Lessons from Use of the Pediatric Evaluation of Disability Inventory: Where Do We Go from Here?

Pediatric Physical Therapy

Volumn 22, Issue 1, 2010, Pages 69-75

  Haley, Stephen M ^a   Coster, Wendy I ^b,c   Kao, Ying Chia ^b   Dumas, Helene M ^d   Fragala Pinkham, Maria A ^d   Kramer, Jessica M ^b   Ludlow, Larry H ^e   Moed, Richard ^f  

^a Health and Disability Research Institute   (United States)

^b BOSTON UNIVERSITY SCHOOL OF PUBLIC HEALTH   (United States)

^c Physical Therapy and Athletic Training   (United States)

^d BOSTON UNIVERSITY   (United States)

^e FRANCISCAN HOSPITAL FOR CHILDREN   (United States)

^f BOSTON COLLEGE   (United States)

Author keywords

Activities of daily living; Adolescent; Child; Computing methodologies; Cultures; Disability evaluation; Outcome assessment; Psychometrics

Indexed keywords

CHILD; CHILD DEVELOPMENT; COMPUTER SYSTEM; CULTURAL COMPETENCE; DAILY LIFE ACTIVITY; DISABILITY; HANDICAPPED CHILD; HUMAN; ORGANIZATION AND MANAGEMENT; PHYSIOTHERAPY; REVIEW; TREATMENT OUTCOME;

ACTIVITIES OF DAILY LIVING; CHILD; CHILD DEVELOPMENT; COMPUTER SYSTEMS; CULTURAL COMPETENCY; DISABILITY EVALUATION; DISABLED CHILDREN; HUMANS; PHYSICAL THERAPY MODALITIES; TREATMENT OUTCOME;

EID: 76849083904     PISSN: 08985669     EISSN: 1538005X     Source Type: Journal    
DOI: 10.1097/PEP.0b013e3181cbfbf6     Document Type: Review

References (62)

1. Haley SM, Coster WJ, Ludlow LH, et al. Pediatric Evaluation of Disability Inventory: Development, Standardization and Administration Manual. Boston, MA: Trustees of Boston University; 1992.
2. Cella D, Gershon R, Lai J, Choi S. The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment. Qual Life Res. 2007;16:133-141.
3. Jette AM, Haley SM. Contemporary measurement techniques for rehabilitation outcomes assessment. J Rehabil Med. 2005;37:339-345.
4. Ware JE Jr, Gandek B, Sinclair SJ, et al. Item response theory in computer adaptive testing: implications for outcomes measurement in rehabilitation. Rehabil Psychol. 2005;50:71-78.
5. Coster WJ, Haley SM. Conceptualization and measurement of disablement in children. Infants Young Child. 1992;4:11-22.
6. World Health Organization. International Classification of Functioning, Disability and Health. Geneva, Switzerland: World Health Organization; 2001.
7. Case-Smith J. The relationships among sensorimotor components, fine motor skill, and functional performance in preschool children. Am J Occup Ther. 1995;49:645-654.
8. Wright BD, Stone MH. Best Test Design. Chicago, IL: MESA Press; 1979.
9. Hambleton RK. Applications of item response theory to improve health outcomes assessment: developing item banks, linking instruments, and computer-adaptive testing. In: Lipscomb J, Gotay CC, Snyder C, eds. Outcomes Assessment in Cancer. Cambridge, UK: Cambridge University Press; 2005;445-464.
10. Avery LM, Russell DJ, Raina PS, et al. Rasch analysis of the gross motor function measure: validating the assumptions of the Rasch model to create an interval-level measure. Arch Phys Med Rehabil. 2003;84:697-705.
11. Reeve B, Hays R, Chang C, et al. Applying item response theory to enhance health outcomes assessment. Qual Life Res. 2007;16:1-3.
12. Hambleton R, Swaminathan H, Rogers H. Fundamentals of Item Response Theory. Newbury Park, CA: Sage Publications; 1991.
13. Vos-Vromans D, Ketelaar M, Gorter J. Responsiveness of evaluative measures for children with cerebral palsy: the gross motor function measure and the Pediatric Evaluation of Disability Inventory. Disabil Rehabil. 2005;27:1245-1252.
14. Haley SM, Fragala-Pinkham MA. Interpreting change scores of tests and measures used in physical therapy. Phys Ther. 2006;86:735-743.
15. Iyer LV, Haley SM, Watkins MP, et al. Establishing minimal clinically important differences for scores on the Pediatric Evaluation of Disability Inventory for inpatient rehabilitation. Phys Ther. 2003;83:888-898.
16. Haley SM, Ludlow LH, Coster WJ. Pediatric Evaluation of Disability Inventory: clinical interpretation of summary scores using Rasch rating scale methodology. Phys Med Rehabil Clin N Am. 1993;4:529-540.
17. Msall M, Rogers B, Ripstein H, et al. Measurements of functional outcomes in children with cerebral palsy. Ment Retard Dev Disabil Res Rev. 1997;3:194-203.
18. Tokcan G, Haley SM, Gill-Body KM, et al. Item-specific functional recovery in children and youth with acquired brain injury. Pediatr Phys Ther. 2003;15:16-22.
19. Kothari DH, Haley SM, Gill-Body KM, et al. Measuring functional change in children with acquired brain injury: comparison of normative and disease-specific scoring models using the Pediatric Evaluation of Disability Inventory (PEDI). Phys Ther. 2003;83:776-785.
20. Coster WJ, Haley S, Baryza MJ. Functional performance of young children after traumatic brain injury: a 6-month follow-up study. Am J Occup Ther. 1994;48:211-218.
21. Dolva A, Coster W, Lilja M. Functional performance in children with Down syndrome. Am J Occup Ther. 2004;58:621-629.
22. Dolva A, Lilja M, Hemmingsson H. Functional performance characteristics associated with postponing elementary school entry among children with Down syndrome. Am J Occup Ther. 2007;61:414-420.
23. Farmer J, Clippard D, Luehr-Wiemann Y, et al. Assessing children with traumatic brain injury during rehabilitation: promoting school and community reentry. J Learn Disabil. 1996;29:532-548.
24. Awaad Y, Tayem H, Munoz S, et al. Functional assessment following intrathecal baclofen therapy in children with spastic cerebral palsy. J Child Neurol. 2003;18:26-34.
25. ØstensjØ S, Carlberg EB, VØllestad NK. Everyday functioning in young children with cerebral palsy: functional skills, caregiver assistance, and modifications of the environment. Dev Med Child Neurol. 2003;45:603-612.
26. Engelbert RHH, Custers JWH, van der Net J, et al. Functional outcome in osteogenesis imperfecta: disability profiles using the PEDI. Pediatr Phys Ther. 1997;9:18-22.
27. Engelbert RH, Gulmans VA, Uiterwaal CS, et al. Osteogenesis imperfecta in childhood: perceived competence in relation to impairment and disability. Arch Phys Med Rehabil. 2001;82:943-948.
28. Fehlings D, Kirsch S, McComas A, et al. Evaluation of therapeutic electrical stimulation to improve muscle strength and function in children with types II/III spinal muscular atrophy. Dev Med Child Neurol. 2002;44:741-744.
29. Fragala MA, Haley SM, Dumas HM, et al. Classifying mobility recovery in children and youth with brain injury during hospital-based rehabilitation. Brain Inj. 2002;16:149-160.
30. Rodger S, Ziviani J, Watter P, et al. Motor and functional skills of children with developmental coordination disorder: a pilot investigation of measurement issues. Hum Mov Sci. 2003;22:461-478.
31. Dumas HM, Haley SM, Steva BJ. Functional changes during inpatient rehabilitation for children with musculoskeletal diagnosis. Pediatr Phys Ther. 2002;14:85-91.
32. McCarthy ML, Silberstein CE, Atkins EA, et al. Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy. Dev Med Child Neurol. 2002;44:468-476.
33. Hinderer SR, Gupta S. Functional outcome measures to assess interventions for spasticity. Arch Phys Med Rehabil. 1996;77:1083-1089.
34. Dudgeon BJ, Libby AK, McLaughlin JF, et al. Prospective measurement of functional changes after selective dorsal rhizotomy. Arch Phys Med Rehabil. 1994;75:46-53.
35. Dumas HM, Haley SM, Ludlow LH, et al. Functional recovery in pediatric brain injury during inpatient rehabilitation. Am J Phys Med Rehabil. 2002;81:661-669.
36. Dumas H, Haley S, Bedell G, et al. Social function changes in children and adolescents with acquired brain injury during inpatient rehabilitation. Pediatr Rehabil. 2001;4:177-185.
37. Dumas H, Haley S, Fragala MA, et al. Self-care recovery of children with brain injury: descriptive analysis using the Pediatric Evaluation of Disability Inventory (PEDI) functional classification levels. Phys Occup Ther Pediatr. 2001;21:7-27.
38. Flood GM, Dumas HM, Haley SM. Central auditory processing and social functioning following brain injury in children. Brain Inj. 2005;19:1019-1026.
39. Dumas HM, Haley SM, Rabin JP. Short-term durability and improvement of function in traumatic brain injury: a pilot study using the Paediatric Evaluation of Disability Inventory (PEDI) classification levels. Brain Inj. 2001;15:891-902.
40. Haley SM, Dumas HM, Ludlow LH. Mobility outcomes of children and adolescents in an inpatient rehabilitation program: variation by diagnostic and practice pattern groups. Phys Ther. 2001;81:1425-1436.
41. Dumas H, Haley SM, Carey TM, et al. Recovery of ambulation during inpatient rehabilitation: physical therapy prognosis for children and youth with traumatic brain injury. Phys Ther. 2004;84:232-242.
42. Dumas H, Haley S, Ludlow LH. Achieving a minimally important difference in physical function during pediatric inpatient rehabilitation. Int J Rehabil Res. 2008;31:257-260.
43. Dumas HM, Haley S, Carey TM, et al. The relationship between functional mobility and the intensity of physical therapy intervention in children with traumatic brain injury. Pediatr Phys Ther. 2004;16:157-164.
44. Berg M, Jahnsen R, Holm I, et al. Translation of a multi-disciplinary assessment—procedures to achieve functional equivalence. Adv Physiother. 2003;5:57-66.
45. Berg M, Froslashslie K, Hussain A. Applicability of Pediatric Evaluation of Disability Inventory in Norway. Scand J Occup Ther. 2003;10(3):118-126.
46. Custers JWH, Hoijtink H, van der Net J, et al. Cultural differences in functional status measurement: analyses of person fit according to the Rasch model. Qual Life Res. 2000;9:571-578.
47. Custers JWH, Wassenberg-Severijnen JE, van der Net J, et al. Dutch adaptation and content validity of the ‘Pediatric Evaluation of Disability Inventory (PEDI)’. Disabil Rehabil. 2002;24:250-258.
48. Nordmark E, Orban K, Hagglund G, et al. The American Pediatric Evaluation of Disability Inventory (PEDI). Applicability of PEDI in Sweden for children aged 2.0-6.9 years. Scand J Rehabil Med. 1999;31:95-100.
49. Srsen K, Vidmar G, Zupan A. Applicability of the Pediatric Evaluation of Disability Inventory in Slovenia. J Child Neurol. 2005;20:411-416.
50. Erkin G, Elhan A, Aybay C, et al. Validity and reliability of the Turkish translation of the Pediatric Evaluation of Disability Inventory (PEDI). Disabil Rehabil. 2007;29:1271-1279.
51. Gannotti ME, Cruz C. Content and construct validity of a Spanish translation of the Pediatric Evaluation of Disability Inventory for children living in Puerto Rico. Phys Occup Ther Pediatr. 2001;20:7-24.
52. Gannotti ME, Handwerker WP, Groce NE, et al. Sociocultural influences on disability status in Puerto Rican children. Phys Ther. 2001;81:1512-1523.
53. Reid DT, Boschen K, Wright V. Critique of the Pediatric Evaluation of Disability Inventory (PEDI). Phys Occup Ther Pediatr. 1993;13:57-87.
54. Hambleton RK. Principles and selected applications of item response theory. In: Linn RL, ed. Educational Measurement. 3rd ed. New York: American Council on Education-Macmillan Publishing Company; 1989:147-200.
55. Haley S, Ni P, Ludlow L, Fragala-Pinkham M. Measurement precision and efficiency of multidimensional computer adaptive testing of physical functioning using the Pediatric Evaluation of Disability Inventory. Arch Phys Med Rehabil. 2006;87:1223-1229.
56. Allen DD, Ni P, Haley SM. Efficiency and sensitivity of multidimensional computerized adaptive testing of pediatric physical functioning. Disabil Rehabil. 2008;30(6):479-484.
57. Haley S, Ni P, Fragala-Pinkham M, et al. A computer adaptive testing approach for assessing physical function in children and adolescents. Dev Med Child Neurol. 2005;47:113-120.
58. Haley SM, Raczek AE, Coster WJ, et al. Assessing mobility in children using a computer adaptive testing version of the Pediatric Evaluation of Disability Inventory (PEDI). Arch Phys Med Rehabil. 2005;86:932-939.
59. Jacobusse G, van Buuren S. Computerized adaptive testing for measuring development of young children. Stat Med. 2007;26:2629-2638.
60. Haley SM, Ni P, Dumas HD, et al. Measuring global physical health in children with cerebral palsy: illustration of a bi-factor model and computerized adaptive testing. Qual Life Res. 2009;18:359-365.
61. Haley S, Fragala-Pinkham M, Dumas H, et al. Evaluation of an item bank for a computerized adaptive assessment of physical activity in children with cerebral palsy. Phys Ther. 2009;89 589-600.
62. Mulcahey MJ, Haley SM, Duffy T, Pengsheng N, Betz RR. Measuring physical functioning in children with spinal impairments with computerized adaptive testing. J Pediatr Orthop. 2008;28(3):330-335.