What is it to be a daughter? Identities under pressure in dementia care

Bioethics

Volumn 21, Issue 1, 2007, Pages 1-12

  Goldsteen, Minke ^a   Abma, Tineke ^b   Oeseburg, Barth ^c   Verkerk, Marian ^c,d   Verhey, Frans ^b,e   Widdershoven, Guy ^b  

^a RIAGG Midden Limburg   (Netherlands)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^d University Medical Center Groningen ^*

^e MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Dementia; Family caregivers; Identity; Normative expectations; Responsibilities

Indexed keywords

ARTICLE; CAREGIVER; CONCEPTUAL FRAMEWORK; DEMENTIA; ETHICAL THEORY; FAMILY; HUMAN; IDENTITY; MEDICAL CARE; MEDICAL PRACTICE ACT; PATIENT CARE; RESPONSIBILITY; SOCIAL ENVIRONMENT; VOCATIONAL GUIDANCE;

CAREGIVERS; DEMENTIA; FAMILY; FEMALE; HUMANS; SOCIAL RESPONSIBILITY; STRESS, PSYCHOLOGICAL;

EID: 33845627824     PISSN: 02699702     EISSN: 14678519     Source Type: Journal    
DOI: 10.1111/j.1467-8519.2007.00518.x     Document Type: Article

References (25)

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4. P.P. Vitaliano et al. Predictors of burden in spouse caregivers of individuals with Alzheimer's disease. Psychol Aging 1991; 6: 392-402.
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9. M.U. Walker. 1998. Moral Understandings. A feminist study in ethics. New York / London: Routledge: 110.
10. M.U. Walker. 1998. Moral Understandings. A feminist study in ethics. Ibid: 120.
11. R.E. Stake. 1994. Case Studies. In The Handbook for Qualitative Research. N.K. Denzin & Y.S. Lincoln, eds. Thousand Oaks, C.A.: Sage: 236-247.
12. M.U. Walker. 1998. Moral Understandings. A feminist study in ethics. New York / London: Routledge.
13. C.A. Baan, J.B.F. Hutten & P.M. Rijken eds. 2003. Coordination of care. A study into the care for people with a chronic condition. Bilthoven: RIVM.
14. Carolien Franssen is not her real name but a pseudonym.
15. Since 1998 there is a regulation in Dutch healthcare that anyone who wants to be eligible for financed care needs to submit an application to the 'RIO'. The RIO is an institution that makes recommendations regarding the care that is needed in a given situation.
16. In policy and legislation concerning the indication and allocation of care the demands of the client are seen as the starting point in the process of individual needs assessment. A client is considered as an independent civilian who takes the responsibility for his situation himself as long as possible. When he is not able anymore to take care of his own situation, he can submit an application for professional care. A representative is expected to look after a client's interests in case he is not able to determine his position himself. In the official policy documents a model of autonomy is used that is based on the notion of informed consent; clients receive information and are supposed to formulate their needs independently and well-considered. If the clients are unable to make decisions for themselves, a representative should act on their behalf. On the basis of the client's wishes, the RIO will provide an objective expert judgement about the level of care needed. The statements of Carolien Franssen can be interpreted as a criticism against the consumer-directed care model.
17. Recently in Dutch healthcare people can ask for a personal budget with which they are able to buy the care that is indicated.
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20. H.L. Nelson. 2003. On the mend: Narratives of repair, manuscript, unpublished.
21. M.U. Walker. 1998. Moral Understandings. A feminist study in ethics. New York / London: Routledge.
22. W. Moyle, H. Edwards & M. Clinton. Living with loss: Dementia and the family caregiver. Aust J Adv Nurs 2002; 19, no. 3: 25-31;
23. A. Phinney & C.A. Chesla. The lived body in dementia. J Aging Stud 2003; 17: 283-299.
24. M.U. Walker. 1998. Moral Understandings. A feminist study in ethics. New York / London: Routledge.
25. M.U. Walker. 1998. Moral Understandings. A feminist study in ethics. Ibid: 16.