A self-management program for low vision: Program overview and pilot evaluation

Disability and Rehabilitation

Volumn 32, Issue 10, 2010, Pages 808-815

  Rees, Gwyneth ^a   Keeffe, Jill E ^a   Hassell, Jennifer ^a   Larizza, Melanie ^a   Lamoureux, Ecosse ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Quality of life; Self management program; Vision impairment

Indexed keywords

ARTICLE; HEALTH CARE QUALITY; HUMAN; MIDDLE AGED; PILOT STUDY; QUALITY OF LIFE; SELF CARE; VISUAL DISORDER;

HUMANS; MIDDLE AGED; PILOT PROJECTS; PROGRAM EVALUATION; QUALITY OF LIFE; SELF CARE; VISION, LOW;

EID: 77953242572     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638280903304193     Document Type: Review

References (45)

1. Taylor HR, Keeffe JE, Vu HT, Wang JJ, Rochtchina E, Pezzullo ML, Mitchell P. Vision loss in Australia. Med J Aust 2005;182:565-568. (Pubitemid 40823474)
2. Burmedi D, Becker S, Heyl V, Wahl H, Himmelsbach I. Emotional and social consequences of age-related low vision. Vis Impair Res 2002;4:47-71.
3. Heyl V, Wahl HW. Psychosocial adaptation to age-related vision loss: A six-year perspective. J Visual Impair Blind 2001;95:739-748. (Pubitemid 34016604)
4. Lamoureux EL, Hassell JB, Keeffe JE. The determinants of participation in activities of daily living in people with impaired vision. Am J Ophthalmol 2004;137:265-270. (Pubitemid 38220998)
5. Lamoureux EL, Pallant JF, Pesudovs K, Rees G, Hassell JB, Keeffe J. The effectiveness of low-vision rehabilitation on participation in daily living and quality of life. Invest Ophthalmol Visual Sci 2007;48:1476-1482. (Pubitemid 351261328)
6. Hinds A, Sinclair A, Park J, Suttie A, Paterson H, Macdonald M. Impact of an interdisciplinary low vision service on the quality of life of low vision patients. Br J Ophthalmol 2003;87:1391-1396. (Pubitemid 37452566)
7. Reeves BC, Harper RA, Russell WB. Enhanced low vision rehabilitation for people with age related macular degeneration: A randomised controlled trial. Br J Ophthalmol 2004;88: 1443-1449. (Pubitemid 39424728)
8. Lorig K. Self-management of chronic illness: A model for the future. Generations 1993:11-14.
9. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Selfmanagement approaches for people with chronic conditions: A review. Patient Educ Couns 2002;48:177-187. (Pubitemid 36158880)
10. Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet 2004;364:1523-1537. (Pubitemid 39410420)
11. Warsi A, Wang PS, LaValley MP, Avorn J, Solomon DH. Self-management education programs in chronic disease. A systematic review and methodological critique of the literature. Arch Intern Med 2004;164:1641-1649. (Pubitemid 39037943)
12. Brody BL, Roch-Levecq AC, Gamst AC, Maclean K, Kaplan RM, Brown SI. Self-management of age-related macular degeneration and quality of life: A randomized controlled trial. Arch Ophthalmol 2002;120:1477-1483. (Pubitemid 36406422)
13. Brody BL, Williams RA, Thomas RG, Kaplan RM, Chu RM, Brown SI. Age-related macular degeneration: A randomized clinical trial of a self-management intervention. Ann Behav Med 1999;21:322-329. (Pubitemid 30149376)
14. Brody BL, Roch-Levecq AC, Thomas RG, Kaplan RM, Brown SI. Self-management of age-related macular degeneration at the 6-month follow-up: A randomized controlled trial. Arch Ophthalmol 2005;123:46-53. (Pubitemid 40105428)
15. Eklund K, Sonn U, Dahlin-Ivanoff S. Long-term evaluation of a health education programme for elderly persons with visual impairment. A randomized study. Disabil Rehabil 2004;26:401-409. (Pubitemid 38607710)
16. Dahlin-Ivanoff S, Klepp KI, Sjostrand J. Development of a health education programme for elderly with age-related macular degeneration: A focus group study. Patient Educ Couns 1998;34:63-73. (Pubitemid 28238502)
17. Birk T, Hickl S, Wahl HW, Miller D, Kammerer A, Holz F, Becker S, Volcker HE. Development and pilot evaluation of a psychosocial intervention program for patients with agerelated macular degeneration. Gerontologist 2004;44:836-843. (Pubitemid 39658460)
18. Taylor HR, Keeffe JE, Vu HT, Wang JJ, Rochtchina E, Pezzullo ML, Mitchell P. Vision loss in Australia. Med J Aust 2005;182:565-568. (Pubitemid 40823474)
19. Rees G, Saw CL, Lamoureux EL, Keeffe JE. Self-management programs for adults with low vision: Needs and challenges. Patient Educ Couns 2007;69:39-46. (Pubitemid 350051672)
20. Lorig K, Ritter PL, Plant K. A disease-specific self-help program compared with a generalized chronic disease selfhelp program for arthritis patients. Arthritis Rheum-Arthritis Care Res 2005;53:950-957. (Pubitemid 41811137)
21. Abraham C, Michie S. A taxonomy of behavior change techniques used in interventions. Health Psychol 2008;27: 379-387. (Pubitemid 352033748)
22. Burmedi D, Becker S, Heyl V, Wahl H, Himmelsbach I. Behavioral consequences of age-related low vision: A narrative review. Vision Impair Res 2002;4:15-45.
23. Stelmack J. Quality of life of low-vision patients and outcomes of low-vision rehabilitation. Optom Vis Sci 2001;78:335-342. (Pubitemid 32493436)
24. Weih LM, Hassell JB, Keeffe J. Assessment of the impact of vision impairment. Invest Ophthalmol Visual Sci 2002;43: 927-935. (Pubitemid 34258257)
25. Rees G, Saw CL, Larizza M, Lamoureux EL, Keeffe J. Should family and friends be involved in group-based rehabilitation programs for older adults with low vision? Br J Vis Impair 2007;25:155-168.
26. Bandura A. Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, NJ: Prentice-Hall, Inc.; 1986.
27. Larner S. Common psychological challenges for patients with newly acquired disability. Nurs Stand 2005;19:33-39.
28. Moos R. (Ed.). Coping with physical illness. Volume 2: New perspectives. New York: Plenum; 1984.
29. Gladding S. Group work: A counseling speciality. Upper Saddle Rive, NJ: Merrill; 1999.
30. Dobson K, editor. Handbook of cognitive-behavioural therapies. London: Hutchinson; 1988.
31. Brooke P, Bullock R. Validation of a 6 item cognitive impairment test with a view to primary care usage. Intern J Geriatr Psychiatry 1999;14:936-940.
32. Cimarolli VR, Boerner K, Wang SW. Life goals in vision rehabilitation: Are they addressed and how? J Vis Impair Blind 2006;100:343-352. (Pubitemid 44406223)
33. Teitelman J, Copolillo A. Psychosocial issues in older adults' adjustment to vision loss: Findings from qualitative interviews and focus groups. Am J Occup Ther 2005;59:409-417. (Pubitemid 41306004)
34. Owsley C, McGwin G, Scilley K, Dreer LE, Bray CR, Mason JO. Focus groups with persons who have age-related macular degeneration: Emotional issues. Rehabil Psychol 2006; 51:23-29.
35. Horowitz A. The prevalence and consequences of vision impairment in later life. Topics in Geriatric Rehabil 2004; 20:185-195. (Pubitemid 39095745)
36. Evans JR, Fletcher AE, Wormald RP. Depression and anxiety in visually impaired older people. Ophthalmology 2007;114: 283-288. (Pubitemid 46161812)
37. Rovner BW, Casten RJ, Hegel MT, Leiby BE, Tasman WS. Preventing depression in age-related macular degeneration. Arch General Psychiatry 2007;64:886-892. (Pubitemid 47230612)
38. Rovner BW, Casten RJ. Activity loss and depression in agerelated macular degeneration. Am J Geriatric Psychiatry 2002;10:305-310. (Pubitemid 34517685)
39. Agency for Healthcare Research and Quality (AHRQ). Vision rehabiliation for elderly individuals with low vision or blindness. AHRQ Technology Assessment; 2004.
40. Langelaan M, Van Nispen RMA, van Rens GHMB. Unpublished PhD thesis: Quality of life of visually impaired working age adults. Chapter 4. Rehabilitation for visually impaired adults: A systematic review. VU University Medical Centre; 2007. pp 64-105.
41. Lamoureux EL, Pallant JF, Pesudovs K, Rees G, Hassell JB, Keeffe JE. The impact of vision impairment questionnaire: An assessment of its domain structure using confirmatory factor analysis and rasch analysis. Invest Ophthalmol Vis Sci 2007;48:1001-1006. (Pubitemid 351261389)
42. Norquist JM, Fitzpatrick R, Dawson J, Jenkinson C. Comparing alternative Rasch-based methods vs. raw scores in measuring change in health. Med Care 2004;42(Suppl 1): I25-I36.
43. Garamendi E, Pesudovs K, Stevens MJ, Elliott DB. The refractive status and vision profile: Evaluation of psychometric properties and comparison of Rasch and summated Likertscaling. Vis Res 2006;46:1375-1383. (Pubitemid 43075312)
44. Pesudovs K. Patient-centred measurement in ophthalmology-a paradigm shift. BMC Ophthalmol 2006;6:25.
45. Pesudovs K, Garamendi E, Elliott DB. The quality of life impact of refractive correction (QIRC) questionnaire: Development and validation. Optometry Vis Sci 2004;81:769-777. (Pubitemid 39363472)