aesthetics. Clin Plast Surg. 1993;20:623-631.
41. Turner SR, Rumsey N, Sandy JR. Psychological aspects of cleft lip and palate. Eur J Orthod. 1998;20:407-415.
42. Wardill WEM. The technique of operation for cleft palate. Br J Surg. 1937;25:117-130.
43. Warschausky S, Kay JB, Buchman S, Halberg A, Berger M. Healthrelated quality of life in children with craniofacial anomalies. Plast Reconstr Surg. 2002;110:409-414, discussion 415-406.
44. Veau V. Division palatine. Paris: Masson et Cie; 1931.
45. Widmaier W. The primary elevated velum extension, a method of closing the cleft palate [in German]. Chirurg. 1961;32:333-341.
46. Wyrwich KW, Bullinger M, Aaronson N, Hays RD, Patrick DL, Symonds T. Estimating clinically significant differences in quality of life outcomes. Qual Life Res. 2005;14:285-295.