The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): Issues of process and outcome

Quality of Life Research

Volumn 19, Issue 5, 2010, Pages 619-629

  Farquhar, Morag ^a   Ewing, Gail ^b   Higginson, Irene J ^c   Booth, Sara ^d  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^b UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^c KING'S COLLEGE LONDON   (United Kingdom)

^d ADDENBROOKE S HOSPITAL   (United Kingdom)

Author keywords

Chronic obstructive pulmonary disease; Feasibility studies; Outcome assessment (health care); Palliative care; Quality of life; Validity of results

Indexed keywords

ADAPTIVE BEHAVIOR; AGED; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; FEASIBILITY STUDY; FEMALE; HUMAN; MALE; MENTAL STRESS; MIDDLE AGED; PATHOLOGY; PATIENT CARE; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; RECORDING; SINGLE BLIND PROCEDURE; TREATMENT OUTCOME; VALIDATION STUDY;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; FEASIBILITY STUDIES; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT CARE; PSYCHOMETRICS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITATIVE RESEARCH; QUALITY OF LIFE; SINGLE-BLIND METHOD; STRESS, PSYCHOLOGICAL; TAPE RECORDING; TREATMENT OUTCOME;

EID: 77956395566     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-010-9631-7     Document Type: Article

References (39)

1. Kaasa, S., & DeLonno, F. (2001). Palliative care research. European Journal of Cancer, , S153-S159.
2. Gill, T. M., & Feinstein, A. R. (1994). A critical appraisal of the quality of life measurements. Journal of the American Association, 272, 619-626.
3. Farquhar, M. (1995). Definitions of quality of life: A taxonomy. Journal of Advanced Nursing, 22(3), 502-508.
4. Farquhar, M. (1995). Elderly people's definitions of quality of life. Social Science and Medicine, 41(10), 1439-1446.
5. Cella, D. F. (1995). Measuring quality of life in palliative care. Seminars in Oncology, 22(2 Suppl 3), 73-81.
6. Kaasa, S. (2000). Assessment of quality of life in palliative care. Innovations in End-of-Life Care, 2(6) www.edc.org/lastacts.
7. Carr, A. J., & Higginson, I. J. (2001). Are quality of life measures patient centred? BMJ, 322, 1357-1360.
8. Hickey, A. M., Bury, G., O'Boyle, C. A., Bradley, F., O'Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. BMJ, 313, 29-33.
9. Browne, J., O'Boyle, C., McGee, H., McDonald, N., & Joyce, C. (1997). Development of a direct weighting procedure for quality of life domains. Quality of Life Research, 6, 301-309.
10. Waldron, D., O'Boyle, C. A., Kearney, M., Moriarty, M., & Carney, D. (1999). Quality-of-life measurement in advanced ancer: Assessing the individual. Journal of Clinical Oncology, 17(11), 3603-3611.
11. Campbell, S., & Whyte, F. (1999). The quality of life of cancer patients participating in phase I clinical trials using SEIQoL-DW. Journal of Advanced Nursing, 30(2), 335-343.
12. Montgomery, C., Pocock, M., Titley, K., & Lloyd, K. (2002). Individual quality of life in patients with leukaemia and lymphoma. Psycho-Oncology, 11, 239-243.
13. Frick, E., Borasio, G. D., Zehentner, H., Fischer, N., & Bumeder, I. (2004). Individual quality of life of patients undergoing autologous peripheral blood stem cell transplantation. Psycho- Oncology, 13(2), 116-124.
14. Carlson, L. E., Bultz, B. D., & Morris, D. G. (2005). Individualized quality of life, standardized quality of life, and distress in patients undergoing a phase I trial of the novel therapeutic Reolysin (reovirus). Health and Quality of Life Outcomes, 3, 7.
15. Sharpe, L., Butow, P., Smith, C., McConnell, D., & Clarke, S. (2005). Changes in quality of life in patients with advanced cancer. Evidence of response shift and response restriction. Journal of Psychosomatic Research, 58, 497-504.
16. Westerman, M. J., Hak, T., The, A.-M., Echteld, M. A., Groen, H. J. M., & van der Wal, G. (2006). Problems eliciting cues in SEIQoL-DW: Quality of life areas in small-cell lung cancer patients. Quality of Life Research, 15, 441-449.
17. Westerman, M. J., Hak, T., The, A.-M., Echteld, M. A., Groen, H. J. M., & van der Wal, G. (2007). Change in what matters to palliative patients: Eliciting information about adaptation with SEIQoL-DW. Palliative Medicine, 21, 581-586.
18. Echteld, M. A., van Zuylen, L., Bannink, M., Witkamp, E., & Van der Rijt, C. C. (2007). Changes in and correlates of individual quality of life in advanced cancer patients admitted to an academic unit for palliative care. Palliative Medicine, 21(3), 199-205.
19. Fegg, M. J., Wasner, M., Neudert, C., & Borasio, G. D. (2005). Personal values and individual quality of life in palliative care patients. Journal of Pain and Symptom Management, 30, 154-159.
20. Frick, E., Tyroller, M., & Panzer, M. (2006). Anxiety, depression and quality of life of cancer patients undergoing radiation therapy: A cross-sectional study in a community hospital outpatient centre. European Journal of Cancer Care, 16, 130-136.
21. Lintern, T. C., Beaumont, J. G., Kenealy, P. M., & Murrell, R. C. (2001). Quality of life (QoL) in severely disabled multiple sclerosis patieamp;nts: Comparisons of three QoL measures using multidimensional scaling. Quality of Life Research, 10, 371-378.
22. Ramström, H., Erwander, I., Mared, L., Kornfält, R., & Seiving, B. (2000). Pharmaceutical intervention in the care of cystic fibrosis patients. Journal of Clinical Pharmacy & Therapeutics, 25(6), 427-434.
23. LeVasseur, S. A., Green, S., & Talman, P. (2005). The SEIQoLDW is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic. Quality of Life Research, 14(3), 779-788.
24. Lee, M. A., Walker, R. W., Hildreth, A. J., & Prentice, W. M. (2006). Individualized assessment of quality of life in idiopathic Parkinsa,mpp;on's disease. Movement Disorders, 21(11), 1929-1934.
25. Echteld, M. A., Deliens, L., Ooms, M. E., Ribbe, M. W., & van der Wal, G. (2005). Quality of life change and response shift in patients admitted to palliative care units: A pilot study. Palliative Medicine, 19(5), 381-388.
26. Crang, C., & Muncey, T. (2008). Quality of life in palliative care: Being at ease in the here and now. International Journal of palliative Nursing, 14(2), 90-95.
27. Smith, H. J., Taylor, R., & Mitchell, A. (2000). A comparison of four quality of life instruments in cardiac patients: SF-36, QLI, QLMI, and SEIQoL. Heart, 84, 390-394.
28. Moons, P., Marquet, K., Budts, W., & De Geest, S. (2004). Validity, reliability and responsiveness of the ''Schedule for the Evaluation of Individual Quality of Life-Direct Weighting'' (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes, 2, 27.
29. Macduff, C. (2000). Respondent-generated quality of life measures: Useful tools for nursing or more fool's gold? Journal of Advanced Nursing, 32(2), 375-382.
30. Stiggelbout, A. M., de Vogel-Voogt, E., Noordijk, E. M., & Vliet Vlieland, T. P. M. (2008). Individual quality of life: Adaptive conjoint analysis as an alternative for direct weighting? Quality of Life Research, 17, 641-649.
31. Mountain, L. A., Campbell, S. E., Seymour, D. G., Primrose, W. R., & Whyte, M. I. (2004). Assessment of individual quality of life using the SEIQoL-DW in olamp;der medical patients. QJM, 97(8), 519-524.
32. Farquhar, M., Higginson, I. J., Fagan, P., & Booth, S. (2009). The feasibility of a single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease. BMC Palliative Care, 8, 9.
33. Farquhar, M. C., Higginson, I. J., Fagan, P., Booth, S. (2009). Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): Brief report. Palliative and Supportive Care, 8(2) (in press).
34. O'Boyle, C. A., Browne, J., Hickey, A., McGee, H., Joyce, C. R.B. (1995). Schedule for the evaluation of individual quality of life (SEIQoL): A direct weighting procedure for quality of life domains (SEIQoL-DW). Administration manual. Dept of Psychology, Royal College of Surgeons in Ireland.
35. Ritchie, J., & Spencer, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & R. G. Burgess (Eds.), Analyzing qualitative data (pp. 173-194). London: Routledge.
36. Ring, L., Lindblad, A. K., Bendsten, P., Viklund, E., Jansson, R., & Glimelius, B. (2006). Feasibility and validity of a computer administered version of SEIQoL-DW. Quality of Life Research, 15, 1173-1177.
37. Seymour, D. G., Starr, J. M., Fox, H. C., Lemmon, H. A., Deary, I. J., Prescott, G. J., et al. (2008). Quality of life, its correlates in octogenarians. Use of the SEIQoL-DW in Wave 5 of the Aberdeen Birth Cohort 1921 Study (ABC1921). Quality of Life Research, 17, 11-20.
38. Mallinson, S. (2002). Listening to respondents: A qualitative assessment of the Short-Form 36 Health Status Questionnaire. Social Science and Medicine, 54(1), 11-21.
39. Murtagh, F. E., Addington-Hall, J. M., & Higginson, I. J. (2007). The value of cognitive interviewing techniques in palliative care research. Palliative Medicine, 21(2), 87-93.