-
1
-
-
0028512834
-
Research in palliative care populations: Ethical issues
-
Kristjanson L., Hanson E., Balneaves L. Research in palliative care populations: ethical issues. J Palliat Care 1994 ; 10 (3). 10-15.
-
(1994)
J Palliat Care
, vol.10
, Issue.3
, pp. 10-15
-
-
Kristjanson, L.1
Hanson, E.2
Balneaves, L.3
-
2
-
-
0035461584
-
Gaining and maintaining consent: Ethical concerns raised in a study of dying patients
-
Lawton J. Gaining and maintaining consent: ethical concerns raised in a study of dying patients. Qual Health Res 2001 ; 11: 693-705.
-
(2001)
Qual Health Res
, vol.11
, pp. 693-705
-
-
Lawton, J.1
-
3
-
-
0036903670
-
Palliative care research: Trading ethics for an evidence base
-
Jubb A. Palliative care research: trading ethics for an evidence base. J Med Ethics 2002 ; 28: 342-346.
-
(2002)
J Med Ethics
, vol.28
, pp. 342-346
-
-
Jubb, A.1
-
6
-
-
13244297007
-
Systematic reviews of research in scientific education: Rigour or rigidity?
-
Bennett J., Lubben F., Hogarth S., Campbell B. Systematic reviews of research in scientific education: rigour or rigidity? Int J Sci Educ 2005 ; 27: 387-406.
-
(2005)
Int J Sci Educ
, vol.27
, pp. 387-406
-
-
Bennett, J.1
Lubben, F.2
Hogarth, S.3
Campbell, B.4
-
7
-
-
0141674240
-
Systematic review of nonradom and qualitative research literature: Exploring and uncovering an evidence base for health visiting and decision making
-
Lemmer B., Grellier R., Steven J. Systematic review of nonradom and qualitative research literature: exploring and uncovering an evidence base for health visiting and decision making. Qual Health Res 1999 ; 9: 315-328.
-
(1999)
Qual Health Res
, vol.9
, pp. 315-328
-
-
Lemmer, B.1
Grellier, R.2
Steven, J.3
-
8
-
-
28044463360
-
The integrative review: Updated methodology
-
Whittmore R., Knafl K. The integrative review: updated methodology. J Adv Nurs 2005 ; 52: 546-553.
-
(2005)
J Adv Nurs
, vol.52
, pp. 546-553
-
-
Whittmore, R.1
Knafl, K.2
-
9
-
-
0036832145
-
Appraising the evidence: Reviewing disparate data systematically
-
Hawker S., Payne S., Kerr C., Hardey M., Powell J. Appraising the evidence: Reviewing disparate data systematically. Qual Health Res 2002 ; 12: 1284-1299.
-
(2002)
Qual Health Res
, vol.12
, pp. 1284-1299
-
-
Hawker, S.1
Payne, S.2
Kerr, C.3
Hardey, M.4
Powell, J.5
-
10
-
-
52049114582
-
Conducting systematic review in education: A reflexive narrative
-
Nind M. Conducting systematic review in education: a reflexive narrative. London Rev Educ 2006 ; 4: 183-195.
-
(2006)
London Rev Educ
, vol.4
, pp. 183-195
-
-
Nind, M.1
-
12
-
-
0036121413
-
Clinical application of findings to clinical trails and systematic reviews
-
Newcombe RG Clinical application of findings to clinical trails and systematic reviews. Postgrad Med J 2002 ; 78: 129-130.
-
(2002)
Postgrad Med J
, vol.78
, pp. 129-130
-
-
Newcombe, R.G.1
-
13
-
-
16544375403
-
Using the Canadian code of ethics for registered nurses to explore ethics in palliative care research
-
Arraf K., Cox G., Oberle K. Using the Canadian code of ethics for registered nurses to explore ethics in palliative care research. Nurs Ethics 2004 ; 11: 600-609.
-
(2004)
Nurs Ethics
, vol.11
, pp. 600-609
-
-
Arraf, K.1
Cox, G.2
Oberle, K.3
-
14
-
-
0027949006
-
Ethical issues in palliative care research
-
de Raeve L. Ethical issues in palliative care research. Palliat Med 1994 ; 8: 298-305.
-
(1994)
Palliat Med
, vol.8
, pp. 298-305
-
-
De Raeve, L.1
-
15
-
-
0033832080
-
Are special guidelines needed for palliative care research?
-
Casarett D., Karlawish J. Are special guidelines needed for palliative care research? J Pain Symptom Manage 2000 ; 20: 130-139.
-
(2000)
J Pain Symptom Manage
, vol.20
, pp. 130-139
-
-
Casarett, D.1
Karlawish, J.2
-
16
-
-
0033921802
-
Clinical trials in palliative care: An ethical evaluation
-
Janssens R., Gordijn B. Clinical trials in palliative care: an ethical evaluation. Patient Educ Couns 2000 ; 41: 55-62.
-
(2000)
Patient Educ Couns
, vol.41
, pp. 55-62
-
-
Janssens, R.1
Gordijn, B.2
-
17
-
-
1842855539
-
Research sensitivities to palliative care patients
-
Addington-Hall J. Research sensitivities to palliative care patients. Eur J Cancer Care 2002 ; 11: 220-224.
-
(2002)
Eur J Cancer Care
, vol.11
, pp. 220-224
-
-
Addington-Hall, J.1
-
18
-
-
0036772203
-
Whats end of life got to do with it? Research ethics with populations at lifes end
-
Phipps EJ Whats end of life got to do with it? Research ethics with populations at lifes end. Gerontologist 2002 ; 42: 104-108.
-
(2002)
Gerontologist
, vol.42
, pp. 104-108
-
-
Phipps, E.J.1
-
19
-
-
0037384715
-
Voluntariness in clinical research at the end of life
-
Agrawal M. Voluntariness in clinical research at the end of life. J Pain Symptom Manage 2003 ; 25: S25 - S32.
-
(2003)
J Pain Symptom Manage
, vol.25
-
-
Agrawal, M.1
-
21
-
-
0141702216
-
Palliative care research protocols: A special case for ethical review?
-
Stevens T., Wilde D., Paz S., Ahmedzai SH, Rawson A., Wragg D. Palliative care research protocols: a special case for ethical review? Palliat Med 2003 ; 17: 482-489.
-
(2003)
Palliat Med
, vol.17
, pp. 482-489
-
-
Stevens, T.1
Wilde, D.2
Paz, S.3
Ahmedzai, S.H.4
Rawson, A.5
Wragg, D.6
-
23
-
-
32044433532
-
Ethical considerations in end-of-life care and research
-
Casarett D. Ethical considerations in end-of-life care and research. J Palliat Med 2005 ; 8: S148 - S160.
-
(2005)
J Palliat Med
, vol.8
-
-
Casarett, D.1
-
24
-
-
23944519616
-
Best practices in research methods. Palliative care research in practice
-
Addington-Hall J. Best practices in research methods. Palliative care research in practice. Can J Nurs Res 2005 ; 37: 85-93.
-
(2005)
Can J Nurs Res
, vol.37
, pp. 85-93
-
-
Addington-Hall, J.1
-
25
-
-
2342431647
-
For the purposes of research, palliative care patients should not be considered a vulnerable population
-
Berry SR For the purposes of research, palliative care patients should not be considered a vulnerable population. Clin Oncol 2004 ; 16: 223-224.
-
(2004)
Clin Oncol
, vol.16
, pp. 223-224
-
-
Berry, S.R.1
-
26
-
-
56749175034
-
Improving the evidence base in palliative medicine: A moral imperative
-
Keeley PW Improving the evidence base in palliative medicine: a moral imperative. J Med Ethics 2008 ; 34: 757-760.
-
(2008)
J Med Ethics
, vol.34
, pp. 757-760
-
-
Keeley, P.W.1
-
27
-
-
0029283393
-
Ethical issues in palliative care research revisited
-
Mount B., Cohen R., MacDonald N., Bruera E., Dudgeon DJ Ethical issues in palliative care research revisited. Palliat Med 1995 ; 9: 165-166.
-
(1995)
Palliat Med
, vol.9
, pp. 165-166
-
-
Mount, B.1
Cohen, R.2
MacDonald, N.3
Bruera, E.4
Dudgeon, D.J.5
-
28
-
-
0002616559
-
Conducting research with the terminally ill: Challenges and considerations
-
Beaver K., Luker K., Woods S. Conducting research with the terminally ill: challenges and considerations. Int J Palliat Nurs 1999 ; 5: 13-17.
-
(1999)
Int J Palliat Nurs
, vol.5
, pp. 13-17
-
-
Beaver, K.1
Luker, K.2
Woods, S.3
-
29
-
-
0035079750
-
Interviewing terminally ill people: Is it fair to take their time?
-
Barnett M. Interviewing terminally ill people: is it fair to take their time? Palliat Med 2001 ; 15: 157-158.
-
(2001)
Palliat Med
, vol.15
, pp. 157-158
-
-
Barnett, M.1
-
30
-
-
40949095995
-
I will do it if it will help others: Motivations among patients taking part in qualitative studies in palliative care
-
Gysels M., Shipman C., Higginson I. I will do it if it will help others: Motivations among patients taking part in qualitative studies in palliative care. J Pain Symptom Manage 2008 ; 35: 347-355.
-
(2008)
J Pain Symptom Manage
, vol.35
, pp. 347-355
-
-
Gysels, M.1
Shipman, C.2
Higginson, I.3
-
31
-
-
0037383429
-
Conducting research that involves subjects at the end of life who are unable to give consent
-
Karlawish J. Conducting research that involves subjects at the end of life who are unable to give consent. J Pain Symptom Manage 2003 ; 25 (4). S14 - S24.
-
(2003)
J Pain Symptom Manage
, vol.25
, Issue.4
-
-
Karlawish, J.1
-
32
-
-
77951844934
-
All inclusive research
-
Karim K. All inclusive research. Cancer Nurs Pract 2005 ; 4 (4). 9-12.
-
(2005)
Cancer Nurs Pract
, vol.4
, Issue.4
, pp. 9-12
-
-
Karim, K.1
-
33
-
-
0037385040
-
Maximising benefits and minimising risks in palliative care research that involves patients near the end of life
-
Fine P. Maximising benefits and minimising risks in palliative care research that involves patients near the end of life. J Pain Symptom Manage 2003 ; 25 (4). S53 - S62.
-
(2003)
J Pain Symptom Manage
, vol.25
, Issue.4
-
-
Fine, P.1
-
34
-
-
0037384935
-
Assessing decision making capacity in the setting of palliative care research
-
Casarett D. Assessing decision making capacity in the setting of palliative care research. J Pain Symptom Manage 2003 ; 25 (4). S6 - S13.
-
(2003)
J Pain Symptom Manage
, vol.25
, Issue.4
-
-
Casarett, D.1
-
35
-
-
0028507476
-
Ethical issues in palliative care research
-
Bruera E. Ethical issues in palliative care research. J Palliat Care 1994 ; 10 (3). 7-9.
-
(1994)
J Palliat Care
, vol.10
, Issue.3
, pp. 7-9
-
-
Bruera, E.1
-
36
-
-
1542685292
-
Issues and dilemmas in conducting research with vulnerable home hospice participants
-
Dobratz M. Issues and dilemmas in conducting research with vulnerable home hospice participants. J Nurs Scholarsh 2003 ; 35 (4). 371-376.
-
(2003)
J Nurs Scholarsh
, vol.35
, Issue.4
, pp. 371-376
-
-
Dobratz, M.1
-
37
-
-
0003000464
-
Ethical issues in qualitative research at the end of life
-
Seymour J., Ingleton C. Ethical issues in qualitative research at the end of life. Int J Palliat Nurs 1999 ; 5 (2). 65-73.
-
(1999)
Int J Palliat Nurs
, vol.5
, Issue.2
, pp. 65-73
-
-
Seymour, J.1
Ingleton, C.2
-
38
-
-
84990334141
-
Ethical and methodological issues in palliative care studies
-
Seymour J., Payne S., Reid D., Sargeant A., Skilbeck J., Smith P. Ethical and methodological issues in palliative care studies. J Res Nurs 2005 ; 10: 169-188.
-
(2005)
J Res Nurs
, vol.10
, pp. 169-188
-
-
Seymour, J.1
Payne, S.2
Reid, D.3
Sargeant, A.4
Skilbeck, J.5
Smith, P.6
-
39
-
-
1842833723
-
Ethical considerations in researching user voices
-
Seymour J., Skilbeck J. Ethical considerations in researching user voices. Eur J Cancer Care 2002 ; 11: 215-219.
-
(2002)
Eur J Cancer Care
, vol.11
, pp. 215-219
-
-
Seymour, J.1
Skilbeck, J.2
-
40
-
-
0037345679
-
Ethical considerations and barriers to research in surgical palliative care
-
Krouse R., Easson A., Angelos P. Ethical considerations and barriers to research in surgical palliative care. J Am Coll Surg 2003 ; 196: 469-474.
-
(2003)
J Am Coll Surg
, vol.196
, pp. 469-474
-
-
Krouse, R.1
Easson, A.2
Angelos, P.3
-
41
-
-
0037351574
-
Critical care research on patients with advanced directives or do-not-resuscitate status: Ethical challenges for clinician-investigators
-
Williams MA, Haywood C. Jr. Critical care research on patients with advanced directives or do-not-resuscitate status: ethical challenges for clinician-investigators. Crit Care Med 2003 ; 31 (3 Suppl). S161 - S171.
-
(2003)
Crit Care Med
, vol.31
, Issue.3
-
-
Williams, M.A.1
Jr, H.C.2
-
42
-
-
0008974150
-
Conducting research with the dying: Ethical considerations and experience
-
Aranda S. Conducting research with the dying: ethical considerations and experience. Int J Palliat Nurs 1995 ; 1: 41-47.
-
(1995)
Int J Palliat Nurs
, vol.1
, pp. 41-47
-
-
Aranda, S.1
-
43
-
-
4444380538
-
Recruiting patients into a primary care based study of palliative care: Why is it so difficult?
-
Ewing G., Rogers M., Barclay S., McCabe J., Martin A., Todd C. Recruiting patients into a primary care based study of palliative care: why is it so difficult? Palliat Med 2004 ; 18: 452-459.
-
(2004)
Palliat Med
, vol.18
, pp. 452-459
-
-
Ewing, G.1
Rogers, M.2
Barclay, S.3
McCabe, J.4
Martin, A.5
Todd, C.6
-
44
-
-
0345701338
-
Qualitative methods in end-of-life research: Recommendations to enhance the protection of human subjects
-
Koenig B., Back A., Crawley LM Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects. J Pain Symptom Manage 2003 ; S25 (4). S43 - S52.
-
(2003)
J Pain Symptom Manage
, vol.25
, Issue.4
-
-
Koenig, B.1
Back, A.2
Crawley, L.M.3
-
45
-
-
27844445131
-
Seeking new methodology for palliative care research: Challenging assumptions about studying people who are approaching the end of life
-
Hopkinson J., Wright D., Corner J. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliat Med 2005 ; 19: 532-537.
-
(2005)
Palliat Med
, vol.19
, pp. 532-537
-
-
Hopkinson, J.1
Wright, D.2
Corner, J.3
-
46
-
-
0037271054
-
Human research committees: Issues in palliative care research
-
Lee S., Kristjanson L. Human research committees: issues in palliative care research. Int J Palliat Nurs 2003 ; 9: 13-18.
-
(2003)
Int J Palliat Nurs
, vol.9
, pp. 13-18
-
-
Lee, S.1
Kristjanson, L.2
-
47
-
-
0036805532
-
Palliative care in phase 1 trials: An ethical obligation or undue inducement?
-
Kapo J., Casarett D. Palliative care in phase 1 trials: an ethical obligation or undue inducement? J Palliat Med 2002 ; 5: 661-665.
-
(2002)
J Palliat Med
, vol.5
, pp. 661-665
-
-
Kapo, J.1
Casarett, D.2
-
48
-
-
11344258352
-
Recruiting for research in hospice: Feasibility of a research screening protocol
-
Casarett D., Kassner CT, Kutner JS Recruiting for research in hospice: feasibility of a research screening protocol. J Palliat Med 2004 ; 7: 854-860.
-
(2004)
J Palliat Med
, vol.7
, pp. 854-860
-
-
Casarett, D.1
Kassner, C.T.2
Kutner, J.S.3
-
49
-
-
0033832109
-
Support and supervision in palliative care research
-
Clark D., Ingleton C., Seymour J. Support and supervision in palliative care research. Palliat Med 2000 ; 14: 441-446.
-
(2000)
Palliat Med
, vol.14
, pp. 441-446
-
-
Clark, D.1
Ingleton, C.2
Seymour, J.3
-
50
-
-
0037840524
-
Collecting sensitive data: The impact on researchers
-
Johnson B., Macleod Clark J. Collecting sensitive data: the impact on researchers. Qual Health Res 2003 ; 13: 421-434.
-
(2003)
Qual Health Res
, vol.13
, pp. 421-434
-
-
Johnson, B.1
MacLeod Clark, J.2
-
51
-
-
0035322954
-
Preparation, information and liaison: Conducting successful research in palliative care
-
Daniels LE, Exley C. Preparation, information and liaison: conducting successful research in palliative care. Int J Palliat Nurs 2001 ; 7: 192-197.
-
(2001)
Int J Palliat Nurs
, vol.7
, pp. 192-197
-
-
Daniels, L.E.1
Exley, C.2
-
52
-
-
0036689218
-
Palliative care research: Methodological and ethical challenges
-
Dean R., McClement S. Palliative care research: methodological and ethical challenges. Int J Palliat Nurs 2002 ; 8: 376-380.
-
(2002)
Int J Palliat Nurs
, vol.8
, pp. 376-380
-
-
Dean, R.1
McClement, S.2
-
53
-
-
16644380893
-
Using qualitative research
-
Sandelowski M. Using qualitative research. Qual Health Res 2004 ; 14: 1366-1386.
-
(2004)
Qual Health Res
, vol.14
, pp. 1366-1386
-
-
Sandelowski, M.1
-
55
-
-
40449116261
-
A relational ethical dialogue with research ethics committees
-
Larkin PJ, Dierckx de Casterl© B., Schotsmans P. A relational ethical dialogue with research ethics committees. Nurs Ethics 2008 ; 15: 234-242.
-
(2008)
Nurs Ethics
, vol.15
, pp. 234-242
-
-
Larkin, P.J.1
Dierckx De Casterl, B.2
Schotsmans, P.3
-
56
-
-
0036284994
-
Are hospices ready to participate in palliative care research? Results of a national survey
-
Casarett D., Karlawish J., Hirschman KB Are hospices ready to participate in palliative care research? Results of a national survey. J Palliat Med 2002 ; 5: 397-400.
-
(2002)
J Palliat Med
, vol.5
, pp. 397-400
-
-
Casarett, D.1
Karlawish, J.2
Hirschman, K.B.3
-
57
-
-
33747879001
-
Interest in research participation among hospice patients, caregivers and ambulatory senior citizens: Practical barriers or ethical constraints?
-
Williams CJ, Shuster JL, Clay OJ, Burgio KL Interest in research participation among hospice patients, caregivers and ambulatory senior citizens: practical barriers or ethical constraints? J Palliat Med 2006 ; 9: 968-974.
-
(2006)
J Palliat Med
, vol.9
, pp. 968-974
-
-
Williams, C.J.1
Shuster, J.L.2
Clay, O.J.3
Burgio, K.L.4
-
58
-
-
23944435126
-
Is research really problematic in palliative care? A pilot study
-
Pautex S., Herrmann FR, Zulian GB Is research really problematic in palliative care? A pilot study. J Pain Symptom Manage 2005 ; 30: 109-111.
-
(2005)
J Pain Symptom Manage
, vol.30
, pp. 109-111
-
-
Pautex, S.1
Herrmann, F.R.2
Zulian, G.B.3
-
59
-
-
0035668481
-
NHPCO task force statement on the ethics of hospice participation in research
-
Casarett D., Ferrell B., Kirschling J., et al. NHPCO task force statement on the ethics of hospice participation in research. J Palliat Med 2001 ; 4: 441-449.
-
(2001)
J Palliat Med
, vol.4
, pp. 441-449
-
-
Casarett, D.1
Ferrell, B.2
Kirschling, J.3
-
60
-
-
0036806319
-
End of life care for terminally ill participants in clinical research
-
Agrawal M., Danis M. End of life care for terminally ill participants in clinical research. J Palliat Med 2002 ; 5: 729-737.
-
(2002)
J Palliat Med
, vol.5
, pp. 729-737
-
-
Agrawal, M.1
Danis, M.2
-
61
-
-
0037383481
-
Maximising benefits and minimising risks in health services research near the end of life
-
Daly BJ, Rosenfeld K. Maximising benefits and minimising risks in health services research near the end of life. J Pain Symptom Manage 2003 ; 25: S33 - S42.
-
(2003)
J Pain Symptom Manage
, vol.25
-
-
Daly, B.J.1
Rosenfeld, K.2
-
62
-
-
0034721587
-
Conducting research involving palliative care patients
-
Karim K. Conducting research involving palliative care patients. Nurs Stand 2000 ; 15: 34-36.
-
(2000)
Nurs Stand
, vol.15
, pp. 34-36
-
-
Karim, K.1
-
63
-
-
14644439865
-
Research into care at the end of life
-
Riley J., Ross JR Research into care at the end of life. Lancet 2005 ; 365 (9461). 735-737.
-
(2005)
Lancet
, vol.365
, Issue.9461
, pp. 735-737
-
-
Riley, J.1
Ross, J.R.2
-
64
-
-
0030825050
-
Ethical issues in qualitative research in palliative care
-
Wilkie P. Ethical issues in qualitative research in palliative care. Palliat Med 1997 ; 11: 321-324.
-
(1997)
Palliat Med
, vol.11
, pp. 321-324
-
-
Wilkie, P.1
-
65
-
-
0032822198
-
Case presentations: Are dying patients too vulnerable to participate in research?
-
Casarett D. Case presentations: are dying patients too vulnerable to participate in research? J Pain Symptom Manage 1999 ; 18: 143-147.
-
(1999)
J Pain Symptom Manage
, vol.18
, pp. 143-147
-
-
Casarett, D.1
-
66
-
-
0035496596
-
The ethics and practicalities of consent in palliative care research: An overview
-
Rees E. The ethics and practicalities of consent in palliative care research: an overview. Int J Palliat Nurs 2001 ; 7: 489-492.
-
(2001)
Int J Palliat Nurs
, vol.7
, pp. 489-492
-
-
Rees, E.1
-
67
-
-
34247588023
-
Conducting research in the palliative care population
-
Sentilhes-Monkam A., Serryn D. Conducting research in the palliative care population. Eur J Palliat Care 2004 ; 11: 23-26.
-
(2004)
Eur J Palliat Care
, vol.11
, pp. 23-26
-
-
Sentilhes-Monkam, A.1
Serryn, D.2
-
68
-
-
0026864795
-
Ethical considerations in qualitative research with hospice patients
-
Raudonis BM Ethical considerations in qualitative research with hospice patients. Qual Health Res 1992 ; 2: 238-249.
-
(1992)
Qual Health Res
, vol.2
, pp. 238-249
-
-
Raudonis, B.M.1
-
69
-
-
0032819583
-
Looking beyond vulnerability: The ethics and science of research involving dying patients
-
Casarett D. Looking beyond vulnerability: the ethics and science of research involving dying patients. J Pain Symptom Manage 1999 ; 18: 144-145.
-
(1999)
J Pain Symptom Manage
, vol.18
, pp. 144-145
-
-
Casarett, D.1
|