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1
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42949152995
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2002. The complete text can be found at
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a2002. The complete text can be found at http://www4.od.nih.gov/oba.
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2
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42949173590
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Sissela Bok draws this distinction, though she does not use this terminology. S. Bok. 2000. Freedom and Risk. In Limits of Scientific Inquiry. G. Holton and R. Morison, eds. New York: W.W. Norton, pp. 115-127.
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Sissela Bok draws this distinction, though she does not use this terminology. S. Bok. 2000. Freedom and Risk. In Limits of Scientific Inquiry. G. Holton and R. Morison, eds. New York: W.W. Norton, pp. 115-127.
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3
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34250657398
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Third-Party and Group Risks in Research: Can IRBs Address Them?
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no. For a contrasting view, see
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D. Hausman. Third-Party and Group Risks in Research: Can IRBs Address Them? IRB : 2007 29, no. 3 : 1 5.
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(2007)
IRB
, vol.29
, Issue.3
, pp. 1-5
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Hausman, D.1
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4
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33748497614
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Protecting Third Parties in Research
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D. Resnik R. Sharp. Protecting Third Parties in Research. IRB 2006 28 : 1 7.
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(2006)
IRB
, vol.28
, pp. 1-7
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Resnik, D.1
Sharp, R.2
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5
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42949137087
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The relevant statutes could be written to limit IRB review of risks to third parties to research on human subjects. But then one would need two different organizations to protect third parties. The distinction between structured and identifying groups permits a response to the problem of how to apply guidelines developed to protect aboriginal communities to groups such as Ashkenazi Jews, which is identified by
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The relevant statutes could be written to limit IRB review of risks to third parties to research on human subjects. But then one would need two different organizations to protect third parties.
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6
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0032721509
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Protecting Communities in Research: Current Guidelines and Limits of Extrapolation
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1999.
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C. Weijer, G. Goldsand E. Emanuel. 1999. Protecting Communities in Research: Current Guidelines and Limits of Extrapolation. Nat Genet 1999 23 : 275 280.
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(1999)
Nat Genet
, vol.23
, pp. 275-280
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Weijer, C.1
Goldsand, G.2
Emanuel, E.3
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7
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41449087024
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Group Risks, Risks to Groups and Group Engagement in Genetics Research
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forthcoming.
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D. Hausman. Group Risks, Risks to Groups and Group Engagement in Genetics Research. Kennedy Inst Ethics J forthcoming.
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Kennedy Inst Ethics J
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Hausman, D.1
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8
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42949131758
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Recall that what I am calling 'stereotyping' is by definition an outcome-related harm to an identifying group. In ordinary usage of the word, stereotyping need not be harmful.
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Recall that what I am calling 'stereotyping' is by definition an outcome-related harm to an identifying group. In ordinary usage of the word, stereotyping need not be harmful.
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9
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42949143768
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Many real-world cases lie in-between integration and independence. Although federally recognized Tribes in the United States are not independent, they are not integrated either. Past treaties and current law recognize their sovereignty with respect to certain matters. Practical application of the principles governing the two polar cases I shall discuss will depend on the details of the particular case. Although Sharp and Foster do not draw the same distinctions among groups that I do, they also argue in favor of group engagement that does not include a requirement of group consent. See
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Many real-world cases lie in-between integration and independence. Although federally recognized Tribes in the United States are not independent, they are not integrated either. Past treaties and current law recognize their sovereignty with respect to certain matters. Practical application of the principles governing the two polar cases I shall discuss will depend on the details of the particular case.
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10
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0034153572
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Involving Study Populations in the Review of Genetic Research
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R. Sharp M. Foster. Involving Study Populations in the Review of Genetic Research. J Law Med Ethics 2000 28 : 41 51
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(2000)
J Law Med Ethics
, vol.28
, pp. 41-51
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Sharp, R.1
Foster, M.2
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11
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0034329408
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Groups, Communities, and Contested Identities in Genetic Research
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D. Davis. Groups, Communities, and Contested Identities in Genetic Research. Hastings Cent Rep 2000 30-6 : 38 45.
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(2000)
Hastings Cent Rep
, vol.306
, pp. 38-45
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Davis, D.1
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12
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42949135573
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J. Cohen & J. Rogers. 1995. Associations and Democracy. Ed. Erik Wright. London: Verso. O. Renn, T. Webler, and P. Wiedemann. 1996. Fairness and Competence in Citizen Participation: Evaluating Models for Environmental Discourse. Dordrecht: Kluwer. See
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J. Cohen & J. Rogers. 1995. Associations and Democracy. Ed. Erik Wright. London: Verso. O. Renn, T. Webler, and P. Wiedemann. 1996. Fairness and Competence in Citizen Participation: Evaluating Models for Environmental Discourse. Dordrecht: Kluwer.
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13
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0033358544
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The Role of Community Review in Evaluating the Risks of Human Genetic Variation Research
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and Sharp and Foster Ibid.
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M. Foster et al. The Role of Community Review in Evaluating the Risks of Human Genetic Variation Research. American Journal of Human Genetics 1999 64 : 1719 1727
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(1999)
American Journal of Human Genetics
, vol.64
, pp. 1719-1727
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Foster, M.1
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14
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0032231948
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Group Identity and Human Diversity: Keeping Biology Straight from Culture
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and Davis op. cit.
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E. Juengst. Group Identity and Human Diversity: Keeping Biology Straight from Culture. Am J Hum Genet 1998 63 : 673 677
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(1998)
Am J Hum Genet
, vol.63
, pp. 673-677
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Juengst, E.1
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