A mixed methods evaluation of the Brain Injury family intervention

NeuroRehabilitation

Volumn 27, Issue 1, 2010, Pages 19-29

  Kreutzer, Jeffrey S ^a,b   Stejskal, Taryn M ^a   Godwin, Emilie E ^a   Powell, Victoria D ^a   Arango Lasprilla, Juan Carlos ^a  

^a VIRGINIA COMMONWEALTH UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

Author keywords

caregivers; family intervention; family therapy; Traumatic brain injury

Indexed keywords

ARTICLE; BRAIN INJURY; BRAIN INJURY FAMILY INTERVENTION; CAREGIVER; CLINICAL EVALUATION; FAMILY THERAPY; FEMALE; GOAL ATTAINMENT; HEALTH EDUCATION; HEALTH PROGRAM; HUMAN; MAJOR CLINICAL STUDY; MALE; NORMAL HUMAN; NURSING COMPETENCE; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PROBLEM SOLVING; PROGRAM DEVELOPMENT; PSYCHOLOGICAL WELL BEING; SELF CARE; SOCIAL ADAPTATION; STRESS MANAGEMENT; ADULT; BRAIN INJURIES; COOPERATION; MENTAL STRESS; MIDDLE AGED; MOTIVATION; PATIENT; PSYCHOLOGY; SOCIAL SUPPORT;

ADULT; BRAIN INJURIES; CAREGIVERS; FAMILY THERAPY; FEMALE; GOALS; HELPING BEHAVIOR; HUMANS; MALE; MIDDLE AGED; PATIENTS; SELF CARE; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 77954749659     PISSN: 10538135     EISSN: None     Source Type: Journal    
DOI: 10.3233/NRE-2010-0578     Document Type: Article

References (54)

1. S. Acorn, Assisting families of head-injured survivors through a family support programme, Journal of Advanced Nursing 21 (1995), 872-877.
2. M.E. Aitken, M.L. McCarthy, B.S. Slomine, R. Ding, D.R. Durbin, K.M. Jaffe, C.N. Paidas, A.M. Dorsch, J.R. Christensen and E.J. Mackenzie, Family burden after traumatic brain injury in children, Pediatrics 123 (2009), 199-206.
3. S.M. Albert, A. Im, L. Brenner, M. Smith and R. Waxman, Effect of a social work liaison program on family caregivers to people with brain injury, Journal of Head Trauma Rehabilitation 17 (2002), 175-189.
4. J.K. Anderson-Parent́e, A. DeCesare and R. Parent́e, Spouses who stayed, Cognitive Rehabilitation 8 (1990), 22.
5. J.C. Arango-Lasprilla, J.M. Ketchum, T. Dezfulian, J.S. Kreutzer, T.M. O'Neil-Pirozzi, F. Hammond and A. Jha, Predictors of marital stability 2 years following traumatic brain injury, Brain Injury 22 (2008), 565-574.
6. S.F. Bouwens, C.M. van Heugten and F.R. Verhey, The practical use of goal attainment scaling for people with acquired brain injury who receive cognitive rehabilitation, Clinical Rehabilitation 23 (2009), 310-320.
7. C. Broderick, Understanding Family Process: Basics of Family Systems Theory, Sage Publications, Thousand Oaks, CA, 1993.
8. D.N. Brooks, The head-injured family, Journal of Clinical and Experimental Neuropsychology 13 (1991), 155-188.
9. R. Brown, K. Pain, C. Berwald, P. Hirschi, R. Delhanty and H. Miller, Distance education and caregiver support groups: Comparison of traditional and telephone groups, Journal of Head Trauma Rehabilitation 14 (1999), 257-268.
10. S.L. Carnes and W.H. Quinn, Family adaptation to brain injury: Coping and psychological distress, Family Systems and Health 23 (2005), 186-203.
11. G.J. Carnevale, V. Anselmi, K. Busichio and S.R. Millis, Changes in ratings of caregiver burden following a community-based behavior management program for persons with traumatic brain injury, Journal of Head Trauma Rehabilitation 17 (2002), 83.
12. J.W. Creswell, Research Design: Qualitative, Quantitative, and Mixed Methods Approaches, Sage Publications, Thousand Oaks, CA, 2003.
13. L.C. Davis, A.M. Sander, M.A. Struchen, M. Sherer, R. Nakase-Richardson and J.F. Malec, Medical and psychosocial predictors of caregiver distress and perceived burden following traumatic brain injury, Journal of Head Trauma Rehabilitation 24 (2009), 145-154.
14. J.M. Douglas and F.J. Spellacy, Correlates of depression in adults with severe traumatic brain injury and their carers, Brain Injury 14 (2000), 71-88.
15. A. Ellis, A New Guide to Rational Living, Prentice Hall, Englewood Cliffs, NJ, 1975.
16. R. Gillen, H. Tennen, G. Affleck and R. Steinpreis, Distress, depressive symptoms, and depressive disorder among caregivers of patients with brain injury, Journal of Head Trauma Rehabilitation 13 (1998), 31-43.
17. Guide for the uniform data set for medical rehabilitation (including the FIM(tm) instrument), (Buffalo, NY: State University of New York at Buffalo, 1997).
18. J. Hodgson, S. McDonald, R. Tate and P. Gertler, A randomized controlled trial of a cognitive-behavioural therapy program for managing social anxiety after acquired brain injury, Brain Impairment 6 (2005), 169-180.
19. D. Jackson, L. Turner-Stokes, J. Murray, M. Leese and K.M. McPherson, Acquired brain injury and dementia: A comparison of carer experiences, Brain Injury 23 (2009), 433-444.
20. J.W. Kim and S.S. Moon, Needs of family caregivers caring for stroke patients: Based on the rehabilitation treatment phase and the treatment setting, Social Work in Health Care 45 (2007), 81-97.
21. S.A. Kolakowsky-Hayner, K.D. Miner and J.S. Kreutzer, Long-term life quality and family needs after traumatic brain injury, Journal of Head Trauma Rehabilitation 16 (2001), 374-385.
22. J.S. Kreutzer, A.H. Gervasio and P.S. Camplair, Primary caregivers' psychological status and family functioning after traumatic brain injury, Brain Injury 8 (1994), 197-210.
23. J.S. Kreutzer, S.A. Kolakowsky-Hayner, S.R. Demm and M.A. Meade, A structured approach to family intervention after brain injury, Journal of Head Trauma Rehabilitation 17 (2002), 349-367.
24. J.S. Kreutzer, J.H. Marwitz, N. Hsu, K. Williams and A. Riddick, Marital stability after brain injury: An investigation and analysis, NeuroRehabilitation 22 (2007), 53-59.
25. J.S. Kreutzer, L.J. Rapport, J.H. Marwitz, C. Harrison-Felix, T. Hart, M. Glenn and F. Hammond, Caregivers' well-being after traumatic brain injury: A multicenter prospective investigation, Archives of Physical Medicine and Rehabilitation 90 (2009), 939-946.
26. J.S. Kreutzer, C. Serio and S. Berquist, Family needs following brain injury: A quantitative analysis, Journal of Head Trauma Rehabilitation 9 (1994), 104-115.
27. J.S. Kreutzer, T.M. Stejskal, J.M.Ketchum, J.H. Marwitz, L.A. Taylor and J.C. Menzel, A preliminary investigation of the brain injury family intervention: Impact on family members, Brain Injury 23 (2009), 535-547.
28. M.G. Livingston, D.N. Brooks and M.R. Bond, Patient outcome in the year following severe head injury and relatives' psychiatric and social functioning, Journal of Neurology, Neurosurgery and Psychiatry 48 (1985), 876-881.
29. M.G. Livingston, D.N. Brooks,and M.R. Bond, Three months after severe head injury: Psychiatric and social impact on relatives, Journal of Neurology, Neurosurgery and Psychiatry 48 (1985), 870-875.
30. N.V. Marsh, D.A. Kersel, J.H. Havill and J.W. Sleigh, Caregiver burden at 1 year following severe traumatic brain injury, Brain Injury 12 (1998), 1045-1059.
31. N.V. Marsh, D.A.Kersel, J.H. Havill and J.W. Sleigh, Caregiver burden at 6 months following severe traumatic brain injury, Brain Injury 12 (1998), 225.
32. C.A. Mateer and C.S. Sira, Cognitive and emotional consequences of TBI: Intervention strategies for vocational rehabilitation, NeuroRehabilitation 21 (2006), 315-326.
33. N. Mauss-Clum and M. Ryan, Brain injury and the family, Journal of Neurosurgical Nursing 13 (1981), 165-169.
34. J.A. Maxwell, Qualitative Research Design: An Interactive Approach, Sage Publications, Thousand Oaks, CA, 2005.
35. K.C. Morris, Psychological distress in carers of head injured individuals: The provision of written information, Brain Injury 15 (2001), 239.
36. H.M. Murray, G.W. Maslany and B. Jeffery, Assessment of family needs following acquired brain injury in Saskatchewan, Brain Injury 20 (2006), 575-585.
37. M.P. Nichols and R.C. Schwartz, Family Therapy Concepts and Methods. 6 edn, Pearson Education, Inc., Boston, MA., 2004.
38. A. Panting and P.H. Merry, The long term rehabilitation of severe head injuries with particular reference to the need for social and medical support for the patient's family, Rehabilitation 38 (1972), 33-37.
39. M.Q. Patton, Qualitative Research and Evaluation Methods, Sage Publications, Thousand Oaks, CA, 2002.
40. A. Perlesz, G. Kinsella and S. Crowe, Psychological distress and family satisfaction following traumatic brain injury: Injured individuals and their primary, secondary, and tertiary carers, Journal of Head Trauma Rehabilitation 15 (2000), 909-929.
41. E.E. Pickelsimer, A.W. Selassie, P.L. Sample, W. Heinemann A, J.K. Gu and L.C. Veldheer, Unmet service needs of persons with traumatic brain injury, Journal of Head Trauma Rehabilitation 22 (2007), 1-13.
42. M. Pinquart and S. Sorensen, Gender differences in caregiver stressors, social resources, and health: An updated metaanalysis, Journals of Gerontology. Series B, Psychological Sciences and Social Sciences 61 (2006), P33-P45.
43. G.A. Riley, Stress and depression in family carers following traumatic brain injury: The influence of beliefs about difficult behaviours, Clinical Rehabilitation 21 (2007), 82-88.
44. P.A. Rivera, T.R. Elliott, J.W. Berry and J.S. Grant, Problemsolving training for family caregivers of persons with traumatic brain injuries: A randomized controlled trial, Archives of Physical Medicine and Rehabilitation 89 (2008), 931-941.
45. G.B. Rossman and S.F. Rallis, Learning in the Field: An Introduction to Qualitative Research, Sage Publications, Thousand Oaks, CA, 2003.
46. A.J. Rotondi, J. Sinkule, K. Balzer, J. Harris and R. Moldovan, A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers, Journal of Head Trauma Rehabilitation 22 (2007), 14-25.
47. R.W. Schlosser, Goal attainment scaling as a clinical measurement technique in communication disorders: Acritical review, Journal of Communication Disorders 37 (2004), 217-239.
48. I. Sinnakaruppan, B. Downey and S. Morrison, Head injury and family carers: A pilot study to investigate an innovative community-based educational programme for family carers and patients, Brain Injury 19 (2005), 283.
49. I. Sinnakaruppan and D.M. Williams, Family carers and the adult head-injured: A critical review of carers' needs, Brain Injury 15 (2001), 653-672.
50. R.L. Tate, J.M. Lulham, G.A. Broe, B. Strettles and A. Pfaff, Psychosocial outcome for the survivors of severe blunt head injury: The results from a consecutive series of 100 patients, Journal of Neurology, Neurosurgery and Psychiatry 52 (1989), 1128-1134.
51. I.V. Thomsen, Late outcome of very severe blunt head trauma: A 10-15 year second follow-up, Journal of Neurology, Neurosurgery and Psychiatry 47 (1984), 260-268.
52. L.Turner-Stokes, H.Williams and J. Johnson, Goal attainment scaling: Does it provide added value as a person-centred measure for evaluation of outcome in neurorehabilitation following acquired brain injury? Journal of Rehabilitation Medicine 41 (2009), 528-535.
53. R.L.Wood, C. Liossi and L.Wood, The impact of head injury neurobehavioural sequelae on personal relationships: Preliminary findings, Brain Injury 19 (2005), 845-851.
54. R.L. Wood and L.K. Yurdakul, Change in relationship status following traumatic brain injury, Brain Injury 11 (1997), 491.