Change in what matters to palliative patients: Eliciting information about adaptation with SEIQoL-DW

Palliative Medicine

Volumn 21, Issue 7, 2007, Pages 581-586

  Westerman, Marjan J ^a   Hak, Tony ^b   The, Anne Mei ^a   Echteld, Michael A ^a   Groen, Harry J M ^c   van der Wal, Gerrit ^a  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

^c UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

Author keywords

Adaptation; Palliative treatment; Quality of life; Response shift; Small cell lung cancer

Indexed keywords

ANTINEOPLASTIC AGENT;

ADULT; ARTICLE; CANCER PALLIATIVE THERAPY; CLINICAL ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; DETERIORATION; FAMILY; FRIENDSHIP; HEALTH STATUS; HUMAN; INTERVIEW; LUNG SMALL CELL CANCER; MALE; PATIENT ATTITUDE; PATIENT AUTONOMY; QUALITY OF LIFE; SOCIAL INTERACTION; WORK;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CARCINOMA, SMALL CELL; CUES; DELIVERY OF HEALTH CARE; FEMALE; HUMANS; LUNG NEOPLASMS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT SATISFACTION; QUALITY OF LIFE; TERMINALLY ILL;

EID: 36249012642     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216307081938     Document Type: Article

References (23)

1. Feld R. Endpoints in cancer clinical trials: is there a need for measuring quality of life? Support Care Cancer 1995; 3: 23-7.
2. Morris J, Perez D, McNoe B. The use of quality of life data in clinical practice. Qual Life Res 1998; 7: 85-91.
3. O'Boyle CA, Waldron D. Quality of life issues in palliative medicine. J Neurol 1997; 244(Suppl 4): S18-25.
4. Breetvelt IS, Van Dam FS. Underreporting by cancer patients: the case of response-shift. Soc Sci Med 1991; 32(9): 981-7.
5. Browne JP, O'Boyle CA, McGee HM, et al. Individual quality of life in the healthy elderly. Qual Life Res 1994; 3(4): 235-44.
6. Andrykowski MA, Brady MJ, Hunt JW. Positive psychological adjustment in potential bone marrow transplant recipients: cancer as a psychosocial transition. Psycho-Oncology 1993; 2: 261-76.
7. Sprangers MA, Aaronson NK. Quality of life in the evaluation of cancer therapy. Ned Tijdschr Geneeskd 1996; 140(12): 646-9.
8. Sprangers MA. Response-shift bias: a challenge to the assessment of patients' quality of life in cancer clinical trials. Cancer Treat Rev 1996; 22(Suppl A): 55-62.
9. Sprangers MA, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med 1999; 48(11): 1507-15.
10. Wilson IB. Clinical understanding and clinical implications of response shift. Soc Sci Med 1999; 48(11): 1577-88.
11. Schwartz CE, Sprangers MA. Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med 1999; 48(11): 1531-48.
12. Sprangers MA, Van Dam FS, Broersen J, et al. Revealing response shift in longitudinal research on fatigue-the use of the thentest approach. Acta Oncol 1999; 38(6): 709-18.
13. O'Boyle CA, Hickey A, Joyce CRB, Browne JP, O'Malley K, Hiltbrunner B. The schedule for the evaluation of individual quality of life (SEIQOL): Administration Manual. Department of Psychology, Royal College of Surgeons in Ireland, 1993.
14. Echteld MA, Deliens L, Ooms ME, Ribbe MW, van der WG. Quality of life change and response shift in patients admitted to palliative care units: a pilot study. Palliat Med 2005; 19(5): 381-8.
15. Sharpe L, Butow P, Smith C, McConnell D, Clarke S. Changes in quality of life in patients with advanced cancer: evidence of response shift and response restriction. J Psychosom Res 2005; 58(6): 497-504.
16. Westerman M, Hak T, The AM, Groen H, van der Wal G. Problems Eliciting Cues in SEIQoL-DW: Quality of Life Areas in Small-Cell Lung Cancer Patients. Qual Life Res 2006; 15(3): 441-9.
17. Browne JP, O'Boyle CA, McGee HM, McDonald NJ, Joyce CR. Development of a direct weighting procedure for quality of life domains. Qual Life Res 1997; 6(4): 301-9.
18. Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W. A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ 1996; 313(7048): 29-33.
19. Waldron D, O'Boyle CA, Kearney M, Moriarty M, Carney D. Quality-of-life measurement in advanced cancer: assessing the individual. J Clin Oncol 1999; 17(11): 3603-11.
20. Calman KC. Quality of life in cancer patients-an hypothesis. J Med Ethics 1984; 10(3): 124-7.
21. The AM, Hak T, Koeter G, van der Wal G. Collusion in doctor-patient communication about imminent death: an ethnographic study. BMJ 2000; 321(7273): 1376-81.
22. Moons P, Marquet K, Budts W, De Geest S. Validity, reliability and responsiveness of the "Schedule for the Evaluation of individual Quality of Life-Direct Weighting" (SEIQoL-DW) in congenital heart disease. Health Qual Life Outcomes 2004; 2(27).
23. Mountain LA, Campbell SE, Seymour DG, Primrose WR, Whyte MI. Assessment of individual quality of life using the SEIQoL-DW in older medical patients. QJM 2004; 97(8): 519-24.