메뉴 건너뛰기




Volumn 31, Issue 7, 2005, Pages 385-392

Informed consent, participation in, and withdrawal from a population based cohort study involving genetic analysis

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; COHORT ANALYSIS; CONTROLLED STUDY; FEMALE; GENETIC ANALYSIS; GEOGRAPHIC DISTRIBUTION; HEALTH SURVEY; HUMAN; HUMAN EXPERIMENT; INFORMED CONSENT; MALE; MEDICAL RESEARCH; POPULATION DISTRIBUTION; POPULATION GENETICS; POPULATION RESEARCH; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE;

EID: 21744446109     PISSN: 03066800     EISSN: None     Source Type: Journal    
DOI: 10.1136/jme.2004.009530     Document Type: Article
Times cited : (49)

References (22)
  • 1
    • 0032910698 scopus 로고    scopus 로고
    • Racial differences in testing motivation and psychological distress following pretest education for BRCA1 gene testing
    • Lerman C, Hughes C, Benkendorf A, et al. Racial differences in testing motivation and psychological distress following pretest education for BRCA1 gene testing. Cancer Epidemiol Biomarkers Prev 1999;8:361-7.
    • (1999) Cancer Epidemiol. Biomarkers Prev. , vol.8 , pp. 361-367
    • Lerman, C.1    Hughes, C.2    Benkendorf, A.3
  • 2
    • 0032961907 scopus 로고    scopus 로고
    • Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in western Washington
    • Durfy SJ, Bowen DJ, McTiernan A, et al. Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in western Washington. Cancer Epidemiol Biomarkers Prev 1999;8:369-75.
    • (1999) Cancer Epidemiol. Biomarkers Prev. , vol.8 , pp. 369-375
    • Durfy, S.J.1    Bowen, D.J.2    McTiernan, A.3
  • 3
    • 0034519216 scopus 로고    scopus 로고
    • Predictors of participation in genetic research in a primary care physician network
    • Helmes AW, Bowen DJ, Bowden R, et al. Predictors of participation in genetic research in a primary care physician network. Cancer Epidemiol Biomarkers Prey 2000;9:1377-9.
    • (2000) Cancer Epidemiol. Biomarkers Prey. , vol.9 , pp. 1377-1379
    • Helmes, A.W.1    Bowen, D.J.2    Bowden, R.3
  • 4
    • 0025772201 scopus 로고
    • Informed consent: Study of quality of information given to participants in a clinical trial
    • Lynöe N, Sandlung M, Dahlqvist G, et al. Informed consent: study of quality of information given to participants in a clinical trial. BMJ 1991;303:610-3.
    • (1991) BMJ , vol.303 , pp. 610-613
    • Lynöe, N.1    Sandlung, M.2    Dahlqvist, G.3
  • 5
    • 0034605757 scopus 로고    scopus 로고
    • Safeguards for research using large scale DNA collections
    • Kaye J, Martin P. Safeguards for research using large scale DNA collections. BMJ 2000;321:1146-9.
    • (2000) BMJ , vol.321 , pp. 1146-1149
    • Kaye, J.1    Martin, P.2
  • 6
    • 0035962322 scopus 로고    scopus 로고
    • The promise of human genetic databases
    • Lowrance WW. The promise of human genetic databases. BMJ 2001;322:1009-10.
    • (2001) BMJ , vol.322 , pp. 1009-1010
    • Lowrance, W.W.1
  • 7
    • 0033554255 scopus 로고    scopus 로고
    • The Icelandic database - Do modern times need modern sagas?
    • Chadwick R. The Icelandic database - do modern times need modern sagas? BMJ 1999;319:441-4.
    • (1999) BMJ , vol.319 , pp. 441-444
    • Chadwick, R.1
  • 8
    • 19044379822 scopus 로고    scopus 로고
    • Proposed genetic database on Tongans opposed
    • Burton B. Proposed genetic database on Tongans opposed. BMJ 2002;324:443.
    • (2002) BMJ , vol.324 , pp. 443
    • Burton, B.1
  • 9
    • 0030249722 scopus 로고    scopus 로고
    • Interest in learning of personal genetic risk for cancer: A general population survey
    • Andrykowski MA, Munn RK, Studts JL. Interest in learning of personal genetic risk for cancer: a general population survey. Prev Med 1996;25:527-36.
    • (1996) Prev. Med. , vol.25 , pp. 527-536
    • Andrykowski, M.A.1    Munn, R.K.2    Studts, J.L.3
  • 10
    • 0026940762 scopus 로고
    • Public acceptance of human gene therapy and perceptions of human genetic manipulation
    • Macer DRJ. Public acceptance of human gene therapy and perceptions of human genetic manipulation. Hum Gene Ther 1992; 3:511-8.
    • (1992) Hum. Gene Ther. , vol.3 , pp. 511-518
    • Macer, D.R.J.1
  • 11
    • 32644477284 scopus 로고    scopus 로고
    • A large-scale multicenter cohort study on arteriosclerosis (JALS): Purpose and data collection
    • Ueshima H, Ohashi Y, Ozawa T. A large-scale multicenter cohort study on arteriosclerosis (JALS): purpose and data collection. Atherosclerosis 2003;4(2 Suppl):113.
    • (2003) Atherosclerosis , vol.4 , Issue.2 SUPPL. , pp. 113
    • Ueshima, H.1    Ohashi, Y.2    Ozawa, T.3
  • 12
    • 32644456740 scopus 로고    scopus 로고
    • Ministry of Public Management, Home Affairs, Posts and Telecommunications of Japan. Tokyo: Statistical Bureau, Ministry of Public Management, Home Affairs, Posts and Telecommunications Government of Japan (Japanese)
    • Ministry of Public Management, Home Affairs, Posts and Telecommunications of Japan. 2000 Population census of Japan. Tokyo: Statistical Bureau, Ministry of Public Management, Home Affairs, Posts and Telecommunications, Government of Japan, 2001 (Japanese).
    • (2001) 2000 Population Census of Japan
  • 13
    • 32644479061 scopus 로고
    • Ministry of Health, Labour and Welfare. Health and medical service law for the aged, pub. L. no. 80. Tokyo: Government of Japan, 17 August, (Japanese)
    • Ministry of Health, Labour and Welfare. Health and medical service law for the aged, pub. L. no. 80. Tokyo: Government of Japan, 17 August, 1982 (Japanese).
    • (1982)
  • 14
    • 0003755607 scopus 로고    scopus 로고
    • 2nd edn. Philadelphia, PA: Saunders
    • Gordis L. Epidemiology, 2nd edn. Philadelphia, PA: Saunders. 2002:158-71.
    • (2002) Epidemiology , pp. 158-171
    • Gordis, L.1
  • 15
    • 0042265583 scopus 로고    scopus 로고
    • Dispute over data privacy halts cancer study
    • Cyranoski D. Dispute over data privacy halts cancer study. Nature 2003;424:359.
    • (2003) Nature , vol.424 , pp. 359
    • Cyranoski, D.1
  • 16
    • 32644487481 scopus 로고    scopus 로고
    • Icelandic Supreme Court Verdict. Ragnhildur Godmundsdóttir vs. The State of Iceland. Lawsuit no. 151/2003. 27 November (English trans.) (accessed 24 May, 2004)
    • Icelandic Supreme Court Verdict. Ragnhildur Godmundsdóttir vs. The State of Iceland. Lawsuit no. 151/2003. 27 November 2003. (English trans.) http://www.mannvernd.is/english/lawsuits/ Icelandic_Supreme_Court_Verdict_151_2003.doc (accessed 24 May, 2004).
    • (2003)
  • 17
    • 0015531016 scopus 로고
    • Informed (but uneducated) consent
    • Ingelfinger FJ. Informed (but uneducated) consent. N Engl J Med 1972;287:465-6.
    • (1972) N. Engl. J. Med. , vol.287 , pp. 465-466
    • Ingelfinger, F.J.1
  • 18
    • 0019965584 scopus 로고
    • Attitudes toward clinical trials among patients and the public
    • Cassileth BR, Lusk EJ, Miller DS, et al. Attitudes toward clinical trials among patients and the public. JAMA 1982;248:968-70.
    • (1982) JAMA , vol.248 , pp. 968-970
    • Cassileth, B.R.1    Lusk, E.J.2    Miller, D.S.3
  • 19
    • 0029927575 scopus 로고    scopus 로고
    • The impact of disease severity on the informed consent process in clinical research
    • Schaeffer MH, Krantz DS, Wichman A, et al. The impact of disease severity on the informed consent process in clinical research. Am J Med 1996;100:261-8.
    • (1996) Am. J. Med. , vol.100 , pp. 261-268
    • Schaeffer, M.H.1    Krantz, D.S.2    Wichman, A.3
  • 20
    • 0018840734 scopus 로고
    • Informed consent - Why are its goals imperfectly realized?
    • Cassileth BR, Zupkis RV, Sutton-Smith K, et al. Informed consent - why are its goals imperfectly realized? N Engl J Med 1980;302:896-900.
    • (1980) N. Engl. J. Med. , vol.302 , pp. 896-900
    • Cassileth, B.R.1    Zupkis, R.V.2    Sutton-Smith, K.3
  • 21
    • 0035861035 scopus 로고    scopus 로고
    • Reforming informed consent to genetic research
    • Annas GJ. Reforming informed consent to genetic research. JAMA 2001;286:2326-8.
    • (2001) JAMA , vol.286 , pp. 2326-2328
    • Annas, G.J.1
  • 22
    • 0037442380 scopus 로고    scopus 로고
    • Patient consent preferences for research uses of information in electronic medical records: Interview and survey data
    • for the COMPETE investigators
    • Willison DJ, Keshavjee K, Nair K, et al for the COMPETE investigators. Patient consent preferences for research uses of information in electronic medical records: interview and survey data. BMJ 2003;326:373-7.
    • (2003) BMJ , vol.326 , pp. 373-377
    • Willison, D.J.1    Keshavjee, K.2    Nair, K.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.