Perceived participation in life situations in persons with late effects of polio

Journal of Rehabilitation Medicine

Volumn 40, Issue 8, 2008, Pages 659-664

  Lund, Maria Larsson ^a   Lexell, Jan ^b,c,d  

^a UMEÅ UNIVERSITY   (Sweden)

^b LUND UNIVERSITY HOSPITAL   (Sweden)

^c LUND UNIVERSITY   (Sweden)

^d LULEÅ UNIVERSITY OF TECHNOLOGY   (Sweden)

Author keywords

Activities of daily living; Disability evaluation; Disabled persons; Personal autonomy; Postpoliomyelitis syndrome; Rehabilitation; Social environment

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CORRELATION ANALYSIS; EDUCATIONAL STATUS; EMPLOYABILITY; FAMILY LIFE; FEMALE; HEALTH PROGRAM; HUMAN; LIFE EVENT; LIFE STRESS; MAJOR CLINICAL STUDY; MALE; PATIENT PARTICIPATION; PERSONAL EXPERIENCE; POLIOMYELITIS; QUESTIONNAIRE; REHABILITATION CARE; SOCIAL INTERACTION; SOCIAL LIFE;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; AGED, 80 AND OVER; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; DISABLED PERSONS; FEMALE; HUMANS; MALE; MIDDLE AGED; PERSONAL AUTONOMY; POSTPOLIOMYELITIS SYNDROME; QUESTIONNAIRES; SOCIAL ENVIRONMENT; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS;

EID: 53349096197     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0237     Document Type: Article

References (31)

1. World Health Organization. The International Classification of Functioning, Disability and Health - ICF. Geneva: WHO; 200 1.
2. Cardol M, de Jong BA, Ward CD. On autonomy and participation in rehabilitation. Disabil Rehabil 2002; 24: 970-974.
3. Grimby G. On autonomy and participation in rehabilitation. Disabil Rehabil 2002; 24: 975-976.
4. Hemmingsson H, Jonsson H. An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health - some critical remarks. Am J Occup Ther 2005; 59: 569-576.
5. Stucki G, Cieza A, Melvin J. The international classification of functioning, disability and health (ICF): a unifying model for the conceptual description of the rehabilitation strategy. J Rehabil Med 2007;39:279-285.
6. Cardol M, de Jong BA. Impact op Participatie en Autonomic (IPA). Handleiding en vragenlijst [Impact op Participatie en Autonomie (IPA). Manual and questionnaire]. Amsterdam: Afdeling Revalidatie, Academisch Medisch Centrum; 2001 (in Dutch).
7. Cardol M, de Jong BA, van den Bos GA, Beelen A, de Groot IJ, de Haan RJ. Beyond disability: perceived participation in people with a chronic disabling condition. Clin Rehabil 2002; 16: 27-35.
8. Cardol M, de Haan RJ, de Jong BA, van den Bos GA, de Groot IJ. Psychometric properties of the Impact on Participation and Autonomy Questionnaire. Arch Phys Med Rehabil 2001; 82: 210-216.
9. Larsson Lund M, Nordlund A, Nygard L, Lexell J, Bernspling B. Perceptions of participation and predictors of perceived problems with participation in persons with spinal cord injury. J Rehabil Med 2005; 37: 3-8.
10. Land ML, Fisher AG, Lexell J, Bernspång B. Impact on participation and autonomy questionnaire: internal scale validity of the Swedish version for use in people with spinal cord injury. J Rehabil Med 2007; 39: 156-162.
11. Sibley A, Kersten P, Ward CD, White B, Mehta R, George S. Measuring autonomy in disabled people: validation of a new scale in a UK population. Clin Rehabil 2006; 20: 793-803.
12. Trojan DA, Cashman NR. Post-poliomyelitis syndrome. Muscle Nerve 2005; 31: 6-19.
13. Farbu E, Gilhus NE, Barnes MP, Borg K, de Visser M, Driessen A, et al. EFNS guideline on diagnosis and management of post-polio syndrome. Report of an EFNS task force. Eur J Neurol 2006; 13: 795-801.
14. Halstead LS, Gawne AC, Pham BT. National rehabilitation hospital limb classification for exercise, research, and clinical trials in post-polio patients. Ann N Y Acad Sci 1995; 753: 343-353.
15. Farbu E, Rekand T, Gilhus NE. Post-polio syndrome and total health status in a prospective hospital study. Eur J Neurol 2003; 10:407-413.
16. Burger H, Marincek C. The influence of post-polio syndrome on independence and life satisfaction. Disabil Rehabil 2000; 22: 318-322.
17. Nätterlund B, Ahlström G. Problem-focused coping and satisfaction with activities of daily living in individuals with muscular dystrophy and postpolio syndrome. Scand J Caring Sci 1999; 13: 26-32.
18. Thoren-Jönsson AL, Grimby G. Ability and perceived difficulty in daily activities in people with poliomyelitis sequelae. J Rehabil Med 200 1; 33: 4-11.
19. Willen C, Thoren-Jönsson AL, Grimby G, Sunnerhagen KS. Disability in a 4-year follow-up study of people with post-polio syndrome. J Rehabil Med 2007; 39: 175-180.
20. Lehmann K, Sunnerhagen KS, Willen C. Postural control in persons with late effects of polio. Acta Neurol Scand 2006; 113: 55-61.
21. Sorenson EJ, Daube JR, Windebank AJ, A 15-year follow-up of neuromuscular function in patients with prior poliomyelitis. Neurology 2005; 64: 1070-1072.
22. Stanghelle JK, Festvag LV. Postpoliosyndrome: a 5 year follow-up. Spinal Cord 1997; 35: 503-508.
23. Cardol M, Beelen A, van den Bos GA, de Jong BA, de Groot I, de Haan RJ. Responsiveness of the impact on participation and autonomy questionnaire]. Arch Phys Med Rehabil 2002; 83: 1524-1529.
24. Cardol M, de Haan RJ, van den Bos GA, de Jong BA, de Groot IJ. The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA). Clin Rehabil 1999; 13:411-419.
25. Isaksson G, Josephsson S, Lexell J, Skar L. To regain participation in occupations through human encounters - narratives from women with spinal cord injury. Disabil Rehabil 2007; 23: 1-10.
26. Isaksson G, Lexell J, Skar L. Social support provides motivation and ability to participate in occupation. OTJR: Occupation Participation Health 2007; 27: 23-30.
27. Isaksson G, Skar L, Lexell J. Women's perception of changes in the social network after a spinal cord injury. Disabil Rehabil 2005; 27:1013-1021.
28. Larsson Lund M, Nygård L. Occupational life in the home environment: the experiences of people with disabilities. Can J Occup Ther 2004;71:243-251.
29. Nyman A, Larsson Lund M. Influences of the social environment on engagement in occupations: the experience of persons with rheumatoid arthritis. Scand J Occup Ther 2007; 14: 63-72.
30. Häggström A, Larsson Lund A The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury. J Rehabil Med 2008; 40: 89-95.
31. Kersten P, Cardol M, George S, Ward C, Sibley A, White B. Validity of the impact on participation and autonomy questionnaire: a comparison between two countries. Disabil Rehabil 2007-1 29: 1502-1509.