Adult siblings of individuals with Down syndrome versus with autism: Findings from a large-scale US survey

Journal of Intellectual Disability Research

Volumn 51, Issue 12, 2007, Pages 1018-1029

  Hodapp, R M ^a   Urbano, Richard C ^a,b  

^a VANDERBILT UNIVERSITY MEDICAL CENTER   (United States)

^b NONE   (United States)

Author keywords

Adult sibling questionnaire; Adult siblings; Autism; Down syndrome; Joint activities; Other disabilities; Sibling relationship

Indexed keywords

ADULT; AGED; ARTICLE; AUTISM; BEHAVIOR DISORDER; CAREGIVER; CONTROLLED STUDY; DEPRESSION; DOWN SYNDROME; EMOTIONAL DISORDER; FEMALE; FRIENDSHIP; HEALTH STATUS; HEALTH SURVEY; HUMAN; MALE; QUESTIONNAIRE; REWARD; SIBLING RELATION; UNITED STATES;

ADOLESCENT; ADULT; AGED; AUTISTIC DISORDER; DOWN SYNDROME; FAMILY HEALTH; FEMALE; HUMANS; MALE; MIDDLE AGED; QUESTIONNAIRES; SIBLING RELATIONS; SIBLINGS; UNITED STATES;

EID: 35949004413     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2007.00994.x     Document Type: Article

References (34)

1. Bengston V. L. & Black K. D. (1973) Intergenerational relations and continuities in socialization. In Life-Span Development Psychology: Personality and Socialization (eds P. Baltes & W. Schaie), pp. 207-34. Academic Press, New York.
2. Bittles A. H. & Glasson E. J. (2004) Clinical, social, and ethical implications of changing life expectancy in Down syndrome. Developmental Medicine and Child Neurology 46, 282-6.
3. Cahill B. M. & Glidden L. M. (1996) Influence of child diagnosis on family and parent functioning: Down syndrome versus other disabilities. American Journal on Mental Retardation 101, 149-60.
4. Carr J. (2005) Families of 30-35-year olds with Down's syndrome. Journal of Applied Research in Intellectual Disabilities 18, 75-84.
5. Cohen J. (1988) Statistical Power and Analysis for the Behavioral Sciences, 2nd edn. Lawrence Erlbaum Associates, Hillsdale, NJ.
6. Cuskelly M. & Gunn P. (2003) Sibling relationships of children with Down syndrome: Perspectives of mothers, fathers, and siblings. American Journal on Mental Retardation 108, 234-44.
7. Dykens E. M. & Kasari C. (1997) Maladaptive behavior in children with Prader-Willi syndrome, Down syndrome, and nonspecific mental retardation. American Journal on Mental Retardation 102, 228-37.
8. Eisenhower A. S., Baker B. L. & Blacher J. (2005) Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research 49, 657-71.
9. Fidler D. J., Hodapp R. M. & Dykens E. M. (2000) Stress in families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. Early Education and Development 11, 395-406.
10. Glasson E. J., Sullivan S. G., Hussain R., Peterson B. A., Montgomery P. D. & Bittles A. H. (2002) The changing survival profile of people with Down's syndrome: Implications for genetic counseling. Clinical Genetics 62, 393.
11. Golden Hills Software, Inc. (2006) SurveyGold. Available at: http://surveygold.com (retrieved on 22 August 2006).
12. Greenberg J. S., Seltzer M. M., Krauss M. W., Chou R. J.-A. & Hong J. (2004) The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry 74, 14-25.
13. Hastings R. P. (2003) Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders 33, 99-104.
14. Hodapp R. M. (1999) Indirect effects of genetic mental retardation disorders: Theoretical and methodological issues. International Review of Research in Mental Retardation 22, 27-50.
15. Hodapp R. M., Ly T. M., Fidler D. J. & Ricci L. A. (2001) Less stress, more rewarding: Parenting children with Down syndrome. Parenting: Science and Practice 1, 317-37.
16. Hodapp R. M., Ricci L. A., Ly T. M. & Fidler D. J. (2003) The effects of the child with Down syndrome on maternal stress. British Journal of Developmental Psychology 21, 137-51.
17. Hodapp R. M., Glidden L. M. & Kaiser A. P. (2005) Siblings of persons with disabilities: Toward a research agenda. Mental Retardation 43, 334-8.
18. Hornby G. (1995) Fathers' views of the effects on their families of children with Down syndrome. Journal of Child and Family Studies 4, 103-17.
19. Kapell D., Nightingale B., Rodriguez A., Lee J. H., Zigman W. B. & Schupf N. (1998) Prevalence of chronic medical conditions in adults with mental retardation: Comparison with the general population. Mental Retardation 36, 269-79.
20. Kasari C. & Freeman S. F. N. (2001) Task-related social behavior in children with Down syndrome. American Journal on Mental Retardation 106, 253-64.
21. Kasari C., Freeman S. F. N., Mundy P. & Sigman M. (1995) Attention regulation by children with Down syndrome: Coordinated joint attention and social referencing. American Journal on Mental Retardation 100, 128-36.
22. National Center for Family Support (2000) Aging family caregivers: Needs and policy concerns. Family support policy brief #3. Available online at: http://www.familysupport-hsri.org/resources/policy_3.pdf
23. Orsmond G. I. & Seltzer M. M. (2006) March). Siblings of individuals with autism or Down syndrome: Effects on adult lives. Presentation to the 39th Annual Meetings of the Gatlinburg Conference on Theory and Research in Intellectual and Developmental Disabilities, San Diego, CA.
24. Penrose L. S. (1949) The incidence of Mongolism in the general population. Journal of Mental Science 95, 685-8.
25. Pruchno R. A. & Hayden J. M. (2000) Interview modality: Effects of costs and data quality in a sample of older women. Journal of Aging and Health 12, 3-24.
26. Radloff L. S. (1977) The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measures 1, 385-401.
27. Seltzer M. M. & Ryff C. (1994) Parenting across the lifespan: The normative and nonnormative cases. Life-Span Development and Behavior 12, 1-40.
28. Seltzer M. M., Greenberg J. S., Krauss M. W., Gordon R. M. & Judge K. (1997) Siblings of adults with mental retardation or mental illness: effects on lifestyle and psychological well-being. Family Relations 46, 395-405.
29. Stoneman Z. (2005) Siblings of children with disabilities: Research themes. Mental Retardation 43, 339-50.
30. Taunt H. M. & Hastings R. P. (2002) Positive impact of children with developmental disabilities on their families: A preliminary study. Education and Training in Mental Retardation and Developmental Disabilities 37, 410-20.
31. Thomas V. & Olsen D. H. (1993) Problem families and the circumplex model: Observational assessment using the clinical rating scale (CRS). Journal of Marital and Family Therapy 19, 159-75.
32. Urbano R. C. & Hodapp R. M. (2007) Divorce in families of children with Down syndrome: A population-based study. American Journal on Mental Retardation 112, 261-74.
33. Yang Q., Rasmussen S. A. & Friedman J. M. (2002) Mortality associated with Down's syndrome in the USA from 1983 to 1997: A population-based study. Lancet 359, 1019-25.
34. Zigman W. B. & Lott I. T. (in press) Alzheimer's disease in Down Syndrome: Neurobiology and risk. Mental Retardation and Developmental Disabilities Research, in press.