The study circle as a tool in multiple sclerosis patient education in Sweden

Patient Preference and Adherence

Volumn 2, Issue , 2008, Pages 225-232

  Landtblom, Anne Marie ^a,b   Lang, Cecilia ^a   Flensner, Gullvi ^b,c  

^a Motala General Hospital   (Sweden)

^b LINKÖPING UNIVERSITY   (Sweden)

^c UNIVERSITY WEST   (Sweden)

Author keywords

Health care; Multiple sclerosis; Patient education; Pedagogy; Qualitative research; Self care

Indexed keywords

EID: 77953722429     PISSN: None     EISSN: 1177889X     Source Type: Journal    
DOI: 10.2147/PPA.S3315     Document Type: Article

References (32)

1. Baker L.M. 1998. Sense making in multiple sclerosis: the information needs of people during an acute exacerbation. Qual Health Res, 1:106-20.
2. Box V., Hepworth M, Harrison J. 2003. Identifying information needs of people with multiple sclerosis. Nurs Times, 49:32-6.
3. Chang E. C, D'Zurilla TJ, Sanna LJ. 2004. Social problem solving. Theory, research and training. Washington: American Psychological Association, pp. 11-7, 182-6.
4. Dahle L. O, Brynhildsen J, Behrbom Fallsberg M, et al. 2002. Pros and cons of vertical integration between clinical and basic science within a problem-based undergraduate medical curriculum: examples and experiences from Linköping, Sweden. Med Teach, 24:280-5.
5. Embrey N. 2005. Self-management education in multiple sclerosis. Nurs Times, 34:34-6.
6. Finlayson M. 2005. Pilot study of an energy conservation education program delivered by telephone conference call to people with multiple sclerosis. Neurorehabilitation, 20:267-77.
7. Ford H. L, Gerry E, Tennant A, et al. 2001. Developing a disease specific quality of life measure for people with multiple sclerosis. Clin Rehabil, 3:247-58.
8. Freire P. 1970. Pedagogy of the oppressed. New York: Herder and Herder.
9. Graneheim U. H, Lundman B. 2004. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today, 24:105-12.
10. Grytten N., Måseide P. 2006. "When I am together with them I feel more ill". The stigma of mutiple sclerosis experienced in social relationships. Chronic Illness, 2:195-208.
11. Hatzakis M., Haselkorn J, Williams R, et al. 2003. Telemedicine and the delivery of health services to veterans with multiple sclerosis. J Rehabil Res Dev, 3:265-82.
12. Heesen C., Kasper J, Segal J, et al. 2004. Decisional role preferences, risk knowledge and information interests in patients with multiple sclerosis. Mult Scler, 10:643-50.
13. Hopen L., Vifladt E. 2004. [Helsepedagogikk-Samhandling om laering og mestring.] Health pedagogic. Oslo: Nasjonalt kompetansesenter for laering og mestring ved kronisk sykdom, University Hospital of Aker.
14. Hutchings D. 1999. Partnership in education: an example of client and educator collaboration. J Contin Educ Nurs, 3:128-31.
15. Landtblom A. M, Hallqvist J, Pettersson S-Å. 1992. The study circle as an instrument for primary prevention-a pioneer project with a focus on the collaboration between reserachers and study associations [abstract]. The Swedish Congress of Common Health and Social Medicine, Linköping University, June 1992.
16. Landtblom A. M, Flensner G, Callander M, et al. 2004. The Swedish MS registry points out an important clinical problem: physical and psychological fatigue is a main symptom in multiple sclerosis. Lakartidningen, 44:3456-7.
17. Landtblom A. M, Ekbladh B. 2005. [Att leva med MS] Living with MS. Stockholm: ABF, Bilda Förlag.
18. Landtblom A. M, Stawiarz L, Ahlgren C, et al. 2007. The national Swedish MS register detects an unexpectedly high prevalence in Sweden. Abstract ECTRIMS P352. Mult Scler, 13:S104.
19. Lorig K., Fries JF. 1986. The arthritis helpbook. A tested self-management program for coping with your arthritis. New York: Addison-Wesley Publishing Comp Inc.
20. MacLean R, Russel A. 2005. Innovative ways of responding to the information needs of people with MS. Br J Nurs, 14:754-7.
21. Mills N., Allen J. 2000. Mindfulness of movement as a coping strategy in multiple sclerosis. A pilot study. Gen Hosp Psychiatry, 6:425-31.
22. Mohr D. C, Burke H, Beckner V, et al. 2005. A preliminary report on a skills-based telephone-administered peer support programme for patients with multiple sclerosis. Mult Scler, 2:222-6.
23. Mutch K. 2005. Information for young people when multiple sclerosis enters the family. Br J Nurs, 14:758-67.
24. Nezu A. M, Nezu CM, Friedman SH, et al. 1998. A problem solving approach. Helping cancer patients cope. Washington: American Psychological Association, pp. 14-28, 157-68.
25. Nortvedt M. W, Riise T, Myhr KM, et al. 1999. Quality of life in multiple sclerosis: measuring the disease effects more broadly. Neurology, 5:1098-103.
26. Nortvedt M. W, Riise T, Myhr KM, et al. 2001a. Quality of life as a predictor for change in disability in MS. Neurology, 1:51-4
27. Nortvedt M. W, Riise T, Myhr KM, et al. 2001b. Reduced quality of life among multiple sclerosis patients with sexual disturbance and bladder dysfunction. Mult Scler, 4:231-5.
28. Prunty M. C, Sharpe L, Butow P, et al. 2008. The motherhood choice: A decision aid for women with multiple sclerosis. Patient Educ Couns, 71:108-15.
29. Rieckmann P. 2004. Improving MS patient care. J Neurol, 251(Suppl 5): v69-v73.
30. Strombeck R. 1991. The Swedish study circle-possibilities for application to health education in the United States. Health Educ Res, 1:7-17.
31. Thorne S. E, Harris SR, Mahoney K, et al. 2004. The context of health care communication in chronic illness. Patient Educ Couns, 3:299-306.
32. Toohey S. 1999. Designing courses for higher education. Buckingham: Open University Press.