Incorporating the patient perspective into outcome assessment in rheumatoid arthritis - Progress at OMERACT 7

Journal of Rheumatology

Volumn 32, Issue 11, 2005, Pages 2250-2256

  Kirwan, John R ^a   Hewlett, Sarah E ^a   Heiberg, Turid ^b   Hughes, Rod A ^c   Carr, Maggie ^c   Hehir, Maggie ^a   Kvien, Tore K ^d   Minnock, Patricia ^e   Newman, Stanton P ^f   Quest, Enid M ^a   Taal, Erik ^g   Wale, Janney ^h  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

^b ULLEVÅL UNIVERSITY HOSPITAL   (Norway)

^c ST PETER S HOSPITAL   (United Kingdom)

^d DIAKONHJEMMET HOSPITAL   (Norway)

^e ST VINCENT S UNIVERSITY HOSPITAL   (Ireland)

^f UNIVERSITY COLLEGE LONDON   (United Kingdom)

^g UNIVERSITY OF TWENTE   (Netherlands)

^h ROYAL BRISBANE AND WOMEN'S HOSPITAL   (Australia)

Author keywords

Fatigue; Patient Priorities; Real time assessment; Well being

Indexed keywords

CONFERENCE PAPER; DEPRESSION; DISABILITY; DISEASE ACTIVITY; DISEASE ASSOCIATION; FATIGUE; FIBROMYALGIA; HEALTH STATUS; HUMAN; OUTCOMES RESEARCH; PAIN; PREVALENCE; PRIORITY JOURNAL; QUESTIONNAIRE; RHEUMATOID ARTHRITIS; SYMPTOMATOLOGY; VISUAL ANALOG SCALE; WELLBEING;

ARTHRITIS, RHEUMATOID; FATIGUE; HUMANS; PATIENT SATISFACTION; TREATMENT OUTCOME;

EID: 26444457711     PISSN: 0315162X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Conference Paper

References (16)

1. Kirwan JR, Ahlmén M, de Wit M, et al. Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment. J Rheumatol 2005;32:2246-9.
2. Kirwan J, Heiberg T, Hewlett S, et al. Outcomes from the Patient Perspective workshop at OMERACT 6. J Rheumatol 2003;30:868-72.
3. Boers M, Tugwell P, Felson DT, et al. World Health Organization and International League of Associations for Rheumatology core endpoints for symptom modifying antirheumatic drugs in rheumatoid arthritis clinical trials. J Rheumatol 1994;21 Suppl 41:86-9.
4. Carr A, Hewlett S, Hughes R, et al. Rheumatology outcomes: the patient's perspective. J Rheumatol 2003;30:880-3.
5. Hewlett S, Carr M, Ryan S, et al. Pain is not always the priority - rheumatoid arthritis patients value other outcomes. Rheumatology Oxford 2004;43 Suppl 2:14.
6. Hawley DJ, Wolfe F. Depression is not more common in rheumatoid arthritis: a 10-year longitudinal study of 6,153 patients with rheumatic disease. J Rheumatol 1993;12:2025-31.
7. Dickens C, McGowan L, dark-Carter D, Creed F. Depression in rheumatoid arthritis: a systematic review of the literature with meta-analysis. Psychosom Med 2002;64:52-60.
8. Meenan RF, Mason JH, Andersen JJ, Guccione AA, Kazis LE. AIMS2. The content and properties of a revised and expanded Arthritis Impact Measurement Scales health status questionnaire. Arthritis Rheum 1992;35:1-10.
9. Clinch J, Tugwell P, Wells G, Shea B. Individualized functional priority approach to the assessment of health related quality of life in rheumatology. J Rheumatol 2001;28:445-51.
10. Verhoeven AC, Boers M, van der Linden S. Validity of the MACTAR questionnaire as a functional index in a rheumatoid arthritis clinical trial. The McMaster Toronto Arthritis Patient Preference Questionnaire. J Rheumatol 2000;27:2801-9.
11. Wressle E, Lindstrand J, Neher M, Marcusson J, Henriksson C. The Canadian Occupational Performance Measure as an outcome measure and team tool in a day treatment programme. Disabil Rehabil 2003;25:497-506.
12. Kirwan JR. Conceptual issues in scoring radiographic progression in rheumatoid arthritis. J Rheumatol 1999;26:720-5.
13. Kirwan JR. Links between radiological change, disability and pathology in rheumatoid arthritis. J Rheumatol 2001;28:893-8.
14. Heiberg T, Kvein TK. Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority. Arthritis Care Res 2002;47:391-7.
15. Hewlett S, Smith A, Kirwan J. Values for function in rheumatoid arthritis: patients, professionals, and public. Ann Rheum Disease 2001;60:928-33.
16. Stucki G, Cieza A, Ewert T, Kostanjsek N, Chatterji S, Ustun TB. Application of the International Classification of Functioning, Disability and Health (ICF) in clinical practice. Disabil Rehabil 2002;24:281-2.