Variables associated with communicative participation in people with multiple sclerosis: A regression analysis

American Journal of Speech-Language Pathology

Volumn 19, Issue 2, 2010, Pages 143-153

  Baylor, Carolyn ^a   Yorkston, Kathryn ^a   Bamer, Alyssa ^a   Britton, Deanna ^a   Amtmann, Dagmar ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

Author keywords

Communicative participation; Multiple sclerosis; Regression

Indexed keywords

EID: 77952856666     PISSN: 10580360     EISSN: 15589110     Source Type: Journal    
DOI: 10.1044/1058-0360(2009/08-0087)     Document Type: Article

References (47)

1. Andresen, E. M., Malmgren, J. A., Carter, W. B., & Patrick,D. L. (1994). Screening for depression in well older adults:Evaluation of a short form of the CES-D. American Journal of Preventive Medicine, 10(2), 77-84.
2. Baylor, C. R. (2007). Initial psychometric testing of the Communicative Participation Scale using item response theory in a spasmodic dysphonia sample. Unpublished dissertation, Universityof Washington, Seattle.
3. Baylor, C. R., Yorkston, K. M., Eadie, T. L., Miller, R. M., &Amtmann, D. (2009). Developing the Communicative Participation Item Bank: Rasch analysis results from a spasmodic dysphonia sample. Journal of Speech, Language, and Hearing Research, 52, 1302-1320.
4. Bond, T. G., & Fox, C. M. (2001). Applying the Rasch Model:Fundamental measurement in the human sciences. Mahwah, NJ: Erlbaum.
5. Bowen, J., Gibbons, L., Gianas, A., & Kraft, G. H. (2001). Self administered Expanded Disability Status Scale with functional system scores correlates well with a physician administered test. Multiple Sclerosis, 7, 201-206.
6. Bringfelt P.A. Hartelius L. Runmarker B.(2006). Communication problems in multiple sclerosis: 9 year follow up. International Journal of MS Care, 8, 130-140.
7. Brown, M., Dijkers, M. P. J. M., Gordon, W. A., Ashman, T., Charatz, H., & Cheng, Z. (2004). Participation objective, participation subjective: A measure of participation combining outsider and insider perspectives. Journal of Head Trauma Rehabilitation, 19, 459-481.
8. Chapey R. Duchan J.F. Elman R.J. Garcia L.J. Kagan A. Lyon J. Mackie N. S. (2000, February 15). Life participation approach to aphasia: A statement of values for the future. The ASHA Leader, 5(3), pp. 4-6.
9. Cook, K. F., O'Malley, K. J., & Roddey, T. S. (2005). Dynamic assessment of health outcomes: Time to let the CAT out of the bag? Health Services Research, 40, 1694-1711.
10. Cruice, M., Worrall, L., & Hickson, L. (2005). Personal factors, communication and vision predict social participation in older adults. Advances in Speech Language Pathology, 7, 220-232.
11. Eadie, T. L., Yorkston, K. M., Klasner, E. R., Dudgeon, B. J., Deitz, J., Baylor, C. R. Amtmann, D. (2006). Measuring communicative participation: A review of self report instruments in speech language pathology. American Journal of SpeechLanguage Pathology, 15, 307-320.
12. Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. Mahwah, NJ: Erlbaum.
13. Finlayson M. Holberg C.(2007). Evaluationofateleconferencedelivered energy conservation education program for people with multiple sclerosis. Canadian Journal of Occupational Therapy, 74, 337-347.
14. Fisk, J. D.,Ritvo,P. G.,Ross, L.,Haase, D. A.,Marrie,T. J., & Schlech, W. F. (1994). Measuring the functional impact of fatigue: Initial validation of the Fatigue Impact Scale. Clinical Infectious Diseases, 18(Suppl. 1), S79-S83.
15. Fraser, C., & Stark, S. (2003). Cognitive symptoms and correlates of physical disability in individuals with multiple sclerosis. Journal of Neuroscience Nursing, 35, 314-320.
16. Fries J.F. Bruce B. Cella D.(2005). The promise of PROMIS: Using item response theory to improve assessment of patientreported outcomes. Clinical and Experimental Rheumatology, 23(Suppl. 39), S53-S57.
17. Hartelius, L., & Svensson, P. (1994). Speech and swallowing symptoms associated with Parkinson's disease and multiple sclerosis: A survey. Folia Phoniatrica et Logopaedica, 46, 9-17.
18. Hemmingsson, H., & Jonsson, H. (2005). An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health some critical remarks. The American Journal of Occupational Therapy, 59, 569-576.
19. Johnston, M. V., Goverover, Y., & Dijkers, M. (2005). Community activities and individuals' satisfaction with them: Quality of life in the first year after traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 86, 735-745.
20. Joy, J. E., & Johnston, R. B., Jr. (2001). Multiple sclerosis: Current status and strategies for the future. Washington, DC: National Academy Press.
21. Kagan, A., Simmons-Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., McEwen, S. Sharp, S. (2008). Counting what counts: A framework for capturing reallife outcomes of aphasia intervention. Aphasiology, 22(3), 258-280.
22. Kaplan, E., Goodglass, H., & Weintraub, S. (2001). Boston Naming Test. New York, NY: Lippincott Williams & Wilkins.
23. Kurtzke, J. F. (1983). Rating neurologic impairment in multiple sclerosis: An Expanded Disability Status Scale (EDSS).Neurology, 33, 1444-1452.
24. Kurtzke, J. F. (2005). Epidemiology and etiology of multiple scle-rosis. Physical Medicine and Rehabilitation Clinics of NorthAmerica, 16, 327-349.
25. Lublin, F. D., & Reingold, S. C. (1996). Defining the clinical course of multiple sclerosis: Results of an international survey.Neurology, 46, 907-911.
26. Matuska, K., Mathiowetz, V., & Finlayson, M. (2007). Use and perceived effectiveness of energy conservation strategies for managing multiple sclerosis fatigue. American Journal of Occupational Therapy, 61(1), 62-69.
27. Mohr, D.C., Boudewyn,A.C., Goodkin,D.E., Bostrom, A.,& Epstein, L. (2001). Comparative outcomes for individual cognitive-behavior therapy, supportive expressive group psychotherapy, and sertraline for the treatment of depression in multiple sclerosis. Journal of Consulting and Clinical Psychology,69,942-949.
28. Multiple Sclerosis Council for Clinical Practice Guidelines.(1998). Fatigue and multiple sclerosis: Evidence based management strategies for fatigue in multiple sclerosis. RetrievedJanuary 24, 2008, from www.pva.org/site/DocServer/fatigue1.pdf?docID=662.
29. Perenboom, R. J. M., & Chorus, A. M. J. (2003). Measuring participation according to the International Classification of Functioning, Disability and Health (ICF). Disability and Rehabilitation, 25, 577-587.
30. Pierson, S. H., & Griffith, N. (2006). Treatment of cognitive impairment in multiple sclerosis. Behavioural Neurology, 17,53-67.
31. Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane,P. K., Teresi, J. A. Cella, D. (2007). Psychometric evaluation and calibration of healthrelated quality of life item banks.Medical Care, 45(5, Suppl. 1), S22-S31.
32. Shevil, E., & Finlayson, M. (2006). Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life. Disability and Rehabilitation, 28, 779-788.
33. Sliwa, J. A., & Cohen, B. A. (1998). Multiple sclerosis. In J. A. DeLisa & B. M. Gans (Eds.), Rehabilitation medicine: Principles and practices (3rd ed., pp. 1241-1257). Philadelphia, PA:LippincottRaven.
34. Thissen, D., Chen, W.-H., & Bock, R. D. (2003). Multilog (Version 7) [Computer software]. Lincolnwood, IL: Scientific Software International.
35. Threats, T. T. (2002). Evidencebased practice research using a WHO framework. Journal of Medical Speech Language Pathology, 10(3), 17-24.
36. Von Korff, M., Ormel, J., Keefe, F. J., & Dworkin, S. F. (1992). Grading the severity of chronic pain. Pain, 50(2), 133-149.
37. Ware, J. E., Gandek, B., Sinclair, S. J., & Bjorner, J. B. (2005).Item response theory and computerized adaptive testing: Implications for outcomes measurement in rehabilitation.Rehabilitation Psychology, 50(1), 71-78.
38. Williams, R. M., Turner, A. P., Hatzakis, M., Chu, S.,Rodriquez, A. A., Bowen, J. D., & Haselkorn, J. (2004).Social support among veterans with multiple sclerosis.Rehabilitation Psychology, 49(2), 106-113.
39. World Health Organization. (2001). International Classification of Functioning, Disability and Health. Geneva, Switzerland:Author.
40. Worrall L. McCooey R. Davidson B. Larkins B. Hickson L.(2002). The validity of functional assessments of communication and the activity/participation components of the ICIDH 2:Do they reflect what really happens in real life? Journal of Communication Disorders, 35, 107-137.
41. Yorkston, K. M., Baylor, C. R., Deitz, J., Dudgeon, B. J., Eadie, T. L., Miller, R. M., & Amtmann, D. (2008). Developing a scale of communicative participation: A cognitive interviewing study. Disability and Rehabilitation, 30, 425-433.
42. Yorkston K.M. Baylor C.R. Klasner E.R. Deitz J. Dudgeon B. J. Eadie T. L. Amtmann, D. (2007). Satisfaction with communicative participation as defined by adults with multiple sclerosis: A qualitative study. Journal of Communication Disorders, 40, 433-451.
43. Yorkston, K. M., Johnson, K., Klasner, E. R., Amtmann, D., Kuehn, C. M., & Dudgeon, B. J. (2003). Getting the work done: A qualitative study of individuals with multiple sclerosis. Disability and Rehabilitation, 25, 369-379.
44. Yorkston, K. M., Klasner, E. R., Bowen, J., Ehde, D. M., Gibbons, L., & Johnson, K. (2003). Characteristics of multiple sclerosis as a function of the severity of speech disorders. Journal of Medical Speech Language Pathology, 11(2), 73-85.
45. Yorkston, K. M., Klasner, E. R., & Swanson, K. M. (2001). Communication in context: A qualitative study of the experiences of individuals with multiple sclerosis. American Journal of Speech Language Pathology, 10, 126-137.
46. Yorkston, K. M., Kuehn, C. M., Johnson, K. L., Ehde, D. M.,Jensen, M. P., & Amtmann, D. (2008). Measuring participation in people living with multiple sclerosis: A comparison of selfreported frequency, importance, and selfefficacy. Disability and Rehabilitation, 30(2), 88-97.
47. Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K.(1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment, 52(1), 30-41.