-
1
-
-
0032910698
-
Racial differences in testing motivation and psychological distress following pretest education for BRCA1 gene testing
-
Lerman C, Hughes C, Benkendorf A, et al. Racial differences in testing motivation and psychological distress following pretest education for BRCA1 gene testing. Cancer Epidemiol Biomarkers Prev 1999;8:361-7.
-
(1999)
Cancer Epidemiol. Biomarkers Prev.
, vol.8
, pp. 361-367
-
-
Lerman, C.1
Hughes, C.2
Benkendorf, A.3
-
2
-
-
0032961907
-
Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in western Washington
-
Durfy SJ, Bowen DJ, McTiernan A, et al. Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in western Washington. Cancer Epidemiol Biomarkers Prev 1999;8:369-75.
-
(1999)
Cancer Epidemiol. Biomarkers Prev.
, vol.8
, pp. 369-375
-
-
Durfy, S.J.1
Bowen, D.J.2
McTiernan, A.3
-
3
-
-
0034519216
-
Predictors of participation in genetic research in a primary care physician network
-
Helmes AW, Bowen DJ, Bowden R, et al. Predictors of participation in genetic research in a primary care physician network. Cancer Epidemiol Biomarkers Prey 2000;9:1377-9.
-
(2000)
Cancer Epidemiol. Biomarkers Prey.
, vol.9
, pp. 1377-1379
-
-
Helmes, A.W.1
Bowen, D.J.2
Bowden, R.3
-
4
-
-
0025772201
-
Informed consent: Study of quality of information given to participants in a clinical trial
-
Lynöe N, Sandlung M, Dahlqvist G, et al. Informed consent: study of quality of information given to participants in a clinical trial. BMJ 1991;303:610-3.
-
(1991)
BMJ
, vol.303
, pp. 610-613
-
-
Lynöe, N.1
Sandlung, M.2
Dahlqvist, G.3
-
5
-
-
0034605757
-
Safeguards for research using large scale DNA collections
-
Kaye J, Martin P. Safeguards for research using large scale DNA collections. BMJ 2000;321:1146-9.
-
(2000)
BMJ
, vol.321
, pp. 1146-1149
-
-
Kaye, J.1
Martin, P.2
-
6
-
-
0035962322
-
The promise of human genetic databases
-
Lowrance WW. The promise of human genetic databases. BMJ 2001;322:1009-10.
-
(2001)
BMJ
, vol.322
, pp. 1009-1010
-
-
Lowrance, W.W.1
-
7
-
-
0033554255
-
The Icelandic database - Do modern times need modern sagas?
-
Chadwick R. The Icelandic database - do modern times need modern sagas? BMJ 1999;319:441-4.
-
(1999)
BMJ
, vol.319
, pp. 441-444
-
-
Chadwick, R.1
-
8
-
-
19044379822
-
Proposed genetic database on Tongans opposed
-
Burton B. Proposed genetic database on Tongans opposed. BMJ 2002;324:443.
-
(2002)
BMJ
, vol.324
, pp. 443
-
-
Burton, B.1
-
9
-
-
0030249722
-
Interest in learning of personal genetic risk for cancer: A general population survey
-
Andrykowski MA, Munn RK, Studts JL. Interest in learning of personal genetic risk for cancer: a general population survey. Prev Med 1996;25:527-36.
-
(1996)
Prev. Med.
, vol.25
, pp. 527-536
-
-
Andrykowski, M.A.1
Munn, R.K.2
Studts, J.L.3
-
10
-
-
0026940762
-
Public acceptance of human gene therapy and perceptions of human genetic manipulation
-
Macer DRJ. Public acceptance of human gene therapy and perceptions of human genetic manipulation. Hum Gene Ther 1992; 3:511-8.
-
(1992)
Hum. Gene Ther.
, vol.3
, pp. 511-518
-
-
Macer, D.R.J.1
-
11
-
-
32644477284
-
A large-scale multicenter cohort study on arteriosclerosis (JALS): Purpose and data collection
-
Ueshima H, Ohashi Y, Ozawa T. A large-scale multicenter cohort study on arteriosclerosis (JALS): purpose and data collection. Atherosclerosis 2003;4(2 Suppl):113.
-
(2003)
Atherosclerosis
, vol.4
, Issue.2 SUPPL.
, pp. 113
-
-
Ueshima, H.1
Ohashi, Y.2
Ozawa, T.3
-
12
-
-
32644456740
-
-
Ministry of Public Management, Home Affairs, Posts and Telecommunications of Japan. Tokyo: Statistical Bureau, Ministry of Public Management, Home Affairs, Posts and Telecommunications Government of Japan (Japanese)
-
Ministry of Public Management, Home Affairs, Posts and Telecommunications of Japan. 2000 Population census of Japan. Tokyo: Statistical Bureau, Ministry of Public Management, Home Affairs, Posts and Telecommunications, Government of Japan, 2001 (Japanese).
-
(2001)
2000 Population Census of Japan
-
-
-
13
-
-
32644479061
-
-
Ministry of Health, Labour and Welfare. Health and medical service law for the aged, pub. L. no. 80. Tokyo: Government of Japan, 17 August, (Japanese)
-
Ministry of Health, Labour and Welfare. Health and medical service law for the aged, pub. L. no. 80. Tokyo: Government of Japan, 17 August, 1982 (Japanese).
-
(1982)
-
-
-
14
-
-
0003755607
-
-
2nd edn. Philadelphia, PA: Saunders
-
Gordis L. Epidemiology, 2nd edn. Philadelphia, PA: Saunders. 2002:158-71.
-
(2002)
Epidemiology
, pp. 158-171
-
-
Gordis, L.1
-
15
-
-
0042265583
-
Dispute over data privacy halts cancer study
-
Cyranoski D. Dispute over data privacy halts cancer study. Nature 2003;424:359.
-
(2003)
Nature
, vol.424
, pp. 359
-
-
Cyranoski, D.1
-
16
-
-
32644487481
-
-
Icelandic Supreme Court Verdict. Ragnhildur Godmundsdóttir vs. The State of Iceland. Lawsuit no. 151/2003. 27 November (English trans.) (accessed 24 May, 2004)
-
Icelandic Supreme Court Verdict. Ragnhildur Godmundsdóttir vs. The State of Iceland. Lawsuit no. 151/2003. 27 November 2003. (English trans.) http://www.mannvernd.is/english/lawsuits/ Icelandic_Supreme_Court_Verdict_151_2003.doc (accessed 24 May, 2004).
-
(2003)
-
-
-
17
-
-
0015531016
-
Informed (but uneducated) consent
-
Ingelfinger FJ. Informed (but uneducated) consent. N Engl J Med 1972;287:465-6.
-
(1972)
N. Engl. J. Med.
, vol.287
, pp. 465-466
-
-
Ingelfinger, F.J.1
-
18
-
-
0019965584
-
Attitudes toward clinical trials among patients and the public
-
Cassileth BR, Lusk EJ, Miller DS, et al. Attitudes toward clinical trials among patients and the public. JAMA 1982;248:968-70.
-
(1982)
JAMA
, vol.248
, pp. 968-970
-
-
Cassileth, B.R.1
Lusk, E.J.2
Miller, D.S.3
-
19
-
-
0029927575
-
The impact of disease severity on the informed consent process in clinical research
-
Schaeffer MH, Krantz DS, Wichman A, et al. The impact of disease severity on the informed consent process in clinical research. Am J Med 1996;100:261-8.
-
(1996)
Am. J. Med.
, vol.100
, pp. 261-268
-
-
Schaeffer, M.H.1
Krantz, D.S.2
Wichman, A.3
-
21
-
-
0035861035
-
Reforming informed consent to genetic research
-
Annas GJ. Reforming informed consent to genetic research. JAMA 2001;286:2326-8.
-
(2001)
JAMA
, vol.286
, pp. 2326-2328
-
-
Annas, G.J.1
-
22
-
-
0037442380
-
Patient consent preferences for research uses of information in electronic medical records: Interview and survey data
-
for the COMPETE investigators
-
Willison DJ, Keshavjee K, Nair K, et al for the COMPETE investigators. Patient consent preferences for research uses of information in electronic medical records: interview and survey data. BMJ 2003;326:373-7.
-
(2003)
BMJ
, vol.326
, pp. 373-377
-
-
Willison, D.J.1
Keshavjee, K.2
Nair, K.3
|