-
1
-
-
34548082017
-
Biobanking for epidemiological research and public health
-
Brand, A.M.; Probst-Hensch, N.M. Biobanking for epidemiological research and public health. Pathobiology 2007, 74(4), 227-238.
-
(2007)
Pathobiology
, vol.74
, Issue.4
, pp. 227-238
-
-
Brand, A.M.1
Probst-Hensch, N.M.2
-
2
-
-
0037038224
-
Genomic medicine-A primer
-
Guttmacher, A.E.; Collins, F.S. Genomic medicine-a primer. N Engl J Med 2002, 347(19), 1512-1520.
-
(2002)
N Engl J Med
, vol.347
, Issue.19
, pp. 1512-1520
-
-
Guttmacher, A.E.1
Collins, F.S.2
-
3
-
-
17944379465
-
The stored tissue issue
-
Ethics and Law in the Era of Genomic Medicine. Oxford, UK: Oxford University Press
-
Weir, R.F., Olick, R.S. The Stored Tissue Issue. Biomedical Research, Ethics and Law in the Era of Genomic Medicine. Oxford, UK: Oxford University Press, 2004.
-
(2004)
Biomedical Research
-
-
Weir, R.F.1
Olick, R.S.2
-
4
-
-
7644232196
-
The social and ethical issues of postgenomic human biobanks
-
Cambon-Thomsen, A. The social and ethical issues of postgenomic human biobanks. Nat Rev Genet 2004, 5(11), 866-873.
-
(2004)
Nat Rev Genet
, vol.5
, Issue.11
, pp. 866-873
-
-
Cambon-Thomsen, A.1
-
5
-
-
44949258868
-
Obstacles to European research projects with data and tissue: Solutions and further challenges
-
van Veen, E. B. Obstacles to European research projects with data and tissue: solutions and further challenges. Eur J Cancer 2008, 44(10), 1438-1450.
-
(2008)
Eur J Cancer
, vol.44
, Issue.10
, pp. 1438-1450
-
-
Van Veen, E.B.1
-
6
-
-
60149102137
-
Broadening consent-and diluting ethics?
-
Hofmann, B. Broadening consent-and diluting ethics? J Med Ethics 2009, 35(2), 125-129.
-
(2009)
J Med Ethics
, vol.35
, Issue.2
, pp. 125-129
-
-
Hofmann, B.1
-
7
-
-
33845354052
-
Trends in ethical and legal frameworks for the use of human biobanks
-
Cambon-Thomsen, A.; Rial-Sebbag, E.; Knoppers, B.M. Trends in ethical and legal frameworks for the use of human biobanks. Eur Respir J 2007, 30(2), 373-382.
-
(2007)
Eur Respir J
, vol.30
, Issue.2
, pp. 373-382
-
-
Cambon-Thomsen, A.1
Rial-Sebbag, E.2
Knoppers, B.M.3
-
8
-
-
0034639218
-
Human tissue research in the genomic era of medicine: Balancing individual and societal interests
-
Ashburn, T.T.;Wilson, S.K.; Eisenstein, B.I. Human tissue research in the genomic era of medicine: balancing individual and societal interests. Arch Intern Med 2000, 160(22), 3377-3384.
-
(2000)
Arch Intern Med
, vol.160
, Issue.22
, pp. 3377-3384
-
-
Ashburn, T.T.1
Wilson, S.K.2
Eisenstein, B.I.3
-
9
-
-
34249786238
-
Solidarity and justice as guiding principles in genomic research
-
Hoedemaekers, R.; Gordijn, B.; Pijnenburg, M. Solidarity and justice as guiding principles in genomic research. Bioethics 2007, 21(6), 342-350.
-
(2007)
Bioethics
, vol.21
, Issue.6
, pp. 342-350
-
-
Hoedemaekers, R.1
Gordijn, B.2
Pijnenburg, M.3
-
10
-
-
10644282182
-
Human genetic research: Emerging trends in ethics
-
Knoppers, B.M.; Chadwick, R. Human genetic research: emerging trends in ethics. Nat Rev Genet 2005, 6(1), 75-79.
-
(2005)
Nat Rev Genet
, vol.6
, Issue.1
, pp. 75-79
-
-
Knoppers, B.M.1
Chadwick, R.2
-
11
-
-
71949131197
-
Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose
-
Petrini, C. "Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose. Soc Sci Med 2010, 70(2), 217-220.
-
(2010)
Soc Sci Med
, vol.70
, Issue.2
, pp. 217-220
-
-
Petrini, C.1
-
12
-
-
33644930832
-
One-time general consent for research on biological samples
-
Wendler, D. One-time general consent for research on biological samples. BMJ 2006, 332 (7540), 544-547.
-
(2006)
BMJ
, vol.332
, Issue.7540
, pp. 544-547
-
-
Wendler, D.1
-
13
-
-
33344475590
-
Should donors be allowed to give broad consent to future biobank research?
-
Hansson, M.G.; Dillner, J.; Bartram, C.R.; Carlson, J.A.; Helgesson, G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol 2006, 7(3), 266-269.
-
(2006)
Lancet Oncol
, vol.7
, Issue.3
, pp. 266-269
-
-
Hansson, M.G.1
Dillner, J.2
Bartram, C.R.3
Carlson, J.A.4
Helgesson, G.5
-
14
-
-
3543141747
-
Informed consent and biobanks: A population-based study of attitudes towards tissue donation for genetic research
-
Hoeyer, K.; Olofsson, B.O.; Mjorndal, T.; Lynoe, N. Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research. Scand J Public Health 2004, 32(3), 224-229.
-
(2004)
Scand J Public Health
, vol.32
, Issue.3
, pp. 224-229
-
-
Hoeyer, K.1
Olofsson, B.O.2
Mjorndal, T.3
Lynoe, N.4
-
15
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks What do potential sample donors in the Swedish general public think?
-
Kettis-Lindblad, A.; Ring, L.; Viberth, E.; Hansson, M.G. Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur J Public Health 2006, 16(4), 433-440.
-
(2006)
Eur J Public Health
, vol.16
, Issue.4
, pp. 433-440
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
16
-
-
34147147584
-
Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: A population-based study
-
Kettis-Lindblad, A.; Ring, L.; Viberth, E.; Hansson, M.G. Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: a population-based study. Scand J Public Health 2007, 35(2), 148-156.
-
(2007)
Scand J Public Health
, vol.35
, Issue.2
, pp. 148-156
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
17
-
-
50549083476
-
Rhode Islanders' attitudes towards the development of a statewide genetic biobank
-
Goldman, R.E.; Kingdon, C.; Wasser, J.; Clark, M.A.; Goldberg, R.; Papandonatos, G.D.; Hawrot E.; Koren, G. Rhode Islanders' attitudes towards the development of a statewide genetic biobank. Per Med 2008, 5(4), 339-359.
-
(2008)
Per Med
, vol.5
, Issue.4
, pp. 339-359
-
-
Goldman, R.E.1
Kingdon, C.2
Wasser, J.3
Clark, M.A.4
Goldberg, R.5
Papandonatos, G.D.6
Hawrot, E.7
Koren, G.8
-
18
-
-
0034894941
-
Public attitudes regarding the donation and storage of blood specimens for genetic research
-
Wang, S.; Fridinger, F.; Sheedy, K.; Khoury, M. Public attitudes regarding the donation and storage of blood specimens for genetic research. Community Genet 2001, 4, 18-26.
-
(2001)
Community Genet
, vol.4
, pp. 18-26
-
-
Wang, S.1
Fridinger, F.2
Sheedy, K.3
Khoury, M.4
-
19
-
-
0041805504
-
Consent for genetic research in a general population: The NHANES experience
-
McQuillan, G.; Porter, K.; Agelli, M.; Kington, R. Consent for genetic research in a general population: the NHANES experience. Genet Med 2003, 5, 35-42.
-
(2003)
Genet Med
, vol.5
, pp. 35-42
-
-
McQuillan, G.1
Porter, K.2
Agelli, M.3
Kington, R.4
-
20
-
-
41549141445
-
Participant characteristics that influence consent for genetic research in a population-based survey: The Baltimore epidemiologic catchment area follow-up
-
Mezuk, B.; Eaton, W.W.; Zandi, P. Participant characteristics that influence consent for genetic research in a population-based survey: the Baltimore epidemiologic catchment area follow-up. Community Genet 2008, 11(3), 171-178.
-
(2008)
Community Genet
, vol.11
, Issue.3
, pp. 171-178
-
-
Mezuk, B.1
Eaton, W.W.2
Zandi, P.3
-
21
-
-
39549094008
-
Attitudes and and perceptions of patients towards methods of establishing a DNA biobank
-
Pulley, J.M.; Brace, M.M.; Bernard, G.R.; Masys, D.R. Attitudes and perceptions of patients towards methods of establishing a DNA biobank. Cell Tissue Bank 2008, 9(1), 55-65.
-
(2008)
Cell Tissue Bank
, vol.9
, Issue.1
, pp. 55-65
-
-
Pulley, J.M.1
Brace, M.M.2
Bernard, G.R.3
Masys, D.R.4
-
22
-
-
56049124576
-
Patients' views on identifiability of samples and informed consent for genetic research
-
Hull, S.C.; Sharp, R.; Botkin, J.; Brown, M.; Hughes, M.; Sugarman, J.; Schwinn, D.; Sankar, P.; Bolcic-Jankovic, D.; Clarridge, B. Patients' views on identifiability of samples and informed consent for genetic research. Am J Bioeth 2008, 8(10), 62-70.
-
(2008)
Am J Bioeth
, vol.8
, Issue.10
, pp. 62-70
-
-
Hull, S.C.1
Sharp, R.2
Botkin, J.3
Brown, M.4
Hughes, M.5
Sugarman, J.6
Schwinn, D.7
Sankar, P.8
Bolcic-Jankovic, D.9
Clarridge, B.10
-
23
-
-
58849142053
-
Public attitudes to the storage of blood left over from routine general practice tests and its use in research
-
Treweek, S.; Doney, A.; Leiman, D. Public attitudes to the storage of blood left over from routine general practice tests and its use in research J Health Serv Res Policy 2009, 14(1), 13-19.
-
(2009)
J Health Serv Res Policy
, vol.14
, Issue.1
, pp. 13-19
-
-
Treweek, S.1
Doney, A.2
Leiman, D.3
-
24
-
-
77956344235
-
Donors perceptions of consent to and feedback from biobank research: Time to acknowledge diversity?
-
Hoeyer, K. Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity? Public Health Genomics 2009, 1-8.
-
(2009)
Public Health Genomics
, pp. 1-8
-
-
Hoeyer, K.1
-
25
-
-
53349103663
-
Cancer patients' attitudes toward future research uses of stored human biological materials
-
Helft, P.R.; Champion, V.L.; Eckles, R.; Johnson, C.S.;Meslin, E.M. Cancer patients' attitudes toward future research uses of stored human biological materials. J Empir Res Hum Res Ethics 2007, 2(3), 15-22.
-
(2007)
J Empir Res Hum Res Ethics
, vol.2
, Issue.3
, pp. 15-22
-
-
Helft, P.R.1
Champion, V.L.2
Eckles, R.3
Johnson, C.S.4
Meslin, E.M.5
-
26
-
-
64049115093
-
Obtaining "Fresh" consent for genetic research with biological samples archived 10 years ago
-
Vermeulen, E.; Schmidt, M.K.; Aaronson, N.K.; Kuenen, M.; van Leeuwen, F.E. Obtaining "fresh" consent for genetic research with biological samples archived 10 years ago. Eur J Cancer 2009, 45(7), 1168-1174.
-
(2009)
Eur J Cancer
, vol.45
, Issue.7
, pp. 1168-1174
-
-
Vermeulen, E.1
Schmidt, M.K.2
Aaronson, N.K.3
Kuenen, M.4
Van Leeuwen, F.E.5
-
27
-
-
35348996444
-
Consent for long-term storage of blood samples by Indigenous Australian research participants: The DRUID study experience
-
Cunningham, J.; Dunbar, T. Consent for long-term storage of blood samples by Indigenous Australian research participants: the DRUID study experience. Epidemiol Perspect Innov 2007, 4(1), 7.
-
(2007)
Epidemiol Perspect Innov
, vol.4
, Issue.1
, pp. 7
-
-
Cunningham, J.1
Dunbar, T.2
-
28
-
-
67449158978
-
The regulation of biobanks in Spain
-
Nys, H.; Fobelets, G. The regulation of biobanks in Spain. Law Hum Genome Rev 2008, 29, 169-188.
-
(2008)
Law Hum Genome Rev
, vol.29
, pp. 169-188
-
-
Nys, H.1
Fobelets, G.2
-
29
-
-
33745596413
-
Consent and anonymization in research involving biobanks: Differing terms and norms present serious barriers to an international framework
-
Elger, B.S.; Caplan, A.L. Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework. EMBO Rep 2006, 7(7), 661-666.
-
(2006)
EMBO Rep
, vol.7
, Issue.7
, pp. 661-666
-
-
Elger, B.S.1
Caplan, A.L.2
-
30
-
-
0027587819
-
The intellectual basis of bioethics in Southern European countries
-
Gracia, D. The intellectual basis of bioethics in Southern European countries. Bioethics 1993, 7(2-3), 97-107.
-
(1993)
Bioethics
, vol.7
, Issue.2-3
, pp. 97-107
-
-
Gracia, D.1
-
31
-
-
69749089780
-
Researchers' preferences and attitudes on ethical aspects of genomics research: A comparative study between the US and Spain
-
Ruiz-Canela, M.; Valle-Mansilla, J.I.; Sulmasy, D.P. Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the US and Spain. J Med Ethics 2009, 35(4), 251-257.
-
(2009)
J Med Ethics
, vol.35
, Issue.4
, pp. 251-257
-
-
Ruiz-Canela, M.1
Valle-Mansilla, J.I.2
Sulmasy, D.P.3
-
32
-
-
21744446109
-
Informed consent, participation in, and withdrawal from a population-based cohort study involving genetic analysis
-
Matsui, K.; Kita, Y.; Ueshima, H. Informed consent, participation in, and withdrawal from a population-based cohort study involving genetic analysis. J Med Ethics 2005, 31(7), 385-392.
-
(2005)
J Med Ethics
, vol.31
, Issue.7
, pp. 385-392
-
-
Matsui, K.1
Kita, Y.2
Ueshima, H.3
-
33
-
-
34147222764
-
Attitudes toward clinical research among cancer trial participants and non-participants: An interview study using a grounded theory approach
-
Madsen, S.M.; Holm, S.; Riis, P. Attitudes toward clinical research among cancer trial participants and non-participants: an interview study using a grounded theory approach. JMed Ethics 2007,33(4), 234-240.
-
(2007)
JMed Ethics
, vol.33
, Issue.4
, pp. 234-240
-
-
Madsen, S.M.1
Holm, S.2
Riis, P.3
-
34
-
-
34548183801
-
Attitudes toward research participation and investigator conflicts of vinterest among advanced cancer patients participating in early phase clinical trials
-
Gray, S.W.; Hlubocky, F.J.; Ratain, M.J.; Daugherty, C.K. Attitudes toward research participation and investigator conflicts of vinterest among advanced cancer patients participating in early phase clinical trials J Clin Oncol. 2007, 25(23), 3488-3494.
-
(2007)
J Clin Oncol
, vol.25
, Issue.23
, pp. 3488-3494
-
-
Gray, S.W.1
Hlubocky, F.J.2
Ratain, M.J.3
Daugherty, C.K.4
-
35
-
-
53349107714
-
Informed consent for biorepositories: Assessing prospective participants' understanding and opinions
-
Beskow, L.M.; Dean, E. Informed consent for biorepositories: assessing prospective participants' understanding and opinions. Cancer Epidemiol Biomarkers Prev 2008, 17(6), 1440-1451.
-
(2008)
Cancer Epidemiol Biomarkers Prev
, vol.17
, Issue.6
, pp. 1440-1451
-
-
Beskow, L.M.1
Dean, E.2
-
36
-
-
0036780930
-
Selective exposure and dissonance after decisions
-
D'Alessio, D.; Allen, M. Selective exposure and dissonance after decisions. Psychol Rep 2002, 91(2), 527-532.
-
(2002)
Psychol Rep
, vol.91
, Issue.2
, pp. 527-532
-
-
D'Alessio, D.1
Allen, M.2
-
37
-
-
84992810091
-
Recall of participation in research projects in cancer genetics: Some implications for research ethics
-
Cooke, S.; Crawford, G.; Parker, M.; Lucassen, A.; Hallowell, N. Recall of participation in research projects in cancer genetics: some implications for research ethics. Clin Ethics 2008, 3(4), 180-184.
-
(2008)
Clin Ethics
, vol.3
, Issue.4
, pp. 180-184
-
-
Cooke, S.1
Crawford, G.2
Parker, M.3
Lucassen, A.4
Hallowell, N.5
-
38
-
-
0023319217
-
False hopes and best data: Consent to research and the therapeutic misconception
-
Appelbaum, P.S.; Roth, L.H.; Lidz, C.W.; Benson, P.; Winslade, W. False hopes and best data: consent to research and the therapeutic misconception. Hastings Cent Rep 1987, 17(2), 20-24.
-
(1987)
Hastings Cent Rep
, vol.17
, Issue.2
, pp. 20-24
-
-
Appelbaum, P.S.1
Roth, L.H.2
Lidz, C.W.3
Benson, P.4
Winslade, W.5
-
39
-
-
49549118429
-
Participation in clinical trials as viewed by the patient: Understanding cultural and emotional aspects which influence choice
-
Catania, C.; De Pas, T.; Goldhirsch, A.; Radice, D.; Adamoli, L.; Medici, M.; Verri, E.; Marenghi, C.; de Braud, F.; Nol̀ e, F. Participation in clinical trials as viewed by the patient: understanding cultural and emotional aspects which influence choice. Oncology 2008, 74(3-4), 177-187.
-
(2008)
Oncology
, vol.74
, Issue.3-4
, pp. 177-187
-
-
Catania, C.1
De Pas, T.2
Goldhirsch, A.3
Radice, D.4
Adamoli, L.5
Medici, M.6
Verri, E.7
Marenghi, C.8
De Braud, F.9
Nol̀, E.F.10
-
40
-
-
42649086509
-
Improvement of informed consent and the quality of consent documents
-
Jefford, M.; Moore, R. Improvement of informed consent and the quality of consent documents. Lancet Oncol 2008, 9(5), 485-493.
-
(2008)
Lancet Oncol
, vol.9
, Issue.5
, pp. 485-493
-
-
Jefford, M.1
Moore, R.2
-
41
-
-
35348834765
-
The oncology nurse's role in the informed consent process
-
Sun, V.C.; Borneman, T. The oncology nurse's role in the informed consent process. Oncology 2007, 21(8 Suppl), 11-14.
-
(2007)
Oncology
, vol.21
, Issue.8 SUPPL.
, pp. 11-14
-
-
Sun, V.C.1
Borneman, T.2
-
42
-
-
69149102488
-
Common consent
-
Common consent. Nature 2009, 460(7258), 933.
-
(2009)
Nature
, vol.460
, Issue.7258
, pp. 933
-
-
-
43
-
-
69049109909
-
Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?
-
Willison, D.J.; Steeves, V.; Charles, C.; Schwartz, L.; Ranford, J.; Agarwal, G.; Cheng, J.; Thabane, L. Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions? BMC Med Ethics 2009, 10, 10.
-
(2009)
BMC Med Ethics
, vol.10
, pp. 10
-
-
Willison, D.J.1
Steeves, V.2
Charles, C.3
Schwartz, L.4
Ranford, J.5
Agarwal, G.6
Cheng, J.7
Thabane, L.8
-
44
-
-
0029450358
-
Why the use of anonymous samples for research matters
-
Clayton, E.W. Why the use of anonymous samples for research matters. J Law Med Ethics. 1995, 23(4), 375-377.
-
(1995)
J Law Med Ethics
, vol.23
, Issue.4
, pp. 375-377
-
-
Clayton, E.W.1
|