Ethics and the promotion of inclusiveness within qualitative research: Case examples from Asia and the Pacific

Qualitative Inquiry

Volumn 16, Issue 5, 2010, Pages 332-341

  Czymoniewicz Klippel, Melina T ^a,b   Brijnath, Bianca ^b   Crockett, Belinda ^b,c  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

^b MONASH UNIVERSITY   (Australia)

^c Knox Community Health Service   (Australia)

Author keywords

Human research ethics; Informed consent; Qualitative research

Indexed keywords

EID: 77952007475     PISSN: 10778004     EISSN: 15527565     Source Type: Journal    
DOI: 10.1177/1077800409358872     Document Type: Article

References (53)

1. Bainton, N.A. (2008). Men of Kastom and the customs of men: Status, legitimacy and persistent values in Lihir, Papua New Guinea. The Australian Journal of Anthropology, 19(2), 194-212.
2. Bartlett, H., & Martin, W. (2002). Ethical issues in dementia care research. In H. Wilkinson (Ed.), The perspectives of people with dementia: Research methods and motivation (pp. 47-62). London: Jessica Kingsley.
3. Battiste, M. (2006). Research ethics for protecting indigenous knowledge and heritage: Institutional and researcher responsibilities. In N.K. Denzin & M.D. Giardina (Eds.), Ethical futures in qualitative research: Decolonizing the politics of knowledge (pp. 111-132).Walnut Creek, CA: Left Coast Press.
4. Bessant, J. (2006). The fixed age rule: Young people, consent and research ethics. Youth Studies Australia, 25(4), 50-57.
5. Bhutta, Z.A. (2004). Beyond informed consent. Bulletin of the World Health Organization, 82(10), 771-777.
6. Bishop, R. (2005). Freeing ourselves from neocolonial domination in research: A Kaupapa Māori approach to creating knowledge. In N.K. Denzin & Y.S. Lincoln (Eds.), The SAGE handbook of qualitative research. 3rd ed. (pp. 109-138). Thousand Oaks, CA: Sage.
7. Brijnath, B.R. (2008). The legislative and political contexts surrounding dementia care in India. Ageing and Society, 28(7), 913-934.
8. Christians, C.G. (2005). Ethics and politics in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), The Sage handbook of qualitative research (pp. 139-164). Thousand Oaks, CA: Sage.
9. Connolly, K., & Reid, A. (2007). Ethics review for qualitative inquiry: Adopting a values-based, facilitative approach. Qualitative Inquiry, 13(7), 1031-1047.
10. Creed-Kanashiro, H., Ore, B., Scurrah, M., Gil, A., & Penny, M. (2005). Conducting research in developing countries: Experiences of the informed consent process from community in Peru. The Journal of Nutrition, 135(4), 925-928.
11. Denzin, N.K. (1997). Interpretive ethnography: Ethnographic practices for the 21st century. Thousand Oaks, CA: Sage.
12. Denzin, N.K., & Giardina, M.D. (2006). Introduction: Ethical futures in qualitative research. In N.K. Denzin & M.D. Giardina (Eds.), Ethical futures in qualitative research: Decolonizing the politics of knowledge (pp. 9-43). Walnut Creek,CA: Left Coast Press.
13. Dewing, J. (2007). Participatory research: A method for process consent with persons who have dementia. Dementia, 6(1), 11-25.
14. Driscoll, A., Currey, J., Worrall-Carter, L., & Stewart, S. (2008). Ethical dilemmas of a large national multi-centre study in Australia: Time for some consistency. Journal of Clinical Nursing, 17(6), 2212-2220.
15. Ferri, C., Chisholm, D., Van Ommeren, M., & Prince, M. (2004). Resource utilization for neuropsychiatric disorders in developing countries: A multinational Delphi consensus study. Social Psychiatry and Psychiatric Epidemiology, 39(3), 218-227.
16. Fitzgerald, M.H. (2004). Punctuated equilibrium, moral panics and the ethics review process. Journal of Academic Ethics, 2(4), 315-338.
17. Fitzgerald, M., Phillips, P.A., & Yule, E. (2006). The research ethics review process and ethics review narratives. Ethics & Behavior, 16(4), 377-395.
18. Fluehr-Lobban, C. (1994). Informed consent in anthropological research: We are not exempt. Human Organization, 53(1), 1-10.
19. Gilligan, C. (1983). Do the social sciences have an adequate theory of moral development? In N. Haan, R. N. Bellah, P. Rabinow, & W. M. Sullivan (Eds.), Social science as moral inquiry (pp. 33-51). New York: Columbia University Press.
20. Goel, D.S., Agarwal, S.P., Ichhpujani, R.L., & Shrivastava, S. (2004). Mental health 2003: The Indian scene. In S. P. Agarwal (Ed.), Mental health: An Indian perspective 1946-2003 (pp. 3-24). New Delhi, India: Ministry of Health and Family Services.
21. Grande, S. (2006). Red pedagogy: Indigenizing inquiry or, the un-methodology. In N.K. Denzin & M.D. Giardina (Eds.), Ethical futures in qualitative research: Decolonizing the politics of knowledge (pp. 133-143).Walnut Creek, CA: Left Coast Press.
22. Gururaj, G., Girish, N., & Issac, M.K. (2005). Mental, neurological and substance abuse disorders: Strategies towards a systems approach. In NCMH Background Papers (Ed.), Burden of disease in India; Equitable development-healthy future (pp. 226-250). New Delhi, India: Ministry of Health and Family Welfare.
23. Haggerty, K.D. (2004). Ethics creep: Governing social science research in the name of ethics. Qualitative Sociology, 27(4), 391-414.
24. Hellstrom, I., Nolan, M., Nordenfelt, L., & Lundh, U. (2007). Ethical and methodological issues in interviewing persons with dementia. Nursing Ethics, 14(5), 608-619.
25. Hong, G.-Y. (1998). Logistics and researchers as legitimate tools for 'doing' intercultural research: A rejoinder to Günther. Culture & Psychology, 4(1), 81-90.
26. Howe, K.R., & Dougherty, K.C. (1993). Ethics, Institutional Review Boards, and the changing face of educational research. Educational Researcher, 22(9), 16-21.
27. Howitt, R. (2005). Human ethics, supervision and equity: ethical oversight of student research. Journal of Geography in Higher Education, 29(3), 317-320.
28. Israel, M. (2004). Ethics and the governance of criminological research in Australia. Adelaide, Australia: Flinders University.
29. Johnson, T.S. (2008). Qualitative research in question: A narrative of disciplinary power with/in the IRB. Qualitative Inquiry, 14(2), 212-232.
30. Lepani, K. (2008). Mobility, violence and the gendering of HIV in Papua New Guinea. The Australian Journal of Anthropology, 19(2), 150-164.
31. Liamputtong, P. (2007). Researching the vulnerable. A guide to sensitive research methods. London: Sage.
32. Lincoln, Y.S. (2005). Institutional review boards and methodological conservatism: The challenge to and from phenomenological paradigms. In N.K. Denzin & Y.S. Lincoln (Eds.), The SAGE handbook of qualitative research 3rd ed. (pp. 165-181). Thousand Oaks, CA: Sage.
33. Loff, B., & Black, J. (2004). Research ethics committees: What is their contribution? Medical Journal of Australia, 181(8), 440-441.
34. MacDonald, T.H. (1998). Rethinking health promotion. A global approach. London: Routledge.
35. MacIntyre, M. (2008). Police and thieves, gunmen and drunks: Problems with men and problems with society inPapua New Guinea. The Australian Journal of Anthropology, 19(2), 179-193.
36. Malau, C., & Crockett, S. (2000). HIV and development the Papua New Guinean way. Development Bulletin, 52(June), 58-60.
37. McGovern, K. (2007). Australian guidelines for human research. Chisholm Health Ethics Bulletin, 13(2), 1-4.
38. Miller, T., & Boulton, M. (2007). Changing constructions of informed consent: Qualitative research and complex social worlds. Social Science and Medicine, 65(11), 2199-2211.
39. Miller, F.G., & Wertheimer, A. (2007). Facing up to paternalism in research ethics. Hastings Centre Report, 37(3), 24-34.
40. National Health and Medical Research Council, Australian Research Council, & Australian Vice-Chancellors' Committee. (2007). National statement on ethical conduct in human research Canberra, Australia: Australian Government.
41. National Health and Medical Research Council, Australian Research Council, & Universities Australia. (2007). Australian code for the responsible conduct of research. Canberra, Australia: Australian Government.
42. Oakley, A. (1981). Interviewing women: A contradiction in terms. In H. Roberts (Ed.), Doing feminist research (pp. 30-61). Boston: Routledge Kegan Paul.
43. Pascoe, V., & Radel, K. (2008). How hard can it be? Navigating our way through an ethical surge storm. Studies in Learning, Evaluation, Innovation and Development, 5(1), 13-23.
44. Patel, V., & Prince, M. (2001). Ageing and mental health in a developing country: Who cares? Qualitative studies from Goa, India. Psychological Medicine, 31(1), 29-38.
45. Roberts, L., & Indermaur, D. (2003). Signed consent forms in criminological research: Protection for researchers and ethics committees but a threat to research participants? Psychiatry, Psychology and Law, 10(2), 289-299.
46. Simpson, C. (2003). Children and research participation: Who makes what decisions. Health Law Review, 11(2), 20-29.
47. Smith, L. Tuhiwai (2005). On tricky ground: Researching the native in the age of uncertainty. In N.K. Denzin & Y.S. Lincoln (Eds.), The SAGE handbook of qualitative research 3rd ed. (pp. 85-107).Thousand Oaks, CA: Sage.
48. Smith-Hefner, N.J. (1999). Khmer American. Identity and moral education in a diasporic community. Berkeley, CA: University of California Press.
49. Spriggs, M.P., & Gillam, L.H. (2008). Consent in paediatric research: An evaluation of the guidance provided in the 2007 NHMRC National statement on ethical conduct in human research. Medical Journal of Australia, 188(6), 360-362.
50. Swain, J., Heyman, B., & Gillman, M. (1998). Public research, private concerns: Ethical issues in the use of open-ended interviews with people who have learning difficulties. Disability and Society, 13(1), 21-36.
51. Taylor, C., Appiah, K.A., Habermas, J., Rockefeller, S.C., Walzer, M., & Wolf, S. (1994). Multiculturalism: Examining the politics of recognition. Princeton, NJ: Princeton University Press.
52. Vallance, R. (2008). Melanesian research ethics. Contemporary PNG Studies: DWU Research Journal, 8(5), 1-14.
53. Viete, R. (2004). Ideology and the discourses of research: The ethics of Ethics for cross-cultural research in Education. Paper presented at the Australian Association for Research in Education Annual Conference.