Using the Illness Intrusiveness Ratings Scale to understand health-related quality of life in chronic disease

Journal of Psychosomatic Research

Volumn 68, Issue 6, 2010, Pages 591-602

  Devins, Gerald M ^a  

^a UNIVERSITY OF TORONTO   (Canada)

Author keywords

Health related quality of life; Illness intrusiveness; Measurement; Psychometrics; Quality of life; Rating scales

Indexed keywords

CHRONIC DISEASE; CLINICAL ASSESSMENT TOOL; HUMAN; ILLNESS INTRUSIVENESS RATING SCALE; INTERNAL CONSISTENCY; LIFESTYLE; MENTAL PATIENT; PHYSICAL ACTIVITY; PSYCHOMETRY; QUALITY OF LIFE; RATING SCALE; RELIABILITY; REVIEW; SCORING SYSTEM; SELF REPORT; SOCIAL PSYCHOLOGY; TEST RETEST RELIABILITY; VALIDITY;

ACTIVITIES OF DAILY LIVING; CHRONIC DISEASE; DISABILITY EVALUATION; FEMALE; HUMANS; ILLNESS BEHAVIOR; MALE; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SICKNESS IMPACT PROFILE;

EID: 77952955165     PISSN: 00223999     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpsychores.2009.05.006     Document Type: Review

References (112)

1. Andrews FM, Withey SB Social indicators of well-being: Americans' perceptions of life quality 1976, Plenum, New York.
2. Campbell A, Converse PE, Rodgers WL The quality of American life: perceptions, evaluations, and satisfactions 1976, Russell Sage, New York.
3. Cameron P, Titus DG, Kostin J, Kostin M The life satisfaction of nonnormal persons. J Consult Clin Psychol 1973, 41:207-214.
4. Cummins RA Objective and subjective quality of life: an interactive model. Soc Indic Res 2000, 52:55-72.
5. Abram HS, Moore GL, Westervelt FB Suicidal behavior in chronic dialysis patients. Am J Psychiatry 1971, 127:1199-1204.
6. Hong BA, Smith MD, Robson AM, Wetzel RD Depressive symptomatology and treatment in patients with end-stage renal disease. Psychol Med 1987, 17:185-190.
7. Katz MR, Kopek N, Waldron J, Devins GM, Tomlinson G Screening for depression in head and neck cancer. Psychooncology 2004, 13:269-280.
8. Green BL, Krupnick JL, Rowland JH, Epstein SA, Stockton P, Spertus I, et al. Trauma history as a predictor of psychologic symptoms in women with breast cancer. J Clin Oncol 2000, 18:1084-1093.
9. Karnell LH, Funk GF, Christensen AJ, Rosenthal EL, Magnuson JS Persistent posttreatment depressive symptoms in patients with head and neck cancer. Head Neck 2006, 28:453-461.
10. Coyne JC, Pepper CM, Flynn H Significance of prior episodes of depression in two patient populations. J Consult Clin Psychol 1999, 67:76-81.
11. Massie MJ, Holland JC Depression and the cancer patient. J Clin Psychiatry 1990, 51(7, suppl):12-17.
12. Feinstein AR Clinimetrics 1987, Yale University Press, New Haven (Conn).
13. Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez N, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Nat Cancer Inst 1993, 85:365-376.
14. Cella DF. Manual of the Functional Assessment of Chronic Illness Therapy (FACIT) Scales (Version 4). Evanston (Ill): Centre on Outcomes, Research and Education (CORE), Evanston: Northwestern Healthcare and Northwestern University, 1997.
15. Parfrey PS, Vavasour H, Bullock M, Henry S, Harnett JD, Gault MH Development of a health questionnaire specific for end-stage renal disease. Nephron 1989, 52:20-28.
16. Tsevat J Methods for assessing health-related quality of life in HIV-infected patients. Psychol Health 1994, 9:19-30.
17. Vickrey BG, Hays RD, Genovese BJ, Myers LW, Ellison GW Comparison of a generic to disease-targeted health-related quality-of-life measures for multiple sclerosis. J Clin Epidemiol 1997, 50:557-569.
18. Ware JE, Snow KK, Kosinski M, Gandek B SF-36 Health survey manual and interpretation guide 1993, The Health Institute, New England Medical Center, Boston.
19. Hassan SJ, Weymuller EA Assessment of quality of life in head and neck cancer patients. Head Neck 1993, 15:496.
20. Devins GM Illness intrusiveness and the psychosocial impact of lifestyle disruptions in chronic life-threatening disease. Adv Ren Replace Ther 1994, 1:251-263.
21. Devins GM, Seland TP, Klein GM, Edworthy SM, Saary MJ Stability and determinants of psychosocial well-being in multiple sclerosis. Rehabil Psychol 1993, 38:11-26.
22. Dancey CP, Hutton-Young SA, Moye S, Devins GM Perceived stigma, illness intrusiveness and quality of life in men and women with irritable bowel syndrome. Psychol Health Med 2002, 7:381-395.
23. Franche RL, Abbey S, Irvine J, Shnek ZM, Grace SL, Devins GM, et al. Sex differences in predictors of illness intrusiveness one year after a cardiac event. J Psychosom Res 2004, 56:125-132.
24. Devins GM, Stam HJ, Koopmans JP Psychosocial impact of laryngectomy mediated by perceived stigma and illness intrusiveness. Can J Psychiatry 1994, 39:608-616.
25. Devins GM, Edworthy SM, Guthrie NG, Martin L Illness intrusiveness in rheumatoid arthritis: differential impact on depressive symptoms over the adult lifespan. J Rheumatol 1992, 19:709-715.
26. Devins GM, Styra R, O'Connor P, Gray T, Seland TP, Klein GM, et al. Psychosocial impact of illness intrusiveness moderated by age in multiple sclerosis. Psychol Health Med 1996, 1:179-191.
27. Devins GM, Beanlands H, Mandin H, Paul LC Psychosocial impact of illness intrusiveness moderated by self-concept and age in end-stage renal disease. Health Psychol 1997, 16:529-538.
28. Devins GM, Gupta A, Cameron JI, Woodend K, Mah K, Gladman D Cultural syndromes and age moderate the emotional impact of illness intrusiveness in rheumatoid arthritis. Rehabil Psychol 2009, 54:33-44.
29. Billings AG, Moos RH Psychosocial theory and research on depression: an integrative framework and review. Clin Psychol Rev 1982, 2:213-237.
30. Haan N Coping and defending: processes of self-environment organization 1977, Academic Press, New York.
31. Jemmott JB, Locke SE Psychosocial factors, immunologic mediation, and human susceptibility to infectious diseases: how much do we know?. Psychol Bull 1984, 95:78-108.
32. Kessler RC The effects of stressful life events on depression. Ann Rev Psychol 1997, 48:191-214.
33. Lazarus RS, Folkman S Stress, appraisal, and coping 1984, Springer, New York.
34. Pearlin LI, Menaghan EG, Lieberman MA, Mullan JT The stress process. J Health Soc Behav 1981, 22:337-356.
35. Pearlin LI, Schooler C The structure of coping. J Health Soc Behav 1978, 19:2-21.
36. Thoits PA Stress, coping, and social support: where are we? What next?. J Health Soc Behav 1995, (Extra Issue):53-79.
37. Cina CS, Clase CM The illness intrusiveness rating scale: a measure of severity in individuals with hyperhidrosis. Qual Life Res 1999, 8:693-698.
38. Binik YM, Chowanec GD, Devins GM Marital role strain, illness intrusiveness, and their impact on marital and individual adjustment in end-stage renal disease. Psychol Health 1990, 4:245-257.
39. Devins GM Enhancing personal control and minimizing illness intrusiveness. Maximizing rehabilitation in chronic renal disease 1989, 109-136. PMA, New York. N.G. Kutner, D.D. Cardenas, J.D. Bower (Eds.).
40. Devins GM, Mandin H, Hons RB, Burgess ED, Klassen J, Taub K, et al. Illness intrusiveness and quality of life in end-stage renal disease: comparison and stability across treatment modalities. Health Psychol 1990, 9:117-142.
41. Devins GM, Edworthy SM Illness intrusiveness explains race-related quality-of-life differences among women with systemic lupus erythematosus. Lupus 2000, 9:534-541. ARAMIS Lupus State Models Research Group.
42. Devins GM, Styra R, Gray T, O'Connor P, Jacobson M, Shapiro CM Nature and psychosocial impact of fatigue in multiple sclerosis (abstract). Psychosom Med 1994, 56:161-162.
43. Devins GM, Armstrong SJ, Mandin H, Paul LC, Hons RB, Burgess ED, et al. Recurrent pain, illness intrusiveness, and quality of life in end-stage renal disease. Pain 1990, 42:279-285.
44. Devins GM, Edworthy SM, Paul LC, Mandin H, Seland TP, Klein GM, et al. Restless sleep, illness intrusiveness, and depressive symptoms in three chronic illness conditions: rheumatoid arthritis, end-stage renal disease, and multiple sclerosis. J Psychosom Res 1992, 37:163-170.
45. Devins GM, Binik YM, Hutchinson TA, Hollomby DJ, Barre PE, Guttmann RD The emotional impact of end-stage renal disease: importance of patients' perceptions of intrusiveness and control. Int J Psychiatry Med 1983, 13:327-343.
46. Edworthy SM, Domazet N, Talavera R, Devins GM Illness intrusiveness: an intervening factor between symptoms and quality of life in patients with systemic lupus erythematosus. Arthritis Rheum 1998, 41:S221.
47. Huterer N, Driver HS, Devins GM, Sherman M, Kayumov L, Shapiro CM Subjective measurements of fatigue in patients with hepatitis C. Sleep Res Online 1999, 2(supplement):488.
48. Goudsmit EM, Stouten B, Howes S Illness intrusiveness in myalgic encephalomyelitis: an exploratory study. J Health Psychol 2009, 14:215-221.
49. Hogg RS, Craib KJ, Pi D, Lee SS, Minuk GY, Shapiro CM, et al. Health and socioeconomic status differences among antibody hepatitis C positive and negative transfusion recipients: 1986-1990. Can J Public Health 2003, 94:130-134.
50. Hossain J, Ahmad P, Reinish LW, Kayumov L, Hossain NK, Shapiro CM Subjective fatigue and subjective sleepiness: two independent consequences of sleep disorders?. J Sleep Res 2005, 14:245-253.
51. Musci I, Molnar MZ, Rethelyi J, Vamos E, Csepanyi G, Tompa G, et al. Sleep disorders and illness intrusiveness in patients on chronic dialysis. Nephrol Dial Transplant 2004, 19:1815-1822.
52. Bettazzoni M, Zipurski R, Friedland J, Devins GM Quality of life and lifestyle disruption in schizophrenia. J Nerv Ment Dis 2008, 196:798-805.
53. Devins GM Illness intrusiveness and the psychosocial impact of end-stage renal disease. Psychosocial aspects of end-stage renal disease: issues of our times 1991, 83-102. Haworth Press, New York. M.A. Hardy, J. Kiernan, A.H. Kutscher, L. Cahill, A.I. Bevenitsky (Eds.).
54. Poochikian-Sarkissian S, Sidani S, Wennberg RA, Devins GM Psychological impact of illness intrusiveness in epilepsy-comparison of treatments. Psychol Health Med 2008, 13:129-145.
55. Cina CS, Robertson SGW, Young EJM, Cartier B, Clase CM Effect of endoscopic sympathectomy for hyperhidrosis on quality of life using the illness intrusivenes rating scale. Chirugia 2006, 19:23-29.
56. Poochikian-Sarkissian S, Wennberg RA, Sidani S, Devins GM Seizure freedom reduces illness intrusiveness and improves quality of life in epilepsy. Can J Neurol Sci 2008, 35:280-286.
57. Burns JL, Sears SF, Sotile R, Schwartzman DS, Hoyt RH, Alvarez LG, et al. Do patients accept implantable atrial defibrillation therapy? Results from the Patient Atrial Shock Survey of Acceptance and Tolerance (PASSAT) study. J Cardiovasc Electrophysiol 2004, 15:286-291.
58. Zhang AY, Strauss GJ, Siminoff LA Intervention of urinary incontinence and quality of life outcome in prostate cancer patients. J Psychosoc Oncol 2006, 24:17-30.
59. Co J, Jaramillo B, Grimsley S, Jacob EB, Reich L Preliminary findings on the effectiveness of the "healthy living with chronic conditions" workshop in a managed care plan. Manag Care Interface 2009, 17:44-49.
60. Bennett JA, Perrin NA, Hanson G, Bennett D, Gaynor W, Flaherty-Robb M, et al. Healthy aging demonstration project: nurse coaching for behavior change in older adults. Res Nurs Health 2005, 28:187-197.
61. Carter JC, Bewell C, Devins GM Illness intrusiveness in anorexia nervosa. J Psychosom Res 2008, 64:519-526.
62. Coultas D, Frederick J, Barnett B, Singh G, Wludyka P A randomized trial of two types of nurse-assisted home care for patients with COPD. Chest 2005, 128:2017-2024.
63. Depp CA, Stricker JL, Zagorsky D, Goodale LC, Eyler LT, Patterson TL, et al. Disability and self-management practices of people with bipolar disorder: a web-based survey. Community Ment Health J 2009, 45:179-187.
64. Edworthy SM, Dobkin PL, Clarke AE, Da Costa D, Dritsa M, Fortin PR, et al. Group psychotherapy reduces illness intrusiveness in systemic lupus erythematosus. J Rheumatol 2003, 30:1011-1016.
65. Fobair P, Koopman C, DiMiceli S, O'Hanlan K, Butler LD, Classen C, et al. Psychosocial intervention for lesbians with primary breast cancer. Psychooncology 2002, 11:427-438.
66. Lorig KR, Ritter PL, Laurent DD, Plant K Internet-based chronic disease self-management: a randomized trial. Med Care 2006, 44:964-971.
67. Lorig KR, Ritter PL, Dost A, Plant K, Laurent DD, McNeil I The expert patients programme online: a 1-year study of an internet-based self-management programme for people with long-term conditions. Chronic Illn 2008, 4:247-256.
68. Whitney SL, Jacob RG, Sparto PJ, Olshansky EF, Detwiler-Shostak G, Brown EL, et al. Acrophobia and pathological height vertigo: indications for vestibular physical therapy?. Phys Ther 2005, 85:443-458.
69. Bloom JR, Stewart SL, Johnston M, Banks P Intrusiveness of illness and quality of life in young women with breast cancer. Psychooncology 1998, 7:89-100.
70. Binik YM, Devins GM Transplant failure does not compromise quality of life in end-stage renal disease. Int J Psychiatry Med 1986, 16:281-292.
71. Devins GM, Binik YM, Mandin H, Burgess ED, Taub K, Letourneau PK, et al. Denial as a defense against depression in end-stage renal disease: an empirical test. Int J Psychiatry Med 1986, 16:151-162.
72. Poochikian-Sarkissian S, Wennberg RA, Sidani S, Devins GM Quality of life in epilepsy. Can J Neurosci Res 2008, 35:280-286.
73. Carpentier MY, Mullins LL, Van Pelt JC Psychological, academic, and work functioning in college students with childhood-onset asthma. J Asthma 2007, 44:119-124.
74. Coultas DB, Edwards DW, Barnett B, Wludyka P Predictors of depressive symptoms in patients with COPD and health impact. COPD 2007, 4:23-28.
75. Turpin KV, Carroll LJ, Cassidy JD, Hader WJ Deterioration in the health-related quality of life of persons with multiple sclerosis: the possible warning signs. Mult Scler 2007, 13:1038-1045.
76. Wagner JL, Chaney JM, Hommel KA, Page MC, Mullins LL, White MM, et al. The influence of parental distress on child depressive symptoms in juvenile rheumatic diseases: the moderating effect of illness intrusiveness. J Pediatr Psychol 2003, 28:453-462.
77. Binik YM, Devins GM, Orme CM Psychological stress and coping in end-stage renal disease. Advances in the investigation of psychological stress 1989, 305-342. Wiley, New York. R.W.J. Neufeld (Ed.).
78. Devins GM, Cameron JI, Edworthy SM Chronic disabling disease. Cognitive-behavioral interventions for persons with disabilities 2000, 105-140. Jason Aronson, Northvale (NJ). C.L. Radnitz (Ed.).
79. Devins GM, Shnek ZM Multiple sclerosis. Handbook of rehabilitation psychology 2000, 163-184. American Psychological Association, Washington, DC. R.G. Frank, T.R. Elliot (Eds.).
80. Mullins LL, Cote MP, Fuemmeler BF, Jean VM, Beatty WW, Paul RH Illness intrusiveness, uncertainty, and distress in individuals with multiple sclerosis. Rehabil Psychol 2001, 46:139-153.
81. Beanlands HJ, Lipton JH, McCay EA, Schimmer AD, Elliott ME, Messner HA, et al. Self-concept as a "BMT patient", illness intrusiveness, and engulfment in allogeneic bone marrow transplant recipients. J Psychosom Res 2003, 55:419-425.
82. Poochikian-Sarkissian S Illness intrusiveness, quality of life, and self-concept in epilepsy 2005, University of Toronto.
83. Mah K, Bezjak A, Loblaw DA, Gotowiec A, Devins GM. Gender moderates the psychosocial impact of illness intrusiveness in cancer. Unpublished manuscript, 2004.
84. Andrews NR, Chaney JM, Mullins LL, Wagner JL, Hommel KA, Jarvis JN The differential effect of child age on the illness intrusiveness-parent distress relationship in juvenile rheumatic disease. Rehabil Psychol 2009, 54:45-50.
85. Abraido-Lanza AF, Revenson TA Illness intrusion and psychological adjustment to rheumatic diseases: a social identity framework. Arthritis Rheum 2006, 55:224-232.
86. Andrews NR, Chaney JM, Mullins LL, Wagner JL, Hommel KA, Jarvis JN Illness intrusiveness and adjustment among Native American and Caucasian parents of children with juvenile rheumatic diseases. J Pediatr Psychol 2007, 32:1259-1263.
87. Devins GM, Bezjak A, Mah K, Loblaw DA, Gotowiec AP Context moderates illness-induced lifestyle disruptions across life domains: a test of the illness intrusiveness theoretical framework in six common cancers. Psychooncology 2006, 15:221-233.
88. Maunder RG, Greenberg GR, Lancee WJ, Steinhart AH, Silverberg MS The impact of ulcerative colitis is greater in unmarried and young patients. Can J Gastroenterol 2007, 21:715-720.
89. Abraido-Lanza AF Latinas with arthritis: effects of illness, role identity, and competence on psychological well-being. Am J Community Psychol 1997, 25:601-627.
90. Littlefield C, Abbey S, Fiducia D, Cardella C, Greig P, Levy G, et al. Quality of life following transplantation of the heart, liver, and lungs. Gen Hosp Psychiatry 1996, 18:36S-47S.
91. Schimmer AD, Elliott ME, Abbey SE, Raiz L, Keating A, Beanlands HJ, et al. Illness intrusiveness in survivors of autologous bone and marrow transplantation. Cancer 2001, 92:3147-3154.
92. Suh M, Noh S, Devins GM, Kim K, Song J, Cho N, et al. Readjustment and social support of the post hospitalized stroke patients. J Korean Acad Nurs 1999, 29:639-655.
93. Antony MM, Roth D, Swinson RP, Huta V, Devins GM Illness intrusiveness in individuals with panic disorder, obsessive compulsive disorder or social phobia. J Nerv Ment Dis 1998, 186:311-315.
94. Devins GM, Flanigan M, Morehouse R, Moscovitch A, Plamondon J, Reinish L, et al. Differential illness intrusiveness associated with sleep-promoting medications. Eur Psychiatry 1995, 10(Suppl. 3):153s-159s.
95. Robb JC, Cooke RG, Devins GM, Young LT, Joffe RT Quality of life and lifestyle disruption in euthymic bipolar disorder. J Psychiat Res 1997, 31:509-517.
96. Devins GM, Hunsley J, Mandin H, Taub K, Paul LC The marital context of end-stage renal disease: illness intrusiveness and perceived changes in family environment. Ann Behav Med 1997, 19:325-332.
97. Vlaovic PD, Devins GM, Abbey S, Wright E, Robinett MA Psychosocial impact of renal donation. Can J Urol 1999, 6:859-864.
98. Flanagan JC A research approach to improving our quality of life. Am Psychol 1978, 33:138-147.
99. Ritter P, Lorig K, Laurent D, Matthews K Internet versus mailed questionnaires: a randomized comparison. J Med Internet Res 2009, 6:e29.
100. Devins GM, Dion R, Pelletier LG, Shapiro CM, Abbey SE, Raiz L, et al. The structure of lifestyle disruptions in chronic disease: a confirmatory factor analysis of the Illness Intrusiveness Ratings Scale. Med Care 2001, 39:1097-1104.
101. Cronbach LJ, Meehl PE Construct validity in psychological tests. Psychol Bull 1955, 52:281-302.
102. Mah K, Bezjak A, Loblaw DA, Gotowiec A, Devins GM A confirmatory factor analysis of the Illness Intrusiveness Ratings Scale″ in men and women with cancer. Psychooncology 2003, 12:S-355.
103. Bieling PJ, Rowa K, Antony MM, Summerfeldt LJ, Swinson RP Factor structure of the illness intrusiveness rating scale in patients diagnosed with anxiety disorders. J Psychopathol Behav Assess 2001, 23:223-230.
104. Novak M, Mah K, Molnar M, Ambrus C, Csepanyi C, Kovacs A, et al. Factor structure and reliability of the Hungarian translation of the Illness Intrusiveness Ratings Scale: invariance across North American and Hungarian dialysis patients. J Psychosom Res 2008, 58:103-110.
105. Coutu-Wakulczyk G, Woodend K, Devins GM Echelle d'evaluation de l'intrusion de la maladie: contribution a validation de la version francaise [Validation of a French-language version of the Illness Intrusiveness Ratings Scale]. RSI: Recherche en Soins Infermiere 2002, 68:42-49.
106. Kim D, Kim KI, Lee H, Choi J, Park YC Factor structure of the Korean version of illness intrusiveness rating scale: cross-cultural implications. J Korean Med Science 2005, 20:302-306.
107. Edworthy SE. Personal communication. April 7, 1995.
108. Devins GM Culturally informed psychosomatic research. J Psychosom Res 1999, 46:519-524.
109. Flaherty JA, Gaviria FM, Pathak D, Mitchell T, Wintrob R, Richman JA, et al. Developing instruments for cross-cultural psychiatric research. J Nerv Ment Dis 1988, 176:257-263.
110. Devins GM, Binik YM Facilitating coping in chronic physical illness. Handbook of coping 1996, 640-696. Wiley, New York. M. Zeidner, N.S. Endler (Eds.).
111. Devins GM, Otto KJ, Irish JC, Rodin GM Head and neck cancer (in press). Psycho-oncology 2008, Oxford University Press, New York. R. McKorkle (Ed.).
112. Devins GM Psychologically meaningful activity, illness intrusiveness, and quality of life in rheumatic diseases. Arthritis Care Res 2006, 55:172-174.