Development and psychometric testing of the patient-reported measure of activity performance of the hand (MAP-Hand) in rheumatoid arthritis

Journal of Rehabilitation Medicine

Volumn 42, Issue 7, 2010, Pages 636-644

  Paulsen, Taran ^a   Grotle, Margreth ^a   Garratt, Andrew ^a   Kjeken, Ingvild ^a  

^a DIAKONHJEMMET HOSPITAL   (Norway)

Author keywords

Activity performance; Canadian model of occupational performance; Disability and health; Hand function; International classification of functioning; Patient reported measure; Psychometric testing; Rheumatoid arthritis

Indexed keywords

ADULT; AGED; ARTICLE; DISABILITY; HAND; HAND STRENGTH; HUMAN; METHODOLOGY; MIDDLE AGED; PATHOPHYSIOLOGY; PHYSIOLOGY; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; PSYCHOMOTOR PERFORMANCE; QUESTIONNAIRE; REPRODUCIBILITY; RHEUMATOID ARTHRITIS;

ADULT; AGED; ARTHRITIS, RHEUMATOID; DISABILITY EVALUATION; HAND; HAND STRENGTH; HUMANS; MIDDLE AGED; PSYCHOMETRICS; PSYCHOMOTOR PERFORMANCE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 77954667199     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0577     Document Type: Article

References (38)

1. Harris ED. Clinical features of rheumatoid arthritis. In: Harris ED, Budd R, Firestein G, Genovese M, Sergent J, Ruddy S et al., editors. Kelley's textbook of rheumatology. 7th edn. Philadelphia: Elsevier Science; 2005, p. 1043-1078.
2. Eberhardt KB, Fex E. Functional impairment and disability in early rheumatoid arthritis - development over 5 years. J Rheumatol 1995; 22: 1037-1042.
3. Hakkinen A, Kautiainen H, Hannonen P, Ylinen J, Makinen H, Sokka T. Muscle strength, pain, and disease activity explain individual subdimensions of the Health Assessment Questionnaire disability index, especially in women with rheumatoid arthritis. Ann Rheum Dis 2006; 65: 30-34.
4. Thyberg I, Hass UA, Nordenskiold U, Gerdle B, Skogh T. Activity limitation in rheumatoid arthritis correlates with reduced grip force regardless of sex: the Swedish TIRA project. Arthritis Rheum 2005; 53: 886-896.
5. Boers M, Brooks P, Strand CV, Tugwell P. The OMERACT Filter for Outcome Measures in Rheumatology. J Rheumatol 1998; 25: 198-199.
6. Chung KC, Pillsbury MS, Walters MR, Hayward RA, Arbor A. Reliability and validity testing of the Michigan Hand Outcomes Questionnaire. J Hand Surg Am 1998; 23: 575-587.
7. Durez P, Fraselle V, Houssiau F, Thonnard JL, Nielens H, Penta M. Validation of the ABILHAND questionnaire as a measure of manual ability in patients with rheumatoid arthritis. Ann Rheum Dis 2007; 66: 1098-1105.
8. Duruoz MT, Poiraudeau S, Fermanian J, Menkes CJ, Amor B, Dougados M, et al. Development and validation of a rheumatoid hand functional disability scale that assesses functional handicap. J Rheumatol 1996; 23: 1167-1172.
9. Leeb BF, Sautner J, Andel I, Rintelen B. SACRAH: a score for assessment and quantification of chronic rheumatic affections of the hands. Rheumatology (Oxford) 2003; 42: 1173-1178.
10. Meenan RF, Mason JH, Anderson JJ, Guccione AA, Kazis LE. AIMS2. The content and properties of a revised and expanded Arthritis Impact Measurement Scales Health Status Questionnaire. Arthritis Rheum 1992; 35: 1-10.
11. Kirwan JR, Hewlett SE, Heiberg T, Hughes RA, Carr M, Hehir M, et al. Incorporating the patient perspective into outcome assessment in rheumatoid arthritis - progress at OMERACT 7. J Rheumatol 2005; 32: 2250-2256.
12. Townsend E, Stanton S, Law M, Polatajko H, Baptiste S, Thompson-Franson T, et al. Enabling occupation: an occupational therapy perspective. 2nd edn. Ottawa: CAOT Publications ACE; 2002.
13. World Health Organization. International Classification of Functioning, Disability and Health. Geneva: World Health Organization; 2001.
14. Penta M, Thonnard JL, Tesio L. ABILHAND: a Rasch-built measure of manual ability. Arch Phys Med Rehabil 1998; 79: 1038-1042.
15. Tennant A, McKenna SP, Hagell P. Application of Rasch analysis in the development and application of quality of life instruments. Value Health 2004; 7 Suppl 1: S22-S26.
16. Garratt AM, Brealey S, Gillespie WJ. Patient-assessed health instruments for the knee: a structured review. Rheumatology (Oxford) 2004; 4311: 1414-1423.
17. Law M, Baptiste S, Carswell A, McColl M, Polatajko H, Pollock N. Canadian Occupational Performance Measure (Manual). 3rd edn. Ottawa: CAOT Publications ACE; 2005.
18. Nordenskiold UM, Grimby G. Grip force in patients with rheumatoid arthritis and fibromyalgia and in healthy subjects. A study with the Grippit instrument. Scand J Rheumatol 1993; 22: 14-19.
19. Sollerman C, Ejeskar A. Sollerman hand function test. A standardised method and its use in tetraplegic patients. Scand J Plast Reconstr Surg Hand Surg 1995; 29: 167-176.
20. Polatajko H, Davis JA, Hobson SJG, Landry JE, Mandich A, Street SL, et al. Meeting the responsibility that comes with the privilege: Introducing a taxonomie code for understanding occupation. Can J Occup Ther 2004; 71: 261-264.
21. Calvo F, Alarcón GS. Epidemiology of rheumatoid arthritis. In: Firestein GS, Panayi GS, Wollheim FA, editors. Rheumatoid arthritis. Frontiers in pathogenesis and treatment. New York: Oxford University Press; 2000, p. 15-26.
22. Kvien TK, Uhlig T. The population based studies in rheumatoid arthritis. A method of longterm followup studies. J Rheumatol 2004; 69: 35-40.
23. Hochberg MC, Chang RW, Dwosh I, Lindsey S, Pincus T, Wolfe F. The American College of Rheumatology 1991 revised criteria for the classification of global functional status in rheumatoid arthritis. Arthritis Rheum 1992; 35: 498-502.
24. Pincus T, Summey JA, Soraci SA, Wallston KA, Hummon NP. Assessment of patient satisfaction in activities of daily living using a modified Stanford Health Assessment Questionnaire. Arthritis Rheum 1983; 26: 1346-1353.
25. Tennant A, Conaghan PG. The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one look for in a Rasch paper? Arthritis Rheum 2007; 57: 1358-1362.
26. Andresen EM. Criteria for assessing the tools of disability outcomes research. Arch Phys Med Rehabil 2000; 81: S15-S20.
27. Hewlett SA. Patients and clinicians have different perspectives on outcomes in arthritis. J Rheumatol 2003; 30: 877-879.
28. Kjeken I, Slatkowsky-Christensen B, Kvien TK, Uhlig T. Norwegian version of the Canadian Occupational Performance Measure in patients with hand osteoarthritis: Validity, responsiveness, and feasibility. Arthritis Rheum 2004; 51: 709-715.
29. Tugwell P, Bombardier C, Buchanan WW, Goldsmith CH, Grace E, Hanna B. The MACTAR Patient Preference Disability Questionnaire - an individualized functional priority approach for assessing improvement in physical disability in clinical trials in rheumatoid arthritis. J Rheumatol 1987; 14: 446-451.
30. Stratford PW, Gill C, Westaway MD, Binkley JM. Assessing disability and change on individual patients: a report of a patient specific masure. Physiother Canada 1995; 47: 258-263.
31. Fitinghoff H, Söderback I, Nordemar R. An Activity analysis of hand grips used in housework by female rheumatoid arthritics. Work 1994; 4: 128-136.
32. Baker NA, Rogers JC, Rubinstein EN, Allaire SH, Wasko MC. Problems experienced by people with arthritis when using a computer. Arthritis Rheum 2009; 61: 614-622.
33. Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993; 46: 1417-1432.
34. Archenholtz B, Bjelle A. Reliability, validity, and sensitivity of a Swedish version of the revised and expanded Arthritis Impact Measurement Scales (AIMS2). J Rheumatol 1997; 24: 1370-1377.
35. Riemsma RP, Taal E, Rasker JJ, Houtman PM, Van Paassen HC, Wiegman O. Evaluation of a Dutch version of the AIMS2 for patients with rheumatoid arthritis. Br J Rheumatol 1996; 35: 755-760.
36. Poole JL, Cordova KJ, Brower LM. Reliability and validity of a self-report of hand function in persons with rheumatoid arthritis. J Hand Ther 2006; 19: 12-16.
37. Poiraudeau S, Lefevre-Colau MM, Fermanian J, Revel M. The ability of the Cochin rheumatoid arthritis hand functional scale to detect change during the course of disease. Arthritis Rheum 2000; 13: 296-303.
38. van der Giesen FJ, Nelissen RG, Arendzen JH, de Jong Z, Wolterbeek R, Vliet Vlieland TP. Responsiveness of the Michigan Hand Outcomes Questionnaire-Dutch language version in patients with rheumatoid arthritis. Arch Phys Med Rehabil 2008; 89: 1121-1126.