Meanings of sisterhood and developmental disability: Narratives from white nondisabled sisters

Journal of Family Issues

Volumn 28, Issue 4, 2007, Pages 474-500

  McGraw, Lori A ^a   Walker, Alexis J ^a  

^a OREGON STATE UNIVERSITY   (United States)

Author keywords

Adult siblings ties; Care work; Disability theory; Feminist theory

Indexed keywords

EID: 33847765079     PISSN: 0192513X     EISSN: 15525481     Source Type: Journal    
DOI: 10.1177/0192513X06297312     Document Type: Article

References (59)

1. Acker, J., Barry, K., & Esseveld, J. (1983). Objectivity and truth: Problems in doing feminist research. Women's Studies International Forum, 6, 423-435.
2. Andersen, M. L., & Collins, P. H. (Eds.). (1995). Race, class, and gender: An anthology (2nd ed.). San Francisco: Wadsworth.
3. Auletta, R., & DeRosa, A. P. (1991). Self-concepts of adolescent siblings of children with mental retardation. Perceptual and Motor Skills, 73, 211-214.
4. Bigby, C. (1997). Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work, 29, 3-21.
5. Blumer, H. (1969). Symbolic interactionism: Perspective and method. Berkeley: University of California Press.
6. Bogdan, R., & Taylor, S. J. (1994). The social meaning of mental retardation: Two life stories. New York: Teachers College Press.
7. Bruner, J. (1986). Actual minds: Possible worlds. Cambridge, MA: Harvard University Press.
8. Charmaz, K. (2000). Grounded theory: Objectivist and constructivist methods. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative methods (2nd ed., pp. 509-536). Thousand Oaks, CA: Sage.
9. Cicirelli, V. G. (1994). Sibling relationships in cross-cultural perspective. Journal of Marriage and Family, 56, 7-20.
10. Epstein, C. F. (1999). Similarity and difference: The sociology of gender distinctions. In J. S. Chafetz (Ed.), Handbook of the sociology of gender (pp. 45-64). New York: Kluwer Academic/Plenum.
11. Ericksen, S., & Gerstel, N. (2002). A labor of love or labor itself: Care work among adult brothers and sisters. Journal of Family Issues, 23, 836-856.
12. Ferree, M. M. (1991). Feminism and family research. In A. Booth (Ed.), Contemporary families: Looking forward, looking back (pp. 103-121). Minneapolis, MN: National Council on Family Relations.
13. Fleischer, D. Z., & Zames, F. (2001). The disability rights movement: From charity to confrontation. Philadelphia: Temple University Press.
14. Fonow, M. M., & Cook, J. A. (1991). Back to the future: A look at the second wave of feminist epistemology and methodology. In M. Fonow & J. Cook (Eds.), Beyond methodology (pp. 1-15). Indianapolis: Indiana University Press.
15. Foucault, M. (1990). The use of pleasure: The history of sexuality. New York: Vintage.
16. Freedman, E. (2002). No turning back: The history of feminism and the future of women. New York: Ballantine.
17. Gavey, N. (1989). Feminist poststructuralism and discourse analysis: Contributions to a feminist psychology. Psychology of Women Quarterly, 13, 459-475.
18. Gergen, K. J. (1999). An invitation to social construction. Thousand Oaks, CA: Sage.
19. Giddens, A. (1984). The constitution of society. Berkeley: University of California Press.
20. Goffman, E. (1963). Stigma: Notes on the management of a spoiled identity. Englewood Cliffs, NJ: Prentice Hall.
21. Greenberg, J. A., Seltzer, M. M., Orsmond, G. I., & Krauss, M. W. (1999). Siblings of adults with mental illness or mental retardation: Current involvement and expectation of future caregiving. Psychiatric Services, 50, 1214-1219.
22. Grissom, M. O., & Borkowski, J. G. (2002). Self-efficacy in adolescents who have siblings with or without disabilities. American Journal of Mental Retardation, 107, 79-90.
23. Gubrium, J. F., & Holstein, J. A. (1993). Phenomenology, ethnomethodology, and family discourse. In P. G. Boss, W. J. Doherty, R. LaRossa, W. R. Schumm, & S. K. Steinmetz (Eds.), Sourcebook of family theories and methods: A contextual approach (pp. 651-672). New York: Plenum.
24. Gubrium, J. F., & Holstein, J. A. (2000). Analyzing interpretive practice. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 487-508). Thousand Oaks, CA: Sage.
25. Hays, S. (1996). The cultural contradictions of motherhood. New Haven, CT: Yale University Press.
26. Heller, T., Hsieh, K., & Rowitz, L. (1997). Maternal and paternal caregiving of persons with mental retardation across the lifespan. Family Relations, 46, 407-415.
27. Hillyer, B. (1993). Feminism and disability. Norman: University of Oklahoma Press.
28. Hondagneu-Sotelo, P. (2001). Domestica: Immigrant workers cleaning and caring in the shadows of affluence. Berkeley: University of California Press.
29. hooks, b. (1984). Feminist theory: From margin to center. Boston: South End.
30. Hooyman, N. R., & Gonyea, J. (1995). Feminist perspectives on family care: Policies for gender justice. Thousand Oaks, CA: Sage.
31. Huberman, A. M., & Miles, M. B. (1994). Data management and analysis methods. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 428-444). Thousand Oaks, CA: Sage.
32. Krauss, M. W., Seltzer, M. M., Gordon, R., & Friedman, D. H. (1996). Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34, 83-93.
33. La Rossa, R., & Reitzes, D. C. (1993). Symbolic interactionism and family studies. In P. G. Boss, W. J. Doherty, R. LaRossa, W. R. Schumm, & S. Steinmetz (Eds.), Sourcebook of family theories and methods: A contextual approach (pp. 135-162). New York: Plenum.
34. Lather, P. (1991). Getting smart: Feminist research and pedagogy with/in the postmodern. New York: Routledge.
35. Lloyd, M. (2001). The politics of disability and feminism: Discord or synthesis ? Sociology, 35, 715-728.
36. McGraw, L. A., Zvonkovic, A. M., & Walker, A. J. (2000). Studying postmodern families: A feminist analysis of ethical tensions in work and family research. Journal of Marriage and Family, 62, 68-77.
37. Meyer, M. H. (Ed.). (2000). Care work: Gender, labor, and the welfare state. New York: Routledge.
38. Orsmond, G. I., & Seltzer, M. M. (2000). Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship. American Journal on Mental Retardation, 105, 486-507.
39. Osmond, M. W., & Thorne, B. (1993). Feminist theories: The social construction of gender in families and society. In P. G. Boss, W. J. Doherty, R. LaRossa, W. R. Schumm, & S. Steinmetz (Eds.), Sourcebook of family theories and methods: A contextual approach (pp. 591-622). New York: Plenum.
40. Pruchno, R. A., Patrick, J. H., & Burant, C. J. (1996). Aging women and their children with chronic disabilities: Perceptions of sibling involvement and effects on well-being. Family Relations, 45, 318-326.
41. Ribbens, J. (1989). Interviewing - An "unnatural situation" ? Women's Studies International Forum, 12, 579-592.
42. Rubin, H. J., & Rubin, I. S. (1995). Qualitative interviewing: The art of hearing data. Thousand Oaks, CA: Sage.
43. Seltzer, M. M., Greenberg, J. S., Krauss, M. W., Gordon, R. M., & Judge, K. (1997). Siblings of adults with mental retardation or mental illness: Effects on lifestyle and psychological well-being. Family Relations, 46, 395-405.
44. Sewell, W. H. (1992). A theory of structure: Duality, agency, and transformation. American Journal of Sociology, 98, 1-29.
45. Smith, C. (2003). Moral, believing animals. New York: Oxford University Press.
46. Spillman, L. (2002). Introduction: Culture and cultural sociology. In L. Spillman (Ed.), Cultural sociology (pp. 1-15). Malden, MA: Blackwell.
47. Stalker, K., & Connors, C. (2004). Children's perceptions of their disabled siblings: "She's different but it's normal for us." Children and Society, 18, 218-230.
48. Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
49. Stroman, D. F. (2003). The disability rights movement. New York: University Press of America.
50. Taylor, S. J. (2000). "You're not a retard, you're just wise": Disability, social identity, and family networks. Journal of Contemporary Ethnography, 29, 58-92.
51. Thorne, B. (1992). Feminism and the family: Two decades of thought. In B. Thorne & M. Yalom (Eds.), Rethinking the family: Some feminist questions (pp. 591-622). Boston: Northeastern University Press.
52. Traustadottir, R. (1991). Mothers who care: Gender, disability, and family life. Journal of Family Issues, 53, 211-228.
53. Traustadottir, R. (2000). Disability reform and women's caring work. In M. H. Meyer (Ed.), Care work: Gender, labor and the welfare state (pp. 249-269). New York: Routledge.
54. Tronto, J. C. (1993). Moral boundaries: A political argument for an ethic of care. New York: Routledge.
55. Weedon, C. (1997). Feminist practice and poststructuralist theory (2nd ed.). Malden, MA: Blackwell.
56. Wendell, S. (1996). The rejected body: Feminist philosophical reflections on disability. New York: Routledge.
57. West, J. (1993). The evolution of disability rights. In L. O. Gostin & H. A. Beyer (Eds.), Implementing the Americans With Disabilities Act: Rights and responsibilities of all Americans (pp. 3-16). Baltimore: Brookes.
58. White, M., & Epston, D. (1990). Narrative means to therapeutic ends. New York: Norton.
59. Willoughby, J. C., & Glidden, L. M. (1995). Fathers helping out: Shared child care and marital satisfaction of parents of children with disabilities. American Journal on Mental Retardation, 99, 399-406.