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Volumn 5, Issue 1, 2010, Pages 5-17

Human subjects protections in community-engaged research: A research ethics framework

Author keywords

Academic community partnerships; Autonomy; Community; Community based participatory research; Community engaged research; Human subjects protections; Moral agency; Research ethics; Risks

Indexed keywords

ARTICLE; ETHICS; HUMAN; HUMAN EXPERIMENT; HUMAN RIGHTS; NOMENCLATURE; PARTICIPATORY RESEARCH; PERSONAL AUTONOMY; PUBLIC RELATIONS; RISK ASSESSMENT;

EID: 77949860273     PISSN: 15562646     EISSN: 15562654     Source Type: Journal    
DOI: 10.1525/jer.2010.5.1.5     Document Type: Article
Times cited : (88)

References (35)
  • 2
    • 0002032882 scopus 로고
    • A survey on elder abuse at one Native American tribe
    • BROWN, A. S. (1989). A survey on elder abuse at one Native American tribe. Journal of Elder Abuse & Neglect, 1 (2), 17-38.
    • (1989) Journal of Elder Abuse & Neglect , vol.1 , Issue.2 , pp. 17-38
    • Brown, A.S.1
  • 4
    • 77949855866 scopus 로고    scopus 로고
    • Clinical and Translational Science Award (CTSA) Consortium Community Engagement Key Function Committee and CTSA Community Engagement Workshop Planning Committee, Retrieved January 28, 2010 from
    • Clinical and Translational Science Award (CTSA) Consortium Community Engagement Key Function Committee and CTSA Community Engagement Workshop Planning Committee. (2009). Researchers and their communities: The challenge of meaningful community engagement. Retrieved January 28, 2010 from http://www.aecom.yu.edu/uploadedFiles/ICTR/CE%20Monograph.pdf?n=1851.
    • (2009) Researchers and Their Communities: the Challenge of Meaningful Community Engagement
  • 5
    • 0019888784 scopus 로고
    • Protection of human subjects: Final regulations amending basic hhs policy for the protection of human research subjects (45 cfr 46, subpart a)
    • Department of Health and Human Services (HHS)
    • Department of Health and Human Services (HHS). (1981). Protection of Human Subjects: Final Regulations Amending Basic HHS Policy for the Protection of Human Research Subjects (45 CFR 46, Subpart A). Federal Register, 46, 8366-8391.
    • (1981) Federal Register , vol.46 , pp. 8366-8391
  • 6
    • 0003823374 scopus 로고    scopus 로고
    • Department of Health and Human Services (HHS) , Revised rules (45 CFR 46). Retrieved January 28, from
    • Department of Health and Human Services (HHS). (2009). Protection of human subjects. Revised rules (45 CFR 46). Retrieved January 28, 2010 from http://www.hhs.gov/ohrp/documents/OHRPRegulations.pdf.
    • (2009) Protection of Human Subjects
  • 7
    • 0001122640 scopus 로고    scopus 로고
    • Federal regulations: Protection of human subjects informed consent and waiver of informed consent requirements in certain emergency research: Final rules (21 cfr part 50.24 and 45 cfr 46.101)
    • Department of Health and Human Services (HHS)
    • Department of Health and Human Services (HHS). (1996). Federal regulations: Protection of human subjects informed consent and waiver of informed consent requirements in certain emergency research: Final rules (21 CFR Part 50.24 and 45 CFR 46.101). Federal Register, 61 (192), 51497-51531.
    • (1996) Federal Register , vol.61 , Issue.192 , pp. 51497-51531
  • 8
    • 12944295083 scopus 로고    scopus 로고
    • Ethics review of social, behavioral, and economic research: Where should we go from here?
    • DEVRIES, R., DEBRUIN, D. A., & GOODGAME, A. (2004). Ethics review of social, behavioral, and economic research: Where should we go from here? Ethics and Behavior, 14 (4), 351-368.
    • (2004) Ethics and Behavior , vol.14 , Issue.4 , pp. 351-368
    • Devries, R.1    Debruin, D.A.2    Goodgame, A.3
  • 10
    • 0035279972 scopus 로고    scopus 로고
    • Moral reasoning and the review of research involving human subjects
    • ECKENWILER, L. (2001). Moral reasoning and the review of research involving human subjects. Kennedy Institute of Ethics Journal, 11 (1), 37-69.
    • (2001) Kennedy Institute of Ethics Journal , vol.11 , Issue.1 , pp. 37-69
    • Eckenwiler, L.1
  • 12
    • 34447520004 scopus 로고    scopus 로고
    • Ethical dilemmas in Community-Based participatory research: Recommendations for institutional review boards
    • FLICKER, S., TRAVERS, R., GUTA, A., MCDONALD, S., & MEAGHER, A. (2007). Ethical dilemmas in community-based participatory research: Recommendations for institutional review boards. Journal of Urban Health, 84 (4), 478-493.
    • (2007) Journal of Urban Health , vol.84 , Issue.4 , pp. 478-493
    • Flicker, S.1    Travers, R.2    Guta, A.3    McDonald, S.4    Meagher, A.5
  • 13
    • 41449087024 scopus 로고    scopus 로고
    • Group risks, risks To groups, and group engagement in genetics research
    • HAUSMAN, D. (2008a). Group risks, risks to groups, and group engagement in genetics research. Kennedy Institute of Ethics Journal, 17 (4), 351-369.
    • (2008) Kennedy Institute of Ethics Journal , vol.17 , Issue.4 , pp. 351-369
    • Hausman, D.1
  • 14
    • 42949136366 scopus 로고    scopus 로고
    • Protecting groups from genetic research
    • HAUSMAN, D. (2008b). Protecting groups from genetic research. Bioethics, 22 (3), 157-165.
    • (2008) Bioethics , vol.22 , Issue.3 , pp. 157-165
    • Hausman, D.1
  • 15
    • 77949832569 scopus 로고    scopus 로고
    • Havasupai Tribe of Havasupai Reservation v. Arizona Board of Regents, P.3d, (Ariz. Ct. App.)
    • Havasupai Tribe of Havasupai Reservation v. Arizona Board of Regents. (2008). 204 P.3d 1063 (Ariz. Ct. App.).
    • (2008) , vol.204 , pp. 1063
  • 16
    • 0031839915 scopus 로고    scopus 로고
    • Review of Community-Based research: Assessing partnership approaches To improve public health
    • ISRAEL, B. A., SCHULZ, A. J., PARKER, E., & Becker, A. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Ann. Rev. Public Health, 19, 173-202.
    • (1998) Ann. Rev. Public Health , vol.19 , pp. 173-202
    • Israel, B.A.1    Schulz, A.J.2    Parker, E.3    Becker, A.4
  • 18
    • 2542448846 scopus 로고    scopus 로고
    • &, Relationships in research: A new paradigm. In N. King & J. Stein (Eds.), Chapel Hill, NC: University of North Carolina Press
    • KING, N., HENDERSON, G., & STEIN, J. (1999). Relationships in research: A new paradigm. In N. King & J. Stein (Eds.), Beyond regulations: Ethics in human subjects research (pp. 1-18). Chapel Hill, NC: University of North Carolina Press.
    • (1999) Beyond Regulations: Ethics in Human Subjects Research , pp. 1-18
    • King, N.1    Henderson, G.2    Stein, J.3
  • 19
    • 35848962694 scopus 로고    scopus 로고
    • Communityacademic research partnerships with vulnerable populations
    • LESSER, J. & OSCÓS-SÁNCHEZ, M. A. (2007). Communityacademic research partnerships with vulnerable populations. Annual Review of Nursing Research, 25, 317-337.
    • (2007) Annual Review of Nursing Research , vol.25 , pp. 317-337
    • Lesser, J.1    Oscós-Sánchez, M.A.2
  • 20
    • 33750450564 scopus 로고    scopus 로고
    • "it's like tuskegee in reverse": A case study of ethical tensions in institutional review board review of Community-Based participatory research
    • MALONE, R. E., YERGER, V. B., MCGRUDER, C., & FROELICHER, E. (2006). "It's like Tuskegee in reverse": A case study of ethical tensions in institutional review board review of community-based participatory research. American Journal of Public Health, 96 (11), 1914-1919.
    • (2006) American Journal of Public Health , vol.96 , Issue.11 , pp. 1914-1919
    • Malone, R.E.1    Yerger, V.B.2    McGruder, C.3    Froelicher, E.4
  • 21
    • 0004309922 scopus 로고
    • Notre Dame, IN: University of Notre Dame Press
    • MAY, L. (1987). The morality of groups. Notre Dame, IN: University of Notre Dame Press.
    • (1987) The Morality of Groups
    • May, L.1
  • 22
    • 0032253858 scopus 로고    scopus 로고
    • Vulnerability: Reflection on its ethical implications for the protection of participants in samhsa programs
    • MCGOVERN, T. F. (1998). Vulnerability: Reflection on its ethical implications for the protection of participants in SAMHSA programs. Ethics and Behavior, 8 (4), 293-304.
    • (1998) Ethics and Behavior , vol.8 , Issue.4 , pp. 293-304
    • McGovern, T.F.1
  • 25
    • 33745503505 scopus 로고    scopus 로고
    • New challenges facing interinstitutional social science and educational program evaluation research at academic health centers: A case study from the elam program
    • MORAHAN, P. S., YAMAGATA, H., MCDADE, S. A., RICHMAN, R., FRANCIS, R., & Odhner, V. C. (2006). New challenges facing interinstitutional social science and educational program evaluation research at academic health centers: A case study from the ELAM program. Academic Medicine, 81 (6), 527-534.
    • (2006) Academic Medicine , vol.81 , Issue.6 , pp. 527-534
    • Morahan, P.S.1    Yamagata, H.2    McDade, S.A.3    Richman, R.4    Francis, R.5    Odhner, V.C.6
  • 26
    • 0012783288 scopus 로고
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Retrieved January 28, from
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1976). Research involving prisoners. Retrieved January 28, 2010 from http://www.bioethics.gov/reports/pastcommissions/ Researchinvolving-prisoners.pdf.
    • (1976) Research Involving Prisoners
  • 27
    • 0003999254 scopus 로고
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Retrieved January 28, from
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1977). Research involving children. Retrieved January 28, 2010 from http://www.bioethics.gov/reports/past-commissions/Research- involving-children. pdf.
    • (1977) Research Involving Children
  • 28
    • 0003392972 scopus 로고
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Retrieved January 28, from
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1979). The Belmont report: Ethical principles and guidelines for the protection of human subjects of research. Retrieved January 28, 2010 from http://ohsr.od.nih.gov/guidelines/belmont.html.
    • (1979) The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research
  • 29
    • 12944317476 scopus 로고    scopus 로고
    • Group agency and group rights
    • In I. Shapiro & W. Kymlicka (Eds.), New York, NY: New York University Press
    • NICKEL, J. (1997). Group agency and group rights. In I. Shapiro & W. Kymlicka (Eds.), Ethnicity and group rights: Nomos XXXIX (pp. 235-256). New York, NY: New York University Press.
    • (1997) Ethnicity and Group Rights: Nomos , vol.39 , pp. 235-256
    • Nickel, J.1
  • 31
  • 32
    • 0034585711 scopus 로고    scopus 로고
    • Protecting the human subjects of social science research-the role of institutional review boards
    • REYNOLDS, D. (2000). Protecting the human subjects of social science research-The role of institutional review boards. Bioethics Forum, 16 (4), 31-36.
    • (2000) Bioethics Forum , vol.16 , Issue.4 , pp. 31-36
    • Reynolds, D.1
  • 33
    • 0002616532 scopus 로고
    • Problems of screening and counseling in the hemoglobinopathies
    • In A. G. Motulsky & W. Lenz (Eds.), Amsterdam, The Netherlands: Excerpta Medica
    • STAMATOYANNOPOULOS, G. (1974). Problems of screening and counseling in the hemoglobinopathies. In A. G. Motulsky & W. Lenz (Eds.), Birth defects (pp. 268-276). Amsterdam, The Netherlands: Excerpta Medica.
    • (1974) Birth Defects , pp. 268-276
    • Stamatoyannopoulos, G.1
  • 35
    • 80052211160 scopus 로고    scopus 로고
    • Yale CARE (Clinical Alliance for Research and Engagement) Ethical Principles of Engagement Committee, Retrieved January 28, from
    • Yale CARE (Clinical Alliance for Research and Engagement) Ethical Principles of Engagement Committee. (2009). Principles and guidelines for community-university research partnerships. Retrieved January 28, 2010 from http://ycci.yale.edu/resources/docs/PrinciplesforU-CPs-001.pdf.
    • (2009) Principles and Guidelines for Community-university Research Partnerships


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