Siblings of adults with developmental disabilities: Psychosocial outcomes, relationships, and future planning

Journal of Policy and Practice in Intellectual Disabilities

Volumn 7, Issue 1, 2010, Pages 16-25

  Heller, Tamar ^a   Arnold, Catherine Keiling ^a  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

Future planning; Intellectual disabilities; Psychosocial outcomes; Sibling relationships; Siblings

Indexed keywords

EID: 77956129674     PISSN: 17411122     EISSN: 17411130     Source Type: Journal    
DOI: 10.1111/j.1741-1130.2010.00243.x     Document Type: Article

References (38)

1. Bigby C. Transferring responsibility: The nature of effectiveness of parental planning for the future of adults with intellectual disability who remain at home until mid-life. Journal of Intellectual & Developmental Disability 1996, 21:295-312.
2. Bigby C. Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work 1997, 29:3-21.
3. Braddock D, Emerson E, Felce D, Stancliffe R. Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia. Mental Retardation and Developmental Disabilities Research Reviews 2001, 7:115-121.
4. Braddock D, Hemp R, Rizzolo M C. The state of the states in developmental disabilities 2008 2008, Washington, DC, American Association on Intellectual and Developmental Disabilities
5. Burton S L, Parks A L. Self-esteem, locus of control, and career aspirations of college-age siblings of individuals with disabilities. Social Work Research 1994, 18:178-185.
6. Carr J. Families of 30-35-year olds with Down's syndrome. Journal of Applied Research in Intellectual Disabilities 2005, 18:75-84.
7. Cicirelli V G. Sibling relationships across the life span 1995, New York, Plenum Press
8. Flaton R A. "Who would I be without Danny?" Phenomenological case study of an adult sibling. Mental Retardation 2006, 44:135-144.
9. Freedman R, Krauss M, Seltzer M. Aging parents' residential plans for adults with mental retardation. Mental Retardation 1997, 35:114-123.
10. Fujiura G T. Demography of family households. American Journal on Mental Retardation 1998, 103:225-235.
11. Goetting A. The developmental tasks of siblingship over the life cycle. Journal of Marriage and the Family 1986, 48:703-714.
12. Greenberg J S, Seltzer M M, Orsmond G I, Krauss M W. Siblings of adults with mental illness or mental retardation: Current involvement and expectation of future caregiving. Psychiatric Services 1999, 5:1214-1219.
13. Griffiths D L, Unger D G. Views about planning for the future among parents and siblings of adults with mental retardation. Family Relations 1994, 43:221-227.
14. Heller T, Factor A. Aging family caregivers: Support resources and changes in burden and placement desire. American Journal on Mental Retardation 1993, 98:417-426.
15. Heller T, Kramer J. Involvement of adult siblings of people with developmental disabilities in future planning. Intellectual and Developmental Disabilities 2009, 47:208-219.
16. Hodapp R M, Urbano R C. Adult siblings of individuals with Down syndrome versus with autism: Findings from a large-scale US survey. Journal of Intellectual Disability Research 2007, 51:1018-1029.
17. Krauss M W, Seltzer M M, Gordon R, Friedman D H. Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation 1996, 34:83-93.
18. Lainhart J E. Psychiatric problems in individuals with autism, their parents and siblings. International Review of Psychiatry 1999, 11:278-298.
19. Marks S U, Matson A, Barraza L. The impact of siblings with disabilities on their brothers and sisters pursuing a career in special education. Research & Practice for Persons with Severe Disabilities 2005, 3:204-218.
20. McGraw L A, Walker A J. Meanings of sisterhood and developmental disability: Narratives from white nondisabled sisters. Journal of Family Issues 2007, 28:474-500.
21. Orsmond G, Lin L, Seltzer M. Mothers of adolescents and adults with autism: The contribution of disability in siblings to maternal well-being and family adjustment. Intellectual and Developmental Disabilities 2007, 45:257-270.
22. Orsmond G, Seltzer M. Brothers and sisters with mental retardation: Gendered nature of the sibling relationship. American Journal of Mental Retardation 2000, 105:486-508.
23. Orsmond G, Seltzer M. Siblings of individuals with autism or Down syndrome: Effects on adult lives. Journal of Intellectual Disability Research 2007, 51:682-696.
24. Piven J, Gayle J, Chase G, Fink B, Landa R, Wzorek M, Folstein S. A family history study of neuropsychiatric disorders in the adult siblings of autistic individuals. Journal of the American Academy of Child and Adolescent Psychiatry 1990, 29:177-183.
25. Powell T H, Ogle P A. Brothers and sisters-A special part of exceptional families 1993, Baltimore, MD, Paul H. Brookes Publishing
26. Pruchno R A, Patrick J H, Burant C J. Aging women and their children with chronic disabilities: Perceptions of sibling involvement and effects on well-being. Family Relations 1996, 45:318-326.
27. Rimmerman A. Involvement with and role perception toward an adult sibling with and without mental retardation. Journal of Rehabilitation 2001, 6:10-15.
28. Rodger S, Tooth L. Adult siblings' perceptions of family life and loss: A pilot case study. Journal of Developmental and Physical Disabilities 2004, 16:53-71.
29. Rossiter L, Sharpe D. The siblings of individuals with mental retardation: A quantitative integration of the literature. Journal of Child and Family Studies 2001, 10:65-84.
30. Seltzer G B, Begun A, Seltzer M M, Krauss M W. Adults with mental retardation and their aging mothers: Impacts of siblings. Family Relations 1991, 40:310-317.
31. Seltzer M M, Greenberg J S, Krauss M W, Gordon R M, Judge K. Siblings of adults with mental retardation or mental illness: Effects on lifestyle and psychological well-being. Family Relations 1997, 46:395-405.
32. Seltzer M M, Greenberg J S, Orsmond G I, Lounds J. Life course studies of siblings of individuals with developmental disabilities. Mental Retardation 2005, 43:354-359.
33. Seltzer M M, Krauss M W, Hong J, Orsmond G I. Continuity or discontinuity of family involvement following residential transitions of adults who have mental retardation. Mental Retardation 2001, 39:181-194.
34. Stoneman Z. Siblings of children with disabilities: Research themes. Mental Retardation 2005, 43:339-350.
35. White L. Sibling relationships over the life course: A panel analysis. Journal of Marriage and Family 2001, 63:555-568.
36. Wilson C J, McGillivray J A, Zetlin A G. The relationship between attitude to disabled siblings and ratings of behavioral competency. Journal of Intellectual Disability Research 1992, 36:325-336.
37. Yirmiya N, Shaked M, Erel O. Comparison of siblings of individuals with autism and siblings of individuals with other diagnoses: An empirical summary. The research basis for autism intervention 2001, 59-73. Schopler E, Yirmiya N, Shulman CMarcus L M. Eds, pp., New York, Kluwer Academic/Plenum Publishers
38. Zetlin A G. Mentally retarded adults and their siblings. American Journal of Mental Deficiency 1986, 91:217-225.