Palliative care research protocols: A special case for ethical review?

Palliative Medicine

Volumn 17, Issue 6, 2003, Pages 482-490

  Stevens, Tony ^a   Wilde, David ^a   Paz, Silvia ^a   Ahmedzai, Sam H ^a   Rawson, Angela ^b   Wragg, Dawn ^b  

^a ROYAL HALLAMSHIRE HOSPITAL   (United Kingdom)

^b North Trent Cancer Research Network   (United Kingdom)

Author keywords

Ethics committees; Palliative care; Research

Indexed keywords

BEREAVEMENT; CHILD CARE; CLINICAL PROTOCOL; DATA ANALYSIS; ELDERLY CARE; EMOTIONAL STRESS; ETHNIC GROUP; EXPERIENCE; HUMAN; INDEPENDENCE; INTENSIVE CARE; INTERVIEW; JUSTICE; MEDICAL ETHICS; MEDICAL RESEARCH; METHODOLOGY; PALLIATIVE THERAPY; PATIENT RIGHT; QUALITATIVE ANALYSIS; REVIEW; SOCIAL SUPPORT; THEORY; UNITED KINGDOM;

ATTITUDE OF HEALTH PERSONNEL; BIOMEDICAL RESEARCH; ETHICS COMMITTEES, RESEARCH; HUMANS; MULTICENTER STUDIES; PALLIATIVE CARE;

EID: 0141702216     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1191/0269216303pm786oa     Document Type: Review

References (32)

1. Cassarett DJ, Karlawish JHT. Are special ethical guidelines needed for palliative care research? J Pain Symptom Manage 2000; 20: 130-39.
2. Clark D, Hockley J, Ahmedzai S eds. New themes in palliative care. Buckingham: Open University Press, 1997.
3. Mount B, Chen R, MacDonald N, Bruera E, Dudgeon D. Ethical issues in palliative care research revisited. Palliat Med 1995; 9: 165-70.
4. McWhinney IR, Bass MJ, Donner A. Evaluation of a palliative care service: problems and pitfalls. BMJ 1994; 309: 1340-42.
5. Kinzbrunner BM. Ethical dilemmas in hospice and palliative care. Support Care Cancer 1995; 3: 28-36.
6. Rinck GC, van den Bos GAM, Kleijnen J, de Haes HJCJM, Schade E, Veenhof CHN. Methodologic issues in effectiveness research on palliative cancer care: a systematic review. J Clin Oncol 1997; 15: 1697-707.
7. Smeenk FWJM, van Haastregt JCM, de Witte LP, Crebolder HFJM. Effectiveness of home care programmes for patients with incurable cancer on their quality of life and time spent in hospital: a systematic review. BMJ 1998; 316: 1939-44.
8. Rees E. The ethics and practicalities of consent in palliative care research: an overview. Int J Palliat Nurs 2001; 7: 498-92.
9. de Raeve L. Ethical issues in palliative care research. Palliat Med 1994; 8: 298-305.
10. Chadfield-Mohr SM, Byatt CM. Dehydration in the terminally ill - iatrogenic insult or natural process? Postgrad Med J 1997; 73: 476-80.
11. Ling J, Rees E, Hardy J. What influences participation in clinical trials in palliative care in a cancer centre? Eur J Cancer 2000; 36: 621-26.
12. Liben S. Pediatric palliative medicine: obstacles to overcome. J Palliat Care 1996; 12: 24-28.
13. Cooley C, Adeodu S, Aldred H, Beesley S, Leung A, Thacker L. Paediatric palliative care: a lack of research-based evidence. Int J Palliat Nurs 2000; 6: 346-51.
14. Oliver D. Ethical issues in palliative care - an overview. Palliat Med 1993; 7: 15-20.
15. Hertogh CM, Ribbe MW. Ethical aspects of decision making in demented patients. Alzheimer Dis Assoc Disord 1996; 10: 11-19.
16. Baskin SA, Morris J, Ahronheim JC, Meier DE, Morrison RS. Barriers to obtaining consent in dementia research: Implications for surrogate decision-making. J Am Geriatr Soc 1998; 46: 287-90.
17. Bernabei R, Gambassi G, Lapane K, et al. Management of pain in elderly patients with cancer. JAMA 1998; 279: 1877-82.
18. Cohen SR, MacNeil C, Mount BM. Well being at the end of life Part 2. A research agenda for the delivery of care from patient's perspective. Cancer Prev Control 1997; 1: 343-51.
19. Rubenfeld GD, Randall Curtis J. End of life care in the intensive care unit: a research agenda. Crit Care Med 2001; 29: 2037-38.
20. Singer EA, Mullner M. Implications of the EU directive on clinical trials for emergency medicine. BMJ 2002; 324: 1169-70.
21. Woods S, Beaver K, Luker K. Users' views of palliative care services: ethical implications. Nursing Ethics: Intl J Health Care Professionals 2000; 7: 314-26.
22. www.corec.org.uk
23. de Botton A. The consolations of philosophy. London: Penguin, 2001.
24. Burman R. Teaching ethics in the practice setting. In Webb P ed. Ethical issues in palliative care. Manchester: Hochland & Hochland, 2000.
25. Gilligan C. In a different voice. Cambridge, MA: Harvard University Press, 1982.
26. Randall F, Downie RS. Palliative care ethics. Oxford: Oxford University Press, 1996.
27. Clark D, Seymour J. Reflections on palliative care. Buckingham: Open University Press, 1999.
28. Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In Bryman A, Burgess R eds. Analysing qualitative data. London: Routledge, 1994: 172-94.
29. Silverman D. Interpreting qualitative data. London: Sage, 1993.
30. Oxford English Dictionary. Oxford: Oxford University Press, 1996.
31. www.doh.gov.uk
32. Ahmedzai SH, Walsh TD. Palliative medicine and modern cancer care. Semin Oncol 2000; 27: 1-6.