A positive turning point in life - How persons with late effects of polio experience the influence of an interdisciplinary rehabilitation programme

Journal of Rehabilitation Medicine

Volumn 42, Issue 6, 2010, Pages 559-565

  Larsson Lund, Maria ^a   Lexell, Jan ^b,c,d  

^a UMEÅ UNIVERSITY   (Sweden)

^b LUND UNIVERSITY HOSPITAL   (Sweden)

^c LUND UNIVERSITY   (Sweden)

^d LULEÅ UNIVERSITY OF TECHNOLOGY   (Sweden)

Author keywords

Activities of daily living; Disease management; Patient education; Postpoliomyelitis syndrome; Rehabilitation; Treatment outcome

Indexed keywords

ADULT; AGED; ARTICLE; DAILY LIFE ACTIVITY; DISABLED PERSON; DISEASE MANAGEMENT; FEMALE; HEALTH CARE QUALITY; HUMAN; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; PATIENT EDUCATION; POSTPOLIOMYELITIS SYNDROME; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; TREATMENT OUTCOME;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; DISABLED PERSONS; DISEASE MANAGEMENT; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; POSTPOLIOMYELITIS SYNDROME; PROGRAM EVALUATION; QUESTIONNAIRES; TREATMENT OUTCOME;

EID: 77953830825     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0559     Document Type: Article

References (34)

1. Trojan DA, Cashman NR. Post-poliomyelitis syndrome. Muscle Nerve 2005; 31: 6-19.
2. McNaughton HK, McPherson KM. Problems occurring late after poliomyelitis: a rehabilitation approach. Crit Rev Phys Rehabil 2003;15:295-308.
3. Stolwijk-Swuste JM, Beelen A, Lankhorst GJ, Nollet F. The course of functional status and muscle strength in patients with late-onset sequelae of poliomyelitis: a systematic review. Arch Phys Med Rehabil 2005; 86: 1693-1701. (Pubitemid 41115837)
4. Burger H, Marincek C. The influence of post-polio syndrome on independence and life satisfaction. Disabil Rehabil 2000; 22: 318-322. (Pubitemid 30349002)
5. Natterlund B, Ahlstrom G. Problem-focused coping and satisfaction with activities of daily living in individuals with muscular dystrophy and postpolio syndrome. Scand J Caring Sei 1999; 13: 26-32. (Pubitemid 29155851)
6. Thoren-Jonsson AL, Grimby G. Ability and perceived difficulty in daily activities in people with poliomyelitis sequelae. J Rehabil Med 2001; 33: 4-11. (Pubitemid 32401153)
7. Larsson Lund M, Lexell J. Perceived participation in the life situations in persons with late effects of polio. J Rehabil Med 2008; 40: 659-664.
8. Kling C, Persson A, Gardulf A. The health-related quality of life of patients suffering from the late effects of polio (post-polio). J Adv Nurs 2000; 32: 164-173.
9. Kemp BJ, Krause JS. Depression and life satisfaction among people ageing with post-polio and spinal cord injury. Disabil Rehabil 1999; 1:241-249. (Pubitemid 29248605)
10. Larsson Lund M, Lexell J. Relationship between participation in life situations and life satisfaction in persons with late effects of polio. Disabil Rehabil 2009; 31: 1592-1597.
11. Wenneberg S, Ahlstrom G. Illness narratives of persons with postpolio syndrome. J Adv Nurs 2000; 31: 354-361.
12. Jonsson AL, Moller A, Grimby G. Managing occupations in everyday life to achieve adaptation. Am J Occup Ther 1999; 53: 353-362.
13. Thoren-Jonsson AL. Coming to terms with the shift in one's capabilities: a study of the adaptive process in persons with poliomyelitis sequelae. Disabil Rehabil 2001; 23: 341-351.
14. Gawne C, Halstead L. Post-polio syndrome: pathophysiology and clinical management. Crit Rev Phys Rehabil Med 1995; 7: 147-188.
15. Grimby G, Einarsson G. Post-polio management. Crit Rev Phys Rehabil Med 1991; 2: 189-200.
16. Farbu E, Gilhus NE, Barnes MP, Borg K, de Visser M, Driessen A, et al. EFNS guideline on diagnosis and management of postpolio syndrome. Report of an EFNS task force. Eur J Neurol 2006;13:795-801. (Pubitemid 44124674)
17. Davidson AC, Auyeung V, Luff R, Holland M, HodgkissA, Weinman J. Prolonged benefit in post-polio syndrome from comprehensive rehabilitation: a pilot study. Disabil Rehabil 2008; 21: 1-9.
18. Cooper H, Booth K, Fear S, Gill G. Chronic disease patient education: lessons from meta-analyses. Patient Educ Couns 2001; 44: 107-117. (Pubitemid 32677954)
19. Patton MQ. Qualitative evaluation and research methods. 3rd edn. London: Sage; 2002.
20. World Health Organization (WHO). The International Classification of Functioning, Disability and Health- ICF. Geneva: WHO; 2001.
21. Kvale S. Den kvalitatva forskningsintervjun [InterViews]. Lund: Studentlitteratur; 1997.
22. Strauss A, Corbin J. Basics of qualitative research. Techniques and procedures for developing grounded theory. 2nd edn. Thousand Oaks: Sage; 1998.
23. Ashe B, Taylor M, Dubouloz CJ. The process of change: listening to transformation in meaning perspectives of adults in arthritis health education groups. Can J Occup Ther 2005; 72: 280-288. (Pubitemid 41810467)
24. Gustafsson M, Ekholm J, Ohman A. From shame to respect: musculoskeletal pain patients' experience of a rehabilitation programme, a qualitative study. J Rehabil Med 2004; 36: 97-103. (Pubitemid 38659947)
25. Mandelbaum DG. The study of life history: Gandhi. Curr Anthropol 1973; 14: 177-206.
26. Hur MH. Empowerment in terras of theoretical perspectives: exploring typology of the process and components across disciplines. J Com Psych 2006; 34: 523-540.
27. Rodwell M. An analysis of the concept of empowerment. J Adv Nurs 1996; 23: 305-313.
28. Larsson Lund M, Tamm M. How a group of disabled persons experience rehabilitation over a period of time. Scand J Occup Ther 2001; 8: 96-104. (Pubitemid 32611415)
29. Kearney MH, O'Sullivan J. Identity shifts as turning points in health behavior change. West J Nurs Res 2003; 25: 134-152. 30. Thoren-Jonsson AL, Möller A. How the conception of occupational self influences every day life strategies of people with poliomyelitis sequelae. Scand J Occup Ther. 1999; 6: 71-83. (Pubitemid 38543388)
30. Kielhofner G. Model of human occupation. Theory and application. 4th edn. Philadelphia: Lippincott Williams & Wilkins; 2007.
31. Clark F, Sanders K, Carlson M, Blanche E, Jackson J. Synthesis of habit theory. OTJR: Occup Particip Health 2007; 27: 7S-23S.
32. Hum J, Kneebone I, Cropley M. Goal setting as an outcome measure: a systematic review. Clin Rehabil 2006; 20: 756-772. (Pubitemid 46940501)
33. Levack WM, Taylor K, Siegert RJ, Dean SG, McPherson KM, Weatherall M. Is goal planning in rehabilitation effective? A systematic review. Clin Rehabil 2006; 20: 739-755. (Pubitemid 46940500)
34. Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park: Sage; 1985.