Usability testing of an online self-management program for Adolescents with Juvenile Idiopathic Arthritis

Journal of Medical Internet Research

Volumn 12, Issue 3, 2010, Pages

  Stinson, Jennifer ^a,b   McGrath, Patrick ^d   Hodnett, Ellen ^b   Feldman, Brian ^a,c   Duffy, Ciaran ^e   Huber, Adam ^d   Tucker, Lori ^f   Hetherington, Ross ^a   Tse, Shirley ^a,c   Spiegel, Lynn ^a,c   Campillo, Sarah ^e   Gill, Navreet ^a   White, Meghan ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d IWK HEALTH CENTRE   (Canada)

^e MONTREAL CHILDREN S HOSPITAL   (Canada)

^f BC CHILDREN S HOSPITAL   (Canada)

Author keywords

Adolescent; Internet; Juvenile idiopathic arthritis; Self management; Usability testing

Indexed keywords

ADOLESCENT; ALTERNATIVE MEDICINE; ARTICLE; CHILD PARENT RELATION; CHILD PSYCHOLOGY; COMPUTER; DAILY LIFE ACTIVITY; FEMALE; HUMAN; INTERVIEW; MALE; METHODOLOGY; ONLINE SYSTEM; PATIENT EDUCATION; PATIENT SATISFACTION; PATIENT SELECTION; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SELF CARE; SOCIAL SUPPORT; STANDARD; UTILIZATION REVIEW;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADOLESCENT PSYCHOLOGY; COMPUTERS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIND-BODY THERAPIES; ONLINE SYSTEMS; PARENT-CHILD RELATIONS; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; PATIENT SELECTION; QUALITY OF LIFE; SELF CARE; SOCIAL SUPPORT;

EID: 77957596650     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.1349     Document Type: Article

References (31)

1. Oen KG, Cheang M. Epidemiology of chronic arthritis in childhood. Semin Arthritis Rheum 1996 Dec;26(3):575-591.[Medline: 8989803] [doi: 10.1016/S0049-0172(96)80009-6]
2. Shaw KL, Southwood TR, Duffy CM, McDonagh JE. Health-related quality of life in adolescents with juvenile idiopathic arthritis. Arthritis Rheum 2006 Apr 15;55(2):199-207 [FREE Full text] [Medline: 16583399] [doi: 10.1002/art.21852]
3. Phelps L. Chronic Health-related Disorders in Children: Collaborative Medical and Psycho-educational Interventions.Washington DC: American Psychological Association; 2006.
4. Rapoff MA. Assessing and enhancing adherence to medical regimens for juvenile rheumatoid arthritis. Pediatr Ann 2002 Jun;31(6):373-379. [Medline: 12073741]
5. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 2002;48(2):177-187. [Medline: 12401421] [doi: 10.1016/S0738-3991(02)00032-0]
6. Barlow JH, Shaw KL, Harrison K. Consulting the 'experts': children's and parents' perceptions of psycho-educational interventions in the context of juvenile chronic arthritis. Health Educ Res 1999 Oct;14(5):597-610 [FREE Full text] [Medline:10510068] [doi: 10.1093/her/14.5.597]
7. Lineker SC, Badley EM, Dalby DM. Unmet service needs of children with rheumatic diseases and their parents in a metropolitan area. J Rheumatol 1996 Jun;23(6):1054-1058. [Medline: 8782140]
8. Ritterband LM, Gonder-Frederick LA, Cox DJ, Clifton AD, West RW, Borowitz SM. Internet interventions: in review, in use, and into the future. Prof Psychol Res Pr 2003;34(5):527-534. [doi: 10.1037/0735-7028.34.5.527]
9. Gray NJ, Klein JD, Noyce PR, Sesselberg TS, Cantrill JA. Health information-seeking behaviour in adolescence: the place of the internet. Soc Sci Med 2005 Apr;60(7):1467-1478. [Medline: 15652680] [doi: 10.1016/j.socscimed. 2004.08.010]
10. Stinson J, Wilson R, Gill N, Yamada J, Holt J. A systematic review of internet-based self-management interventions for youth with health conditions. J Pediatr Psychol 2009 Jun;34(5):495-510. [Medline: 19029142] [doi: 10.1093/jpepsy/jsn115]
11. Nguyen HQ, Carrieri-Kohlman V, Rankin SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput Biol Med 2004 Mar;34(2):95-112. [Medline: 14972630] [doi: 10.1016/S0010-4825(03)00046-5]
12. Stinson JN, Tucker L, Huber A, Harris H, Lin C, Cohen L, et al. Surfing for juvenile idiopathic arthritis: perspectives on quality and content of information on the Internet. J Rheumatol 2009 Aug;36(8):1755-1762. [Medline: 19531749] [doi:10.3899/jrheum.081010]
13. Pagliari C. Design and evaluation in eHealth: challenges and implications for an interdisciplinary field. J Med Internet Res2007;9(2):e15 [FREE Full text] [Medline: 17537718] [doi: 10.2196/jmir.9.2.e15]
14. Stinson JN, Toomey PC, Stevens BJ, Kagan S, Duffy CM, Huber A, et al. Asking the experts: exploring the self-management needs of adolescents with arthritis. Arthritis Rheum 2008 Jan 15;59(1):65-72 [FREE Full text] [Medline: 18163408] [doi:10.1002/art.23244]
15. Stinson J, McGrath P, Hodnett E, Feldman B, Duffy C, Huber A, et al. An Internet-based Self-management Program with Telephone Support for Adolescents with Arthritis: A Pilot Randomized Controlled Trial. J Rheumatol In press.
16. Currie LM. Evaluation frameworks for nursing informatics. Int J Med Inform 2005 Dec;74(11-12):908-916. [Medline:16099711] [doi: 10.1016/j.ijmedinf. 2005.07.007]
17. Wichansky AM. Usability testing in 2000 and beyond. In: Ergonomics 2000, Vol.43:998-1006. [Medline: 10929833]
18. Gustafson DH, Wyatt JC. Evaluation of ehealth systems and services. BMJ 2004 May 15;328(7449):1150 [FREE Full text][Medline: 15142895] [doi: 10.1136/bmj.328.7449.1150]
19. Snodgrass A, Coyne R. Models, metaphors and the hermeneuticals of designing. Design Issues 1992;9:56-74.
20. Moretti C, Viola S, Pistorio A, Magni-Manzoni S, Ruperto N, Martini A, et al. Relative responsiveness of condition specific and generic health status measures in juvenile idiopathic arthritis. Ann Rheum Dis 2005 Feb;64(2):257-261 [FREE Full text] [Medline: 15647433] [doi: 10.1136/ard.2003.016519]
21. SAS Version 9. SAS Institute Inc Cary, NC, USA SAS Version 9.1.3 [FREE Full text]
22. Neuendorf KA. The Content Analysis Guidebook. Thousand Oaks, CA: Sage Publications, Inc; 2002.
23. Sandelowski M. Whatever happened to qualitative description? Res Nurs Health 2000 Aug;23(4):334-340. [Medline:10940958]
24. Bassiere R, Gluszynski T. Impact of computer use on reading achievement of 15-year-olds. Gatineau, QC: Human Resources and Skills Development Canada Publications Centre; 2004:1-55.
25. Campinha-Bacote J. The Process of Cultural Competence in the Delivery of Healthcare Services: a model of care. J Transcult Nurs 2002 Jul;13(3):181-4; discussion 200-201 [Medline: 12113146] [doi: 10.1177/10459602013003003]
26. White M, Dorman SM. Receiving social support online: implications for health education. Health Educ Res 2001 Dec;16(6):693-707 [FREE Full text] [Medline: 11780708] [doi: 10.1093/her/16.6.693]
27. Anderson GF, Frogner BK, Johns RA, Reinhardt UE. Health care spending and use of information technology in OECD countries. Health Aff (Millwood) 2006;25(3):819-831. [Medline: 16684749] [doi: 10.1377/hlthaff.25.3.819]
28. Horrigan J, Smith A. Home broadband adoption 2007. Washington, DC: Pew Internet & American Life Project; 2007.URL: http://www.pewInternet.org/ Reports/2007/Home-Broadband-Adoption-2007.aspx?r=1 [WebCite Cache ID 5jTAB5UIU]
29. Jackson M, Peters J. Introducing touchscreens to black and ethnic minority groups-a report of processes and issues in the Three Cities project. Health Info Libr J 2003 Sep;20(3):143-149. [Medline: 12919277] [doi:10.1046/j.1365-2532.2003.00425.x]
30. Eysenbach G, Powell J, Kuss O, Sa E. Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. JAMA 2002;287(20):2691-2700 [FREE Full text] [Medline: 12020305] [doi:10.1001/jama.287.20.2691]
31. Kushniruk A. Evaluation in the design of health information systems: application of approaches emerging from usability engineering. Comput Biol Med 2002 May;32(3):141-149. [Medline: 11922931]