Consulting the 'experts': Children's and parents' perceptions of psycho-educational interventions in the context of juvenile chronic arthritis

Health Education Research

Volumn 14, Issue 5, 1999, Pages 597-610

  Barlow, J H ^a   Shaw, K L ^a   Harrison, K ^a  

^a Institute for Clean Growth and Future Mobility   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; AGE; ARTICLE; CLINICAL ARTICLE; DISEASE SEVERITY; EMOTION; FEMALE; GROUP THERAPY; HEALTH CARE ACCESS; HEALTH PRACTITIONER; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; PARENT; PATIENT ATTITUDE; PRIORITY JOURNAL; SCHOOL CHILD; SOCIAL ISOLATION; SOCIAL PSYCHOLOGY; SUPPORT GROUP;

EID: 0033385149     PISSN: 02681153     EISSN: None     Source Type: Journal    
DOI: 10.1093/her/14.5.597     Document Type: Article

References (33)

1. Bandura A. (1977) Social Learning Theory. Prentice-Hall, Englewood Cliffs, NJ.
2. Bandura A. (1986) Social Foundations of Thought and Action: A Social Cognitive Theory. Prentice-Hall, Englewood Cliffs, NJ.
3. Barlow, J. H. (1997) Living with arthritis: pain management in the homecare setting. Home Healthcare Consultant, 4, 23-40.
4. Barlow J. H. (1998) Arthritis. In Johnston, M. and Johnston, D. (eds), Comprehensive Clinical Psychology Series. Vol. 8: Health Psychology. Elsevier, London, pp. 427-440.
5. Barlow, J. H., Cullen, L., Davis, S. and Williams, R. G. (1997a) The power of sharing common experiences: the 'hidden' benefit of group education for people with arthritis. British Journal of Therapy and Rehabilitation, 4, 38-41.
6. Barlow, J. H., Pennington, D. C. and Bishop, P. (1997b) Patient education leaflets for people with rheumatoid arthritis: a controlled study. Psychology, Health and Medicine, 2, 221-235.
7. Barlow, J. H., Shaw, K. L. and Southwood, T. R. (1998) Do psychosocial interventions have a role to play in paediatric rheumatology? British Journal of Rheumatology, 37, 573-578.
8. Benjamin, C. M. (1990) Review of UK data on the rheumatic diseases - 1. Juvenile chronic arthritis. British Journal of Rheumatology, 29, 213-233.
9. Beresford, B. (1995) Expert Opinions: A National Survey of Parents Caring for a Severely Disabled Child. The Policy Press, Bristol.
10. Diehl, S. F., Moffitt, K. A. and Wade, S. M. (1991) Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings. Children's Health Care, 20, 170-178.
11. Harris, J. A., Newcomb, A. F. and Gewanter, H. L. (1991) Psychosocial effects of JRD: the family and peer systems as a context for coping. Arthritis Care and Research, 4, 123-130.
12. Harrison, H. and Barlow, J. H. (1995) Focus group technique: a consumer perspective on outpatient therapeutic services. British Journal of Therapy and Rehabilitation, 2, 323-327.
13. Jackson, C. (1997) Point of view: behavioural science theory and principles for practice in health education. Health Education Research, 12, 143-150.
14. Kitzinger, J. (1995) Introducing focus groups. British Medical Journal, 311, 299-302.
15. Kroll, T., Barlow, J. H. and Shaw K. (1998) Treatment adherence in juvenile rheumatoid arthritis. Scandinavian Journal of Rheumatology, in press.
16. Krueger, R. A. (1994) Focus Groups: A Practical Guide for Applied Research, 2nd edn. Sage, London.
17. Lorig, K. and Holman, H. (1993). Arthritis self-management studies: a twelve year review. Health Education Quarterly, 20, 17-28.
18. Meeuwesen, L. and Kaptein, M. (1996) Changing interactions in doctor-parent-child communication. Psychology and Health, 11, 787-795.
19. Miller, J. J. (1993) Psychosocial factors related to rheumatic disease in childhood. Journal of Rheumatology, 20, S38, 1-11.
20. Munthe, E. (ed.) (1990) The Care of the Rheumatic Child. EULAR, Basle.
21. Rapoff, M. A. and Christopherson, E. R. (1982) Compliance of pediatric patients with medical regimens: a review and evaluation. In Stuart, R. B. (ed.), Adherence, Generalization, and Compliance in Behavioral Medicine. Brunner/Mazel, New York, pp. 79-24.
22. Revenson, T. A. (1993) The role of social support in rheumatic diseases. Balliere's Clinical Rheumatology: International Practice and Research, 7, 377-396.
23. Ross, C. K., Lavigne, J. V., Hayford, J. R., Berry, S. L., Sinacore, J. M. and Pachman, L. M. (1993) Psychological factors affecting reported pain in juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 18, 561-573.
24. Southwood, T. R. (1992) Kids Like Us. A disease education video for children with chronic arthritis. Producer: Cook, P. Yorkshire Television Studios.
25. Southwood, T. R. and Malleson, P. N. (eds) (1993) Arthritis in Children and Adolescents. Balliere's Clinical Paediatrics. International Practice and Research, 1.
26. Stein, R. and Jessop, D. J. (1989) What diagnosis does not tell: the case for a noncategorical approach to chronic illness in childhood. Social Science and Medicine, 29, 769-778.
27. Timko, C., Stovel, K. W. and Moos, R. H. (1992) Functioning among mothers and fathers of children with juvenile rheumatic disease. A longitudinal study. Journal of Pediatric Psychology, 17, 705-724.
28. Tones, B. K. (1997) Health education, behaviour change and public health. In Dettels, R. and McEwen, J. (eds), Oxford Textbook of Public Health. Oxford University Press, Oxford, p. 786.
29. Vandvik, I. H. and Eckblad, G. (1991) Mothers of children with recent onset rheumatic disease: associations between maternal distress, psychosocial variables and the disease of children. Developmental and Behavioral Pediatrics, 12, 84-91.
30. Varni, J. W. and Wallander, J. L. (1984) Adherence to health-related regimens for pediatric chronic disorders. Clinical Psychology Review, 4, 585-596.
31. Vaughan, S., Schumm, J. S. and Sinagub, J. (1996) Focus Group Interviews in Education and Psychology. Sage, Thousand Oaks, CA.
32. Wallander, J. and Varni, J. (1989) Social support and adjustment in chronically ill and handicapped children. American Journal of Community Psychology, 17, 185-201.
33. Wright, B. A. (1960). Physical Disability: A Psychological Approach. Harper and Brothers, New York.