Survey of community-based programs serving U.S. families with Huntington's disease: Perceived barriers and facilitators in the residential placement process

Care Management Journals

Volumn 9, Issue 2, 2008, Pages 65-74

  Lechich, Anthony J ^a   Lovecky, Deborah ^b   Moskowitz, Carol ^b   Montas, Sybil ^b   Duckett, Ayana ^b   Pae, Anne ^b   Knoblauch, Kathy ^b   Saks, David ^b   Toliver, Dorothy ^b   Fogarty, Eileen ^b   Pollard, James ^b  

^a Terence Cardinal Cooke Health Care Center   (United States)

^b NONE

Author keywords

Access to health care; Huntington's disease; Long term care; Nursing home placement; Physical therapy; Speech swallowing therapy

Indexed keywords

ARTICLE; COMMUNITY CARE; EPIDEMIOLOGY; FAMILY; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HUMAN; HUNTINGTON CHOREA; LONG TERM CARE; NURSING HOME; ORGANIZATION AND MANAGEMENT; PERCEPTION; PSYCHOLOGICAL ASPECT; RESIDENTIAL HOME; UNITED STATES;

COMMUNITY HEALTH SERVICES; FAMILY; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HUMANS; HUNTINGTON DISEASE; LONG-TERM CARE; PROGRAM EVALUATION; RESIDENTIAL FACILITIES; SKILLED NURSING FACILITIES; SOCIAL PERCEPTION; UNITED STATES;

EID: 47949103529     PISSN: 15210987     EISSN: None     Source Type: Journal    
DOI: 10.1891/1521-0987.9.2.65     Document Type: Article

References (8)

1. Bourke, E. (1985, May). Huntington's disease: Easing the transition to longterm care. Paper presented at the conference on Interdisciplinary Strategies for Maximizing Quality of Life, Toronto, Ontario, Canada.
2. Hans, M., & Gilmore, T. (1968). Social aspects of Huntington's chorea. British Journal of Psychiatry, 114, 95.
3. Kagel, M., & Leopold, N. (1992). Dysphagia in Huntington's disease: A 16-year retrospective. Dysphagia, 7, 106.
4. Moskowitz, C. B., & Marder, K. (2001). Palliative care for people with late-stage Huntington's disease, Neurologic Clinics, 19, 850.
5. Nance, M., & Sanders, G. (1996). Characteristics of individuals with Huntington's disease in long-term care. Movement Disorders, 11, 545.
6. Paulsen, J. S., & Hamilton, J. (2002). State of California Huntington Study Group Project Summary. San Diego: University of California Huntington's Disease Research Program.
7. Rosenblatt, A., Ranen, N., Nance, M., & Paulsen, J. (1999). A physician's guide to the management of Huntington's disease. Kitchener, Ontario: Huntington Society of Canada.
8. Wheelock, V. L., Tempkin, T., Marder, K., Nance, M., Myers, R. H., Zhoa, H., et al. (2003). Predictors of nursing home placement in Huntington disease. Neurology, 60, 998-1001.