-
1
-
-
34248370994
-
The Huntington's disease quality of life battery for carers: reliablity and validity
-
Aubeeluck A, Buchanan H. The Huntington's disease quality of life battery for carers: reliablity and validity. Clinical Genetics 2007, 71:434-445.
-
(2007)
Clinical Genetics
, vol.71
, pp. 434-445
-
-
Aubeeluck, A.1
Buchanan, H.2
-
2
-
-
29144485926
-
ScoreRel CI: software for computation of confidence intervals of commonly used score reliability coefficients
-
Barnette J. ScoreRel CI: software for computation of confidence intervals of commonly used score reliability coefficients. Educational and Psychological Measurement 2005, 65(6):980-983.
-
(2005)
Educational and Psychological Measurement
, vol.65
, Issue.6
, pp. 980-983
-
-
Barnette, J.1
-
3
-
-
0013218415
-
-
3rd edn, Oxford University Press, Oxford
-
Bates G, Harper P, Jones L. Huntington's Disease 2002, 3rd edn, Oxford University Press, Oxford
-
(2002)
Huntington's Disease
-
-
Bates, G.1
Harper, P.2
Jones, L.3
-
4
-
-
16844366312
-
-
Retrieved from on 15 August 2008
-
The National Service Framework for Long-Term Conditions 2005, http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4105361, Retrieved from on 15 August 2008
-
(2005)
The National Service Framework for Long-Term Conditions
-
-
-
5
-
-
77449110868
-
-
Retrieved from on 14 August, 2008
-
Long-Term Conditions: High Level Outcomes 2008, http://www.dh.gov.uk/en/Healthcare/Longtermconditions/DH_084295, Retrieved from on 14 August, 2008
-
(2008)
Long-Term Conditions: High Level Outcomes
-
-
-
6
-
-
33644828157
-
Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers
-
Depp C, Sorocco K, Kast-Godley J, Thompson L, Rabinowitz Y, Gallagher-Thompson D. Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry 2005, 13(9):787-794.
-
(2005)
American Journal of Geriatric Psychiatry
, vol.13
, Issue.9
, pp. 787-794
-
-
Depp, C.1
Sorocco, K..2
Kast-Godley, J.3
Thompson, L.4
Rabinowitz, Y.5
Gallagher-Thompson, D.6
-
7
-
-
0037490199
-
Cognitive interviewing: verbal data in the design and pretesting of questionnaires
-
Drennan J. Cognitive interviewing: verbal data in the design and pretesting of questionnaires. Journal of Advanced Nursing 2003, 42(1):57-63.
-
(2003)
Journal of Advanced Nursing
, vol.42
, Issue.1
, pp. 57-63
-
-
Drennan, J.1
-
8
-
-
58149239796
-
Legal update: living with the Genetic Information Nondiscrimination Act
-
Erwin C. Legal update: living with the Genetic Information Nondiscrimination Act. Genetics in Medicine 2008, 10(12):869-873.
-
(2008)
Genetics in Medicine
, vol.10
, Issue.12
, pp. 869-873
-
-
Erwin, C.1
-
9
-
-
33845627824
-
What is it to be a daughter? Identities under pressure in dementia
-
Goldsteen M, Abma T, Oeseburg B, Verkerk M, Verhey F, Widdershoven G. What is it to be a daughter? Identities under pressure in dementia. Bioethics 2007, 21(1):1-12.
-
(2007)
Bioethics
, vol.21
, Issue.1
, pp. 1-12
-
-
Goldsteen, M.1
Abma, T.2
Oeseburg, B.3
Verkerk, M.4
Verhey, F.5
Widdershoven, G.6
-
10
-
-
45549101363
-
Keeping pace with the times - the Genetic Information Nondiscrimination Act of 2008
-
Hudson KL, Holohan JD, Collins FS. Keeping pace with the times - the Genetic Information Nondiscrimination Act of 2008. New England Journal of Medicine 2008, 358(25):2661-2663.
-
(2008)
New England Journal of Medicine
, vol.358
, Issue.25
, pp. 2661-2663
-
-
Hudson, K.L.1
Holohan, J.D.2
Collins, F.S.3
-
11
-
-
77956417818
-
-
Retrieved from on 30 January 2009
-
Our Mission 2009, http://www.hdsa.org/about/our-mission.html, Retrieved from on 30 January 2009
-
(2009)
Our Mission
-
-
-
12
-
-
15044344589
-
'The edge effect': an exploratory study of some factors affecting referrals to cancer genetic services in rural Wales
-
Iredale R, Jones L, Gray J, Deaville J. 'The edge effect': an exploratory study of some factors affecting referrals to cancer genetic services in rural Wales. Health Place 2005, 11(3):197-204.
-
(2005)
Health Place
, vol.11
, Issue.3
, pp. 197-204
-
-
Iredale, R.1
Jones, L.2
Gray, J.3
Deaville, J.4
-
13
-
-
0027377930
-
Forgotten person in the Huntington's disease family
-
Kessler S. Forgotten person in the Huntington's disease family. American Journal of Medical Genetics 1993, 48:145-150.
-
(1993)
American Journal of Medical Genetics
, vol.48
, pp. 145-150
-
-
Kessler, S.1
-
14
-
-
47949103529
-
Survey of community-based programs serving U.S. familes with Huntington's disease: perceived barriers and facilitators in the residential placement process
-
Lechich AJ, Lovecksy D, Moskowitz C, Montas S, Duckett A, Pae A, Knoblauch K, Saks D, Toliver D, Fogarty E, Pollard J. Survey of community-based programs serving U.S. familes with Huntington's disease: perceived barriers and facilitators in the residential placement process. Care Management Journals 2008, 9(2):65-74.
-
(2008)
Care Management Journals
, vol.9
, Issue.2
, pp. 65-74
-
-
Lechich, A.J.1
Lovecksy, D.2
Moskowitz, C.3
Montas, S.4
Duckett, A.5
Pae, A.6
Knoblauch, K.7
Saks, D.8
Toliver, D.9
Fogarty, E.10
Pollard, J.11
-
15
-
-
0003784156
-
-
2nd edn, Sage Publications, Thousand Oaks, CA
-
Miles MB, Huberman AM. Qualitative Data Analysis: An Expanded Sourcebook 1994, 2nd edn, Sage Publications, Thousand Oaks, CA
-
(1994)
Qualitative Data Analysis: An Expanded Sourcebook
-
-
Miles, M.B.1
Huberman, A.M.2
-
16
-
-
84870886260
-
-
Retrieved from on 3 March 2009
-
About Us 2009, http://www.nccdp.org/about.htm, Retrieved from on 3 March 2009
-
(2009)
About Us
-
-
-
17
-
-
60849099131
-
The US health care system: Part 1: Our current system
-
Epub 2008 Oct 29
-
Nuwer MR, Esper GJ, Donofrio PD, Szaflarski JP, Barkley GL, Swift TR. The US health care system: Part 1: Our current system. Neurology 2008, 71(23):1907-1913. Epub 2008 Oct 29
-
(2008)
Neurology
, vol.71
, Issue.23
, pp. 1907-1913
-
-
Nuwer, M.R.1
Esper, G.J.2
Donofrio, P.D.3
Szaflarski, J.P.4
Barkley, G.L.5
Swift, T.R.6
-
18
-
-
49449110043
-
Fear of health insurance loss among individuals at risk for Huntington disease
-
Oster E, Dorsey ER, Bausch J, Shinaman A, Kayson E, Oakes D, Shoulson I, Quaid K. Fear of health insurance loss among individuals at risk for Huntington disease. American Journal of Medical Genetics Part A 2008, 146A(16):2070-2077.
-
(2008)
American Journal of Medical Genetics Part A
, vol.146 A
, Issue.16
, pp. 2070-2077
-
-
Oster, E.1
Dorsey, E.R.2
Bausch, J.3
Shinaman, A.4
Kayson, E.5
Oakes, D.6
Shoulson, I.7
Quaid, K.8
-
20
-
-
42149107453
-
Perceptions of genetic discrimination among persons who have undergone predictive testing for Huntington disease
-
Penziner E, Williams JK, Erwin C, Wallis A, Bombard Y, Beglinger L, Hayden M, Paulsen J. Perceptions of genetic discrimination among persons who have undergone predictive testing for Huntington disease. American Journal of Medical Genetics Part B 2008, 147B:320-325.
-
(2008)
American Journal of Medical Genetics Part B
, vol.147 B
, pp. 320-325
-
-
Penziner, E.1
Williams, J.K.2
Erwin, C.3
Wallis, A.4
Bombard, Y.5
Beglinger, L.6
Hayden, M.7
Paulsen, J.8
-
22
-
-
0031584044
-
Using research to develop care for patients with Huntington's disease
-
Skirton H, Glendinning N. Using research to develop care for patients with Huntington's disease. British Journal of Nursing 1997, 6(2):83-90.
-
(1997)
British Journal of Nursing
, vol.6
, Issue.2
, pp. 83-90
-
-
Skirton, H.1
Glendinning, N.2
-
23
-
-
40449133951
-
Addressing the health disadvantage of rural populations: how does epidemiological evidence inform rural health policies and research?
-
Smith KB, Humphreys JS, Wilson MG. Addressing the health disadvantage of rural populations: how does epidemiological evidence inform rural health policies and research? Australian Journal of Rural Health 2008, 16(2):56-66.
-
(2008)
Australian Journal of Rural Health
, vol.16
, Issue.2
, pp. 56-66
-
-
Smith, K.B.1
Humphreys, J.S.2
Wilson, M.G.3
-
24
-
-
33847683050
-
Predictive testing for Huntington's disease
-
Tibben A. Predictive testing for Huntington's disease. Brain Research Bulletin 2007, 72:165-171.
-
(2007)
Brain Research Bulletin
, vol.72
, pp. 165-171
-
-
Tibben, A.1
-
25
-
-
0034640679
-
Psychosocial impact of predictive testing for Huntington disease on support persons
-
Williams JK, Schutte DL, Holkup PA, Evers C, Muilenburg A. Psychosocial impact of predictive testing for Huntington disease on support persons. American Journal of Medical Genetics (Neuropsychiatric Genetics) 2000, 96:353-359.
-
(2000)
American Journal of Medical Genetics (Neuropsychiatric Genetics)
, vol.96
, pp. 353-359
-
-
Williams, J.K.1
Schutte, D.L.2
Holkup, P.A.3
Evers, C.4
Muilenburg, A.5
-
27
-
-
34447562912
-
" No one else sees the difference": family members' perceptions of changes in persons with preclinical Huntington disease
-
Williams JK, Hamilton RJ, Nehl C, McGonigal-Kenney M, Schutte DL, Sparbel KJH, Birrer E, Tripp-Reimer T, Friedrich RM, Penziner E, Jarmon L, Paulsen J. " No one else sees the difference": family members' perceptions of changes in persons with preclinical Huntington disease. American Journal of Medical Genetics Part B 2007, 144B(5):636-641.
-
(2007)
American Journal of Medical Genetics Part B
, vol.144 B
, Issue.5
, pp. 636-641
-
-
Williams, J.K.1
Hamilton, R.J.2
Nehl, C.3
McGonigal-Kenney, M.4
Schutte, D.L.5
Sparbel, K.J.H.6
Birrer, E.7
Tripp-Reimer, T.8
Friedrich, R.M.9
Penziner, E.10
Jarmon, L.11
Paulsen, J.12
-
28
-
-
70349776551
-
Caregiving by teens for family members with Huntington disease
-
Williams JK, Ayres L, Specht J, Sparbel KJH, Klimek ML. Caregiving by teens for family members with Huntington disease. Journal of Family Nursing 2009a, 15(3):273-294.
-
(2009)
Journal of Family Nursing
, vol.15
, Issue.3
, pp. 273-294
-
-
Williams, J.K.1
Ayres, L.2
Specht, J.3
Sparbel, K.J.H.4
Klimek, M.L.5
-
29
-
-
61649083506
-
The emotional experiences of family carers in Huntington disease
-
Williams JK, Skirton H, Paulsen JS, Tripp-Reimer T, Jarmon L, McGonigal-Kenney M, Birrer E, Hennig B, Honeyford J. The emotional experiences of family carers in Huntington disease. Journal of Advanced Nursing 2009b, 65(4):789-798.
-
(2009)
Journal of Advanced Nursing
, vol.65
, Issue.4
, pp. 789-798
-
-
Williams, J.K.1
Skirton, H.2
Paulsen, J.S.3
Tripp-Reimer, T.4
Jarmon, L.5
McGonigal-Kenney, M.6
Birrer, E.7
Hennig, B.8
Honeyford, J.9
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